Julie Seymour
Dados Biográficos
| ID | 188055 |
|---|---|
| NOME | Julie Seymour |
| PRENOMES | Julie |
| SOBRENOME | Seymour |
| ASSINATURA | SEYMOUR J |
| AFILIAÇÕES | University of Nottingham |
| ORCID | 0000-0002-9384-2551 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 46 |
| TOTAL DE CITAÇÕES | 355 |
| TOTAL COMO AUTOR | 42 |
| TOTAL COMO EDITOR | 4 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 1988 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2024 |
| ÍNDICE H | 10 |
Refused gifts
In England, Wales, and Northern Ireland, people can choose to donate their bodies post-mortem to Medical School Anatomy Units. The body donation (BD) process is facilitated by anatomy unit staff (AUS). However, little is known about the extent and nature of AUS work with families, including when a body cannot be accepted. To address this gap, this paper draws on data from an ethnographic study, including a survey of 15 anatomy units (AUs) in Engl…
Patient and family caregiver perspectives of Advance Care Planning
Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants’ ambivalence towards confronting the future and the factors underlying their motivation to accept or defer anticipatory planning. They show how ACP impacts on, and can be determined by, relationships between pa…
Family display, family type, or community? Limitations in the application of a concept
In this paper we develop the concept of family display by responding to David Morgan’s suggestion that researchers should consider whether ‘family displays’ are used to convey a ‘type’ of Family. We do so by applying the concept to the accounts of migrant family children living in an English city, and those of adults that grew-up in Mennonite communities in Mexico and Canada. Analysis uniquely shows that migrant family children do display a type …
Other Girls’
Perspectives that consider teenage mothers as a ‘social problem’ are well described in the literature. However, the attitudes towards teenage mothers held by other teenage mothers are not well understood. Given the growing use of peer support in the reproductive health of teenagers, the attitudes of teenage mothers towards their contemporaries is worthy of exploration. We aimed to examine the discourse around teenage pregnancy in teenage mothers …
Definition and recommendations for advance care planning
Palliative care in the USA and England
Delivering optimal and equitable palliative care is an international challenge. There are few cross-national comparisons examining challenges in expanding palliative care along public health lines. This paper presents a critical review of palliative care in the USA and England, which share similar challenges but have different contexts of healthcare. Beyond some obvious differences in the organisation of palliative care, a set of underlying commo…
Older people’s perspectives on dignity
This article discusses findings from a qualitative longitudinal study of dignity in later life, which focused on the perspectives of older people at a time when their need for help and support was increasing as a result of long-term illness. It reflects critically on the methodology for its ability to generate knowledge about this eventful and unstable period of the life-course. It is argued that a longitudinal qualitative approach provides the o…
Cardiopulmonary resuscitation decisions in the emergency department
Children’s Spatialities
Drawing from a wide range of disciplines, including anthropology, sociology, architecture and geography, and international contributors, this volume offers both students and scholars with an interest
More than putting on a performance in commercial homes
Critical hospitality studies and family studies have shown a developing theoretical convergence predicated by the ‘social turn’ in the study of hospitality. Recent hospitality research on ‘Commercial Homes’ has drawn strongly on Goffman's concept of performance to examine both guest and host behaviours. In contrast, this article introduces the family studies concept of ‘displaying families’. This concept emphasises the family practices of host fa…
The language of sedation in end-of-life care
The application of ethically controversial medical procedures may differ from one place to another. Drawing on a keyword and text-mining analysis of 156 interviews with doctors and nurses involved in end-of-life care ('care providers'), differences between countries in care providers' ethical rationales for the use of sedation are reported. In the United Kingdom, an emphasis on titrating doses proportionately against symptoms is more likely, main…
Understanding the social context of telemonitoring
Identity in the fourth age
The fourth age remains a poorly understood phenomenon and there is a lack of understanding of the perceptions of those who might be considered to be living in it. This article draws on findings from a study of dignity in later life which examined the day-to-day experiences of participants who were in need of support and care because of failing health. It discusses their accounts of the changes to their sense of self and their identity that came a…
Peer education for advance care planning
Background Peer education by volunteers may aid attitudinal change, but there is little understanding of factors assisting the preparation of peer educators. This study contributes to conceptual understandings of how volunteers may be prepared to work as peer educators by drawing on an evaluation of a training programme for peer education for advance care planning (ACP). Objectives To report on volunteers’ perspectives on the peer education train…
Servicing the carnivalesque
key words commercial homes • emotional labour • carnivalesque • displaying
The place of ‘family’ in the delivery of telehealth
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)The IJIC 20th Anniversary Issue was published in 2021
Towards a sociology of 10-12 year olds? Emerging methodological issues in the 'new' social studies of childhood
This article reports on an analysis of 320 empirical research articles published between 1993 and 2010 in three of the leading 'childhood' journals. The study looked to establish the potential samples used in accounts of empirical research studies with children; and to explore the methodology employed. The first part of this article outlines why a consideration of the ages used in childhood research is worthy of investigation. This addresses tech…
Displaying Families, Migrant Families and Community Connectedness
The new concept of Displaying Family shows how family life must not only be 'done' but also be 'seen to be done'. Both family members and external audiences need to recognise what is being conveyed during such displays-and to accept them-for these displays to be considered successful. Hence, there are multiple potential audiences for family displays. Drawing on empirical research, the article applies this important conceptual development to a stu…
Looking back, looking forward
Palliative and end-of-life care in England has undergone some remarkable transformations across the course of less than half a century and can be seen as a useful case study with which to understand international trends and challenges. This paper examines some of the long term influences which led to the emergence, for the very first time, of an End-of-Life Care Strategy in England. It revisits the critical contribution of Cicely Saunders to the …
Displaying Families
This edited collection uses the concept of 'displaying families' as a new way to understand contemporary family and personal life, addressing how, in a world of fluid relationships, family life must n
Interviews on End-of-Life Care With Older People
Qualitative research provides important insights into the experiences and perspectives of older people on end-of-life issues, but such research is methodologically and ethically complex. We offer a set of reflections from six end-of-life care studies conducted with older people in four European countries: Belgium, Germany, the Netherlands, and the United Kingdom. The reflection process was informed by four full-day meetings between the authors an…
P27 Older adults with cancer—are those who live alone at the end of life a disadvantaged group? A qualitative study
Health status will help to determine where an older adult can live, but it is also possible that living arrangements may themselves have consequences for the health experience of older adults towards the end of life. This study will explore the relevance to cancer patients of factors that the literature suggests might account for poor health and different patterns of service use amongst solitary living older people
P29 Out of control? Experiences of transitions between care settings at the end of life for older adults with heart failure
Background Transitions between care settings have been associated with poor continuity and quality of care for older people. Movements between places of care occur frequently in the months before death, making them an important influence on well-being and health status. People with heart failure may be particularly likely to experience frequent, unplanned admissions to hospital. Objective To explore and understand experiences of care transitions …
Exploring the Impact of Sexual Orientation on Experiences and Concerns about End of Life Care and on Bereavement for Lesbian, Gay and Bisexual Older People
This article explores how sexual orientation1 may impact on concerns about, and experiences of, end of life care and bereavement within same-sex relationships. We draw on exploratory data from four focus groups with lesbian and gay elders ( N = 15), which formed part of a larger project investigating a range of older people's concerns about end of life care. We set the findings in the context of debates about broader changes to family forms withi…
Death and Dying in America
Fontana, A. and Reid Keene, J. Death and Dying in America . Cambridge : Polity , 2009 £16.99 (pbk ) 240 pp . ISBN 13 978 0 7456 3915 4 As the title suggests, this book focuses specifically on death and dying in the USA and provides a readable overview suitable for an undergraduate audience or students of the health and social care professions. The authors set out to provide an examination of how death and dying are individual as well as social ex…
The Division of domestic labour
Identity in the fourth age
The fourth age remains a poorly understood phenomenon and there is a lack of understanding of the perceptions of those who might be considered to be living in it. This article draws on findings from a study of dignity in later life which examined the day-to-day experiences of participants who were in need of support and care because of failing health. It discusses their accounts of the changes to their sense of self and their identity that came a…
Revisiting medicalisation and 'natural' death
Towards a sociology of 10-12 year olds? Emerging methodological issues in the 'new' social studies of childhood
This article reports on an analysis of 320 empirical research articles published between 1993 and 2010 in three of the leading 'childhood' journals. The study looked to establish the potential samples used in accounts of empirical research studies with children; and to explore the methodology employed. The first part of this article outlines why a consideration of the ages used in childhood research is worthy of investigation. This addresses tech…
Planning for the end of life
Negotiating natural death in intensive care
Displaying Families, Migrant Families and Community Connectedness
The new concept of Displaying Family shows how family life must not only be 'done' but also be 'seen to be done'. Both family members and external audiences need to recognise what is being conveyed during such displays-and to accept them-for these displays to be considered successful. Hence, there are multiple potential audiences for family displays. Drawing on empirical research, the article applies this important conceptual development to a stu…
Exploring the Impact of Sexual Orientation on Experiences and Concerns about End of Life Care and on Bereavement for Lesbian, Gay and Bisexual Older People
This article explores how sexual orientation1 may impact on concerns about, and experiences of, end of life care and bereavement within same-sex relationships. We draw on exploratory data from four focus groups with lesbian and gay elders ( N = 15), which formed part of a larger project investigating a range of older people's concerns about end of life care. We set the findings in the context of debates about broader changes to family forms withi…
Hospice or home? Expectations of end-of-life care among white and Chinese older people in the UK
This paper presents findings from two linked studies of white (n = 77) and Chinese (n = 92) older adults living in the UK, which sought their views about end-of-life care. We focus particularly on experiences and expectations in relation to the provision of end-of-life care at home and in hospices. White elders perceived hospices in idealised terms which resonate with a 'revivalist' discourse of the 'good death'. In marked comparison, for those C…
Using focus groups to explore older people's attitudes to end of life care
This paper reports on the methodological and ethical issues that were encountered when using focus groups to explore older people's knowledge, beliefs and risk perceptions about the use of innovative health technologies in end of life care. Older people drawn from community organisations in Sheffield, England, took part in discussions about the application of ‘life prolonging’ and ‘comfort care’ technologies during serious illness and impending d…
No time to call my own
Treating the Hotel Like a Home
This article contributes to research on the dynamic of space and social life by examining a comparatively uncommon configuration; that of the single location home/workplace. It draws on an empirical study of family-run hotels, pubs and boarding houses to examine family practices in locations which are both home and business. It considers the ways that the routines of everyday family life are prescribed by the spatial, temporal and legal demands o…
What Is Different About High Crime Areas
This note reports secondary analysis of the 1982 British Crime Survey. It ranks sampling points by total crime experienced, and identifies differences between high and low crime areas. These differ in ‘vulnerability’, measured as the ratio of crimes to victims. This reveals that the number of victimizations per victim rises markedly as area crime rate increases. Thus a strategy of crime prevention which concentrated on the prevention of repeat vi…
Practising Identities
Questions of identity, individual and collective, confront us at every turn at the end of the twentieth century. We are interpellated and interrogated by a multiplicity of voices to consider and reconsider our identities. How we think of ourselves and how we perform ourselves in terms of gender, nationality, ethnicity, race, sexuality and embodiment is up for grabs, open to negotiation, subject to choice to an unprecedented extent. Or so the stor…
Cardiopulmonary resuscitation decisions in the emergency department
Older Chinese people's views on food
Understanding the perceived cultural and therapeutic significance of food and its functions in social exchange is one important aspect of promoting supportive and end-of-life cancer care for minority communities. These views helped explain the diversity and salience of food use in illness for older Chinese people resident in the UK
Relieving suffering at the end of life
Older people’s perspectives on dignity
This article discusses findings from a qualitative longitudinal study of dignity in later life, which focused on the perspectives of older people at a time when their need for help and support was increasing as a result of long-term illness. It reflects critically on the methodology for its ability to generate knowledge about this eventful and unstable period of the life-course. It is argued that a longitudinal qualitative approach provides the o…
Family display, family type, or community? Limitations in the application of a concept
In this paper we develop the concept of family display by responding to David Morgan’s suggestion that researchers should consider whether ‘family displays’ are used to convey a ‘type’ of Family. We do so by applying the concept to the accounts of migrant family children living in an English city, and those of adults that grew-up in Mennonite communities in Mexico and Canada. Analysis uniquely shows that migrant family children do display a type …
Other Girls’
Perspectives that consider teenage mothers as a ‘social problem’ are well described in the literature. However, the attitudes towards teenage mothers held by other teenage mothers are not well understood. Given the growing use of peer support in the reproductive health of teenagers, the attitudes of teenage mothers towards their contemporaries is worthy of exploration. We aimed to examine the discourse around teenage pregnancy in teenage mothers …
More than putting on a performance in commercial homes
Critical hospitality studies and family studies have shown a developing theoretical convergence predicated by the ‘social turn’ in the study of hospitality. Recent hospitality research on ‘Commercial Homes’ has drawn strongly on Goffman's concept of performance to examine both guest and host behaviours. In contrast, this article introduces the family studies concept of ‘displaying families’. This concept emphasises the family practices of host fa…
The language of sedation in end-of-life care
The application of ethically controversial medical procedures may differ from one place to another. Drawing on a keyword and text-mining analysis of 156 interviews with doctors and nurses involved in end-of-life care ('care providers'), differences between countries in care providers' ethical rationales for the use of sedation are reported. In the United Kingdom, an emphasis on titrating doses proportionately against symptoms is more likely, main…
Interviews on End-of-Life Care With Older People
Qualitative research provides important insights into the experiences and perspectives of older people on end-of-life issues, but such research is methodologically and ethically complex. We offer a set of reflections from six end-of-life care studies conducted with older people in four European countries: Belgium, Germany, the Netherlands, and the United Kingdom. The reflection process was informed by four full-day meetings between the authors an…
Death and Dying in America
Fontana, A. and Reid Keene, J. Death and Dying in America . Cambridge : Polity , 2009 £16.99 (pbk ) 240 pp . ISBN 13 978 0 7456 3915 4 As the title suggests, this book focuses specifically on death and dying in the USA and provides a readable overview suitable for an undergraduate audience or students of the health and social care professions. The authors set out to provide an examination of how death and dying are individual as well as social ex…
Death Foretold. Prophecy and Prognosis in Medical Care
The Division of domestic labour
No time to call my own
What Is Different About High Crime Areas
This note reports secondary analysis of the 1982 British Crime Survey. It ranks sampling points by total crime experienced, and identifies differences between high and low crime areas. These differ in ‘vulnerability’, measured as the ratio of crimes to victims. This reveals that the number of victimizations per victim rises markedly as area crime rate increases. Thus a strategy of crime prevention which concentrated on the prevention of repeat vi…
The Aftermath of Stroke
"The Aftermath of Stroke: The Experience of Patients and Their Families." Disability, Handicap & Society, 8(4), pp. 449–450
Practising Identities
Relating Intimacies
Relating Intimacies contains papers presented at the 1997 British Sociological Association Conference which discuss contemporary research and theorizing with regard to intimate relationships. Research
Relating Intimacies
Relating Intimacies
This set of phrases serves less as a definition of the meaning of intimacy than as a start-point of enquiry into this topic. Does the closeness mentioned above refer to spatial proximity, affectiveness or kinship ties? Does the presence of one form of closeness automatically result in another of the forms? What rights and responsibilities are associated with different forms of closeness?
Practising Identities
Questions of identity, individual and collective, confront us at every turn at the end of the twentieth century. We are interpellated and interrogated by a multiplicity of voices to consider and reconsider our identities. How we think of ourselves and how we perform ourselves in terms of gender, nationality, ethnicity, race, sexuality and embodiment is up for grabs, open to negotiation, subject to choice to an unprecedented extent. Or so the stor…
Revisiting medicalisation and 'natural' death
Negotiating natural death in intensive care
Good deaths, bad deaths
Little is known about end-of-life preferences or how risks are assessed surrounding doctor-patient or doctor-family relationships during end-of-life decision making. Older people are often excluded from end-of-life care research although there is some evidence that most would express preferences for 'comfort care' rather than life-sustaining interventions if facing terminal illness. This paper draws on data from focus group discussions with older…
Using focus groups to explore older people's attitudes to end of life care
This paper reports on the methodological and ethical issues that were encountered when using focus groups to explore older people's knowledge, beliefs and risk perceptions about the use of innovative health technologies in end of life care. Older people drawn from community organisations in Sheffield, England, took part in discussions about the application of ‘life prolonging’ and ‘comfort care’ technologies during serious illness and impending d…
Utjecaj političkih čimbenika na razvoj palijativne skrbi u Velikoj Britaniji
U Velikoj Britaniji postoji mnogo dokaza koji pokazuju kako palijativna skrb zadobiva važno priznavanje unutar politicke arene krecuci se postupno od marginalne aktivnosti rezervirane uglavnom za lokalne i neovisne dobrotvorne organizacije prema važnijoj ulozi u strukturi ustanova za zdravstvenu i socijalnu skrb. Ovaj clanak nudi siri pregled faktora koji utjecu na palijativnu skrb u Velikoj Britaniji u razdoblju nakon Drugog svjetskog rata pa sv…
Death Foretold. Prophecy and Prognosis in Medical Care
Older people's views about home as a place of care at the end of life
Objectives: To explore the attitudes of older people towards home as a place of care when dying. Design: A two-phase qualitative study using focus groups and semi-structured interviews. Participants: Eight focus group discussions were held with 32 participants recruited from six purposively selected community groups representing older people in Sheffield, UK. A further 16 men and 29 women participated in semi-structured interviews. Results: Parti…
Planning for the end of life
Relieving suffering at the end of life
Treating the Hotel Like a Home
This article contributes to research on the dynamic of space and social life by examining a comparatively uncommon configuration; that of the single location home/workplace. It draws on an empirical study of family-run hotels, pubs and boarding houses to examine family practices in locations which are both home and business. It considers the ways that the routines of everyday family life are prescribed by the spatial, temporal and legal demands o…
Hospice or home? Expectations of end-of-life care among white and Chinese older people in the UK
This paper presents findings from two linked studies of white (n = 77) and Chinese (n = 92) older adults living in the UK, which sought their views about end-of-life care. We focus particularly on experiences and expectations in relation to the provision of end-of-life care at home and in hospices. White elders perceived hospices in idealised terms which resonate with a 'revivalist' discourse of the 'good death'. In marked comparison, for those C…
Older Chinese people's views on food
Understanding the perceived cultural and therapeutic significance of food and its functions in social exchange is one important aspect of promoting supportive and end-of-life cancer care for minority communities. These views helped explain the diversity and salience of food use in illness for older Chinese people resident in the UK
P27 Older adults with cancer—are those who live alone at the end of life a disadvantaged group? A qualitative study
Health status will help to determine where an older adult can live, but it is also possible that living arrangements may themselves have consequences for the health experience of older adults towards the end of life. This study will explore the relevance to cancer patients of factors that the literature suggests might account for poor health and different patterns of service use amongst solitary living older people
P29 Out of control? Experiences of transitions between care settings at the end of life for older adults with heart failure
Background Transitions between care settings have been associated with poor continuity and quality of care for older people. Movements between places of care occur frequently in the months before death, making them an important influence on well-being and health status. People with heart failure may be particularly likely to experience frequent, unplanned admissions to hospital. Objective To explore and understand experiences of care transitions …
Exploring the Impact of Sexual Orientation on Experiences and Concerns about End of Life Care and on Bereavement for Lesbian, Gay and Bisexual Older People
This article explores how sexual orientation1 may impact on concerns about, and experiences of, end of life care and bereavement within same-sex relationships. We draw on exploratory data from four focus groups with lesbian and gay elders ( N = 15), which formed part of a larger project investigating a range of older people's concerns about end of life care. We set the findings in the context of debates about broader changes to family forms withi…
Death and Dying in America
Fontana, A. and Reid Keene, J. Death and Dying in America . Cambridge : Polity , 2009 £16.99 (pbk ) 240 pp . ISBN 13 978 0 7456 3915 4 As the title suggests, this book focuses specifically on death and dying in the USA and provides a readable overview suitable for an undergraduate audience or students of the health and social care professions. The authors set out to provide an examination of how death and dying are individual as well as social ex…
Psychology (28 obras) · Medicine (27 obras) · Sociology (27 obras) · Palliative Care and End-of-Life Issues (18 obras) · Political science (17 obras) · Nursing (16 obras) · Grief, Bereavement, and Mental Health (13 obras) · Palliative care (13 obras) · Gerontology (11 obras) · End-of-life care (10 obras)