Anne Drapkin Lyerly
Biographic Data
| ID | 2240230 |
|---|---|
| NAME | Anne Drapkin Lyerly |
| GIVEN NAMES | Anne Drapkin |
| FAMILY NAME | Lyerly |
| SIGNATURE | LYERLY A D |
| AFFILIATIONS | University of North Carolina at Chapel Hill |
| ORCID | 0000-0003-2211-6920 |
| VERIFIED | Yes |
| TOTAL WORKS | 22 |
| TOTAL CITATIONS | 47 |
| AUTHOR COUNT | 22 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2004 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 3 |
iPLEDGE and the Perpetually Potentially Pregnant Patient
Adolescent views on participating in HIV biomedical research during pregnancy
Pregnant adolescents are often excluded from biomedical HIV research participation, resulting in less evidence to inform safe and effective treatment and prevention strategies. We explored adolescent views on enrollment in biomedical HIV research during pregnancy via in-depth interviews with ever-pregnant adolescents living with and at-risk of HIV age 15–20 years in Botswana and Malawi. A semi-structured interview guide explored decision-making a…
Beneath the Sword of Damocles
Since the U.S. Supreme Court's decision in Dobbs vs. Jackson Women's Health Organization, a growing web of state laws restricts access to abortion. Here we consider how, ethically, doctors should respond when terminating a pregnancy is clinically indicated but state law imposes restrictions on doing so. We offer a typology of cases in which the dilemma emerges and a brief sketch of the current state of legal prohibitions against providing such ca…
Safekeeping of Pregnant People Experiencing Incarceration
Safekeeping involves transferring individuals from jails to prisons without the presence of a conviction. In North Carolina, safekeeping is used for pregnant people with the aim of providing better prenatal care. We interviewed 14 stakeholders in the safekeeping process including sheriffs, clinicians, advocates, and lawyers. Three key themes emerged: jails' inability to provide care for pregnant individuals; safekeeping as an additional punishmen…
‘Experimental pregnancy’ revisited
Experiences Navigating the Pregnancy Care Continuum During the Covid-19 Pandemic
The Costs of Contradictory Messages About Live Vaccines in Pregnancy
The increased risk of harm from COVID-19 infection in pregnancy highlights the importance of including pregnant people in COVID-19 vaccine development and deployment. Promising vaccines being developed include replication-competent platforms, which are typically contraindicated during pregnancy because of theoretical risk. However, replicating vaccines are administered in and around pregnancy, either inadvertently because of unknown pregnancy sta…
Women’s Views About a Paternal Consent Requirement for Biomedical Research in Pregnancy
Clinical research to inform the evidence base to guide nonobstetrical care during pregnancy is critically important for the well-being of women and their future offspring. Conversations about regulations for such research, including whether paternal consent should ever be required, should be informed by the perspectives of those most affected, namely, pregnant women. We conducted in-depth interviews with 140 pregnant women living with or at risk …
Research with Pregnant Women
U.S. researchers and scholars often point to two legal factors as significant obstacles to the inclusion of pregnant women in clinical research: the Department of Health and Human Services’ regulatory limitations specific to pregnant women's research participation and the fear of liability for potential harm to children born following a pregnant woman's research participation. This article offers a more nuanced view of the potential legal complex…
Reframing Conscientious Care
“It's almost like putting salt in a wound, for this person who's already made a very difficult decision,” suggested Meghan Patterson (an alias), a licensed obstetrician‐gynecologist whom we interviewed in our qualitative study of the experiences of North Carolina abortion providers practicing under the state's Woman's Right to Know Act (House Bill 854; 2011). The act requires that women receive counseling with state‐mandated information at least …
Mothers Matter
Participation in a research study—in which there are rigorous standards and close monitoring—may be a safer context for the use of medications in pregnancy than the clinical setting, where the evidence base is lacking
Conscience and the Ethics of Provision
Society is best served by an approach to conscience that combines a progressive understanding of patients’ needs, a nuanced determination of when those needs translate into claims, and a limited role for conscientious refusal
Samantha Burton and the Rights of Pregnant Women Twenty Years after In re A. C
The meaning of "control" for childbearing women in the US
The National Children's Study
With a $3 billion investment by the federal government, the National Children's Study (NCS) recently began recruitment. The NCS is a golden—and potentially missed—opportunity to study one of the most underrepresented populations in clinical research: pregnant women. As the nation's largest-ever study of children's health, the NCS will examine the effects of the environment on children from before birth to 21 years of age, with participants sample…
Risk and the Pregnant Body
Reasoning well about risk is most challenging when a woman is pregnant, for patient and doctor alike. During pregnancy, we tend to note the risks of medical interventions without adequately noting those of failing to intervene, yet when it's time to give birth, interventions are seldom questioned, even when they don't work. Meanwhile, outside the clinic, advice given to pregnant women on how to stay healthy in everyday life can seem capricious an…
The second wave
Though much progress has been made on inclusion of non-pregnant women in research, thoughtful discussion about including pregnant women has lagged behind. We outline resulting knowledge gaps and their costs and then highlight four reasons why ethically we are obliged to confront the challenges of including pregnant women in clinical research. These are: the need for effective treatment for women during pregnancy, fetal safety, harm from the retic…
Reframing Neutral Counseling
A 19-year-old woman who said she was 25 weeks' pregnant was rushed into labor and delivery crying from the pain of regular uterine contractions. Her cervix was dilated to 3 cm, and she was diagnosed with premature rupture of membranes and preterm labor. An ultrasound revealed a fetus measuring 21 weeks' gestation in vertex position. The woman had had no ultrasound during her pregnancy but stated that she was sure of the date of her last period. F…
Shame, Gender, Birth
In recent years, critics of modern obstetrics have cited technology as responsible for women's discontent regarding childbirth. In this essay, I investigate and pry apart the connection between the quality of childbirth experience and technology. After identifying three factors considered constitutive of a ‘good birth,’ I demonstrate how technology can either facilitate or hinder each, but how dominant strains of birthing practice that reinforce …
Shame, Gender, Birth
In recent years, critics of modern obstetrics have cited technology as responsible for women's discontent regarding childbirth. In this essay, I investigate and pry apart the connection between the quality of childbirth experience and technology. After identifying three factors considered constitutive of a ‘good birth,’ I demonstrate how technology can either facilitate or hinder each, but how dominant strains of birthing practice that reinforce …
Case Study
Paternalism
Case Lisa Morgan arrives in the office of Dr. Karen Anderson, her obstetrician/gynecologist. Dr. Anderson, who is going over her schedule for the day, hopes that Lisa is not pregnant again. Less than 2 years ago, Dr. Anderson had performed a therapeutic abortion for Lisa, who is now 20 years old and unmarried. The doctor's concerns are confirmed when her medical assistant, Elena, informs Dr. Anderson that Lisa is in the office seeking another abo…
Risk and the Pregnant Body
Reasoning well about risk is most challenging when a woman is pregnant, for patient and doctor alike. During pregnancy, we tend to note the risks of medical interventions without adequately noting those of failing to intervene, yet when it's time to give birth, interventions are seldom questioned, even when they don't work. Meanwhile, outside the clinic, advice given to pregnant women on how to stay healthy in everyday life can seem capricious an…
Shame, Gender, Birth
In recent years, critics of modern obstetrics have cited technology as responsible for women's discontent regarding childbirth. In this essay, I investigate and pry apart the connection between the quality of childbirth experience and technology. After identifying three factors considered constitutive of a ‘good birth,’ I demonstrate how technology can either facilitate or hinder each, but how dominant strains of birthing practice that reinforce …
The meaning of "control" for childbearing women in the US
Women’s Views About a Paternal Consent Requirement for Biomedical Research in Pregnancy
Clinical research to inform the evidence base to guide nonobstetrical care during pregnancy is critically important for the well-being of women and their future offspring. Conversations about regulations for such research, including whether paternal consent should ever be required, should be informed by the perspectives of those most affected, namely, pregnant women. We conducted in-depth interviews with 140 pregnant women living with or at risk …
Case Study
Paternalism
Case Lisa Morgan arrives in the office of Dr. Karen Anderson, her obstetrician/gynecologist. Dr. Anderson, who is going over her schedule for the day, hopes that Lisa is not pregnant again. Less than 2 years ago, Dr. Anderson had performed a therapeutic abortion for Lisa, who is now 20 years old and unmarried. The doctor's concerns are confirmed when her medical assistant, Elena, informs Dr. Anderson that Lisa is in the office seeking another abo…
Shame, Gender, Birth
In recent years, critics of modern obstetrics have cited technology as responsible for women's discontent regarding childbirth. In this essay, I investigate and pry apart the connection between the quality of childbirth experience and technology. After identifying three factors considered constitutive of a ‘good birth,’ I demonstrate how technology can either facilitate or hinder each, but how dominant strains of birthing practice that reinforce …
Shame, Gender, Birth
In recent years, critics of modern obstetrics have cited technology as responsible for women's discontent regarding childbirth. In this essay, I investigate and pry apart the connection between the quality of childbirth experience and technology. After identifying three factors considered constitutive of a ‘good birth,’ I demonstrate how technology can either facilitate or hinder each, but how dominant strains of birthing practice that reinforce …
The second wave
Though much progress has been made on inclusion of non-pregnant women in research, thoughtful discussion about including pregnant women has lagged behind. We outline resulting knowledge gaps and their costs and then highlight four reasons why ethically we are obliged to confront the challenges of including pregnant women in clinical research. These are: the need for effective treatment for women during pregnancy, fetal safety, harm from the retic…
Reframing Neutral Counseling
A 19-year-old woman who said she was 25 weeks' pregnant was rushed into labor and delivery crying from the pain of regular uterine contractions. Her cervix was dilated to 3 cm, and she was diagnosed with premature rupture of membranes and preterm labor. An ultrasound revealed a fetus measuring 21 weeks' gestation in vertex position. The woman had had no ultrasound during her pregnancy but stated that she was sure of the date of her last period. F…
The National Children's Study
With a $3 billion investment by the federal government, the National Children's Study (NCS) recently began recruitment. The NCS is a golden—and potentially missed—opportunity to study one of the most underrepresented populations in clinical research: pregnant women. As the nation's largest-ever study of children's health, the NCS will examine the effects of the environment on children from before birth to 21 years of age, with participants sample…
Risk and the Pregnant Body
Reasoning well about risk is most challenging when a woman is pregnant, for patient and doctor alike. During pregnancy, we tend to note the risks of medical interventions without adequately noting those of failing to intervene, yet when it's time to give birth, interventions are seldom questioned, even when they don't work. Meanwhile, outside the clinic, advice given to pregnant women on how to stay healthy in everyday life can seem capricious an…
Samantha Burton and the Rights of Pregnant Women Twenty Years after In re A. C
The meaning of "control" for childbearing women in the US
Mothers Matter
Participation in a research study—in which there are rigorous standards and close monitoring—may be a safer context for the use of medications in pregnancy than the clinical setting, where the evidence base is lacking
Conscience and the Ethics of Provision
Society is best served by an approach to conscience that combines a progressive understanding of patients’ needs, a nuanced determination of when those needs translate into claims, and a limited role for conscientious refusal
Reframing Conscientious Care
“It's almost like putting salt in a wound, for this person who's already made a very difficult decision,” suggested Meghan Patterson (an alias), a licensed obstetrician‐gynecologist whom we interviewed in our qualitative study of the experiences of North Carolina abortion providers practicing under the state's Woman's Right to Know Act (House Bill 854; 2011). The act requires that women receive counseling with state‐mandated information at least …
Research with Pregnant Women
U.S. researchers and scholars often point to two legal factors as significant obstacles to the inclusion of pregnant women in clinical research: the Department of Health and Human Services’ regulatory limitations specific to pregnant women's research participation and the fear of liability for potential harm to children born following a pregnant woman's research participation. This article offers a more nuanced view of the potential legal complex…
Women’s Views About a Paternal Consent Requirement for Biomedical Research in Pregnancy
Clinical research to inform the evidence base to guide nonobstetrical care during pregnancy is critically important for the well-being of women and their future offspring. Conversations about regulations for such research, including whether paternal consent should ever be required, should be informed by the perspectives of those most affected, namely, pregnant women. We conducted in-depth interviews with 140 pregnant women living with or at risk …
The Costs of Contradictory Messages About Live Vaccines in Pregnancy
The increased risk of harm from COVID-19 infection in pregnancy highlights the importance of including pregnant people in COVID-19 vaccine development and deployment. Promising vaccines being developed include replication-competent platforms, which are typically contraindicated during pregnancy because of theoretical risk. However, replicating vaccines are administered in and around pregnancy, either inadvertently because of unknown pregnancy sta…
‘Experimental pregnancy’ revisited
Experiences Navigating the Pregnancy Care Continuum During the Covid-19 Pandemic
Safekeeping of Pregnant People Experiencing Incarceration
Safekeeping involves transferring individuals from jails to prisons without the presence of a conviction. In North Carolina, safekeeping is used for pregnant people with the aim of providing better prenatal care. We interviewed 14 stakeholders in the safekeeping process including sheriffs, clinicians, advocates, and lawyers. Three key themes emerged: jails' inability to provide care for pregnant individuals; safekeeping as an additional punishmen…
Beneath the Sword of Damocles
Since the U.S. Supreme Court's decision in Dobbs vs. Jackson Women's Health Organization, a growing web of state laws restricts access to abortion. Here we consider how, ethically, doctors should respond when terminating a pregnancy is clinically indicated but state law imposes restrictions on doing so. We offer a typology of cases in which the dilemma emerges and a brief sketch of the current state of legal prohibitions against providing such ca…
iPLEDGE and the Perpetually Potentially Pregnant Patient
Adolescent views on participating in HIV biomedical research during pregnancy
Pregnant adolescents are often excluded from biomedical HIV research participation, resulting in less evidence to inform safe and effective treatment and prevention strategies. We explored adolescent views on enrollment in biomedical HIV research during pregnancy via in-depth interviews with ever-pregnant adolescents living with and at-risk of HIV age 15–20 years in Botswana and Malawi. A semi-structured interview guide explored decision-making a…
Psychology (15 works) · Medicine (14 works) · Political science (14 works) · Pregnancy (14 works) · Law (13 works) · Social Psychology (8 works) · Reproductive Health and Technologies (6 works) · Biology (5 works) · Engineering (5 works) · Engineering ethics (5 works)