Lee Ellington
Biographic Data
| ID | 181808 |
|---|---|
| NAME | Lee Ellington |
| GIVEN NAMES | Lee |
| FAMILY NAME | Ellington |
| SIGNATURE | ELLINGTON L |
| AFFILIATIONS | University of Utah |
| ORCID | 0000-0002-7035-490X |
| VERIFIED | Yes |
| TOTAL WORKS | 14 |
| TOTAL CITATIONS | 18 |
| AUTHOR COUNT | 14 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2007 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 3 |
Risk of mental health conditions in bereavement
Background: Caregiving to lung cancer patients is distressing, isolating, and associated with a high burden of anxiety and depression. However, few population-based studies in the U.S. have examined the risk of mental health conditions (MHCs) among spouses of lung cancer patients after the death of their partner. Guided by Anderson's Behavioral Health Utilization model, we examined the role of sex, pre-bereavement MHC, and decedents' healthcare u…
Using Grounded Theory to Develop a Substantive Theory for Grandparent-Caregiving in Uganda
INTRODUCTION: Few studies have focused on developing theories to explain caregiving as performed by grandparents who provide care for their grandchildren in any setting. Theory development that is grounded in the experiences and cultural context of those being studied is needed to inform research, subsequent care, and overall well-being, especially of populations that are understudied. METHODS: This manuscript was informed by Constructivist Groun…
Hospice Caregivers’ Perception of Family and Non-Family Social Support and Stress over Time
Social support has been identified as a key factor to protect wellbeing for home hospice cancer caregivers. However, few studies have assessed social support over time in this context, and measures of support are often limited to general assessments of perceived support. Our goal was to (1) describe change in cancer home hospice caregivers' social support over time during care and into bereavement and (2) explore the impact of perceived stress an…
Disparities and determinants of place of death
To better understand determinants and potential disparities in end of life, we model decedents' place of death with explanatory variables describing familial, social, and economic resources. A retrospective cohort of 204,041 decedents and their family members are drawn from the Utah Population Database family caregiving dataset. Using multinomial regression, we model place of death, categorized as at home, in a hospital, in another location, or u…
Communication between Advanced Cancer Patients and Their Family Caregivers
Cancer impacts spouse caregivers, especially when couples engage in dyadic coping around the cancer. Communication is a key factor in this process. Our goals were to describe cancer-related communication between advanced cancer patients and their spouse caregivers, and to describe how dyadic communication patterns are related to caregivers' reported burden and preparedness for caregiving. Caregivers completed measures of caregiver burden and prep…
Employment of Young Adult Cancer Caregivers, Other Disease Caregivers, and Non-Caregiving Adults
Young adults are increasingly taking on caregiving roles in the United States, and cancer caregivers often experience a greater burden than other caregivers. An unexpected caregiving role may disrupt caregiver employment, leading to lost earning potential and workforce re-entry challenges. We examined caregiving employment among young adult caregivers (i.e., family or friends) using the 2015 Behavioral Risk Factor Surveillance System (BRFSS), whi…
Bots and nots
The COVID-19 pandemic has intensified the use of online recruitment and data collection for reaching historically underrepresented minorities (URMs) and other diverse groups. Preventing and detecting responses from automated accounts "bots" and those who misrepresent themselves is one challenge in utilizing online approaches. Through internet-mediated methods, interested LGBTQ+ and non-LGBTQ+ couples facing advanced cancer completed an interest f…
Patterns of stress and support in social support networks of in-home hospice cancer family caregivers
Family caregivers of home hospice cancer patients often experience burden and distress, which can be mitigated by perceived social support. However, less attention has been paid to the non-family sources of support within social networks, or to how sources of support may also be sources of stress. We describe support and stress in social networks of hospice family caregivers and identify caregiving characteristics associated with classes identifi…
Spouse cancer caregivers' burden and distress at entry to home hospice
High-quality relationships may be protective for family caregivers. This study focuses on relationship quality categories (supportive and ambivalent) in spouse caregivers in cancer home hospice. The goals of this article are to, first, describe relationship quality categories among end-of-life caregivers and, second, test the effects of relationship quality categories on caregiver burden and distress within a stress process model. Using questionn…
Beyond Primary Care Providers
The Religion of “I Don’t Know”
The goal of this pilot study was to identify naturally occurring, spiritually relevant conversations and elucidate challenges for nurses in home hospice. We examined naturalistic communication data collected during nurse hospice visits with cancer patients and their family caregivers. Using deductive content analysis, guided by Consensus Conference spiritual categories and definition, categorical themes were identified. Thirty-three visits to sev…
Exploring Challenges to Telehealth Communication by Specialists in Poison Information
The use of the telephone for providing health care is growing. A significant amount of social meaning is derived from visual information, and the absence of visual stimuli provides unique barriers to communication and increases the risks for misunderstandings and distractions. Understanding challenges to telephone communication can provide insight into training opportunities for overcoming these difficulties and improving patient care. The purpos…
Assessing oral literacy demand in genetic counseling dialogue
Genetic counseling communication with an African American BRCA1 kindred
Spouse cancer caregivers' burden and distress at entry to home hospice
High-quality relationships may be protective for family caregivers. This study focuses on relationship quality categories (supportive and ambivalent) in spouse caregivers in cancer home hospice. The goals of this article are to, first, describe relationship quality categories among end-of-life caregivers and, second, test the effects of relationship quality categories on caregiver burden and distress within a stress process model. Using questionn…
Assessing oral literacy demand in genetic counseling dialogue
Patterns of stress and support in social support networks of in-home hospice cancer family caregivers
Family caregivers of home hospice cancer patients often experience burden and distress, which can be mitigated by perceived social support. However, less attention has been paid to the non-family sources of support within social networks, or to how sources of support may also be sources of stress. We describe support and stress in social networks of hospice family caregivers and identify caregiving characteristics associated with classes identifi…
Genetic counseling communication with an African American BRCA1 kindred
Bots and nots
The COVID-19 pandemic has intensified the use of online recruitment and data collection for reaching historically underrepresented minorities (URMs) and other diverse groups. Preventing and detecting responses from automated accounts "bots" and those who misrepresent themselves is one challenge in utilizing online approaches. Through internet-mediated methods, interested LGBTQ+ and non-LGBTQ+ couples facing advanced cancer completed an interest f…
Assessing oral literacy demand in genetic counseling dialogue
Genetic counseling communication with an African American BRCA1 kindred
Exploring Challenges to Telehealth Communication by Specialists in Poison Information
The use of the telephone for providing health care is growing. A significant amount of social meaning is derived from visual information, and the absence of visual stimuli provides unique barriers to communication and increases the risks for misunderstandings and distractions. Understanding challenges to telephone communication can provide insight into training opportunities for overcoming these difficulties and improving patient care. The purpos…
Beyond Primary Care Providers
The Religion of “I Don’t Know”
The goal of this pilot study was to identify naturally occurring, spiritually relevant conversations and elucidate challenges for nurses in home hospice. We examined naturalistic communication data collected during nurse hospice visits with cancer patients and their family caregivers. Using deductive content analysis, guided by Consensus Conference spiritual categories and definition, categorical themes were identified. Thirty-three visits to sev…
Spouse cancer caregivers' burden and distress at entry to home hospice
High-quality relationships may be protective for family caregivers. This study focuses on relationship quality categories (supportive and ambivalent) in spouse caregivers in cancer home hospice. The goals of this article are to, first, describe relationship quality categories among end-of-life caregivers and, second, test the effects of relationship quality categories on caregiver burden and distress within a stress process model. Using questionn…
Communication between Advanced Cancer Patients and Their Family Caregivers
Cancer impacts spouse caregivers, especially when couples engage in dyadic coping around the cancer. Communication is a key factor in this process. Our goals were to describe cancer-related communication between advanced cancer patients and their spouse caregivers, and to describe how dyadic communication patterns are related to caregivers' reported burden and preparedness for caregiving. Caregivers completed measures of caregiver burden and prep…
Employment of Young Adult Cancer Caregivers, Other Disease Caregivers, and Non-Caregiving Adults
Young adults are increasingly taking on caregiving roles in the United States, and cancer caregivers often experience a greater burden than other caregivers. An unexpected caregiving role may disrupt caregiver employment, leading to lost earning potential and workforce re-entry challenges. We examined caregiving employment among young adult caregivers (i.e., family or friends) using the 2015 Behavioral Risk Factor Surveillance System (BRFSS), whi…
Bots and nots
The COVID-19 pandemic has intensified the use of online recruitment and data collection for reaching historically underrepresented minorities (URMs) and other diverse groups. Preventing and detecting responses from automated accounts "bots" and those who misrepresent themselves is one challenge in utilizing online approaches. Through internet-mediated methods, interested LGBTQ+ and non-LGBTQ+ couples facing advanced cancer completed an interest f…
Patterns of stress and support in social support networks of in-home hospice cancer family caregivers
Family caregivers of home hospice cancer patients often experience burden and distress, which can be mitigated by perceived social support. However, less attention has been paid to the non-family sources of support within social networks, or to how sources of support may also be sources of stress. We describe support and stress in social networks of hospice family caregivers and identify caregiving characteristics associated with classes identifi…
Hospice Caregivers’ Perception of Family and Non-Family Social Support and Stress over Time
Social support has been identified as a key factor to protect wellbeing for home hospice cancer caregivers. However, few studies have assessed social support over time in this context, and measures of support are often limited to general assessments of perceived support. Our goal was to (1) describe change in cancer home hospice caregivers' social support over time during care and into bereavement and (2) explore the impact of perceived stress an…
Disparities and determinants of place of death
To better understand determinants and potential disparities in end of life, we model decedents' place of death with explanatory variables describing familial, social, and economic resources. A retrospective cohort of 204,041 decedents and their family members are drawn from the Utah Population Database family caregiving dataset. Using multinomial regression, we model place of death, categorized as at home, in a hospital, in another location, or u…
Using Grounded Theory to Develop a Substantive Theory for Grandparent-Caregiving in Uganda
INTRODUCTION: Few studies have focused on developing theories to explain caregiving as performed by grandparents who provide care for their grandchildren in any setting. Theory development that is grounded in the experiences and cultural context of those being studied is needed to inform research, subsequent care, and overall well-being, especially of populations that are understudied. METHODS: This manuscript was informed by Constructivist Groun…
Risk of mental health conditions in bereavement
Background: Caregiving to lung cancer patients is distressing, isolating, and associated with a high burden of anxiety and depression. However, few population-based studies in the U.S. have examined the risk of mental health conditions (MHCs) among spouses of lung cancer patients after the death of their partner. Guided by Anderson's Behavioral Health Utilization model, we examined the role of sex, pre-bereavement MHC, and decedents' healthcare u…
Medicine (12 works) · Psychology (11 works) · Gerontology (7 works) · Family Support in Illness (5 works) · Palliative Care and End-of-Life Issues (5 works) · Social Psychology (5 works) · Clinical Psychology (4 works) · Computer Science (4 works) · Grief, Bereavement, and Mental Health (4 works) · Population (4 works)