Charlotte L Clarke
Biographic Data
| ID | 157602 |
|---|---|
| NAME | Charlotte L Clarke |
| GIVEN NAMES | Charlotte L |
| FAMILY NAME | Clarke |
| SIGNATURE | CLARKE C L |
| AFFILIATIONS | The University of Edinburgh, Edinburgh, United Kingdom |
| VERIFIED | No |
| TOTAL WORKS | 12 |
| TOTAL CITATIONS | 25 |
| AUTHOR COUNT | 12 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2000 |
| LATEST PUBLICATION YEAR | 2018 |
| H-INDEX | 3 |
Living with dementia, interdependence and citizenship: Narratives of everyday decision-making
This article argues that interdependent relationships are key in realising inclusion and citizenship for people living with dementia. We focus on decision-making as one aspect of everyday life which reflects opportunities and challenges associated with citizenship. Accounts of everyday decision-making from people living with dementia provide insight into strategies for negotiating responsibilities as they shifted with dementia. An inductive, seco…
I just want to get on with my life’: A mixed-methods study of active management of quality of life in living with dementia
The active management of the experience of living with dementia appears to improve quality of life despite the lack of disease modification. However, research to date has been largely of modest scale and explanatory factors for improvements have been under-conceptualised. Thus, although promulgated through national strategies, the evidence base is relatively weak. This paper reports on a nation-wide study of the influence of the National Dementia…
A Seat Around the Table: Participatory Data Analysis With People Living With Dementia
The involvement of "people with experience" in research has developed considerably in the last decade. However, involvement as co-analysts at the point of data analysis and synthesis has received very little attention-in particular, there is very little work that involves people living with dementia as co-analysts. In this qualitative secondary data analysis project, we (a) analyzed data through two theoretical lenses: Douglas's cultural theory o…
Risky and resilient life with dementia: Review of and reflections on the literature
In this article, we report on our interpretation of past and current literature on negotiating risk and resilience in the everyday lives of people living with dementia. We undertook the literature review on which this article is based as part of an ongoing qualitative study designed to explore issues of risk and resilience from the point of view of people living with dementia in urban and rural communities. We carried out a search of internationa…
Risk, safety, and clinical practice: Health care through the lens of risk
"Risk, safety, and clinical practice: Health care through the lens of risk." Health, Risk & Society, 13(6), pp. 598–599
Risk Assessment and Management for Living Well with Dementia
This useful book highlights principles of good practice for managing risk in dementia care, and presents a rounded approach that will help practitioners negotiate some of the complex issues this entails
Reframing risk management in dementia care through collaborative learning
Risk management is a complex aspect of practice which can lead to an emphasis on maintaining physical safety, which impacts on the well-being of people with dementia. Education for practitioners in risk management is particularly challenging because of its conceptual nature and diverse perceptions of risk between and within professional groups. The practice development research reported here formed one part of a multisite study and contributed to…
Alcohol-related brain damage: Narrative storylines and risk constructions
To date, the voice and experience of people with alcohol-related brain damage has been silent in the literature. Using narrative research methodology and a focus on risk and quality of life, this paper outlines the analysis of interviews with six people with alcohol-related brain damage who were resident on a specialist care unit for the condition. Of the six participants, four were interviewed twice in line with the study protocol and separate i…
Risk and long-term conditions: The contradictions of self in society
This editorial draws together the key issues arising from five papers which form a special edition focusing on risk in long-term conditions. The papers address research on falls in older people (Fortinsky et al. Citation2009), alcohol-related brain damage (Keady et al. Citation2009), children with a disability (Oulton and Heyman Citation2009), women with endometriosis (Seear Citation2009) and survivorship in cancer (Roberts and Clarke Citation200…
Formal carers: Attitudes to working with the dementing elderly and their informal carers
This paper presents a discussion of some of the results arising from a study into the inter-relationships between the dementing elderly in the community, and their informal and formal carers. The results from one phase of the study, which gathered data from informal carers, were used in the development of an attitudinal questionnaire. The questionnaire was distributed to a sample of 60 formal carers drawn from a wide variety of health, social and…
Paradoxes, locations and the need for social coherence: A qualitative study of living with a learning difficulty
Policy rhetoric over recent decades has promoted social inclusion of the more vulnerable sectors of society, such as people with learning difficulties. This study aimed to describe the experiences of people who live with learning difficulties in order to inform local service development. Thirty‐five people with a learning difficulty and/or a family member were interviewed. A model of social coherence was developed that moves beyond the self‐limit…
Risk: Constructing care and care environments in dementia
Inherent in the notion of risk is the probability of an adverse event. However, recognising an event as adverse is subject to differing interpretations and is located in the knowledge base used. For dementia care, this has several implications for practice because of the differential knowledge of practitioners, family carers and people with dementia. Data from a study about the meanings of caring for a person with dementia are used to analyse the…
A Seat Around the Table: Participatory Data Analysis With People Living With Dementia
The involvement of "people with experience" in research has developed considerably in the last decade. However, involvement as co-analysts at the point of data analysis and synthesis has received very little attention-in particular, there is very little work that involves people living with dementia as co-analysts. In this qualitative secondary data analysis project, we (a) analyzed data through two theoretical lenses: Douglas's cultural theory o…
Reframing risk management in dementia care through collaborative learning
Risk management is a complex aspect of practice which can lead to an emphasis on maintaining physical safety, which impacts on the well-being of people with dementia. Education for practitioners in risk management is particularly challenging because of its conceptual nature and diverse perceptions of risk between and within professional groups. The practice development research reported here formed one part of a multisite study and contributed to…
Paradoxes, locations and the need for social coherence: A qualitative study of living with a learning difficulty
Policy rhetoric over recent decades has promoted social inclusion of the more vulnerable sectors of society, such as people with learning difficulties. This study aimed to describe the experiences of people who live with learning difficulties in order to inform local service development. Thirty‐five people with a learning difficulty and/or a family member were interviewed. A model of social coherence was developed that moves beyond the self‐limit…
Living with dementia, interdependence and citizenship: Narratives of everyday decision-making
This article argues that interdependent relationships are key in realising inclusion and citizenship for people living with dementia. We focus on decision-making as one aspect of everyday life which reflects opportunities and challenges associated with citizenship. Accounts of everyday decision-making from people living with dementia provide insight into strategies for negotiating responsibilities as they shifted with dementia. An inductive, seco…
I just want to get on with my life’: A mixed-methods study of active management of quality of life in living with dementia
The active management of the experience of living with dementia appears to improve quality of life despite the lack of disease modification. However, research to date has been largely of modest scale and explanatory factors for improvements have been under-conceptualised. Thus, although promulgated through national strategies, the evidence base is relatively weak. This paper reports on a nation-wide study of the influence of the National Dementia…
Formal carers: Attitudes to working with the dementing elderly and their informal carers
This paper presents a discussion of some of the results arising from a study into the inter-relationships between the dementing elderly in the community, and their informal and formal carers. The results from one phase of the study, which gathered data from informal carers, were used in the development of an attitudinal questionnaire. The questionnaire was distributed to a sample of 60 formal carers drawn from a wide variety of health, social and…
Risk: Constructing care and care environments in dementia
Inherent in the notion of risk is the probability of an adverse event. However, recognising an event as adverse is subject to differing interpretations and is located in the knowledge base used. For dementia care, this has several implications for practice because of the differential knowledge of practitioners, family carers and people with dementia. Data from a study about the meanings of caring for a person with dementia are used to analyse the…
Paradoxes, locations and the need for social coherence: A qualitative study of living with a learning difficulty
Policy rhetoric over recent decades has promoted social inclusion of the more vulnerable sectors of society, such as people with learning difficulties. This study aimed to describe the experiences of people who live with learning difficulties in order to inform local service development. Thirty‐five people with a learning difficulty and/or a family member were interviewed. A model of social coherence was developed that moves beyond the self‐limit…
Formal carers: Attitudes to working with the dementing elderly and their informal carers
This paper presents a discussion of some of the results arising from a study into the inter-relationships between the dementing elderly in the community, and their informal and formal carers. The results from one phase of the study, which gathered data from informal carers, were used in the development of an attitudinal questionnaire. The questionnaire was distributed to a sample of 60 formal carers drawn from a wide variety of health, social and…
Alcohol-related brain damage: Narrative storylines and risk constructions
To date, the voice and experience of people with alcohol-related brain damage has been silent in the literature. Using narrative research methodology and a focus on risk and quality of life, this paper outlines the analysis of interviews with six people with alcohol-related brain damage who were resident on a specialist care unit for the condition. Of the six participants, four were interviewed twice in line with the study protocol and separate i…
Risk and long-term conditions: The contradictions of self in society
This editorial draws together the key issues arising from five papers which form a special edition focusing on risk in long-term conditions. The papers address research on falls in older people (Fortinsky et al. Citation2009), alcohol-related brain damage (Keady et al. Citation2009), children with a disability (Oulton and Heyman Citation2009), women with endometriosis (Seear Citation2009) and survivorship in cancer (Roberts and Clarke Citation200…
Reframing risk management in dementia care through collaborative learning
Risk management is a complex aspect of practice which can lead to an emphasis on maintaining physical safety, which impacts on the well-being of people with dementia. Education for practitioners in risk management is particularly challenging because of its conceptual nature and diverse perceptions of risk between and within professional groups. The practice development research reported here formed one part of a multisite study and contributed to…
Risk, safety, and clinical practice: Health care through the lens of risk
"Risk, safety, and clinical practice: Health care through the lens of risk." Health, Risk & Society, 13(6), pp. 598–599
Risk Assessment and Management for Living Well with Dementia
This useful book highlights principles of good practice for managing risk in dementia care, and presents a rounded approach that will help practitioners negotiate some of the complex issues this entails
Risky and resilient life with dementia: Review of and reflections on the literature
In this article, we report on our interpretation of past and current literature on negotiating risk and resilience in the everyday lives of people living with dementia. We undertook the literature review on which this article is based as part of an ongoing qualitative study designed to explore issues of risk and resilience from the point of view of people living with dementia in urban and rural communities. We carried out a search of internationa…
Living with dementia, interdependence and citizenship: Narratives of everyday decision-making
This article argues that interdependent relationships are key in realising inclusion and citizenship for people living with dementia. We focus on decision-making as one aspect of everyday life which reflects opportunities and challenges associated with citizenship. Accounts of everyday decision-making from people living with dementia provide insight into strategies for negotiating responsibilities as they shifted with dementia. An inductive, seco…
I just want to get on with my life’: A mixed-methods study of active management of quality of life in living with dementia
The active management of the experience of living with dementia appears to improve quality of life despite the lack of disease modification. However, research to date has been largely of modest scale and explanatory factors for improvements have been under-conceptualised. Thus, although promulgated through national strategies, the evidence base is relatively weak. This paper reports on a nation-wide study of the influence of the National Dementia…
A Seat Around the Table: Participatory Data Analysis With People Living With Dementia
The involvement of "people with experience" in research has developed considerably in the last decade. However, involvement as co-analysts at the point of data analysis and synthesis has received very little attention-in particular, there is very little work that involves people living with dementia as co-analysts. In this qualitative secondary data analysis project, we (a) analyzed data through two theoretical lenses: Douglas's cultural theory o…
Psychology (11 works) · Medicine (9 works) · Dementia (7 works) · Political science (7 works) · Sociology (7 works) · Nursing (6 works) · Public relations (5 works) · Mental Health and Patient Involvement (4 works) · Social science (4 works) · Business (3 works)