Chris Feudtner
Biographic Data
| ID | 1645901 |
|---|---|
| NAME | Chris Feudtner |
| GIVEN NAMES | Chris |
| FAMILY NAME | Feudtner |
| SIGNATURE | FEUDTNER C |
| AFFILIATIONS | Children's Hospital of Philadelphia |
| ORCID | 0000-0002-5879-0434 |
| VERIFIED | Yes |
| TOTAL WORKS | 26 |
| TOTAL CITATIONS | 10 |
| AUTHOR COUNT | 26 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1993 |
| LATEST PUBLICATION YEAR | 2022 |
| H-INDEX | 2 |
Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications
Care for U.S. children living with serious illness and their families at home is a complex and patchwork system. Improving home-based care for children and families requires a comprehensive, multilevel approach that accounts for and examines relationships across home environments, communities, and social contexts in which children and families live and receive care. We propose a multilevel conceptual framework, guided by Bronfenbrenner's ecologic…
Arleen Marcia Tuchman, Diabetes: A History of Race and Disease
Near the end of her excellent book, Arleen Tuchman writes that ‘the stories we tell matter’. Hers is a book about stories within stories, or more precisely stories (told as theories) about why some people get diabetes and others do not. All these stories are told within, and interweave elements of, the master narratives prevalent in the USA about race—which is to say, racism in various cultural guises—and equally important, the suppressive master…
Developing, Administering, and Scoring the Healthcare Ethics Consultant Certification Examination
In November 2018, the practice of health care ethics consultation crossed a major threshold when 138 candidates took the inaugural Healthcare Ethics Consultant Certification Examination. This accomplishment, long in the making, has had and continues to have both advocates and critics. The Healthcare Ethics Consultant Certification Commission, a functionally autonomous body created and funded by the American Society for Bioethics and Humanities, w…
Children’s Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy
The primary objective of this study was to examine the associations of children's involvement in decisions about research participation with their perceptions of the decision-making process and self-efficacy. Participants were children (ages 8-17) who enrolled in research studies in the prior 2 months. Children completed a questionnaire that yielded three decision-making involvement subscales: Researcher Engages Child, Researcher Supports Autonom…
Holding the Tension
My colleagues and I had been asked by a member of a clinical team to help sort through the ethics of stopping a life‐sustaining intervention for a very ill child. We had already talked with the parents, the physicians, and the folks from nursing, social work, and chaplaincy. Terms like “suffering,” “cruel,” “compassion,” and “moral distress” had been uttered, as had terms like “inappropriate,” “unethical,” “neglectful,” and “risk‐management.” The…
Quantifying parental preferences for interventions designed to improve home food preparation and home food environments during early childhood
Muddled Measures of Risks and Misremembered Reasons
A commentary on “Were There ‘Additional Foreseeable Risks’ in the SUPPORT Study?,” by Henry J. Silverman and Didier Dreyfuss; “SUPPORT: Risks, Harms, and Equipoise,” by Robert M. Nelson; “The Controversy over SUPPORT Continues and the Hyperbole Increases,” by Alan R. Fleischman; and “SUPPORT and Comparative Effectiveness Trials: What's at Stake?,” by Lois Shepherd, all in the January‐February 2015 issue
Support and the Ethics of Study Implementation: Lessons for Comparative Effectiveness Research from the Trial of Oxygen Therapy for Premature Babies
The Surfactant, Positive Pressure, and Oxygenation Randomized Trial (SUPPORT) has been the focal point of many different criticisms regarding the ethics of the study ever since publication of the trial's findings in 2010 and 2012. In this article, we focus on a concern that the technical design and implementation details of the study were ethically flawed. While the federal Office Human Research Protections focused on the consent form, rather tha…
Problems and hopes perceived by mothers, fathers and physicians of children receiving palliative care
BACKGROUND: The quality of shared decision making for children with serious illness may depend on whether parents and physicians share similar perceptions of problems and hopes for the child. OBJECTIVE: (i) Describe the problems and hopes reported by mothers, fathers and physicians of children receiving palliative care; (ii) examine the observed concordance between participants; (iii) examine parental perceived agreement; and (iv) examine whether…
Prevalence and patterns of cooking dinner at home in the USA: National Health and Nutrition Examination Survey (NHANES) 2007–2008
Objective To measure the prevalence of cooking dinner at home in the USA and test whether home dinner preparation habits are associated with socio-economic status, race/ethnicity, country of birth and family structure. Design Cross-sectional analysis. The primary outcome, self-reported frequency of cooking dinner at home, was divided into three categories: 0–1 dinners cooked per week (‘never’), 2–5 (‘sometimes’) and 6–7 (‘always’). We used bivari…
Making Sense as a Cultural Practice: Historical Perspectives
The production of sense is a central field of action of cultural and political practice. The articles examine how, in different contexts, the construction of sense and its outcome as a cultural practice
The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress (review)
Reviewed by: The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress Chris Feudtner Stephen Pemberton. The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress. Baltimore: Johns Hopkins University Press, 2011. xviii + 377 pp. Ill. $50.00 (978-1-4214-0115-7). On many counts, the history of the scientific understanding and medical treatment of hemophilia ought to be a ringing endorsement of t…
Interstate variation in trends of psychotropic medication use among Medicaid-enrolled children in foster care
High rates of treating children in foster care with second-generation antipsychotics, both singly and in combination with other psychotropics, have focused public interest on the use of these medications, and motivated some states to implement programs to curtail usage. To estimate any antipsychotic use and psychotropic polypharmacy among children in foster care during the last decade and to characterize interstate variation in these trends. Cent…
What We Don’t Know about How We Decide
Three questions about decision making for critically ill children need empirical study: how we evaluate others’ quality of life, how the child’s illness affects other family members, and what role the family wants caregivers to have. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
Dropsy, Dialysis, Transplant: A Short History of Failing Kidneys (review)
Reviewed by: Dropsy, Dialysis, Transplant: A Short History of Failing Kidneys Chris Feudtner Steven J. Peitzman. Dropsy, Dialysis, Transplant: A Short History of Failing Kidneys. Johns Hopkins Biographies of Disease. Uncorrected Proof. Baltimore: Johns Hopkins University Press, 2007. xxi + 207 pp. Ill. $24.95 (ISBN-10: 0-8018-8734-8, ISBN-13: 978-0-8018-8734-5). At the turn of this past millennium, persistently sick kidneys in America underwent a…
Framing Permission for Halting or Continuing Life-Extending Therapies
When talking to parents whose children are on advanced life support, when both the clinical team and the parents understand that the child's death is imminent despite this intensive level of care, how should we frame the decision to halt or continue invasive life-extending treatments
When Illness Goes Public: Celebrity Patients and How We Look at Medicine (review)
Reviewed by: When Illness Goes Public: Celebrity Patients and How We Look at Medicine Chris Feudtner Barron H. Lerner. When Illness Goes Public: Celebrity Patients and How We Look at Medicine. Baltimore: Johns Hopkins University Press, 2006. xv + 334 pp. Ill. $25.00 (0-8018-8462-4). In the first decade of the twenty-first century, Americans are inundated with—and fascinated by—stories of celebrities who are ill. From struggles with postpartum dep…
Does Intimate Partner Violence Epidemiology Differ Between Homes With and Without Children? A Population-Based Study of Annual Prevalence and Associated Risk Factors
Physical Health Outcomes of Childhood Exposure to Intimate Partner Violence: A Systematic Review
BACKGROUND. Children exposed to intimate partner violence (IPV) are at increased risk for adverse mental and behavioral health sequelae, as has been documented by both systematic reviews and meta-analyses. Studies addressing the physical health impact of childhood IPV exposure, however, have not been summarized in a manner that might facilitate additional hypothesis-driven research and accelerate the development of targeted interventions. METHODS…
Should I Stay or Should I Go? The Physician in Time of Crisis
Two physicians offer the opinion that health care practitioners have an obligation to stay and treat patients rather than flee with their families during an epidemic outbreak. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
Likelihood of Home Death Associated With Local Rates of Home Birth: Influence of Local Area Healthcare Preferences on Site of Death
Objectives. We tested whether local cultural and social values regarding the use of health care are associated with the likelihood of home death, using variation in local rates of home births as a proxy for geographic variation in these values. Methods. For each of 351110 adult decedents in Washington state who died from 1989 through 1998, we calculated the home birth rate in each zip code during the year of death and then used multivariate regre…
Placement Stability and Mental Health Costs for Children in Foster Care
Objective. Although prior population-based studies have found that children in foster care use more mental health services than their Medicaid peers, less is known about how different experiences in foster care impact the likelihood of mental health service use. The primary aim of this study is to test the hypothesis that instability of foster care placements is associated with higher costs for mental health care services. The secondary aim is to…
Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples (review)
Reviewed by: Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples Chris Feudtner Jennie R. Joe and Robert S. Young, eds. Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples. New Babylon, Studies in the Social Sciences, no. 50. Berlin: Mouton de Gruyter, 1994. vii + 527 pp. Tables, figures, maps. DM 268.00. Why has diabetes become so prevalent among many tribes of North Ame…
Add Professors and Stir
Making the Rounds The Ethical Development of Medical Students in the Context of Clinical Rotations
Chris Feudtner, Dimitri A. Christakis, Making the Rounds The Ethical Development of Medical Students in the Context of Clinical Rotations, The Hastings Center Report, Vol. 24, No. 1 (Jan. - Feb., 1994), pp. 6-12
Quantifying parental preferences for interventions designed to improve home food preparation and home food environments during early childhood
Interstate variation in trends of psychotropic medication use among Medicaid-enrolled children in foster care
High rates of treating children in foster care with second-generation antipsychotics, both singly and in combination with other psychotropics, have focused public interest on the use of these medications, and motivated some states to implement programs to curtail usage. To estimate any antipsychotic use and psychotropic polypharmacy among children in foster care during the last decade and to characterize interstate variation in these trends. Cent…
Does Intimate Partner Violence Epidemiology Differ Between Homes With and Without Children? A Population-Based Study of Annual Prevalence and Associated Risk Factors
Children’s Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy
The primary objective of this study was to examine the associations of children's involvement in decisions about research participation with their perceptions of the decision-making process and self-efficacy. Participants were children (ages 8-17) who enrolled in research studies in the prior 2 months. Children completed a questionnaire that yielded three decision-making involvement subscales: Researcher Engages Child, Researcher Supports Autonom…
Minds the Dead Have Ravished: 1 Shell Shock, History, and the Ecology of Disease-Systems
Au cours de la premiere guerre mondiale, une etrange epidemie a touche les soldats anglais: La Psychose. Ce cas precis, sert d'introduction a l'etude de la relation entre les maladies et leur environnement
Minds the Dead Have Ravished: 1 Shell Shock, History, and the Ecology of Disease-Systems
Au cours de la premiere guerre mondiale, une etrange epidemie a touche les soldats anglais: La Psychose. Ce cas precis, sert d'introduction a l'etude de la relation entre les maladies et leur environnement
Making the Rounds The Ethical Development of Medical Students in the Context of Clinical Rotations
Chris Feudtner, Dimitri A. Christakis, Making the Rounds The Ethical Development of Medical Students in the Context of Clinical Rotations, The Hastings Center Report, Vol. 24, No. 1 (Jan. - Feb., 1994), pp. 6-12
Add Professors and Stir
Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples (review)
Reviewed by: Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples Chris Feudtner Jennie R. Joe and Robert S. Young, eds. Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples. New Babylon, Studies in the Social Sciences, no. 50. Berlin: Mouton de Gruyter, 1994. vii + 527 pp. Tables, figures, maps. DM 268.00. Why has diabetes become so prevalent among many tribes of North Ame…
Placement Stability and Mental Health Costs for Children in Foster Care
Objective. Although prior population-based studies have found that children in foster care use more mental health services than their Medicaid peers, less is known about how different experiences in foster care impact the likelihood of mental health service use. The primary aim of this study is to test the hypothesis that instability of foster care placements is associated with higher costs for mental health care services. The secondary aim is to…
Physical Health Outcomes of Childhood Exposure to Intimate Partner Violence: A Systematic Review
BACKGROUND. Children exposed to intimate partner violence (IPV) are at increased risk for adverse mental and behavioral health sequelae, as has been documented by both systematic reviews and meta-analyses. Studies addressing the physical health impact of childhood IPV exposure, however, have not been summarized in a manner that might facilitate additional hypothesis-driven research and accelerate the development of targeted interventions. METHODS…
Should I Stay or Should I Go? The Physician in Time of Crisis
Two physicians offer the opinion that health care practitioners have an obligation to stay and treat patients rather than flee with their families during an epidemic outbreak. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
Likelihood of Home Death Associated With Local Rates of Home Birth: Influence of Local Area Healthcare Preferences on Site of Death
Objectives. We tested whether local cultural and social values regarding the use of health care are associated with the likelihood of home death, using variation in local rates of home births as a proxy for geographic variation in these values. Methods. For each of 351110 adult decedents in Washington state who died from 1989 through 1998, we calculated the home birth rate in each zip code during the year of death and then used multivariate regre…
Framing Permission for Halting or Continuing Life-Extending Therapies
When talking to parents whose children are on advanced life support, when both the clinical team and the parents understand that the child's death is imminent despite this intensive level of care, how should we frame the decision to halt or continue invasive life-extending treatments
When Illness Goes Public: Celebrity Patients and How We Look at Medicine (review)
Reviewed by: When Illness Goes Public: Celebrity Patients and How We Look at Medicine Chris Feudtner Barron H. Lerner. When Illness Goes Public: Celebrity Patients and How We Look at Medicine. Baltimore: Johns Hopkins University Press, 2006. xv + 334 pp. Ill. $25.00 (0-8018-8462-4). In the first decade of the twenty-first century, Americans are inundated with—and fascinated by—stories of celebrities who are ill. From struggles with postpartum dep…
Does Intimate Partner Violence Epidemiology Differ Between Homes With and Without Children? A Population-Based Study of Annual Prevalence and Associated Risk Factors
Dropsy, Dialysis, Transplant: A Short History of Failing Kidneys (review)
Reviewed by: Dropsy, Dialysis, Transplant: A Short History of Failing Kidneys Chris Feudtner Steven J. Peitzman. Dropsy, Dialysis, Transplant: A Short History of Failing Kidneys. Johns Hopkins Biographies of Disease. Uncorrected Proof. Baltimore: Johns Hopkins University Press, 2007. xxi + 207 pp. Ill. $24.95 (ISBN-10: 0-8018-8734-8, ISBN-13: 978-0-8018-8734-5). At the turn of this past millennium, persistently sick kidneys in America underwent a…
What We Don’t Know about How We Decide
Three questions about decision making for critically ill children need empirical study: how we evaluate others’ quality of life, how the child’s illness affects other family members, and what role the family wants caregivers to have. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress (review)
Reviewed by: The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress Chris Feudtner Stephen Pemberton. The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress. Baltimore: Johns Hopkins University Press, 2011. xviii + 377 pp. Ill. $50.00 (978-1-4214-0115-7). On many counts, the history of the scientific understanding and medical treatment of hemophilia ought to be a ringing endorsement of t…
Interstate variation in trends of psychotropic medication use among Medicaid-enrolled children in foster care
High rates of treating children in foster care with second-generation antipsychotics, both singly and in combination with other psychotropics, have focused public interest on the use of these medications, and motivated some states to implement programs to curtail usage. To estimate any antipsychotic use and psychotropic polypharmacy among children in foster care during the last decade and to characterize interstate variation in these trends. Cent…
Making Sense as a Cultural Practice: Historical Perspectives
The production of sense is a central field of action of cultural and political practice. The articles examine how, in different contexts, the construction of sense and its outcome as a cultural practice
Prevalence and patterns of cooking dinner at home in the USA: National Health and Nutrition Examination Survey (NHANES) 2007–2008
Objective To measure the prevalence of cooking dinner at home in the USA and test whether home dinner preparation habits are associated with socio-economic status, race/ethnicity, country of birth and family structure. Design Cross-sectional analysis. The primary outcome, self-reported frequency of cooking dinner at home, was divided into three categories: 0–1 dinners cooked per week (‘never’), 2–5 (‘sometimes’) and 6–7 (‘always’). We used bivari…
Muddled Measures of Risks and Misremembered Reasons
A commentary on “Were There ‘Additional Foreseeable Risks’ in the SUPPORT Study?,” by Henry J. Silverman and Didier Dreyfuss; “SUPPORT: Risks, Harms, and Equipoise,” by Robert M. Nelson; “The Controversy over SUPPORT Continues and the Hyperbole Increases,” by Alan R. Fleischman; and “SUPPORT and Comparative Effectiveness Trials: What's at Stake?,” by Lois Shepherd, all in the January‐February 2015 issue
Support and the Ethics of Study Implementation: Lessons for Comparative Effectiveness Research from the Trial of Oxygen Therapy for Premature Babies
The Surfactant, Positive Pressure, and Oxygenation Randomized Trial (SUPPORT) has been the focal point of many different criticisms regarding the ethics of the study ever since publication of the trial's findings in 2010 and 2012. In this article, we focus on a concern that the technical design and implementation details of the study were ethically flawed. While the federal Office Human Research Protections focused on the consent form, rather tha…
Problems and hopes perceived by mothers, fathers and physicians of children receiving palliative care
BACKGROUND: The quality of shared decision making for children with serious illness may depend on whether parents and physicians share similar perceptions of problems and hopes for the child. OBJECTIVE: (i) Describe the problems and hopes reported by mothers, fathers and physicians of children receiving palliative care; (ii) examine the observed concordance between participants; (iii) examine parental perceived agreement; and (iv) examine whether…
Holding the Tension
My colleagues and I had been asked by a member of a clinical team to help sort through the ethics of stopping a life‐sustaining intervention for a very ill child. We had already talked with the parents, the physicians, and the folks from nursing, social work, and chaplaincy. Terms like “suffering,” “cruel,” “compassion,” and “moral distress” had been uttered, as had terms like “inappropriate,” “unethical,” “neglectful,” and “risk‐management.” The…
Quantifying parental preferences for interventions designed to improve home food preparation and home food environments during early childhood
Children’s Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy
The primary objective of this study was to examine the associations of children's involvement in decisions about research participation with their perceptions of the decision-making process and self-efficacy. Participants were children (ages 8-17) who enrolled in research studies in the prior 2 months. Children completed a questionnaire that yielded three decision-making involvement subscales: Researcher Engages Child, Researcher Supports Autonom…
Developing, Administering, and Scoring the Healthcare Ethics Consultant Certification Examination
In November 2018, the practice of health care ethics consultation crossed a major threshold when 138 candidates took the inaugural Healthcare Ethics Consultant Certification Examination. This accomplishment, long in the making, has had and continues to have both advocates and critics. The Healthcare Ethics Consultant Certification Commission, a functionally autonomous body created and funded by the American Society for Bioethics and Humanities, w…
Arleen Marcia Tuchman, Diabetes: A History of Race and Disease
Near the end of her excellent book, Arleen Tuchman writes that ‘the stories we tell matter’. Hers is a book about stories within stories, or more precisely stories (told as theories) about why some people get diabetes and others do not. All these stories are told within, and interweave elements of, the master narratives prevalent in the USA about race—which is to say, racism in various cultural guises—and equally important, the suppressive master…
Medicine (20 works) · Psychology (12 works) · Political science (10 works) · Childhood Cancer Survivors' Quality of Life (6 works) · Environmental health (6 works) · Health care (6 works) · History (6 works) · Law (6 works) · Nursing (6 works) · Population (6 works)