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Carl R May

Biographic Data

ID246785
NAMECarl R May
GIVEN NAMESCarl R
FAMILY NAMEMay
SIGNATUREMAY C R
AFFILIATIONSFaculty of Public Health and Policy London School of Hygiene and Tropical Medicine London UK
VERIFIEDNo
TOTAL WORKS13
TOTAL CITATIONS82
AUTHOR COUNT13
EDITOR COUNT0
FIRST PUBLICATION YEAR2003
LATEST PUBLICATION YEAR2026
H-INDEX4
  • Trust in the conduct of health and implementation research in conflict-induced humanitarian settings: A narrative literature review and preliminary theoretical framework

    Open Access•Vita Kachai, Vira Chernobrovkina et al.•ARTICLE•Conflict and Health•2026

    Conducting research in settings marked by violence is essential for generating credible knowledge to improve humanitarian responses. While its importance is widely acknowledged, the practice of health research, and implementation research in particular, is rarely itself a focus of research endeavors, limiting the understanding of the complexities of research conduct in conflict-induced humanitarian settings. This narrative review aims to synthesi…

  • How do illness identity, patient workload and agentic capacity interact to shape patient and caregiver experience? Comparative analysis of lung cancer and chronic obstructive pulmonary disease

    Open Access•Kate Lippiett, Alison Richardson et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 2•References: 3

    Some patients have to work hard to manage their illness. When this work outweighs capacity (the resources available to patients to undertake the illness workload and other workloads such as that of daily life), this may result in treatment burden, associated with poor health outcomes for patients. This cross-sectional, comparative qualitative analysis uses an abductive approach to identify, characterise and explain treatment burden in chronic obs…

  • A Complex Intervention for Alcohol Misuse Among Conflict-Affected Populations in Uganda and Ukraine: Study Protocol for the Qualitative Components in the CHANGE Trial

    Open Access•Alessandro Massazza, Daniela C Fuhr et al.•ARTICLE•International Journal of…•2021•References: 37

    Qualitative research is increasingly being integrated within the development and evaluation phases of trials of complex health interventions. Qualitative research can complement effectiveness data and provide insights around how context and implementation impact the results of the trial and to what extent interventions fit implementation contexts after evaluation. Several qualitative studies have been conducted at different stages of trials of me…

  • Digitized patient-provider interaction: How does it matter? A qualitative meta-synthesis

    Open Access•Hege K Andreassen, Hege Andreassen et al.•ARTICLE•Social Science & Medicine•2018•Cited by: 6•References: 35

  • Development and validation of the Patient Experience with Treatment and Self-management (Pets): A patient-reported measure of treatment burden

    Open Access•David T Eton, Kathleen J Yost et al.•ARTICLE•Quality of Life Research•2016

  • Rethinking the patient: Using Burden of Treatment Theory to understand the changing dynamics of illness

    Open Access•C May, Carl R May et al.•ARTICLE•BMC Health Services Research•2014

    BACKGROUND: In this article we outline Burden of Treatment Theory, a new model of the relationship between sick people, their social networks, and healthcare services. Health services face the challenge of growing populations with long-term and life-limiting conditions, they have responded to this by delegating to sick people and their networks routine work aimed at managing symptoms, and at retarding - and sometimes preventing - disease progress…

  • Chronic diseases and multi-morbidity - a conceptual modification to the WHO ICCC model for countries in health transition

    Open Access•Tolu Oni, Nicky Mcgrath et al.•ARTICLE•BMC Public Health•2014

    Our proposed modification to the ICCC Framework makes clear that healthcare systems must work to make sense of the complex collision between biological phenomena, clinical interpretation, beliefs and behaviours that follow from these. We emphasize the integration of these issues with the socio-economic environment to address issues of complexity, access and equity in the integrated management of chronic diseases previously considered in isolation

  • Cumulative complexity: A functional, patient-centered model of patient complexity can improve research and practice

    Open Access•Nathan D Shippee, Nilay D Shah et al.•ARTICLE•Journal of Clinical Epidemiology•2012

  • Established users and the making of telecare work in long term condition management: Implications for health policy

    Open Access•Anne Rogers, Susan Kirk et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 7•References: 15

  • Development of a theory of implementation and integration: Normalization Process Theory

    Open Access•C May, Carl R May et al.•ARTICLE•Implementation Science•2009

    BACKGROUND: Theories are important tools in the social and natural sciences. The methods by which they are derived are rarely described and discussed. Normalization Process Theory explains how new technologies, ways of acting, and ways of working become routinely embedded in everyday practice, and has applications in the study of implementation processes. This paper describes the process by which it was built. METHODS: Between 1998 and 2008, we d…

  • Future patients? Telehealthcare, roles and responsibilities: Telehealthcare and future patients

    Open Access•Tracy Finch, Tracy L Finch et al.•ARTICLE•Health & Social Care in the…•2007•Cited by: 4•References: 3

    Increasing use of information and communication technologies is said to be transforming health care. Telehealthcare enables medical consultations to be conducted between patients and health professionals across different locations. Such technologies imply new relationships between patients and health professionals. This study aimed to understand how policy and practice in relation to telehealthcare suggests new conceptualisations of 'the patient'…

  • From compliance to concordance: Barriers to Accomplishing a Re-Framed Model of Health Care Interactions

    Open Access•Paul Bissell, C May et al.•ARTICLE•Social Science & Medicine•2004•Cited by: 38•References: 28

  • Remote Doctors and Absent Patients: Acting at a Distance in Telemedicine

    Open Access•Maggie Mort, C May et al.•ARTICLE•Science Technology & Human Values•2003•Cited by: 25•References: 15

    According to policy makers, telemedicine offers "huge opportunities to improve the quality and accessibility of health services." It is defined as diagnosis, treatment, and monitoring, with doctors and patients separated by space (and usually time) but mediated through information and communication technologies. This mediation is explored through an ethnography of a U.K. teledermatology clinic. Diagnostic image transfer enables medicine at a dist…

  • From compliance to concordance: Barriers to Accomplishing a Re-Framed Model of Health Care Interactions

    Open Access•Paul Bissell, C May et al.•ARTICLE•Social Science & Medicine•2004•Cited by: 38•References: 28

  • Remote Doctors and Absent Patients: Acting at a Distance in Telemedicine

    Open Access•Maggie Mort, C May et al.•ARTICLE•Science Technology & Human Values•2003•Cited by: 25•References: 15

    According to policy makers, telemedicine offers "huge opportunities to improve the quality and accessibility of health services." It is defined as diagnosis, treatment, and monitoring, with doctors and patients separated by space (and usually time) but mediated through information and communication technologies. This mediation is explored through an ethnography of a U.K. teledermatology clinic. Diagnostic image transfer enables medicine at a dist…

  • Established users and the making of telecare work in long term condition management: Implications for health policy

    Open Access•Anne Rogers, Susan Kirk et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 7•References: 15

  • Digitized patient-provider interaction: How does it matter? A qualitative meta-synthesis

    Open Access•Hege K Andreassen, Hege Andreassen et al.•ARTICLE•Social Science & Medicine•2018•Cited by: 6•References: 35

  • Future patients? Telehealthcare, roles and responsibilities: Telehealthcare and future patients

    Open Access•Tracy Finch, Tracy L Finch et al.•ARTICLE•Health & Social Care in the…•2007•Cited by: 4•References: 3

    Increasing use of information and communication technologies is said to be transforming health care. Telehealthcare enables medical consultations to be conducted between patients and health professionals across different locations. Such technologies imply new relationships between patients and health professionals. This study aimed to understand how policy and practice in relation to telehealthcare suggests new conceptualisations of 'the patient'…

  • How do illness identity, patient workload and agentic capacity interact to shape patient and caregiver experience? Comparative analysis of lung cancer and chronic obstructive pulmonary disease

    Open Access•Kate Lippiett, Alison Richardson et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 2•References: 3

    Some patients have to work hard to manage their illness. When this work outweighs capacity (the resources available to patients to undertake the illness workload and other workloads such as that of daily life), this may result in treatment burden, associated with poor health outcomes for patients. This cross-sectional, comparative qualitative analysis uses an abductive approach to identify, characterise and explain treatment burden in chronic obs…

  • Remote Doctors and Absent Patients: Acting at a Distance in Telemedicine

    Open Access•Maggie Mort, C May et al.•ARTICLE•Science Technology & Human Values•2003•Cited by: 25•References: 15

    According to policy makers, telemedicine offers "huge opportunities to improve the quality and accessibility of health services." It is defined as diagnosis, treatment, and monitoring, with doctors and patients separated by space (and usually time) but mediated through information and communication technologies. This mediation is explored through an ethnography of a U.K. teledermatology clinic. Diagnostic image transfer enables medicine at a dist…

  • From compliance to concordance: Barriers to Accomplishing a Re-Framed Model of Health Care Interactions

    Open Access•Paul Bissell, C May et al.•ARTICLE•Social Science & Medicine•2004•Cited by: 38•References: 28

  • Future patients? Telehealthcare, roles and responsibilities: Telehealthcare and future patients

    Open Access•Tracy Finch, Tracy L Finch et al.•ARTICLE•Health & Social Care in the…•2007•Cited by: 4•References: 3

    Increasing use of information and communication technologies is said to be transforming health care. Telehealthcare enables medical consultations to be conducted between patients and health professionals across different locations. Such technologies imply new relationships between patients and health professionals. This study aimed to understand how policy and practice in relation to telehealthcare suggests new conceptualisations of 'the patient'…

  • Development of a theory of implementation and integration: Normalization Process Theory

    Open Access•C May, Carl R May et al.•ARTICLE•Implementation Science•2009

    BACKGROUND: Theories are important tools in the social and natural sciences. The methods by which they are derived are rarely described and discussed. Normalization Process Theory explains how new technologies, ways of acting, and ways of working become routinely embedded in everyday practice, and has applications in the study of implementation processes. This paper describes the process by which it was built. METHODS: Between 1998 and 2008, we d…

  • Established users and the making of telecare work in long term condition management: Implications for health policy

    Open Access•Anne Rogers, Susan Kirk et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 7•References: 15

  • Cumulative complexity: A functional, patient-centered model of patient complexity can improve research and practice

    Open Access•Nathan D Shippee, Nilay D Shah et al.•ARTICLE•Journal of Clinical Epidemiology•2012

  • Rethinking the patient: Using Burden of Treatment Theory to understand the changing dynamics of illness

    Open Access•C May, Carl R May et al.•ARTICLE•BMC Health Services Research•2014

    BACKGROUND: In this article we outline Burden of Treatment Theory, a new model of the relationship between sick people, their social networks, and healthcare services. Health services face the challenge of growing populations with long-term and life-limiting conditions, they have responded to this by delegating to sick people and their networks routine work aimed at managing symptoms, and at retarding - and sometimes preventing - disease progress…

  • Chronic diseases and multi-morbidity - a conceptual modification to the WHO ICCC model for countries in health transition

    Open Access•Tolu Oni, Nicky Mcgrath et al.•ARTICLE•BMC Public Health•2014

    Our proposed modification to the ICCC Framework makes clear that healthcare systems must work to make sense of the complex collision between biological phenomena, clinical interpretation, beliefs and behaviours that follow from these. We emphasize the integration of these issues with the socio-economic environment to address issues of complexity, access and equity in the integrated management of chronic diseases previously considered in isolation

  • Development and validation of the Patient Experience with Treatment and Self-management (Pets): A patient-reported measure of treatment burden

    Open Access•David T Eton, Kathleen J Yost et al.•ARTICLE•Quality of Life Research•2016

  • Digitized patient-provider interaction: How does it matter? A qualitative meta-synthesis

    Open Access•Hege K Andreassen, Hege Andreassen et al.•ARTICLE•Social Science & Medicine•2018•Cited by: 6•References: 35

  • A Complex Intervention for Alcohol Misuse Among Conflict-Affected Populations in Uganda and Ukraine: Study Protocol for the Qualitative Components in the CHANGE Trial

    Open Access•Alessandro Massazza, Daniela C Fuhr et al.•ARTICLE•International Journal of…•2021•References: 37

    Qualitative research is increasingly being integrated within the development and evaluation phases of trials of complex health interventions. Qualitative research can complement effectiveness data and provide insights around how context and implementation impact the results of the trial and to what extent interventions fit implementation contexts after evaluation. Several qualitative studies have been conducted at different stages of trials of me…

  • How do illness identity, patient workload and agentic capacity interact to shape patient and caregiver experience? Comparative analysis of lung cancer and chronic obstructive pulmonary disease

    Open Access•Kate Lippiett, Alison Richardson et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 2•References: 3

    Some patients have to work hard to manage their illness. When this work outweighs capacity (the resources available to patients to undertake the illness workload and other workloads such as that of daily life), this may result in treatment burden, associated with poor health outcomes for patients. This cross-sectional, comparative qualitative analysis uses an abductive approach to identify, characterise and explain treatment burden in chronic obs…

  • Trust in the conduct of health and implementation research in conflict-induced humanitarian settings: A narrative literature review and preliminary theoretical framework

    Open Access•Vita Kachai, Vira Chernobrovkina et al.•ARTICLE•Conflict and Health•2026

    Conducting research in settings marked by violence is essential for generating credible knowledge to improve humanitarian responses. While its importance is widely acknowledged, the practice of health research, and implementation research in particular, is rarely itself a focus of research endeavors, limiting the understanding of the complexities of research conduct in conflict-induced humanitarian settings. This narrative review aims to synthesi…

Medicine (10 works) · Computer Science (7 works) · Health care (7 works) · Nursing (6 works) · Political science (6 works) · Qualitative research (6 works) · Sociology (6 works) · Chronic Disease Management Strategies (4 works) · Mental Health and Patient Involvement (4 works) · Psychology (4 works)

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