Rebecca D Pentz

Biographic Data

ID2414791
NAMERebecca D Pentz
GIVEN NAMESRebecca D
FAMILY NAMEPentz
SIGNATUREPENTZ R D
AFFILIATIONSEmory University
ORCID0000-0003-4338-6663
VERIFIEDYes
TOTAL WORKS9
TOTAL CITATIONS1
WORKS AS AUTHOR9
WORKS AS EDITOR0
FIRST PUBLICATION YEAR2003
LATEST PUBLICATION YEAR2025
H-INDEX1

  • Perceptions of whole‐body donation for biomedical research

    Open AccessCaroline E Anglim, Charles E Waldner et al.ARTICLEThe Journal of Rural Health2025

    PURPOSE: This study aims to describe how rural residents in Georgia (USA) perceive organ donation and biomedical research on the recently deceased, the appropriate oversight and duration for this type of research, and the disclosures necessary for whole-body donation. METHODS: Researchers conducted interviews with adults residing in rural Georgia counties (determined by Rural-Urban Conintuum Codes (USDA)) and analyzed participants' perspectives f…

  • Research involving the recently deceased

    Brendan Parent, Olivia S Kates et al.ARTICLEJournal of Medical Ethics2024

    Research involving recently deceased humans that are physiologically maintained following declaration of death by neurologic criteria—or ‘research involving the recently deceased’—can fill a translational research gap while reducing harm to animals and living human subjects. It also creates new challenges for honouring the donor’s legacy, respecting the rights of donor loved ones, resource allocation and public health. As this research model gain…

  • Accounting for the high enrollment of African Americans on Winship Cancer Institute's myeloma clinical trials

    Open AccessT S McClary, Tekiah McClary et al.ARTICLEEthics Medicine and Public Health2023

  • Communicating With Diverse Patients About Participating in a Biobank

    Open AccessChristian Simon, K Wang et al.ARTICLEJournal of Empirical Research on…2021References: 2

    Some individuals' understanding of informed consent (IC) information may improve with electronic delivery, but others may benefit from face-to-face (F2F). This randomized, multisite study explores how individuals from diverse backgrounds understand electronic IC documents versus F2F, their confidence in understanding, and enrollment in research. A total of 501 patients at two U.S. biobanks with diverse populations participated. There were no over…

  • Potential Benefits to Families, Children, and Adolescents, Enrolled in Longitudinal Qualitative Research

    Open AccessMinisha Lohani, Kristopher A Hendershot et al.ARTICLEIRB Ethics and Human Research2018

    Previous research has focused on the risks of research participation but has rarely considered possible benefits. For a study of family decision-making during pediatric bone marrow transplant, we conducted qualitative interviews with 132 family members across 36 families up to three times over the course of a year, before and after transplant. We concluded the study with qualitative interviews of 70 family members from 21 of the original families…

  • Broad Consent for Research on Biospecimens

    Open AccessT D Warner, Carol J Weil et al.ARTICLEJournal of Empirical Research on…2018References: 1

    Commentators are concerned that broad consent may not provide biospecimen donors with sufficient information regarding possible future research uses of their tissue. We surveyed with interviews 302 cancer patients who had recently provided broad consent at four diverse academic medical centers. The majority of donors believed that the consent form provided them with sufficient information regarding future possible uses of their biospecimens. Dono…

  • Stakeholder perceptions of thoracic rapid tissue donation

    Open AccessJessica Mcintyre, Charlotte B Pratt et al.ARTICLESocial Science & Medicine2013Cited by: 1References: 21

  • Revisiting Ethical Guidelines for Research with Terminal Wean and Brain-Dead Participants

    Rebecca D Pentz, Anne L Flamm et al.ARTICLEThe Hastings Center Report2003

    Some research is too risky to be conducted on anyone with a life expectancy of more than a few hours. Yet under some circumstances, the research can still be carried out by using subjects who are either brain dead or are soon to undergo a terminal wean, and who have articulated values that inclusion in the study can honor. So argues a team of ethicists and researchers at M.D. Anderson Cancer Center, where such research was recently undertaken

  • The Newly and Nearly Dead

    Rebecca D Pentz, Anne L FlammARTICLEThe Hastings Center Report2003