Susan Neilson
Biographic Data
| ID | 1730905 |
|---|---|
| NAME | Susan Neilson |
| GIVEN NAMES | Susan |
| FAMILY NAME | Neilson |
| SIGNATURE | NEILSON S |
| AFFILIATIONS | University of Birmingham |
| ORCID | 0000-0003-4275-9341 |
| VERIFIED | Yes |
| TOTAL WORKS | 4 |
| TOTAL CITATIONS | 0 |
| AUTHOR COUNT | 4 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2020 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 0 |
Palliative care training programmes for community volunteers working with children and their families
Introduction: Volunteers play a significant role in enhancing the quality of palliative care. Training is necessary to deliver voluntary community care that assists healthcare professionals, benefits families and eradicates inequities for underserved populations. Community volunteers form a large part of paediatric palliative care support, but training courses are rarely specific to children leaving volunteers unprepared and unsupported. Aim: To …
Understanding what matters to young people with life-limiting and life-threatening conditions
End-of-life care encompasses a range of services aimed at delivering holistic interventions. Yet, economic evaluations of such services have tended to be focused on health-related outcomes, which may be too narrow to adequately capture outcomes at the end of life. Capability measures aim to capture wider outcomes focusing on what people can do and be in their lives. Capability measures are not yet available for children and young people at the en…
Bereavement support after the death of a child with cancer
The effects of bereavement are unique and support must be individually tailored. The role of the general practitioner (GP) in paediatric cancer palliative care is wide-ranging and challenging, yet little is known about offered bereavement support in this context. We carried out an in-depth secondary analysis of text relating to bereavement support from a semi-structured interview study exploring GPs’ and parents’ experiences. Findings highlight t…
Exploring the Role of ‘Shadowing’ as a Beneficial Preparatory Step for Sensitive Qualitative Research with Children and Young People with Serious Health Conditions
This article aims to explore and record the role of shadowing in preparation for a qualitative study involving children and families with sensitive health issues. The researcher was engaged for a study involving qualitative research involving paediatric patients (those under 18 years old) and their families, but was unfamiliar with a hospital environment and interviewing children and young people (CYP) with a serious health condition. The researc…
No prominent works on this page.
Bereavement support after the death of a child with cancer
The effects of bereavement are unique and support must be individually tailored. The role of the general practitioner (GP) in paediatric cancer palliative care is wide-ranging and challenging, yet little is known about offered bereavement support in this context. We carried out an in-depth secondary analysis of text relating to bereavement support from a semi-structured interview study exploring GPs’ and parents’ experiences. Findings highlight t…
Exploring the Role of ‘Shadowing’ as a Beneficial Preparatory Step for Sensitive Qualitative Research with Children and Young People with Serious Health Conditions
This article aims to explore and record the role of shadowing in preparation for a qualitative study involving children and families with sensitive health issues. The researcher was engaged for a study involving qualitative research involving paediatric patients (those under 18 years old) and their families, but was unfamiliar with a hospital environment and interviewing children and young people (CYP) with a serious health condition. The researc…
Palliative care training programmes for community volunteers working with children and their families
Introduction: Volunteers play a significant role in enhancing the quality of palliative care. Training is necessary to deliver voluntary community care that assists healthcare professionals, benefits families and eradicates inequities for underserved populations. Community volunteers form a large part of paediatric palliative care support, but training courses are rarely specific to children leaving volunteers unprepared and unsupported. Aim: To …
Understanding what matters to young people with life-limiting and life-threatening conditions
End-of-life care encompasses a range of services aimed at delivering holistic interventions. Yet, economic evaluations of such services have tended to be focused on health-related outcomes, which may be too narrow to adequately capture outcomes at the end of life. Capability measures aim to capture wider outcomes focusing on what people can do and be in their lives. Capability measures are not yet available for children and young people at the en…
Medicine (4 works) · Nursing (4 works) · Childhood Cancer Survivors' Quality of Life (3 works) · Palliative care (3 works) · Palliative Care and End-of-Life Issues (3 works) · Psychology (3 works) · Sociology (3 works) · Psychological intervention (2 works) · Qualitative research (2 works) · Adolescent and Pediatric Healthcare (1 works)