Joanna Coast
Datos Biográficos
| ID | 210870 |
|---|---|
| NOMBRE | Joanna Coast |
| NOMBRES | Joanna |
| APELLIDO | Coast |
| FIRMA | COAST J |
| AFILIACIONES | University of Bristol |
| ORCID | 0000-0002-3537-5166 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 47 |
| TOTAL DE CITAS | 258 |
| TOTAL COMO AUTOR | 48 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1995 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 8 |
Self-reporting quality of life in mild-to-moderate Alzheimer's disease and Lewy body dementia
BACKGROUND: Capability measures offer theoretical advantages for assessing wellbeing in health economics and outcomes research, yet their feasibility for self-reporting by people living with dementia remains to be established. This exploratory study compares the feasibility of self-reporting on capability versus health-focused quality of life measures among people living with mild-tomoderate dementia, using response process validation. METHODS: T…
Factors Associated with Changes in Capability-Wellbeing for Children and Young People of Secondary School Age During the First Covid-19 Lockdown
The online version contains supplementary material available at 10.1007/s12187-025-10294-y
Through Their Eyes
Despite progress in involving people living with dementia in health research, disparities remain, particularly in the field of health economics and outcomes research, where excessive reliance on proxy reports from care partners or healthcare professionals persists even when people are capable of self-reporting, leading to inequitable inclusion. This study aimed to understand the concept of a 'good life' from the perspectives of people living with…
Understanding what matters to young people with life-limiting and life-threatening conditions
End-of-life care encompasses a range of services aimed at delivering holistic interventions. Yet, economic evaluations of such services have tended to be focused on health-related outcomes, which may be too narrow to adequately capture outcomes at the end of life. Capability measures aim to capture wider outcomes focusing on what people can do and be in their lives. Capability measures are not yet available for children and young people at the en…
Making recommendations to subsidize new health technologies in Australia
OBJECTIVES: To explore experiences of, and perspectives on, health technology assessment (HTA) processes used to produce recommendations about subsidizing new medicines, and medical technologies in Australia, from the perspectives of those experienced in these processes. METHODS: Semi-structured interviews with a diverse group of 18 informants currently or previously members of the Pharmaceutical Benefits Advisory Committee (PBAC) or the Medical …
Is well-becoming important for children and young people? Evidence from in-depth interviews with children and young people and their parents
The study findings, taken alongside relevant literature, have generated evidence to support the notion that future well-becoming is important to current wellbeing. We have drawn on our own work in capability wellbeing measure development to demonstrate how we have incorporated a well-becoming attribute into our measures. The inclusion of well-becoming indicators in measures could aid investment in interventions which more directly improve well-be…
The development of a capability wellbeing measure in economic evaluation for children and young people aged 11-15
A more equitable approach to economic evaluation
Capability wellbeing can potentially provide a holistic outcome for health economic evaluation and the capability approach seems promising for African countries. As yet there is no work that has explored the evaluative space needed for health and care decision making at the whole population level and procedures that merely translate existing measures developed in the global north to contexts in the global south risk embedding structural inequalit…
Measuring capability wellbeing in adults at different stages of life for use in economic evaluation of health and care interventions
This study suggests use of ICECAP-A in patients with certain chronic health conditions that include a mix of adults across the life course. This study highlights the importance of considering the stage of life when using capability measures and in economic evaluations of health and care interventions more generally
A Deliberative Approach to Valuing Capabilities
Aim: Explore the use of deliberative valuation to elicit relative weights for a set of capabilities identified as being important and relevant to those close to patients receiving supportive care at the end of life. Methods: Focus groups, involving the general UK population (n = 38) and policy-makers (n = 29) with experience of, and influence on, priorities for end of life care. Public participants completed two valuation tasks (budget pie and vi…
Use of Economic Evidence When Prioritising Public Health Interventions in Schools
Schools are an ideal setting to deliver public health interventions, yet there are competing obligations that could limit their implementation. This study aimed to examine the decision making process and explore what evidence informs prioritisation of public health interventions in this setting. Semi-structured interviews were conducted with 14 staff in seven UK schools between November 2017 and March 2018. Participants were recruited from school…
Self‐responsibility, rationing and treatment decision making – managing moral narratives alongside fiscal reality in the obesity surgery clinic
BACKGROUND: Addressing the prevalence of severe obesity and its concomitant morbidities is widely acknowledged as one of the most pressing global health priorities. Nevertheless, a paucity of effective interventions and universal pressure on health-care budgets means that access to obesity treatments is often limited. Although health-care rationing can be conceived as a socially constructed process, little is known about how decisions emerge with…
A history that goes hand in hand
Applications of the Capability Approach in the Health Field
The primary aims of this review are to document capability applications in the health field and to explore the objectives and decision-rules of studies measuring capability more broadly. Relevant studies are identified using a literature search strategy known as "comprehensive pearl growing". All studies with a primary focus on health are assessed individually, whilst a summary narrative analysis of the full review examines the objectives of capa…
Values for the Icecap-Supportive Care Measure (Icecap-SCM) for use in economic evaluation at end of life
What is Enough?
[no abstract]
What Is Enough?
The validity and responsiveness of the Icecap-A capability-well-being measure in women with irritative lower urinary tract symptoms
The ICECAP-A is a valid and responsive measure capturing broad emotional and practical impacts of urinary symptoms on women's well-being and could be considered for use in economic evaluations in this context
A longitudinal assessment of the responsiveness of the Icecap-A in a randomised controlled trial of a knee pain intervention
This first analysis of the responsiveness using longitudinal data provides some positive evidence for the responsiveness of the ICECAP-A measure. There is a need for further research in those with low health and capability, and experiencing larger underlying changes in quality of life
Assessing sufficient capability
How clinical rationing works in practice
Vicious Circles
Although there has been extensive research around the etiology of moderate obesity, there are still important questions relating to the development and lived experience of extreme obesity. We present a synthesis of data from two in-depth qualitative studies in which morbidly obese participants ( N = 31) were able to explain the development of the condition in their own terms. We identified consistent themes in the two datasets, and undertook a de…
An investigation into the construct validity of the Carer Experience Scale (CES)
Can capabilities be self-reported? A think aloud study
Direct assessment of capability to function may be useful in healthcare settings, but poses many challenges. This paper reports a first investigation of the feasibility of individuals self-reporting their capabilities and the meaning of the responses. The study was conducted in 2010, using think-aloud interviews with participants in the UK. The findings of the study suggest that the majority of participants were able to comprehend questions about…
Using qualitative methods for attribute development for discrete choice experiments
Attribute generation for discrete choice experiments (DCEs) is often poorly reported, and it is unclear whether this element of research is conducted rigorously. This paper explores issues associated with developing attributes for DCEs and contrasts different qualitative approaches. The paper draws on eight studies, four developed attributes for measures, and four developed attributes for more ad hoc policy questions. Issues that have become appa…
Valuing the Icecap capability index for older people
Developing attributes for a generic quality of life measure for older people
Welfarism, extra-welfarism and capability
The public is too subjective
Using discrete choice experiments to understand preferences for quality of life. Variance-scale heterogeneity matters
Assessing sufficient capability
Maximisation in extra-welfarism
What do people value when they provide unpaid care for an older person? A meta-ethnography with interview follow-up
Values for the Icecap-Supportive Care Measure (Icecap-SCM) for use in economic evaluation at end of life
Can capabilities be self-reported? A think aloud study
Direct assessment of capability to function may be useful in healthcare settings, but poses many challenges. This paper reports a first investigation of the feasibility of individuals self-reporting their capabilities and the meaning of the responses. The study was conducted in 2010, using think-aloud interviews with participants in the UK. The findings of the study suggest that the majority of participants were able to comprehend questions about…
If there were a war tomorrow, we'd find the money
An economic perspective on policy to reduce antimicrobial resistance
A history that goes hand in hand
How clinical rationing works in practice
Vicious Circles
Although there has been extensive research around the etiology of moderate obesity, there are still important questions relating to the development and lived experience of extreme obesity. We present a synthesis of data from two in-depth qualitative studies in which morbidly obese participants ( N = 31) were able to explain the development of the condition in their own terms. We identified consistent themes in the two datasets, and undertook a de…
The development of a capability wellbeing measure in economic evaluation for children and young people aged 11-15
Choice is a small word with a huge meaning
The United Kingdom (UK) End-of-Life Care Strategy, published in June 2008, recommends the identification, documentation and review of people's preferences for care and highlights the importance of choice at an individual level. Drawing on data from a qualitative research study, this article reflects on the complex range of interconnected factors impacting on older people's preferences and decision-making processes at the end of life. As older peo…
Patient-reported use of health service resources compared with information from health providers
The objectives of the present study were to examine the accuracy of older people's reports of health services resource use after discharge from acute care compared with information from healthcare providers. Paired data were obtained from health providers and a consecutive sample of hospitalised patients (aged 60 years or over) enrolled in a randomised controlled trial of hospital-at-home versus usual acute care. Retrospective reports of the use …
The hospital admissions study in England
STUDY OBJECTIVE--To assess the potential for substituting alternative forms of care for admission to an acute hospital in particular groups of patients. DESIGN--A screening tool, the intensity-severity-discharge review system with adult criteria (ISD-A), developed for hospital utilisation review in the USA, was used in a cohort of hospital admissions to identify a group of patients who could potentially have been treated outside the acute hospita…
Through Their Eyes
Despite progress in involving people living with dementia in health research, disparities remain, particularly in the field of health economics and outcomes research, where excessive reliance on proxy reports from care partners or healthcare professionals persists even when people are capable of self-reporting, leading to inequitable inclusion. This study aimed to understand the concept of a 'good life' from the perspectives of people living with…
Concepts of Capability and Overlooked Applications
We read with interest the recent paper by Ruger on conceptualizing and operationalizing health capability. She stated that ‘‘No work to date has developed a conceptual model or health capability profile leading to methods for addressing health capability deprivations,’’ and then goes on to develop such a model and profile. We agree that literature in this area is limited but draw readers’ attention to a number of articles from the health economic…
The hospital admissions study in England
STUDY OBJECTIVE--To assess the potential for substituting alternative forms of care for admission to an acute hospital in particular groups of patients. DESIGN--A screening tool, the intensity-severity-discharge review system with adult criteria (ISD-A), developed for hospital utilisation review in the USA, was used in a cohort of hospital admissions to identify a group of patients who could potentially have been treated outside the acute hospita…
Appropriateness of Hospital Utilization
Assessing the appropriateness of hospital utilization in the United Kingdom may yield practical solutions to problems faced by both purchasers and providers of health care in the National Health Service. It is, however, essential that such assessment is based on a method that is both valid and reliable--in particular, valid in the context in which it is applied. Whereas American methods for the assessment of appropriateness have been shown to be …
Use of the EuroQoL among elderly acute care patients
Effect of varying the time frame for Coop-Wonca functional health status charts
STUDY OBJECTIVES: To investigate whether changing the stated time frame for COOP-WONCA charts has any effect on responses. Specifically, to assess the effect of attempting to avoid the situation where the time frame crosses the onset of an acute episode. DESIGN: A randomised controlled trial of two time frames, nested within a main trial comparing early discharge with a hospital at home scheme against routine discharge policy. The time frames com…
An economic perspective on policy to reduce antimicrobial resistance
Who wants to know if their care is rationed? Views of citizens and service informants
Objective To explore the views of citizens and service informants about whether they would want to know about any rationing of their own health care. Design In‐depth interviews using a semistructured schedule. Data were analysed using the methods of constant comparison. Setting and participants Citizens and service informants. Main variables studied Issues around health care rationing were explored within the context of the United Kingdom health …
Priority Setting and the Public
By P. Mullen and P. Spurgeon. Radcliffe Medical Press, Abingdon, UK, 2000, £24.50, 168pp Priority setting and the public challenges the standard interpretation that rationing in health-care is inevitable and it is, thus, to be welcomed in widening the currently limited debate. The authors begin by considering the impetus for the explosion of interest in priority setting and rationing that occurred during the 1990s, locating its origins in the dev…
If there were a war tomorrow, we'd find the money
The public is too subjective
Patient-reported use of health service resources compared with information from health providers
The objectives of the present study were to examine the accuracy of older people's reports of health services resource use after discharge from acute care compared with information from healthcare providers. Paired data were obtained from health providers and a consecutive sample of hospitalised patients (aged 60 years or over) enrolled in a randomised controlled trial of hospital-at-home versus usual acute care. Retrospective reports of the use …
Developing attributes for a generic quality of life measure for older people
Best–worst scaling
An assessment of the construct validity of the descriptive system for the Icecap capability measure for older people
Valuing the Icecap capability index for older people
What do people value when they provide unpaid care for an older person? A meta-ethnography with interview follow-up
Welfarism, extra-welfarism and capability
“I can see where they're coming from, but when you're on the end of it ... you just want to get the money and the drug.”
Maximisation in extra-welfarism
Concepts of Capability and Overlooked Applications
We read with interest the recent paper by Ruger on conceptualizing and operationalizing health capability. She stated that ‘‘No work to date has developed a conceptual model or health capability profile leading to methods for addressing health capability deprivations,’’ and then goes on to develop such a model and profile. We agree that literature in this area is limited but draw readers’ attention to a number of articles from the health economic…
Using discrete choice experiments to understand preferences for quality of life. Variance-scale heterogeneity matters
Development of a self-report measure of capability wellbeing for adults
The ICECAP-A capability measure represents a departure from traditional health economics outcome measures, by treating health status as an influence over broader attributes of capability wellbeing. Further work is required to value and validate the attributes and test the sensitivity of the ICECAP-A to healthcare interventions
Using qualitative methods for attribute development for discrete choice experiments
Attribute generation for discrete choice experiments (DCEs) is often poorly reported, and it is unclear whether this element of research is conducted rigorously. This paper explores issues associated with developing attributes for DCEs and contrasts different qualitative approaches. The paper draws on eight studies, four developed attributes for measures, and four developed attributes for more ad hoc policy questions. Issues that have become appa…
An investigation of the construct validity of the Icecap-A capability measure
This study suggests that the ICECAP-A measure can identify expected differences in capability wellbeing in a general population sample. Further work could establish whether self-reported capabilities exhibit desirable validity and acceptability in sub-groups of the population such as patients, social care recipients and informal carers
Choice is a small word with a huge meaning
The United Kingdom (UK) End-of-Life Care Strategy, published in June 2008, recommends the identification, documentation and review of people's preferences for care and highlights the importance of choice at an individual level. Drawing on data from a qualitative research study, this article reflects on the complex range of interconnected factors impacting on older people's preferences and decision-making processes at the end of life. As older peo…
An investigation into the construct validity of the Carer Experience Scale (CES)
Medicine (36 obras) · Health Systems, Economic Evaluations, Quality of Life (30 obras) · Psychology (30 obras) · Health care (25 obras) · Nursing (24 obras) · Political science (23 obras) · Economics (20 obras) · Sociology (17 obras) · Public health (15 obras) · Computer Science (13 obras)