Aleksandra Borek
Biographic Data
| ID | 1859977 |
|---|---|
| NAME | Aleksandra Borek |
| GIVEN NAMES | Aleksandra |
| FAMILY NAME | Borek |
| SIGNATURE | BOREK A |
| AFFILIATIONS | University of Oxford |
| ORCID | 0000-0001-6029-5291 |
| VERIFIED | Yes |
| TOTAL WORKS | 14 |
| TOTAL CITATIONS | 8 |
| AUTHOR COUNT | 14 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2012 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 2 |
The sepsis journey and where digital alerts can help
Introduction: The fight against sepsis is an ongoing healthcare challenge, where digital tools are increasingly used with some promising results. The experience of survivors and their family members can help optimize digital alerts for sepsis/deterioration. This study pairs the experiences of survivors of their sepsis journey and family members with their knowledge and views on the role of digital alerts. Methods: A qualitative study with online,…
What Are the Important Health and Well‐Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study
BACKGROUND: Patient-reported outcome measures (PROMs) are used to evaluate the effectiveness of interventions, particularly for subjective health states such as well-being. A parent carer is an adult primary caregiver for a child with a disability. Parent carers are at risk of poorer mental and physical health; targeted health promotion interventions are being developed, requiring evaluation. This study aimed to identify the important health and …
Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting
The "Baby Ubuntu" programme is a well-established, low-cost, community-based intervention to support caregivers of children with complex neurodisability, like cerebral palsy, in low- and middle-income country (LMIC) contexts. This process-focused paper describes our utilisation of the ADAPT guidance to adapt "Baby Ubuntu" for use in ethnically and linguistically diverse, and economically deprived urban boroughs in the United Kingdom (UK). The pro…
Ensuring equitable access, engagement and ability of socially and ethnically diverse participants to benefit from health promotion programmes
Background: Equity is fundamental to health promotion programmes. However, unintentional or unseen barriers may exist for some underserved groups. We aimed to identify how to ensure equitable access and engagement for diverse parent carers of disabled children to benefit from health promotion programmes. Methods: We purposively sampled parent carers with potentially intersecting characteristics including those who self-identified as from ethnic g…
What aspects of health and wellbeing are most important to parent carers of children with disabilities
INTRODUCTION: Parent carers of children with special educational needs or disabilities are at risk of poorer health and wellbeing outcomes because of the distinct and challenging circumstances they face. Evaluations of interventions promoting the health of parent carers should focus on measuring the aspects of health and wellbeing which are most relevant to this group. As part of a programme of research on parent carer-focused interventions, this…
Crafting Tempo and Timeframes in Qualitative Longitudinal Research
Qualitative Longitudinal Research (QLR) is a dynamic and evolving methodology using time as a lens to inform study design, data collection and analysis. A key feature of QLR is the collection of data on more than one occasion, often described as waves or time points. Thus, researchers embarking on designing a new study need to consider several key features including the study duration (timeframe) and the frequency and intensity of data collection…
Healthy Parent Carers
BACKGROUND: Parent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer-led group-based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the…
We must harness the power of social and behavioural science against the growing pandemic of antimicrobial resistance
Conducting rapid qualitative interview research during the Covid-19 pandemic—Reflections on methodological choices
As the COVID-19 pandemic has shown, setting up studies in time to gather relevant, real-world data enables researchers to capture current views and experiences, focus on practicalities on the ground, and deliver actionable results. Delivering high quality rapid studies in healthcare poses several challenges even in non-emergency situations. There is an expanding literature discussing benefits and challenges of conducting rapid research, yet there…
How did UK policymaking in the Covid-19 response use science? Evidence from scientific advisers
Background: Responses to COVID-19 have invested heavily in science. How this science was used is therefore important. Our work extends existing knowledge on the use of science in the pandemic by capturing scientific advisers’ experiences in real time. Aims and objectives: Our aim was to present generalisable messages on key qualifications or difficulties involved in speaking of ‘following the science’. Methods: Ninety-three interviews with UK sci…
Perspectives on Covid-19 testing policies and practices
Consideration must be given to the implications of mass NHS staff testing, including the accuracy of information communicated to HCWs; how HCWs interpret, manage, and act on testing guidance; and the influence these have on health care organisations and services
Healthy Parent Carers programme
The Healthy Parent Carers programme appears feasible and acceptable. It was valued by, and was perceived to have benefited participants. The results will underpin future refinement of the intervention and plans for evaluation
A checklist to improve reporting of group-based behaviour-change interventions
The checklist is a practical tool that can be used, alongside other reporting guidelines, to ensure comprehensive description and to assess reporting quality of GB-BCIs. It can also be helpful for designing group-based health interventions
Working Side by Side? Interaction and Interview Data in Research on Household Conflicts
The article discusses the possibilities and challenges of combining conversation analysis and ethnography in the study of everyday family life. We argue that such a combination requires the decision whether to prioritise interaction data or ethnographic (in particular, interview) data in the analysis. We present a conversation analytic case study of how household work is commonly brought up in the interactions of one couple and bring this to bear…
Crafting Tempo and Timeframes in Qualitative Longitudinal Research
Qualitative Longitudinal Research (QLR) is a dynamic and evolving methodology using time as a lens to inform study design, data collection and analysis. A key feature of QLR is the collection of data on more than one occasion, often described as waves or time points. Thus, researchers embarking on designing a new study need to consider several key features including the study duration (timeframe) and the frequency and intensity of data collection…
Conducting rapid qualitative interview research during the Covid-19 pandemic—Reflections on methodological choices
As the COVID-19 pandemic has shown, setting up studies in time to gather relevant, real-world data enables researchers to capture current views and experiences, focus on practicalities on the ground, and deliver actionable results. Delivering high quality rapid studies in healthcare poses several challenges even in non-emergency situations. There is an expanding literature discussing benefits and challenges of conducting rapid research, yet there…
How did UK policymaking in the Covid-19 response use science? Evidence from scientific advisers
Background: Responses to COVID-19 have invested heavily in science. How this science was used is therefore important. Our work extends existing knowledge on the use of science in the pandemic by capturing scientific advisers’ experiences in real time. Aims and objectives: Our aim was to present generalisable messages on key qualifications or difficulties involved in speaking of ‘following the science’. Methods: Ninety-three interviews with UK sci…
Working Side by Side? Interaction and Interview Data in Research on Household Conflicts
The article discusses the possibilities and challenges of combining conversation analysis and ethnography in the study of everyday family life. We argue that such a combination requires the decision whether to prioritise interaction data or ethnographic (in particular, interview) data in the analysis. We present a conversation analytic case study of how household work is commonly brought up in the interactions of one couple and bring this to bear…
A checklist to improve reporting of group-based behaviour-change interventions
The checklist is a practical tool that can be used, alongside other reporting guidelines, to ensure comprehensive description and to assess reporting quality of GB-BCIs. It can also be helpful for designing group-based health interventions
Healthy Parent Carers programme
The Healthy Parent Carers programme appears feasible and acceptable. It was valued by, and was perceived to have benefited participants. The results will underpin future refinement of the intervention and plans for evaluation
Perspectives on Covid-19 testing policies and practices
Consideration must be given to the implications of mass NHS staff testing, including the accuracy of information communicated to HCWs; how HCWs interpret, manage, and act on testing guidance; and the influence these have on health care organisations and services
Conducting rapid qualitative interview research during the Covid-19 pandemic—Reflections on methodological choices
As the COVID-19 pandemic has shown, setting up studies in time to gather relevant, real-world data enables researchers to capture current views and experiences, focus on practicalities on the ground, and deliver actionable results. Delivering high quality rapid studies in healthcare poses several challenges even in non-emergency situations. There is an expanding literature discussing benefits and challenges of conducting rapid research, yet there…
How did UK policymaking in the Covid-19 response use science? Evidence from scientific advisers
Background: Responses to COVID-19 have invested heavily in science. How this science was used is therefore important. Our work extends existing knowledge on the use of science in the pandemic by capturing scientific advisers’ experiences in real time. Aims and objectives: Our aim was to present generalisable messages on key qualifications or difficulties involved in speaking of ‘following the science’. Methods: Ninety-three interviews with UK sci…
Healthy Parent Carers
BACKGROUND: Parent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer-led group-based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the…
We must harness the power of social and behavioural science against the growing pandemic of antimicrobial resistance
Ensuring equitable access, engagement and ability of socially and ethnically diverse participants to benefit from health promotion programmes
Background: Equity is fundamental to health promotion programmes. However, unintentional or unseen barriers may exist for some underserved groups. We aimed to identify how to ensure equitable access and engagement for diverse parent carers of disabled children to benefit from health promotion programmes. Methods: We purposively sampled parent carers with potentially intersecting characteristics including those who self-identified as from ethnic g…
What aspects of health and wellbeing are most important to parent carers of children with disabilities
INTRODUCTION: Parent carers of children with special educational needs or disabilities are at risk of poorer health and wellbeing outcomes because of the distinct and challenging circumstances they face. Evaluations of interventions promoting the health of parent carers should focus on measuring the aspects of health and wellbeing which are most relevant to this group. As part of a programme of research on parent carer-focused interventions, this…
Crafting Tempo and Timeframes in Qualitative Longitudinal Research
Qualitative Longitudinal Research (QLR) is a dynamic and evolving methodology using time as a lens to inform study design, data collection and analysis. A key feature of QLR is the collection of data on more than one occasion, often described as waves or time points. Thus, researchers embarking on designing a new study need to consider several key features including the study duration (timeframe) and the frequency and intensity of data collection…
The sepsis journey and where digital alerts can help
Introduction: The fight against sepsis is an ongoing healthcare challenge, where digital tools are increasingly used with some promising results. The experience of survivors and their family members can help optimize digital alerts for sepsis/deterioration. This study pairs the experiences of survivors of their sepsis journey and family members with their knowledge and views on the role of digital alerts. Methods: A qualitative study with online,…
What Are the Important Health and Well‐Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study
BACKGROUND: Patient-reported outcome measures (PROMs) are used to evaluate the effectiveness of interventions, particularly for subjective health states such as well-being. A parent carer is an adult primary caregiver for a child with a disability. Parent carers are at risk of poorer mental and physical health; targeted health promotion interventions are being developed, requiring evaluation. This study aimed to identify the important health and …
Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting
The "Baby Ubuntu" programme is a well-established, low-cost, community-based intervention to support caregivers of children with complex neurodisability, like cerebral palsy, in low- and middle-income country (LMIC) contexts. This process-focused paper describes our utilisation of the ADAPT guidance to adapt "Baby Ubuntu" for use in ethnically and linguistically diverse, and economically deprived urban boroughs in the United Kingdom (UK). The pro…
Medicine (11 works) · Psychology (10 works) · Qualitative research (9 works) · Sociology (9 works) · Nursing (7 works) · Family and Disability Support Research (6 works) · Political science (5 works) · Psychological intervention (5 works) · Computer Science (4 works) · Family Support in Illness (4 works)