Mari Carmen Portillo
Biographic Data
| ID | 149272 |
|---|---|
| NAME | Mari Carmen Portillo |
| GIVEN NAMES | Mari Carmen |
| FAMILY NAME | Portillo |
| SIGNATURE | PORTILLO M C |
| AFFILIATIONS | University of Southampton |
| ORCID | 0000-0003-1583-6612 |
| VERIFIED | Yes |
| TOTAL WORKS | 20 |
| TOTAL CITATIONS | 7 |
| AUTHOR COUNT | 20 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2015 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
Co‐Design of a New Integrated Care Model With People Affected by Huntington's Disease: A Mixed Methods Study
BACKGROUND: People living with neurological conditions have needs that require an integrated care approach. Existing models of integrated care have often emphasized system structures but neglected the micro-level interactions that matter most to people. OBJECTIVES: To develop a micro-level model for integrated care that represents the care components most valued by people affected by Huntington's disease (HD). METHODS: A mixed methods study with …
Building collaborative and sustainable partnerships in long term conditions care
Management of Parkinson’s in the Community: Interests and Expectations of People Living with Parkinson’s, Family Carers, Healthcare Professionals and Stakeholders in Spain
This study aimed to explore the interests and expectations of people living with Parkinson's disease (PD), family carers, health and social care professionals, and key stakeholders regarding relevant systems of support and community resources for PD management. As part of the OPTIM-PARK project (Optimisation of Community Resources and Systems of Support to Enhance the Process of Living with PD), an exploratory qualitative study was conducted in S…
Mapping how responsibility for poor diets is framed in the United Kingdom: A scoping review
Objective: To identify and present (i) how responsibility for poor diets in the UK is framed across the public, mass media and the government and (ii) how groups experiencing socio-economic disadvantage are presented within this framing. Design: A scoping review of peer-reviewed literature was conducted using six databases. A systematic narrative synthesis guided by qualitative content analysis was applied to summarise the findings. Results: Thir…
Assessing integrated care from the perspective of people living with Huntington’s Disease in England: Integrate-HD
This paper will present the results of a national survey in England that assessed integrated care from the perspective of service users living with a rare neurodegenerative condition, Huntington’s Disease (HD). It is part of the Integrate-HD project that seeks to develop an integrated care model that responds to the complex needs of people and families living with this genetic hereditary disorder. The first phase of the project found a lack of ev…
Patient and public involvement in integrated care: Adding value to research
Although patient and public involvement (PPI) in increasingly a buzz term in research, much of our experience tells us PPI can sometimes be a ticking-box exercise, instead of adding true value to research. We mean to share our PPI work in our project, to get colleagues to consider applying some of our PPI activities in their own ongoing and future research and service evaluations. This is a poster summarising patient and public involvement and en…
Person‐centred integrated care for people living with Parkinson's, Huntington's and Multiple Sclerosis: A systematic review
Understanding support systems for Parkinson's disease management in community settings: A cross‐national qualitative study
BACKGROUND: Health and social care systems face difficulties in managing multimorbidity, disease burden and complex needs in long-term conditions such as Parkinson's disease. OBJECTIVE: This study aimed to develop a European understanding of how health and social care professionals can collaborate with stakeholders from different organizations and sectors to enhance the management of Parkinson's disease in a community setting by identifying the e…
Role of Social Prescribing Link Workers in Supporting Adults with Physical and Mental Health Long-Term Conditions: Integrative Review
Social prescribing link workers interventions have been widely adopted within healthcare systems, particularly in the UK, to support a range of patients’ needs and to help improve condition management for those living with multiple long-term conditions. However, there is a lack of consistency in implementation and unclear guidance about how social prescribing link workers might address these needs, particularly in individuals living with physical…
The influence of social relationships and activities on the health of adults with obesity: A qualitative study
BACKGROUND: Obesity in adults is a leading health challenge that causes millions of deaths worldwide and represents a risk factor for developing long-term conditions. Social relationships are one of the multiple drivers shaping obesity and obesity-related practices. However, there is still little evidence as to the processes by which relationships influence the adoption of positive and negative obesity health-related practices-eating, physical ac…
Exploring health and social services in Denmark, Norway, Spain and the United Kingdom for the development of Parkinson's care pathways. A document analysis
People with Parkinson's disease (PD) may find it difficult to identify and access the wide number of services they need and are entitled to along their complex PD journey. As part of the project OPTIM-PARK - Optimisation of community resources and systems of support to enhance the process of living with Parkinson's Disease, document analysis was developed to create overviews of existing resources and systems of support in Denmark, Norway, Spain a…
Living with Chronic Illness Scale: International validation through the classic test theory and Rasch analysis among Spanish‐speaking populations with long‐term conditions
BACKGROUND: The Living with Chronic Illness (LW-CI) Scale is a comprehensive patient-reported outcome measure that evaluates the complex process of living with long-term conditions. OBJECTIVE: This study aimed to analyse the psychometric properties of the LW-CI scale according to the classic test theory and the Rasch model among individuals living with different long-term conditions. DESIGN: This was an observational, international and cross-sect…
The Determinants of Living with Long-Term Conditions: An International Cross-Sectional Study
It is essential that healthcare and social professionals understand the daily lives of people with chronic diseases, and the variables that influence them. The aim of this study was to identify the determinants influencing the process of living with long-term conditions. To investigate this, an observational, international, cross-sectional study was carried out. A consecutive sample of 1788 Spanish-speaking population living with chronic obstruct…
Psychosocial Adjustment to Illness Scale in family caregivers of patients with Parkinson’s Disease: Spanish validation study
Psychosocial adjustment to a complex and disabling long-term condition like Parkinson ́s disease is a complex, dynamic, cyclical and interactive process. Family caregivers, face multiple challenges that require a significant effort in terms of psychosocial adjustment, which must be considered by healthcare professionals in order to provide a holistic care. The patients' self-report version of the Psychosocial Adjustment to Illness Scale (PAIS-SR)…
Stakeholders in support systems for self‐care for chronic illness: The gap between expectations and reality regarding their identity, roles and relationships
BACKGROUND AND OBJECTIVE: The spread of self-care holds the promise of containing chronic illness burden. Falling within the framework of a FP7 collaborative research project, this paper reports the views of key informants from six countries regarding who the main stakeholders are at different levels in the support system for self-care for patients with chronic illness (SSSC) and how they accomplish their role and collaborate. METHODS: 90 Intervi…
Negotiating Diet in Networks: A Cross-European Study of the Experiences of Managing Type 2 Diabetes
Food and diet are central aspects of diabetes self-management but the relevance of social networks for the way people are supported in their management of type 2 diabetes is often under-acknowledged. In this article, we aimed to explore the coalescences between these two phenomena among people with type 2 diabetes to increase knowledge of interactions within social network related to daily diet. The article is based on 125 qualitative interviews …
Factors influencing psychosocial adjustment and quality of life in Parkinson patients and informal caregivers
Multidisciplinary interventions aimed at improving PD patients' QoL may have more effective outcomes if education about coping skills, and how these can help towards a positive psychosocial adjustment to illness, were included, and targeted not only at patients, but also at informal caregivers
Connectivity, contest and the ties of self‐management support for type 2 diabetes: A meta‐synthesis of qualitative literature
This paper presents a meta-synthesis of the literature on community-based self-management to support experiences of people diagnosed with type 2 diabetes. The aim was to synthesise findings on both formal and informal self-management support with particular reference to the relevance and influence of the social context operating at different levels. The review forms part of EU-WISE, a project financed through EU's 7th Framework Programme. The rev…
Dynamics and nature of support in the personal networks of people with type 2 diabetes living in E urope: Qualitative analysis of network properties
BACKGROUND: Living with and self-managing a long-term condition implicates a diversity of networked relationships. This qualitative study examines the personal communities of support of people with type 2 diabetes. METHODS: We conducted 170 biographical interviews in six European countries (Bulgaria, Greece, the Netherlands, Norway, Spain and UK) to explore social support and networks. Analysis was framed with reference to three predetermined soc…
Meso level influences on long term condition self-management: Stakeholder accounts of commonalities and differences across six European countries
The results suggest reasons for giving increasing prominence to meso level influences as a means of rebalancing and improving the effectiveness of implementing an agenda for SMS. There is a need to acknowledge the greater economic and policy challenging environment operating in some countries which act as a source of inequality between countries in addressing SMS for chronic illness management and impacts on people's capacity to undertake self-ca…
Negotiating Diet in Networks: A Cross-European Study of the Experiences of Managing Type 2 Diabetes
Food and diet are central aspects of diabetes self-management but the relevance of social networks for the way people are supported in their management of type 2 diabetes is often under-acknowledged. In this article, we aimed to explore the coalescences between these two phenomena among people with type 2 diabetes to increase knowledge of interactions within social network related to daily diet. The article is based on 125 qualitative interviews …
Role of Social Prescribing Link Workers in Supporting Adults with Physical and Mental Health Long-Term Conditions: Integrative Review
Social prescribing link workers interventions have been widely adopted within healthcare systems, particularly in the UK, to support a range of patients’ needs and to help improve condition management for those living with multiple long-term conditions. However, there is a lack of consistency in implementation and unclear guidance about how social prescribing link workers might address these needs, particularly in individuals living with physical…
Dynamics and nature of support in the personal networks of people with type 2 diabetes living in E urope: Qualitative analysis of network properties
BACKGROUND: Living with and self-managing a long-term condition implicates a diversity of networked relationships. This qualitative study examines the personal communities of support of people with type 2 diabetes. METHODS: We conducted 170 biographical interviews in six European countries (Bulgaria, Greece, the Netherlands, Norway, Spain and UK) to explore social support and networks. Analysis was framed with reference to three predetermined soc…
Meso level influences on long term condition self-management: Stakeholder accounts of commonalities and differences across six European countries
The results suggest reasons for giving increasing prominence to meso level influences as a means of rebalancing and improving the effectiveness of implementing an agenda for SMS. There is a need to acknowledge the greater economic and policy challenging environment operating in some countries which act as a source of inequality between countries in addressing SMS for chronic illness management and impacts on people's capacity to undertake self-ca…
Factors influencing psychosocial adjustment and quality of life in Parkinson patients and informal caregivers
Multidisciplinary interventions aimed at improving PD patients' QoL may have more effective outcomes if education about coping skills, and how these can help towards a positive psychosocial adjustment to illness, were included, and targeted not only at patients, but also at informal caregivers
Connectivity, contest and the ties of self‐management support for type 2 diabetes: A meta‐synthesis of qualitative literature
This paper presents a meta-synthesis of the literature on community-based self-management to support experiences of people diagnosed with type 2 diabetes. The aim was to synthesise findings on both formal and informal self-management support with particular reference to the relevance and influence of the social context operating at different levels. The review forms part of EU-WISE, a project financed through EU's 7th Framework Programme. The rev…
Stakeholders in support systems for self‐care for chronic illness: The gap between expectations and reality regarding their identity, roles and relationships
BACKGROUND AND OBJECTIVE: The spread of self-care holds the promise of containing chronic illness burden. Falling within the framework of a FP7 collaborative research project, this paper reports the views of key informants from six countries regarding who the main stakeholders are at different levels in the support system for self-care for patients with chronic illness (SSSC) and how they accomplish their role and collaborate. METHODS: 90 Intervi…
Negotiating Diet in Networks: A Cross-European Study of the Experiences of Managing Type 2 Diabetes
Food and diet are central aspects of diabetes self-management but the relevance of social networks for the way people are supported in their management of type 2 diabetes is often under-acknowledged. In this article, we aimed to explore the coalescences between these two phenomena among people with type 2 diabetes to increase knowledge of interactions within social network related to daily diet. The article is based on 125 qualitative interviews …
Psychosocial Adjustment to Illness Scale in family caregivers of patients with Parkinson’s Disease: Spanish validation study
Psychosocial adjustment to a complex and disabling long-term condition like Parkinson ́s disease is a complex, dynamic, cyclical and interactive process. Family caregivers, face multiple challenges that require a significant effort in terms of psychosocial adjustment, which must be considered by healthcare professionals in order to provide a holistic care. The patients' self-report version of the Psychosocial Adjustment to Illness Scale (PAIS-SR)…
Living with Chronic Illness Scale: International validation through the classic test theory and Rasch analysis among Spanish‐speaking populations with long‐term conditions
BACKGROUND: The Living with Chronic Illness (LW-CI) Scale is a comprehensive patient-reported outcome measure that evaluates the complex process of living with long-term conditions. OBJECTIVE: This study aimed to analyse the psychometric properties of the LW-CI scale according to the classic test theory and the Rasch model among individuals living with different long-term conditions. DESIGN: This was an observational, international and cross-sect…
The Determinants of Living with Long-Term Conditions: An International Cross-Sectional Study
It is essential that healthcare and social professionals understand the daily lives of people with chronic diseases, and the variables that influence them. The aim of this study was to identify the determinants influencing the process of living with long-term conditions. To investigate this, an observational, international, cross-sectional study was carried out. A consecutive sample of 1788 Spanish-speaking population living with chronic obstruct…
The influence of social relationships and activities on the health of adults with obesity: A qualitative study
BACKGROUND: Obesity in adults is a leading health challenge that causes millions of deaths worldwide and represents a risk factor for developing long-term conditions. Social relationships are one of the multiple drivers shaping obesity and obesity-related practices. However, there is still little evidence as to the processes by which relationships influence the adoption of positive and negative obesity health-related practices-eating, physical ac…
Exploring health and social services in Denmark, Norway, Spain and the United Kingdom for the development of Parkinson's care pathways. A document analysis
People with Parkinson's disease (PD) may find it difficult to identify and access the wide number of services they need and are entitled to along their complex PD journey. As part of the project OPTIM-PARK - Optimisation of community resources and systems of support to enhance the process of living with Parkinson's Disease, document analysis was developed to create overviews of existing resources and systems of support in Denmark, Norway, Spain a…
Understanding support systems for Parkinson's disease management in community settings: A cross‐national qualitative study
BACKGROUND: Health and social care systems face difficulties in managing multimorbidity, disease burden and complex needs in long-term conditions such as Parkinson's disease. OBJECTIVE: This study aimed to develop a European understanding of how health and social care professionals can collaborate with stakeholders from different organizations and sectors to enhance the management of Parkinson's disease in a community setting by identifying the e…
Role of Social Prescribing Link Workers in Supporting Adults with Physical and Mental Health Long-Term Conditions: Integrative Review
Social prescribing link workers interventions have been widely adopted within healthcare systems, particularly in the UK, to support a range of patients’ needs and to help improve condition management for those living with multiple long-term conditions. However, there is a lack of consistency in implementation and unclear guidance about how social prescribing link workers might address these needs, particularly in individuals living with physical…
Person‐centred integrated care for people living with Parkinson's, Huntington's and Multiple Sclerosis: A systematic review
Management of Parkinson’s in the Community: Interests and Expectations of People Living with Parkinson’s, Family Carers, Healthcare Professionals and Stakeholders in Spain
This study aimed to explore the interests and expectations of people living with Parkinson's disease (PD), family carers, health and social care professionals, and key stakeholders regarding relevant systems of support and community resources for PD management. As part of the OPTIM-PARK project (Optimisation of Community Resources and Systems of Support to Enhance the Process of Living with PD), an exploratory qualitative study was conducted in S…
Mapping how responsibility for poor diets is framed in the United Kingdom: A scoping review
Objective: To identify and present (i) how responsibility for poor diets in the UK is framed across the public, mass media and the government and (ii) how groups experiencing socio-economic disadvantage are presented within this framing. Design: A scoping review of peer-reviewed literature was conducted using six databases. A systematic narrative synthesis guided by qualitative content analysis was applied to summarise the findings. Results: Thir…
Assessing integrated care from the perspective of people living with Huntington’s Disease in England: Integrate-HD
This paper will present the results of a national survey in England that assessed integrated care from the perspective of service users living with a rare neurodegenerative condition, Huntington’s Disease (HD). It is part of the Integrate-HD project that seeks to develop an integrated care model that responds to the complex needs of people and families living with this genetic hereditary disorder. The first phase of the project found a lack of ev…
Patient and public involvement in integrated care: Adding value to research
Although patient and public involvement (PPI) in increasingly a buzz term in research, much of our experience tells us PPI can sometimes be a ticking-box exercise, instead of adding true value to research. We mean to share our PPI work in our project, to get colleagues to consider applying some of our PPI activities in their own ongoing and future research and service evaluations. This is a poster summarising patient and public involvement and en…
Co‐Design of a New Integrated Care Model With People Affected by Huntington's Disease: A Mixed Methods Study
BACKGROUND: People living with neurological conditions have needs that require an integrated care approach. Existing models of integrated care have often emphasized system structures but neglected the micro-level interactions that matter most to people. OBJECTIVES: To develop a micro-level model for integrated care that represents the care components most valued by people affected by Huntington's disease (HD). METHODS: A mixed methods study with …
Building collaborative and sustainable partnerships in long term conditions care
Medicine (15 works) · Psychology (12 works) · Nursing (9 works) · Political science (9 works) · Qualitative research (9 works) · Chronic Disease Management Strategies (8 works) · Diabetes Management and Education (8 works) · Sociology (7 works) · Computer Science (6 works) · Gerontology (6 works)