Phyllis N Butow
Biographic Data
| ID | 1727205 |
|---|---|
| NAME | Phyllis N Butow |
| GIVEN NAMES | Phyllis N |
| FAMILY NAME | Butow |
| SIGNATURE | BUTOW P N |
| VERIFIED | No |
| TOTAL WORKS | 16 |
| TOTAL CITATIONS | 28 |
| AUTHOR COUNT | 14 |
| EDITOR COUNT | 2 |
| FIRST PUBLICATION YEAR | 1999 |
| LATEST PUBLICATION YEAR | 2017 |
| H-INDEX | 2 |
Oxford Textbook of Communication in Oncology and Palliative Care
This textbook integrates clinical wisdom with empirical findings, drawing upon the history of communication science, providing a comprehensive curriculum for applied communication skills training for specialist oncologists, surgeons, nurses, psychosocial care providers and other members of the multidisciplinary team. This new edition presents a curriculum for nurses, which discusses needs of pre-registration to advanced trainees, including the ‘S…
Communicating with children when a parent is dying
Concerns about dependent children are prominent, and distressing, for parents diagnosed with a life-threatening illness. Helping parents feel prepared to talk with children about their illness and possible death, at any stage of illness, has the potential to alleviate distress in both parents and children. This chapter provides a summary of how children at different ages understand and respond to a death, and offers suggestions about how clinicia…
Can consumers learn to ask three questions to improve shared decision making? A feasibility study of the ASK (AskShareKnow) Patient–Clinician Communication Model ® intervention in a primary health‐car…
OBJECTIVE: To test the feasibility and assess the uptake and acceptability of implementing a consumer questions programme, AskShareKnow, to encourage consumers to use the questions '1. What are my options; 2. What are the possible benefits and harms of those options; 3. How likely are each of those benefits and harms to happen to me?' These three questions have previously shown important effects in improving the quality of information provided du…
Psycho-Oncology
Originally published by Oxford in 1998, Psycho-Oncology was the first comprehensive text in the field and remains the gold standard today. Edited by a team of leading experts in psycho-oncology, spearheaded by Dr. Jimmie C. Holland, the founder of the field, the text reflects the interdisciplinary nature and global reach of this growing field. Thoroughly updated and developed in collaboration with the American Psychosocial Society and the Interna…
Sharing decisions in breast cancer care: Development of the Decision Analysis System for Oncology (DAS-O) to identify shared decision making during treatment consultations
BACKGROUND: Shared Decision Making (SDM) is widely accepted as the preferred method for reaching treatment decisions in the oncology setting including those about clinical trial participation: however, there is some disagreement between researchers over the components of SDM. Specific standardized coding systems are needed to help overcome this difficulty. OBJECTIVE: The first objective was to describe the development of an oncology specific SDM …
Exploring the impact of training on the experience of Australian support group leaders: Current practices and implications for research
Background Existing literature suggests that the effectiveness of a support group is linked to the qualifications, skills and experience of the group leader. Yet, little research has been conducted into the experiences of trained vs. untrained support group leaders of chronic‐illness support groups. The current study aimed to compare the experience of leaders, trained vs. untrained in group facilitation, in terms of challenges, rewards and psycho…
Development and evaluation of a decision aid for patients considering first‐line chemotherapy for metastatic breast cancer
Objective Treatment decisions in advanced breast cancer are complex, with enhanced quality of life and survival among important treatment goals. Patients with metastatic breast cancer face the decision of whether or not to have chemotherapy, and many wish to be involved in this decision. We report the development and evaluation of a decision aid (DA) designed to assist patients facing this treatment decision. Design and sample Women with metastat…
Education and role modelling for clinical decisions with female cancer patients
Background Patients vary widely in their preferences and capacity for participating in treatment decision‐making. There are few interventions targeting patient understanding of how doctors make decisions and shared decision‐making. This randomized trial investigates the effects of providing cancer patients with a package designed to facilitate shared decision‐making prior to seeing their oncologist. Patients and methods Sixty‐five female cancer p…
A matter of trust – patient's views on decision‐making in colorectal cancer
Objectives To determine which aspects of the treatment decision process, therapy and outcomes are most important to patients with colorectal cancer (CRC). Design Cross‐sectional survey. Participants A total of 102 men and 73 women who had completed primary treatment for CRC in two teaching hospitals in Central Sydney, Australia. Main outcomes measures Patient's rating of the importance of the decision‐making aspects and outcomes of treatment for …
Women's preferences for and views on decision-making for diagnostic tests
Consumer information materials for diagnostic breast tests: Women's views on information and their understanding of test results
Objective To explore women's views on diagnostic breast test information and elicit their preferences for this information. Design In‐depth, face‐to‐face interview. Setting and Participants Thirty‐seven women who had previously participated in a population‐based telephone survey. Main outcome measure Qualitative thematic analysis. Results Analysis of interview transcripts revealed information about: (1) the wide range of information participants …
Responding to the active and passive patient: Flexibility is the key
Background Patients vary widely in their preferences and capacity for participation in medical decision‐making. This study aimed to document oncologist responses to more extreme presentations and identify helpful and unhelpful strategies for clinicians. Patients and methods A trained actor played the role of a patient with early stage breast cancer who was attending her first consultation with a medical oncologist. She adopted in random order two…
Medical tests: Women's reported and preferred decision‐making roles and preferences for information on benefits, side‐effects and false results
Objective To determine women's preferences for and reported experience with medical test decision‐making. Design Computer‐assisted telephone survey. Setting and participants Six hundred and fifty‐two women resident in households randomly selected from the New South Wales electronic white pages. Main outcome measures Reported and preferred test and treatment (for comparison) decision‐making, satisfaction with and anxiety about information on false…
Women’s preferences for discussion of prognosis in early breast cancer
Objectives To determine preference for prognostic information in women with early breast cancer. Design Cross sectional survey. Participants 100 women with early stage breast cancer attending six teaching hospitals in Sydney, Australia. Main outcome measures Women’s preference for prognostic information. Results This study identifies new elements to consider in the prognostic consultation. Whilst 91% of women wanted to know their prognosis prior …
Sharing decisions in cancer care
Attitudes to randomized clinical trials amongst out‐patients attending a medical oncology clinic
Objective To assess the understanding of and attitudes towards randomized clinical trials amongst patients attending oncology out‐patient clinics. Design Cross‐sectional survey. Subjects Patients attending medical oncology out‐patient clinics at a Sydney teaching hospital. Main outcome Patients' willingness to participate in a randomized clinical trial. Results Sixty consecutive patients were surveyed. The mean age was 55.2 (SD 14) years. Eighty‐…
Attitudes to randomized clinical trials amongst out‐patients attending a medical oncology clinic
Objective To assess the understanding of and attitudes towards randomized clinical trials amongst patients attending oncology out‐patient clinics. Design Cross‐sectional survey. Subjects Patients attending medical oncology out‐patient clinics at a Sydney teaching hospital. Main outcome Patients' willingness to participate in a randomized clinical trial. Results Sixty consecutive patients were surveyed. The mean age was 55.2 (SD 14) years. Eighty‐…
Women’s preferences for discussion of prognosis in early breast cancer
Objectives To determine preference for prognostic information in women with early breast cancer. Design Cross sectional survey. Participants 100 women with early stage breast cancer attending six teaching hospitals in Sydney, Australia. Main outcome measures Women’s preference for prognostic information. Results This study identifies new elements to consider in the prognostic consultation. Whilst 91% of women wanted to know their prognosis prior …
Sharing decisions in cancer care
Responding to the active and passive patient: Flexibility is the key
Background Patients vary widely in their preferences and capacity for participation in medical decision‐making. This study aimed to document oncologist responses to more extreme presentations and identify helpful and unhelpful strategies for clinicians. Patients and methods A trained actor played the role of a patient with early stage breast cancer who was attending her first consultation with a medical oncologist. She adopted in random order two…
Medical tests: Women's reported and preferred decision‐making roles and preferences for information on benefits, side‐effects and false results
Objective To determine women's preferences for and reported experience with medical test decision‐making. Design Computer‐assisted telephone survey. Setting and participants Six hundred and fifty‐two women resident in households randomly selected from the New South Wales electronic white pages. Main outcome measures Reported and preferred test and treatment (for comparison) decision‐making, satisfaction with and anxiety about information on false…
Consumer information materials for diagnostic breast tests: Women's views on information and their understanding of test results
Objective To explore women's views on diagnostic breast test information and elicit their preferences for this information. Design In‐depth, face‐to‐face interview. Setting and Participants Thirty‐seven women who had previously participated in a population‐based telephone survey. Main outcome measure Qualitative thematic analysis. Results Analysis of interview transcripts revealed information about: (1) the wide range of information participants …
Education and role modelling for clinical decisions with female cancer patients
Background Patients vary widely in their preferences and capacity for participating in treatment decision‐making. There are few interventions targeting patient understanding of how doctors make decisions and shared decision‐making. This randomized trial investigates the effects of providing cancer patients with a package designed to facilitate shared decision‐making prior to seeing their oncologist. Patients and methods Sixty‐five female cancer p…
A matter of trust – patient's views on decision‐making in colorectal cancer
Objectives To determine which aspects of the treatment decision process, therapy and outcomes are most important to patients with colorectal cancer (CRC). Design Cross‐sectional survey. Participants A total of 102 men and 73 women who had completed primary treatment for CRC in two teaching hospitals in Central Sydney, Australia. Main outcomes measures Patient's rating of the importance of the decision‐making aspects and outcomes of treatment for …
Women's preferences for and views on decision-making for diagnostic tests
Development and evaluation of a decision aid for patients considering first‐line chemotherapy for metastatic breast cancer
Objective Treatment decisions in advanced breast cancer are complex, with enhanced quality of life and survival among important treatment goals. Patients with metastatic breast cancer face the decision of whether or not to have chemotherapy, and many wish to be involved in this decision. We report the development and evaluation of a decision aid (DA) designed to assist patients facing this treatment decision. Design and sample Women with metastat…
Exploring the impact of training on the experience of Australian support group leaders: Current practices and implications for research
Background Existing literature suggests that the effectiveness of a support group is linked to the qualifications, skills and experience of the group leader. Yet, little research has been conducted into the experiences of trained vs. untrained support group leaders of chronic‐illness support groups. The current study aimed to compare the experience of leaders, trained vs. untrained in group facilitation, in terms of challenges, rewards and psycho…
Sharing decisions in breast cancer care: Development of the Decision Analysis System for Oncology (DAS-O) to identify shared decision making during treatment consultations
BACKGROUND: Shared Decision Making (SDM) is widely accepted as the preferred method for reaching treatment decisions in the oncology setting including those about clinical trial participation: however, there is some disagreement between researchers over the components of SDM. Specific standardized coding systems are needed to help overcome this difficulty. OBJECTIVE: The first objective was to describe the development of an oncology specific SDM …
Psycho-Oncology
Originally published by Oxford in 1998, Psycho-Oncology was the first comprehensive text in the field and remains the gold standard today. Edited by a team of leading experts in psycho-oncology, spearheaded by Dr. Jimmie C. Holland, the founder of the field, the text reflects the interdisciplinary nature and global reach of this growing field. Thoroughly updated and developed in collaboration with the American Psychosocial Society and the Interna…
Can consumers learn to ask three questions to improve shared decision making? A feasibility study of the ASK (AskShareKnow) Patient–Clinician Communication Model ® intervention in a primary health‐car…
OBJECTIVE: To test the feasibility and assess the uptake and acceptability of implementing a consumer questions programme, AskShareKnow, to encourage consumers to use the questions '1. What are my options; 2. What are the possible benefits and harms of those options; 3. How likely are each of those benefits and harms to happen to me?' These three questions have previously shown important effects in improving the quality of information provided du…
Oxford Textbook of Communication in Oncology and Palliative Care
This textbook integrates clinical wisdom with empirical findings, drawing upon the history of communication science, providing a comprehensive curriculum for applied communication skills training for specialist oncologists, surgeons, nurses, psychosocial care providers and other members of the multidisciplinary team. This new edition presents a curriculum for nurses, which discusses needs of pre-registration to advanced trainees, including the ‘S…
Communicating with children when a parent is dying
Concerns about dependent children are prominent, and distressing, for parents diagnosed with a life-threatening illness. Helping parents feel prepared to talk with children about their illness and possible death, at any stage of illness, has the potential to alleviate distress in both parents and children. This chapter provides a summary of how children at different ages understand and respond to a death, and offers suggestions about how clinicia…
Medicine (16 works) · Patient-Provider Communication in Healthcare (11 works) · Psychology (11 works) · Family medicine (10 works) · Nursing (8 works) · Internal Medicine (7 works) · Cancer survivorship and care (6 works) · Cancer (5 works) · MEDLINE (5 works) · Palliative Care and End-of-Life Issues (5 works)