Charles Halverson
Biographic Data
| ID | 195512 |
|---|---|
| NAME | Charles Halverson |
| GIVEN NAMES | Charles |
| FAMILY NAME | Halverson |
| SIGNATURE | HALVERSON C |
| AFFILIATIONS | Indiana University – Purdue University Indianapolis |
| ORCID | 0000-0002-4205-7860 |
| VERIFIED | Yes |
| TOTAL WORKS | 14 |
| TOTAL CITATIONS | 18 |
| AUTHOR COUNT | 14 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1983 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
Painful subjects
It is well demonstrated that the chronic pain experienced by individuals with Ehlers-Danlos Syndromes (EDS) has a negative effect on their overall quality of life. Despite this, this population experiences high levels of doubt and invalidation from clinicians regarding the frequency and intensity of their pain. In this qualitative study, we interviewed 39 individuals with EDS in order to investigate how experiencing doubt from clinicians impacted…
Etymology and entomology
This article examines controversies surrounding gene names that are perceived as humorous in the context of fruit flies but are considered rude in the clinical context of human medicine. Drawing on ethnographic fieldwork in insect laboratories, interviews with entomologists and geneticists, and an analysis of scientific and clinical commentaries, I show how gene names coined as jocular mnemonics by drosophilists become the source of moralizing me…
Exploring Genetic Counselors' Experiences with Indigenous Patient Populations
Clinician-associated traumatization from difficult medical encounters
Patients with hypermobile Ehlers Danlos Syndrome often experience psychological distress resulting from the perceived hostility and disinterest of their clinicians. We conducted 26 in-depth interviews with patients to understand the origins of this trauma and how it could be addressed in practice. We found that the cumulative effects of numerous negative encounters lead patients to lose trust in their healthcare providers and the healthcare syste…
Assessing parental understanding of variant reclassification in pediatric neurology and developmental pediatrics clinics
Biobank Participants’ Attitudes Toward Data Sharing and Privacy
Biobank participants are often unaware of possible uses of their genetic and health information, despite explicit descriptions of those uses in consent forms. To explore why this misunderstanding persists, we conducted semi-structured interviews and knowledge tests with 22 participants who had recently enrolled in a research biobank. Results indicated that participants lacked understanding of privacy and data-sharing topics but were mostly unconc…
Skin-tone modified emoji and first-person indexicality
Beginning in 2015, people have been able to transform many emoji – typically 18 byte, 12 × 12-pixel images inserted into digital text – with “skin-tone modifiers.” Racialized aspects of self-presentation have a long history of being marked in various ways in semiotic practice. However, this article argues that, parallel to other systems of social indexicals like honorifics and gendered speech, skin-tone modified emoji represent a robust example o…
Home testing for Covid-19
On March 11th, 2020, COVID-19 was declared a worldwide pandemic. Publicly available testing has lagged, and tech entrepreneurs have quickly volunteered to fill this gap. Over the last two decades, genetic testing ordered outside of a clinic and without the involvement of a physician has been a way for the average individual to get genetic testing. In this commentary, we discuss the lessons learned from this parallel case from genetics and suggest…
Standards and legacies
Over the past half-century, there have been concerted efforts to standardize how clinicians and medical researchers refer to genetic material. However, practical and historical impediments thwart this goal. In the current paper I argue that the ontological status of a genetic mutation cannot be cleanly separated from its pragmatic role in therapy. Attempts at standardization fail due to the non-standardized ends to which genetic information is em…
Evidence and Expertise in Genetic Nomenclatures
Clinicians and laboratory scientists use a number of different systems for naming genetic mutations in their daily activities. Based on participant observation at an American academic medical center and interviews with a variety of actors at American hospitals, this paper analyzes the use of these systems. I argue that their distribution corresponds to differences in professional regimes of responsibility. An examination of these often quite comp…
New Sovereignties and the Translation of Clinical Authority
Was it worth it? Patients’ perspectives on the perceived value of genomic-based individualized medicine
Engaging African-Americans about biobanks and the return of research results
We conducted a deliberative engagement to assess attitudinal changes regarding biobank research, governance, and the return of results. We recruited African-Americans from two Southside Chicago health care facilities that serve communities of very different socioeconomic and educational backgrounds in order to examine similarities and differences within the African-American population. We used a mixed method, deliberative engagement process invol…
Affective Self-Disclosure and Marital Adjustment
Based upon responses to questionnaries by 162 university married-housing couples (324 persons), equity theory was used to explain the relations between affective self-disclosure and marital adjustment. Specifically, it was found that the greater the discrepancy in partners' affective self-disclosure, the less was an individual's marital adjustment. This finding held for individuals who indicated receiving either more or less disclosure than they …
Affective Self-Disclosure and Marital Adjustment
Based upon responses to questionnaries by 162 university married-housing couples (324 persons), equity theory was used to explain the relations between affective self-disclosure and marital adjustment. Specifically, it was found that the greater the discrepancy in partners' affective self-disclosure, the less was an individual's marital adjustment. This finding held for individuals who indicated receiving either more or less disclosure than they …
Biobank Participants’ Attitudes Toward Data Sharing and Privacy
Biobank participants are often unaware of possible uses of their genetic and health information, despite explicit descriptions of those uses in consent forms. To explore why this misunderstanding persists, we conducted semi-structured interviews and knowledge tests with 22 participants who had recently enrolled in a research biobank. Results indicated that participants lacked understanding of privacy and data-sharing topics but were mostly unconc…
Standards and legacies
Over the past half-century, there have been concerted efforts to standardize how clinicians and medical researchers refer to genetic material. However, practical and historical impediments thwart this goal. In the current paper I argue that the ontological status of a genetic mutation cannot be cleanly separated from its pragmatic role in therapy. Attempts at standardization fail due to the non-standardized ends to which genetic information is em…
Affective Self-Disclosure and Marital Adjustment
Based upon responses to questionnaries by 162 university married-housing couples (324 persons), equity theory was used to explain the relations between affective self-disclosure and marital adjustment. Specifically, it was found that the greater the discrepancy in partners' affective self-disclosure, the less was an individual's marital adjustment. This finding held for individuals who indicated receiving either more or less disclosure than they …
Engaging African-Americans about biobanks and the return of research results
We conducted a deliberative engagement to assess attitudinal changes regarding biobank research, governance, and the return of results. We recruited African-Americans from two Southside Chicago health care facilities that serve communities of very different socioeconomic and educational backgrounds in order to examine similarities and differences within the African-American population. We used a mixed method, deliberative engagement process invol…
Was it worth it? Patients’ perspectives on the perceived value of genomic-based individualized medicine
New Sovereignties and the Translation of Clinical Authority
Standards and legacies
Over the past half-century, there have been concerted efforts to standardize how clinicians and medical researchers refer to genetic material. However, practical and historical impediments thwart this goal. In the current paper I argue that the ontological status of a genetic mutation cannot be cleanly separated from its pragmatic role in therapy. Attempts at standardization fail due to the non-standardized ends to which genetic information is em…
Evidence and Expertise in Genetic Nomenclatures
Clinicians and laboratory scientists use a number of different systems for naming genetic mutations in their daily activities. Based on participant observation at an American academic medical center and interviews with a variety of actors at American hospitals, this paper analyzes the use of these systems. I argue that their distribution corresponds to differences in professional regimes of responsibility. An examination of these often quite comp…
Home testing for Covid-19
On March 11th, 2020, COVID-19 was declared a worldwide pandemic. Publicly available testing has lagged, and tech entrepreneurs have quickly volunteered to fill this gap. Over the last two decades, genetic testing ordered outside of a clinic and without the involvement of a physician has been a way for the average individual to get genetic testing. In this commentary, we discuss the lessons learned from this parallel case from genetics and suggest…
Assessing parental understanding of variant reclassification in pediatric neurology and developmental pediatrics clinics
Biobank Participants’ Attitudes Toward Data Sharing and Privacy
Biobank participants are often unaware of possible uses of their genetic and health information, despite explicit descriptions of those uses in consent forms. To explore why this misunderstanding persists, we conducted semi-structured interviews and knowledge tests with 22 participants who had recently enrolled in a research biobank. Results indicated that participants lacked understanding of privacy and data-sharing topics but were mostly unconc…
Skin-tone modified emoji and first-person indexicality
Beginning in 2015, people have been able to transform many emoji – typically 18 byte, 12 × 12-pixel images inserted into digital text – with “skin-tone modifiers.” Racialized aspects of self-presentation have a long history of being marked in various ways in semiotic practice. However, this article argues that, parallel to other systems of social indexicals like honorifics and gendered speech, skin-tone modified emoji represent a robust example o…
Clinician-associated traumatization from difficult medical encounters
Patients with hypermobile Ehlers Danlos Syndrome often experience psychological distress resulting from the perceived hostility and disinterest of their clinicians. We conducted 26 in-depth interviews with patients to understand the origins of this trauma and how it could be addressed in practice. We found that the cumulative effects of numerous negative encounters lead patients to lose trust in their healthcare providers and the healthcare syste…
Exploring Genetic Counselors' Experiences with Indigenous Patient Populations
Painful subjects
It is well demonstrated that the chronic pain experienced by individuals with Ehlers-Danlos Syndromes (EDS) has a negative effect on their overall quality of life. Despite this, this population experiences high levels of doubt and invalidation from clinicians regarding the frequency and intensity of their pain. In this qualitative study, we interviewed 39 individuals with EDS in order to investigate how experiencing doubt from clinicians impacted…
Etymology and entomology
This article examines controversies surrounding gene names that are perceived as humorous in the context of fruit flies but are considered rude in the clinical context of human medicine. Drawing on ethnographic fieldwork in insect laboratories, interviews with entomologists and geneticists, and an analysis of scientific and clinical commentaries, I show how gene names coined as jocular mnemonics by drosophilists become the source of moralizing me…
Medicine (7 works) · Psychology (6 works) · Genomics and Rare Diseases (5 works) · BRCA gene mutations in cancer (4 works) · Family medicine (4 works) · Nursing (4 works) · Political science (4 works) · Public health (4 works) · Computer Science (3 works) · Genetics (3 works)