Erin Rothwell

Biographic Data

ID	181807
NAME	Erin Rothwell
GIVEN NAMES	Erin
FAMILY NAME	Rothwell
SIGNATURE	ROTHWELL E
AFFILIATIONS	University of Utah
ORCID	0000-0002-2294-2299
VERIFIED	Yes
TOTAL WORKS	19
TOTAL CITATIONS	4
AUTHOR COUNT	19
EDITOR COUNT	0
FIRST PUBLICATION YEAR	2004
LATEST PUBLICATION YEAR	2025
H-INDEX	1

Recruitment Techniques Used for Clinical Trials and the Potential Impact of Nudges
Open AccessMolly Volkmar, Jewels Watts et al.ARTICLEJournal of Empirical Research on…2025References: 1
While clinical trials are essential to improving public health, little research has examined the range of recruitment techniques used or whether they involve behavioral nudges. Behavioral nudges have been defined as "any aspect of the choice architecture [the manner in which options are presented] that alters people's behavior in a predictable way without forbidding any options or significantly changing their economic incentives"; these may influ…
Demonstrating ‘respect for persons’ in clinical research
Stephanie A Kraft, Erin Rothwell et al.ARTICLEJournal of Medical Ethics2021
The ethical principle of ‘respect for persons’ in clinical research has traditionally focused on protecting individuals’ autonomy rights, but respect for participants also includes broader, although less well understood, ethical obligations to regard individuals’ rights, needs, interests and feelings. However, there is little empirical evidence about how to effectively convey respect to potential and current participants. To fill this gap, we con…
Electronic informed consent information for residual newborn specimen research
Open AccessChristopher J Frost, Erin Johnson et al.ARTICLEJournal of Community Genetics2021
Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research
Open AccessErin Rothwell, Erin Johnson et al.ARTICLEJournal of Empirical Research on…2020References: 1
Obtaining informed consent for bloodspot research from newborn screening is particularly challenging due to the hectic environment of the postnatal period and the relatively abstract nature of future, unspecified research on the biospecimens. A randomized controlled trial was conducted in three Michigan hospitals to compare two different consent processes (video and interactive tablet "app") with standard brochure-based consent in the Michigan Bi…
Content of First Prenatal Visits
Open AccessJ Dyer, Jane M Dyer et al.ARTICLEMaternal and Child Health Journal2018
Education for fathers about newborn screening and leftover dried blood spots
Open AccessErin Rothwell, Bob Wong et al.ARTICLEJournal of Community Genetics2017
An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots
Open AccessErin Rothwell, Aaron J Goldenberg et al.ARTICLEJournal of Empirical Research on…2017Cited by: 1References: 3
As state newborn screening programs develop approaches to parental permission for the storage and use of residual dried newborn screening samples, it is important to understand how the public comprehends the consent elements. Focus groups in Utah, California, and Michigan ( n = 7 groups, 69 participants) were conducted to evaluate the language on a shortened consent form. Outcomes from the analysis included barriers to conceptualizing biospecimen…
Deliberative Discussion Focus Groups
Open AccessErin Rothwell, Rebecca Anderson et al.ARTICLEQualitative Health Research2016
This article discusses a new approach for the conduct of focus groups in health research. Identifying ways to educate and inform participants about the topic of interest prior to the focus group discussion can promote more quality data from informed opinions. Data on this deliberative discussion approach are provided from research within three federally funded studies. As healthcare continues to improve from scientific and technological advanceme…
The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots
Open AccessErin Rothwell, Bob Wong et al.ARTICLEJournal of Empirical Research on…2016References: 1
The objectives of this study were to evaluate the impact of educational interventions during prenatal care on public trust for newborn screening and consent preferences for the retention and use of leftover newborn screening dried blood spots. Women who were 30 to 36 weeks pregnant were recruited, and outcomes were measured by telephone survey 2 to 4 weeks postpartum (n = 901). Approximately 40% of the sample chose the opt-out approach but those …
Variants of unknown significance on chromosomal microarray analysis
Open AccessStephanie Jez, Megan Martin et al.ARTICLEJournal of Community Genetics2015
Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family
Open AccessLeigh Ann Higa, Jamie McDonald et al.ARTICLEJournal of Community Genetics2015
Public attitudes regarding the use of electronic health information and residual clinical tissues for research
Open AccessJeffrey R Botkin, Erin Rothwell et al.ARTICLEJournal of Community Genetics2015
Investigator Experiences and Attitudes About Research With Biospecimens
Open AccessSuzanne M Rivera, Aaron J Goldenberg et al.ARTICLEJournal of Empirical Research on…2015
To advance scientific knowledge about human diseases and effective therapeutic treatments, investigators need access to human biospecimens and associated data. However, regulatory and procedural requirements may impede investigators' efforts to share biospecimens and data within and across institutions. Although a number of studies have explored experiences and attitudes of study participants and others about biospecimen and data sharing, less is…
A Randomized Controlled Trial of an Electronic Informed Consent Process
Open AccessErin Rothwell, Bob Wong et al.ARTICLEJournal of Empirical Research on…2014Cited by: 1References: 3
A pilot study assessed an electronic informed consent model within a randomized controlled trial (RCT). Participants who were recruited for the parent RCT project were randomly selected and randomized to either an electronic consent group (n = 32) or a simplified paper-based consent group (n = 30). Results from the electronic consent group reported significantly higher understanding of the purpose of the study, alternatives to participation, and …
Public attitudes regarding the use of electronic health information and residual clinical tissues for research
Open AccessJeffrey R Botkin, Erin Rothwell et al.ARTICLEJournal of Community Genetics2013
Assessing public attitudes on the retention and use of residual newborn screening blood samples
Open AccessErin Rothwell, Rebecca Anderson et al.ARTICLESocial Science & Medicine2012Cited by: 2References: 8
Exploring Challenges to Telehealth Communication by Specialists in Poison Information
Open AccessErin Rothwell, Lee Ellington et al.ARTICLEQualitative Health Research2012References: 34
The use of the telephone for providing health care is growing. A significant amount of social meaning is derived from visual information, and the absence of visual stimuli provides unique barriers to communication and increases the risks for misunderstandings and distractions. Understanding challenges to telephone communication can provide insight into training opportunities for overcoming these difficulties and improving patient care. The purpos…
Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots
Erin Rothwell, Erin W Rothwell et al.ARTICLEAmerican Journal of Public Health2011References: 14
Objectives. We assessed attitudes and opinions of members of newborn blood screening (NBS) advisory committees regarding the storage and secondary research use of residual specimens from NBS. Methods. We conducted focus groups in 2008 and 2009 with NBS advisory committees (4 focus groups; n = 39 participants) in the Mountain States region (i.e., AZ, CO, MT, NM, NV, TX, UT, and WY). Results. Participants identified several challenges to implementi…
Feasibility and acceptability of a specialist clinical service for HIV-infected mineworkers in South Africa
Salome Charalambous, Anne D Grant et al.ARTICLEAIDS Care2004
Occupational settings offer an ideal opportunity to provide preventive health services for HIV-infected workers. A specialized clinic was established in a mining hospital in the Free State, South Africa, with the primary aim of delivering preventive therapy such as isoniazid to those at high risk of tuberculosis (individuals with HIV infection or silicosis), and cotrimoxazole to those at highest risk for opportunistic infections. The clinic desig…

Feasibility and acceptability of a specialist clinical service for HIV-infected mineworkers in South Africa
Salome Charalambous, Anne D Grant et al.ARTICLEAIDS Care2004
Occupational settings offer an ideal opportunity to provide preventive health services for HIV-infected workers. A specialized clinic was established in a mining hospital in the Free State, South Africa, with the primary aim of delivering preventive therapy such as isoniazid to those at high risk of tuberculosis (individuals with HIV infection or silicosis), and cotrimoxazole to those at highest risk for opportunistic infections. The clinic desig…
Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots
Erin Rothwell, Erin W Rothwell et al.ARTICLEAmerican Journal of Public Health2011References: 14
Objectives. We assessed attitudes and opinions of members of newborn blood screening (NBS) advisory committees regarding the storage and secondary research use of residual specimens from NBS. Methods. We conducted focus groups in 2008 and 2009 with NBS advisory committees (4 focus groups; n = 39 participants) in the Mountain States region (i.e., AZ, CO, MT, NM, NV, TX, UT, and WY). Results. Participants identified several challenges to implementi…
Assessing public attitudes on the retention and use of residual newborn screening blood samples
Open AccessErin Rothwell, Rebecca Anderson et al.ARTICLESocial Science & Medicine2012Cited by: 2References: 8
Exploring Challenges to Telehealth Communication by Specialists in Poison Information
Open AccessErin Rothwell, Lee Ellington et al.ARTICLEQualitative Health Research2012References: 34
The use of the telephone for providing health care is growing. A significant amount of social meaning is derived from visual information, and the absence of visual stimuli provides unique barriers to communication and increases the risks for misunderstandings and distractions. Understanding challenges to telephone communication can provide insight into training opportunities for overcoming these difficulties and improving patient care. The purpos…
Public attitudes regarding the use of electronic health information and residual clinical tissues for research
Open AccessJeffrey R Botkin, Erin Rothwell et al.ARTICLEJournal of Community Genetics2013
A Randomized Controlled Trial of an Electronic Informed Consent Process
Open AccessErin Rothwell, Bob Wong et al.ARTICLEJournal of Empirical Research on…2014Cited by: 1References: 3
A pilot study assessed an electronic informed consent model within a randomized controlled trial (RCT). Participants who were recruited for the parent RCT project were randomly selected and randomized to either an electronic consent group (n = 32) or a simplified paper-based consent group (n = 30). Results from the electronic consent group reported significantly higher understanding of the purpose of the study, alternatives to participation, and …
Variants of unknown significance on chromosomal microarray analysis
Open AccessStephanie Jez, Megan Martin et al.ARTICLEJournal of Community Genetics2015
Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family
Open AccessLeigh Ann Higa, Jamie McDonald et al.ARTICLEJournal of Community Genetics2015
Public attitudes regarding the use of electronic health information and residual clinical tissues for research
Open AccessJeffrey R Botkin, Erin Rothwell et al.ARTICLEJournal of Community Genetics2015
Investigator Experiences and Attitudes About Research With Biospecimens
Open AccessSuzanne M Rivera, Aaron J Goldenberg et al.ARTICLEJournal of Empirical Research on…2015
To advance scientific knowledge about human diseases and effective therapeutic treatments, investigators need access to human biospecimens and associated data. However, regulatory and procedural requirements may impede investigators' efforts to share biospecimens and data within and across institutions. Although a number of studies have explored experiences and attitudes of study participants and others about biospecimen and data sharing, less is…
Deliberative Discussion Focus Groups
Open AccessErin Rothwell, Rebecca Anderson et al.ARTICLEQualitative Health Research2016
This article discusses a new approach for the conduct of focus groups in health research. Identifying ways to educate and inform participants about the topic of interest prior to the focus group discussion can promote more quality data from informed opinions. Data on this deliberative discussion approach are provided from research within three federally funded studies. As healthcare continues to improve from scientific and technological advanceme…
The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots
Open AccessErin Rothwell, Bob Wong et al.ARTICLEJournal of Empirical Research on…2016References: 1
The objectives of this study were to evaluate the impact of educational interventions during prenatal care on public trust for newborn screening and consent preferences for the retention and use of leftover newborn screening dried blood spots. Women who were 30 to 36 weeks pregnant were recruited, and outcomes were measured by telephone survey 2 to 4 weeks postpartum (n = 901). Approximately 40% of the sample chose the opt-out approach but those …
Education for fathers about newborn screening and leftover dried blood spots
Open AccessErin Rothwell, Bob Wong et al.ARTICLEJournal of Community Genetics2017
An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots
Open AccessErin Rothwell, Aaron J Goldenberg et al.ARTICLEJournal of Empirical Research on…2017Cited by: 1References: 3
As state newborn screening programs develop approaches to parental permission for the storage and use of residual dried newborn screening samples, it is important to understand how the public comprehends the consent elements. Focus groups in Utah, California, and Michigan ( n = 7 groups, 69 participants) were conducted to evaluate the language on a shortened consent form. Outcomes from the analysis included barriers to conceptualizing biospecimen…
Content of First Prenatal Visits
Open AccessJ Dyer, Jane M Dyer et al.ARTICLEMaternal and Child Health Journal2018
Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research
Open AccessErin Rothwell, Erin Johnson et al.ARTICLEJournal of Empirical Research on…2020References: 1
Obtaining informed consent for bloodspot research from newborn screening is particularly challenging due to the hectic environment of the postnatal period and the relatively abstract nature of future, unspecified research on the biospecimens. A randomized controlled trial was conducted in three Michigan hospitals to compare two different consent processes (video and interactive tablet "app") with standard brochure-based consent in the Michigan Bi…
Demonstrating ‘respect for persons’ in clinical research
Stephanie A Kraft, Erin Rothwell et al.ARTICLEJournal of Medical Ethics2021
The ethical principle of ‘respect for persons’ in clinical research has traditionally focused on protecting individuals’ autonomy rights, but respect for participants also includes broader, although less well understood, ethical obligations to regard individuals’ rights, needs, interests and feelings. However, there is little empirical evidence about how to effectively convey respect to potential and current participants. To fill this gap, we con…
Electronic informed consent information for residual newborn specimen research
Open AccessChristopher J Frost, Erin Johnson et al.ARTICLEJournal of Community Genetics2021
Recruitment Techniques Used for Clinical Trials and the Potential Impact of Nudges
Open AccessMolly Volkmar, Jewels Watts et al.ARTICLEJournal of Empirical Research on…2025References: 1
While clinical trials are essential to improving public health, little research has examined the range of recruitment techniques used or whether they involve behavioral nudges. Behavioral nudges have been defined as "any aspect of the choice architecture [the manner in which options are presented] that alters people's behavior in a predictable way without forbidding any options or significantly changing their economic incentives"; these may influ…