Faith Gibson
Biographic Data
| ID | 168184 |
|---|---|
| NAME | Faith Gibson |
| GIVEN NAMES | Faith |
| FAMILY NAME | Gibson |
| SIGNATURE | GIBSON F |
| AFFILIATIONS | Great Ormond Street Hospital for Children NHS Foundation Trust |
| ORCID | 0000-0002-8125-4584 |
| VERIFIED | Yes |
| TOTAL WORKS | 23 |
| TOTAL CITATIONS | 27 |
| AUTHOR COUNT | 23 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1996 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 3 |
Does Current United Kingdom Childhood Cancer Research Address the James Lind Alliance Children's Cancer Priority Setting Partnership Priorities? A Grant Mapping Study
Engaging With Children
This paper examines researchers’ use of visual methods and arts-based activities, when researching with children who have rare diseases, about their experiences of happiness, fulfilment, and resilience. Their perspectives were sought in order that a tailored ‘Bank of Happiness’ intervention be tested to investigate whether this approach could promote children’s wellbeing and resilience in this setting and applied more widely in the future. In thi…
“I don't think they were used to mental health cases”
Exploring Experiences and Designing Guidance for Involving and Engaging Children and Young People in James Lind Alliance Priority Setting Partnerships
INTRODUCTION: Setting research priorities together with children and young people (CYP) in James Lind Alliance (JLA) Priority Setting Partnerships (PSPs) is an example of involving CYP from the beginning of the research process. In these PSPs, CYP can be involved in steering groups, surveys, focus groups and the final priority-setting workshop. The success of JLA PSPs is evident, but it is important to note that specific guidance has not been ava…
Bringing Young People, Health and Social Care Professionals, Transition Champions and Policymakers Together Through Hybrid Methods of Participation
INTRODUCTION: A multi-stakeholder conference was held in 2023, celebrating the achievements of the Burdett National Transition Nursing Network (BNTNN). The BNTNN had been implemented across England in 2020 to map the current state of young people's healthcare transition into adult services across England, and work with key stakeholders to coach them through making sustainable quality improvements to young people's transition services. This work w…
The Forgotten Voices
BACKGROUND: The importance of enabling patients to provide feedback on their experience of healthcare is widely accepted but there are few appropriate measures to enable children and young people to directly provide feedback, particularly those with intellectual disability or younger children. Our primary aim was to develop and test patient-reported experience measures for children and young people with intellectual disability who use inpatient h…
The approach and application of analysing inductive and deductive datasets
Braun and Clarke’s reflexive thematic analysis (reflexive TA) has gained wide attraction since its conception in 2006. Reflexive TA is methodologically flexible with researchers making decisions, which support their philosophical positionings. Qualitative research publications are often criticised for their lack of detail on the analytical processes undertaken to develop the analysis. This level of detail is important for novice researchers in le…
Exploring parent treatment decision-making in relapsed and refractory neuroblastoma
Parents often become involved in making treatment decisions for their child with cancer when there is no standard treatment protocol, typically seen in poor-prognosis cancers. Advances in scientific medicine has led to more treatment options being available for children resulting in parents making repeated treatment decisions depending on their child's response to treatment. The emotional turmoil of their child's cancer diagnosis can be exacerbat…
Developing, Nurturing, and Sustaining an Adolescent and Young Adult-Centered Culture of Care
Adolescents and young adults have unique needs which differ from those of children or adults. In the United Kingdom, we have dedicated services, which are diverse in how they are managed and delivered. A multiple-case study was conducted in young people’s cancer services in four geographical regions of England. Data collection included: semi-structured interviews with healthcare professionals ( n = 41) and young people ( n = 29); and observation …
Reporting the whole story
OBJECTIVE: We conducted a UK-wide survey to identify the top 10 research questions for young people's cancer. We conducted secondary analysis of questions submitted, which were 'out-of-scope' of the original survey aim. We sought to disseminate these questions, to inform practice, policy and the development of potential interventions to support young people with cancer. DESIGN: James Lind Alliance Priority Setting Partnership. PARTICIPANTS: Young…
Bereavement support after the death of a child with cancer
The effects of bereavement are unique and support must be individually tailored. The role of the general practitioner (GP) in paediatric cancer palliative care is wide-ranging and challenging, yet little is known about offered bereavement support in this context. We carried out an in-depth secondary analysis of text relating to bereavement support from a semi-structured interview study exploring GPs’ and parents’ experiences. Findings highlight t…
Untellable tales and uncertain futures
In this paper, we examine the use of creative methods for understanding the experience of young adults aged between 16 and 30 years over a year following a cancer diagnosis. Exploring the renegotiation of identity, the narrative, longitudinal research design of the study demonstrated the unfolding process of the narrative work between participants and researcher. We used a combination of visual, spoken and reflexive psychosocial approaches to und…
Relationships among resilience, self-esteem, and depressive symptoms in Chinese adolescents
This study explored the relationships among resilience, self-esteem, and depressive symptoms in Hong Kong Chinese adolescents. We selected a stratified random sample of 1816 Form 1 students from all 18 districts of Hong Kong. This study revealed that about 21 percent adolescents are experiencing some depressive symptoms. Our results contribute novel findings to the literature showing that resilience is a strong indicator of adolescents at a highe…
Studying Children's Experiences in Interactions With Clinicians
Increased emphasis on the child's voice and point of view in care and treatment has led to an expansion in the development of methods to access and identify their perspectives. Drawing on our experiences in a study of children with leukemia in hospital, this article explains the challenges and opportunities that arise in the use of five commonly used methods in a study of hospitalized children's experiences with health care professionals, includi…
Using participatory and creative research methods to develop and pilot an informative game for preparing children for blood tests
Background: . We sought to develop and evaluate a prototype “tool” to help prepare children for having their blood taken, a procedure most feared by children. Methods: A user-experience design, using creative arts was utilized. Twenty-three children aged 4–12 with haematological conditions participated. Phase 1 involved children developing a blood preparatory “tool” alongside an illustrator. Phase 2 involved children trialing a paper prototype of…
From informed consent to dissemination
Research with young people suffering from a long-term illness has more recently incorporated the use of visual methods to foster engagement of research participants from a wide age range, capture the longitudinal and complex factors involved in young people's experiences of care, and allow young people to express their views in multiple ways. Despite its contributions, these methods are not always easy to implement and there is a possibility that…
Self‐management and skills acquisition in boys with haemophilia
BACKGROUND: There is an increasing prevalence of children/young people with long-term conditions (LTC) in the UK due to improvements in health-care management and delivery. These children are often involved, from an early age, in their own care and management; yet, there are little data to support how or when they develop the necessary skills and knowledge to become competent at this care. OBJECTIVE: This study aimed to understand self-management…
Parental assessment of adolescent quality of life
The Stories of Young People Living With a Liver Transplant
Adolescence is a difficult time for those with chronic illness because of the constraints of the illness on developmental tasks. Little is known about the impact liver transplantation has during adolescence. In this study we aimed to explore, in their own words, young people's lived experience of life after transplantation. We used semistructured interviews to collect narrative data, and used a purposive sample of 14 young people in early, middle…
What is Important to Young Children Who Have Cancer While in Hospital
This paper reports on a participatory research project exploring children’s experiences and views of cancer care services. It focusses on findings from interviews conducted with 10 children aged four and five years old. Play and puppets were used to help children express their views. The themes elicited reveal important aspects of hospital care for young children, such as having ‘lots of toys’ available and that ‘mummy and daddy are near’. The us…
Methodological Issues When Using the Draw and Write Technique With Children Aged 6 to 12 Years
Researchers are responsible for using techniques that allow children to contribute their perspectives in a way that is most suited to their strengths and preferences. The draw and write technique is a method that needs to be used carefully and sensitively if children are to become active participants in revealing their world as they see it. In this article, we explore the issues for the child and researcher of using the draw and write technique a…
Conducting focus groups with children and young people
Focus groups have become a popular and widely used method in qualitative research across the diversity of healthcare. Their use however has been applied mainly to research with adult participants. Only in the last 10 years have we witnessed an expansion in their use with children and young people. This paper describes briefly the characteristics of focus groups before focusing exclusively on the methodological and practical concerns when conducti…
Introducing older learners to information technology through life history writing
Some familiarity and competence with computers would improve older people's access to a range of technological developments that could make their lives safer, more convenient, intellectually more stimulating and more entertaining. Additionally, it might increase their self‐esteem and their acceptance as capable members of society. However, older people have mostly been prevented from acquiring computing skills because of the unavailability, until…
Methodological Issues When Using the Draw and Write Technique With Children Aged 6 to 12 Years
Researchers are responsible for using techniques that allow children to contribute their perspectives in a way that is most suited to their strengths and preferences. The draw and write technique is a method that needs to be used carefully and sensitively if children are to become active participants in revealing their world as they see it. In this article, we explore the issues for the child and researcher of using the draw and write technique a…
Studying Children's Experiences in Interactions With Clinicians
Increased emphasis on the child's voice and point of view in care and treatment has led to an expansion in the development of methods to access and identify their perspectives. Drawing on our experiences in a study of children with leukemia in hospital, this article explains the challenges and opportunities that arise in the use of five commonly used methods in a study of hospitalized children's experiences with health care professionals, includi…
The Stories of Young People Living With a Liver Transplant
Adolescence is a difficult time for those with chronic illness because of the constraints of the illness on developmental tasks. Little is known about the impact liver transplantation has during adolescence. In this study we aimed to explore, in their own words, young people's lived experience of life after transplantation. We used semistructured interviews to collect narrative data, and used a purposive sample of 14 young people in early, middle…
Untellable tales and uncertain futures
In this paper, we examine the use of creative methods for understanding the experience of young adults aged between 16 and 30 years over a year following a cancer diagnosis. Exploring the renegotiation of identity, the narrative, longitudinal research design of the study demonstrated the unfolding process of the narrative work between participants and researcher. We used a combination of visual, spoken and reflexive psychosocial approaches to und…
Introducing older learners to information technology through life history writing
Some familiarity and competence with computers would improve older people's access to a range of technological developments that could make their lives safer, more convenient, intellectually more stimulating and more entertaining. Additionally, it might increase their self‐esteem and their acceptance as capable members of society. However, older people have mostly been prevented from acquiring computing skills because of the unavailability, until…
Relationships among resilience, self-esteem, and depressive symptoms in Chinese adolescents
This study explored the relationships among resilience, self-esteem, and depressive symptoms in Hong Kong Chinese adolescents. We selected a stratified random sample of 1816 Form 1 students from all 18 districts of Hong Kong. This study revealed that about 21 percent adolescents are experiencing some depressive symptoms. Our results contribute novel findings to the literature showing that resilience is a strong indicator of adolescents at a highe…
Introducing older learners to information technology through life history writing
Some familiarity and competence with computers would improve older people's access to a range of technological developments that could make their lives safer, more convenient, intellectually more stimulating and more entertaining. Additionally, it might increase their self‐esteem and their acceptance as capable members of society. However, older people have mostly been prevented from acquiring computing skills because of the unavailability, until…
Conducting focus groups with children and young people
Focus groups have become a popular and widely used method in qualitative research across the diversity of healthcare. Their use however has been applied mainly to research with adult participants. Only in the last 10 years have we witnessed an expansion in their use with children and young people. This paper describes briefly the characteristics of focus groups before focusing exclusively on the methodological and practical concerns when conducti…
Methodological Issues When Using the Draw and Write Technique With Children Aged 6 to 12 Years
Researchers are responsible for using techniques that allow children to contribute their perspectives in a way that is most suited to their strengths and preferences. The draw and write technique is a method that needs to be used carefully and sensitively if children are to become active participants in revealing their world as they see it. In this article, we explore the issues for the child and researcher of using the draw and write technique a…
What is Important to Young Children Who Have Cancer While in Hospital
This paper reports on a participatory research project exploring children’s experiences and views of cancer care services. It focusses on findings from interviews conducted with 10 children aged four and five years old. Play and puppets were used to help children express their views. The themes elicited reveal important aspects of hospital care for young children, such as having ‘lots of toys’ available and that ‘mummy and daddy are near’. The us…
The Stories of Young People Living With a Liver Transplant
Adolescence is a difficult time for those with chronic illness because of the constraints of the illness on developmental tasks. Little is known about the impact liver transplantation has during adolescence. In this study we aimed to explore, in their own words, young people's lived experience of life after transplantation. We used semistructured interviews to collect narrative data, and used a purposive sample of 14 young people in early, middle…
Parental assessment of adolescent quality of life
Self‐management and skills acquisition in boys with haemophilia
BACKGROUND: There is an increasing prevalence of children/young people with long-term conditions (LTC) in the UK due to improvements in health-care management and delivery. These children are often involved, from an early age, in their own care and management; yet, there are little data to support how or when they develop the necessary skills and knowledge to become competent at this care. OBJECTIVE: This study aimed to understand self-management…
From informed consent to dissemination
Research with young people suffering from a long-term illness has more recently incorporated the use of visual methods to foster engagement of research participants from a wide age range, capture the longitudinal and complex factors involved in young people's experiences of care, and allow young people to express their views in multiple ways. Despite its contributions, these methods are not always easy to implement and there is a possibility that…
Using participatory and creative research methods to develop and pilot an informative game for preparing children for blood tests
Background: . We sought to develop and evaluate a prototype “tool” to help prepare children for having their blood taken, a procedure most feared by children. Methods: A user-experience design, using creative arts was utilized. Twenty-three children aged 4–12 with haematological conditions participated. Phase 1 involved children developing a blood preparatory “tool” alongside an illustrator. Phase 2 involved children trialing a paper prototype of…
Studying Children's Experiences in Interactions With Clinicians
Increased emphasis on the child's voice and point of view in care and treatment has led to an expansion in the development of methods to access and identify their perspectives. Drawing on our experiences in a study of children with leukemia in hospital, this article explains the challenges and opportunities that arise in the use of five commonly used methods in a study of hospitalized children's experiences with health care professionals, includi…
Bereavement support after the death of a child with cancer
The effects of bereavement are unique and support must be individually tailored. The role of the general practitioner (GP) in paediatric cancer palliative care is wide-ranging and challenging, yet little is known about offered bereavement support in this context. We carried out an in-depth secondary analysis of text relating to bereavement support from a semi-structured interview study exploring GPs’ and parents’ experiences. Findings highlight t…
Untellable tales and uncertain futures
In this paper, we examine the use of creative methods for understanding the experience of young adults aged between 16 and 30 years over a year following a cancer diagnosis. Exploring the renegotiation of identity, the narrative, longitudinal research design of the study demonstrated the unfolding process of the narrative work between participants and researcher. We used a combination of visual, spoken and reflexive psychosocial approaches to und…
Relationships among resilience, self-esteem, and depressive symptoms in Chinese adolescents
This study explored the relationships among resilience, self-esteem, and depressive symptoms in Hong Kong Chinese adolescents. We selected a stratified random sample of 1816 Form 1 students from all 18 districts of Hong Kong. This study revealed that about 21 percent adolescents are experiencing some depressive symptoms. Our results contribute novel findings to the literature showing that resilience is a strong indicator of adolescents at a highe…
Reporting the whole story
OBJECTIVE: We conducted a UK-wide survey to identify the top 10 research questions for young people's cancer. We conducted secondary analysis of questions submitted, which were 'out-of-scope' of the original survey aim. We sought to disseminate these questions, to inform practice, policy and the development of potential interventions to support young people with cancer. DESIGN: James Lind Alliance Priority Setting Partnership. PARTICIPANTS: Young…
Developing, Nurturing, and Sustaining an Adolescent and Young Adult-Centered Culture of Care
Adolescents and young adults have unique needs which differ from those of children or adults. In the United Kingdom, we have dedicated services, which are diverse in how they are managed and delivered. A multiple-case study was conducted in young people’s cancer services in four geographical regions of England. Data collection included: semi-structured interviews with healthcare professionals ( n = 41) and young people ( n = 29); and observation …
Exploring parent treatment decision-making in relapsed and refractory neuroblastoma
Parents often become involved in making treatment decisions for their child with cancer when there is no standard treatment protocol, typically seen in poor-prognosis cancers. Advances in scientific medicine has led to more treatment options being available for children resulting in parents making repeated treatment decisions depending on their child's response to treatment. The emotional turmoil of their child's cancer diagnosis can be exacerbat…
Exploring Experiences and Designing Guidance for Involving and Engaging Children and Young People in James Lind Alliance Priority Setting Partnerships
INTRODUCTION: Setting research priorities together with children and young people (CYP) in James Lind Alliance (JLA) Priority Setting Partnerships (PSPs) is an example of involving CYP from the beginning of the research process. In these PSPs, CYP can be involved in steering groups, surveys, focus groups and the final priority-setting workshop. The success of JLA PSPs is evident, but it is important to note that specific guidance has not been ava…
Bringing Young People, Health and Social Care Professionals, Transition Champions and Policymakers Together Through Hybrid Methods of Participation
INTRODUCTION: A multi-stakeholder conference was held in 2023, celebrating the achievements of the Burdett National Transition Nursing Network (BNTNN). The BNTNN had been implemented across England in 2020 to map the current state of young people's healthcare transition into adult services across England, and work with key stakeholders to coach them through making sustainable quality improvements to young people's transition services. This work w…
The Forgotten Voices
BACKGROUND: The importance of enabling patients to provide feedback on their experience of healthcare is widely accepted but there are few appropriate measures to enable children and young people to directly provide feedback, particularly those with intellectual disability or younger children. Our primary aim was to develop and test patient-reported experience measures for children and young people with intellectual disability who use inpatient h…
The approach and application of analysing inductive and deductive datasets
Braun and Clarke’s reflexive thematic analysis (reflexive TA) has gained wide attraction since its conception in 2006. Reflexive TA is methodologically flexible with researchers making decisions, which support their philosophical positionings. Qualitative research publications are often criticised for their lack of detail on the analytical processes undertaken to develop the analysis. This level of detail is important for novice researchers in le…
Does Current United Kingdom Childhood Cancer Research Address the James Lind Alliance Children's Cancer Priority Setting Partnership Priorities? A Grant Mapping Study
Engaging With Children
This paper examines researchers’ use of visual methods and arts-based activities, when researching with children who have rare diseases, about their experiences of happiness, fulfilment, and resilience. Their perspectives were sought in order that a tailored ‘Bank of Happiness’ intervention be tested to investigate whether this approach could promote children’s wellbeing and resilience in this setting and applied more widely in the future. In thi…
“I don't think they were used to mental health cases”
Psychology (20 works) · Medicine (15 works) · Sociology (15 works) · Childhood Cancer Survivors' Quality of Life (8 works) · Qualitative research (8 works) · Children's Rights and Participation (7 works) · Family Support in Illness (6 works) · Health care (6 works) · Nursing (6 works) · Political science (6 works)