Alicia Renedo
Datos Biográficos
| ID | 247110 |
|---|---|
| NOMBRE | Alicia Renedo |
| NOMBRES | Alicia |
| APELLIDO | Renedo |
| FIRMA | RENEDO A |
| AFILIACIONES | London School of Hygiene & Tropical Medicine |
| ORCID | 0000-0001-7159-1723 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 24 |
| TOTAL DE CITAS | 69 |
| TOTAL COMO AUTOR | 24 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2011 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 5 |
The rhetoric of community participation in maternal and perinatal death surveillance and response (MPDSR) in Kenya
Maternal and perinatal death surveillance and response (MPDSR) aims to prevent maternal and perinatal deaths by analysing clinical and social data after the death and using these insights to generate knowledge in the form of recommendations. This requires collaboration between health professionals and community members to co-produce knowledge to prevent future deaths. Our study asked: how do interactions between community members and health worke…
Health risks at work mean risks at home
During COVID-19 lockdowns in England, 'key workers' including factory workers, carers and cleaners had to continue to travel to workplaces. Those in key worker jobs were often from more marginalised communities, including migrant workers in precarious employment. Recognising space as materially and socially produced, this qualitative study explores migrant workers' experiences of navigating COVID-19 risks at work and its impacts on their home spa…
Community-led responses to Covid-19 within Gypsy and Traveller communities in England
Individuals were asked to play an active role in infection control in the COVID-19 pandemic. Yet while government messages emphasised taking responsibility for the public good (e.g. to protect the National Health Service), they appeared to overlook social, economic and political factors affecting the ways that people were able to respond. We co-produced participatory qualitative research with members of Gypsy and Traveller communities in England …
Strong structuration analysis of patterns of adherence to hypertension medication
Achieving blood pressure control is among the highest priorities for reducing the burden of cardiovascular diseases globally. Control is poor in the Philippines, especially in socioeconomically marginalised communities. This paper explores long-term adherence to anti-hypertensive medication in these communities, identifying 4 distinct medication adherence patterns. We draw on Strong Structuration Theory to explore motivations of action for those …
Communicating and understanding pain
Pain communication in healthcare is challenging. We examine use of pain scales to communicate pain severity via a case study of people with sickle cell disorder (SCD). We show how pain communication involves complex social interactions between patients, healthcare professionals and significant others - none of which are included in pain ratings. Failure to account for relational aspects of pain may cause problems for any patient. For SCD, mutual …
(De)constructing 'therapeutic itineraries' of hypertension care
Hypertension, a major risk factor for non-communicable diseases, remains poorly controlled in many countries. In the Philippines, it is still one of the leading causes of preventable deaths despite the accessibility and availability of essential technologies and medicine to detect and treat hypertension. This paper characterizes the 'therapeutic itineraries' of people with hypertension from poor communities in rural and urban settings in the Phil…
Participant Use of Digital Diaries in Qualitative Research
Lived experiences of chronic conditions are marked by fluidity and change, which should be considered if care is to be truly patient-centered. Seeking to capture this fluidity, we used digital diaries via mobile phones to communicate with hypertensive patients in the Philippines over approximately 12 months. This paper draws on Strong Structuration Theory to conceptualize the complex array of factors shaping participants' usage (and non-usage) of…
Doing' hypertension
Patients' embodied experiences do not always correspond to the biomedical concepts of particular diseases. Drawing from year-long fieldwork in the Philippines that involved semi-structured interviews, focus group discussions and digital diaries, we examine how individuals 'do' hypertension through their embodied experiences and the knowledge and practice that emerge from them. Drawing inspiration from Annemarie Mol's work on the notion of 'multip…
Reimagining authorship guidelines to promote equity in co-produced academic collaborations
Authorship of academic papers is a currency that can bring career advantages in academia and other industries. How authorship should be decided is not always clear, particularly in co-produced research with non-academic collaborators, for which existing authorship guidelines are largely silent. In this paper, we critically reflect on what constitutes written authorship in the context of co-produced health research. We present examples from our ow…
Strengths and Weaknesses of Digital Diaries as a Means to Study Patient Pathways
The rise of digital mobile communications has made possible novel research methods that can provide a better understanding of patients' experience of non-communicable diseases. This study explores the opportunities and challenges in employing 'digital diaries' via mobile phones to track the lived experiences of people with hypertension in the Philippines. Following in-depth interviews, 40 hypertensive adults were invited to submit digital diaries…
Community participation is crucial in a pandemic
Systematic review of frameworks used to conceptualise health pathways of individuals diagnosed with cardiovascular diseases
The treatment of cardiovascular disease (CVD) is managed inadequately globally. Theoretically informed frameworks have the potential to account for the multiple elements which constitute the CVD patient pathway, and capture their inter-relationships and processes of change. However, a review and critique of such frameworks is currently lacking. This systematic review aims to identify and critically assess frameworks of access to and utilisation o…
Nasa dugo (‘It’s in the blood’)
INTRODUCTION: Understanding explanatory models is important for hypertension, a leading risk factor for cardiovascular disease and stroke. This article aims to determine what adult patients with hypertension in the Philippines attribute their condition to, how these views might be explained and what the implications are for hypertension management. METHODS: This is a qualitative study drawing on 71 semistructured interviews (40 initial and 31 fol…
Transitions to adulthood
Young people develop new behaviours and redefine their identities during health transitions when they move from paediatric to adult healthcare environments. Their identities help to guide their health-related actions in response to life changes. Young people's health is increasingly recognised as important, yet we lack understanding of how health transitions shape identities and how they relate to other transitions to adulthood. We conducted a lo…
Obstacles to use of patient expertise to improve care
Involving young people in their own healthcare is a global priority, yet we know little about how this might work in practice. In this paper, co-produced between academic researchers and people with lived experiences of sickle cell and its treatment, we examine how young people with sickle cell disease attempt to use their expertise in their own condition during emergency hospital admissions and through encounters with healthcare workers who are …
Citizen Participation in Neoliberal Times
As we write this introduction, much of the global economy remains in crisis, a wave of ethno-nationalist populism continues to sweep countries across the global north and south, while neoliberal politics reaffirms its firm grip on their future. At the same time, the role of borders, both physical and symbolic, acquires renewed importance, creating new exclusionary zones and unsettling modernity’s settled concepts of democratic ‘citizenship’. How …
Fertility regulation as identity maintenance
We take a dialogical approach to exploring fertility regulation practices and show how they can maintain or express social identity. We identify three themes in educated Ghanaian women's accounts of how they navigate conflicting social demands on their identity when trying to regulate fertility: secrecy and silence - hiding contraception use and avoiding talking about it; tolerating uncertainty - such as using unreliable but more socially accepta…
Experience as Evidence
This article investigates how healthcare professionals articulate the relationship between patient experience and 'evidence', creating hybrid forms of knowledge. We propose a Bakhtinian dialogical framework to theorise this process. Drawing on ethnographic work from patient involvement initiatives in England, we show how patient experiences are re-articulated by professionals who add their own intentions and accents in a dialogical process which …
The co-production of what? Knowledge, values, and social relations in health care
"Co-production" is becoming an increasingly popular term in policymaking, governance, and research. While the shift from engagement and involvement to co-production in health care holds the promise of revolutionising health services and research, it is not always evident what counts as co-production: what is being produced, under what circumstances, and with what implications for participants. We discuss these questions and propose that co-produc…
Improving the Measurement of Fertility Regulation Practices
CONTEXT: According to Demographic and Health Survey (DHS) data, highly educated urban women in some West African countries simultaneously have low rates of both contraceptive use and fertility-suggesting that the DHS may not be capturing a complete picture of women's contraceptive practices. METHODS: Individual in-depth interviews and focus group discussions were conducted with a total of 48 women aged 18-49 in Accra, Ghana, who had at least a se…
Conceptualising the ‘community’ as a recipient of money – A critical literature review, and implications for health and inequalities
Spaces for Citizen Involvement in Healthcare
This ethnographic study examines how participatory spaces and citizenship are co-constituted in participatory healthcare improvement efforts. We propose a theoretical framework for participatory citizenship in which acts of citizenship in healthcare are understood in terms of the spaces they are in. Participatory spaces consist of material, temporal and social dimensions that constrain citizens' actions. Participants draw on external resources to…
Care Versus Control
UK voluntary and community sector organizations (VCOs) play a key role in caring for homeless people. However, there are widespread concerns about the impact of increasing government contracting on the quality of their services. This paper examines understandings of homelessness and identities as homelessness professionals, as expressed by VCO professionals. By so doing, it considers how ‘partnership working’ enables or undermines their capacitie…
Healthcare professionals' representations of ‘patient and public involvement’ and creation of ‘public participant’ identities
Community participation is widely thought to be important in the improvement of healthcare delivery and in health equity. Yet there is little agreement about what ‘participation’ means in practice, or when it might be necessary. Drawing on the case of healthcare delivery in the UK, we examine key socio‐psychological elements at the heart of community engagement with participatory processes. We explore the link between public participant identitie…
Experience as Evidence
This article investigates how healthcare professionals articulate the relationship between patient experience and 'evidence', creating hybrid forms of knowledge. We propose a Bakhtinian dialogical framework to theorise this process. Drawing on ethnographic work from patient involvement initiatives in England, we show how patient experiences are re-articulated by professionals who add their own intentions and accents in a dialogical process which …
Spaces for Citizen Involvement in Healthcare
This ethnographic study examines how participatory spaces and citizenship are co-constituted in participatory healthcare improvement efforts. We propose a theoretical framework for participatory citizenship in which acts of citizenship in healthcare are understood in terms of the spaces they are in. Participatory spaces consist of material, temporal and social dimensions that constrain citizens' actions. Participants draw on external resources to…
Healthcare professionals' representations of ‘patient and public involvement’ and creation of ‘public participant’ identities
Community participation is widely thought to be important in the improvement of healthcare delivery and in health equity. Yet there is little agreement about what ‘participation’ means in practice, or when it might be necessary. Drawing on the case of healthcare delivery in the UK, we examine key socio‐psychological elements at the heart of community engagement with participatory processes. We explore the link between public participant identitie…
Care Versus Control
UK voluntary and community sector organizations (VCOs) play a key role in caring for homeless people. However, there are widespread concerns about the impact of increasing government contracting on the quality of their services. This paper examines understandings of homelessness and identities as homelessness professionals, as expressed by VCO professionals. By so doing, it considers how ‘partnership working’ enables or undermines their capacitie…
Strengths and Weaknesses of Digital Diaries as a Means to Study Patient Pathways
The rise of digital mobile communications has made possible novel research methods that can provide a better understanding of patients' experience of non-communicable diseases. This study explores the opportunities and challenges in employing 'digital diaries' via mobile phones to track the lived experiences of people with hypertension in the Philippines. Following in-depth interviews, 40 hypertensive adults were invited to submit digital diaries…
(De)constructing 'therapeutic itineraries' of hypertension care
Hypertension, a major risk factor for non-communicable diseases, remains poorly controlled in many countries. In the Philippines, it is still one of the leading causes of preventable deaths despite the accessibility and availability of essential technologies and medicine to detect and treat hypertension. This paper characterizes the 'therapeutic itineraries' of people with hypertension from poor communities in rural and urban settings in the Phil…
Participant Use of Digital Diaries in Qualitative Research
Lived experiences of chronic conditions are marked by fluidity and change, which should be considered if care is to be truly patient-centered. Seeking to capture this fluidity, we used digital diaries via mobile phones to communicate with hypertensive patients in the Philippines over approximately 12 months. This paper draws on Strong Structuration Theory to conceptualize the complex array of factors shaping participants' usage (and non-usage) of…
Transitions to adulthood
Young people develop new behaviours and redefine their identities during health transitions when they move from paediatric to adult healthcare environments. Their identities help to guide their health-related actions in response to life changes. Young people's health is increasingly recognised as important, yet we lack understanding of how health transitions shape identities and how they relate to other transitions to adulthood. We conducted a lo…
Doing' hypertension
Patients' embodied experiences do not always correspond to the biomedical concepts of particular diseases. Drawing from year-long fieldwork in the Philippines that involved semi-structured interviews, focus group discussions and digital diaries, we examine how individuals 'do' hypertension through their embodied experiences and the knowledge and practice that emerge from them. Drawing inspiration from Annemarie Mol's work on the notion of 'multip…
Citizen Participation in Neoliberal Times
As we write this introduction, much of the global economy remains in crisis, a wave of ethno-nationalist populism continues to sweep countries across the global north and south, while neoliberal politics reaffirms its firm grip on their future. At the same time, the role of borders, both physical and symbolic, acquires renewed importance, creating new exclusionary zones and unsettling modernity’s settled concepts of democratic ‘citizenship’. How …
Fertility regulation as identity maintenance
We take a dialogical approach to exploring fertility regulation practices and show how they can maintain or express social identity. We identify three themes in educated Ghanaian women's accounts of how they navigate conflicting social demands on their identity when trying to regulate fertility: secrecy and silence - hiding contraception use and avoiding talking about it; tolerating uncertainty - such as using unreliable but more socially accepta…
Health risks at work mean risks at home
During COVID-19 lockdowns in England, 'key workers' including factory workers, carers and cleaners had to continue to travel to workplaces. Those in key worker jobs were often from more marginalised communities, including migrant workers in precarious employment. Recognising space as materially and socially produced, this qualitative study explores migrant workers' experiences of navigating COVID-19 risks at work and its impacts on their home spa…
Communicating and understanding pain
Pain communication in healthcare is challenging. We examine use of pain scales to communicate pain severity via a case study of people with sickle cell disorder (SCD). We show how pain communication involves complex social interactions between patients, healthcare professionals and significant others - none of which are included in pain ratings. Failure to account for relational aspects of pain may cause problems for any patient. For SCD, mutual …
Healthcare professionals' representations of ‘patient and public involvement’ and creation of ‘public participant’ identities
Community participation is widely thought to be important in the improvement of healthcare delivery and in health equity. Yet there is little agreement about what ‘participation’ means in practice, or when it might be necessary. Drawing on the case of healthcare delivery in the UK, we examine key socio‐psychological elements at the heart of community engagement with participatory processes. We explore the link between public participant identitie…
Care Versus Control
UK voluntary and community sector organizations (VCOs) play a key role in caring for homeless people. However, there are widespread concerns about the impact of increasing government contracting on the quality of their services. This paper examines understandings of homelessness and identities as homelessness professionals, as expressed by VCO professionals. By so doing, it considers how ‘partnership working’ enables or undermines their capacitie…
Conceptualising the ‘community’ as a recipient of money – A critical literature review, and implications for health and inequalities
Spaces for Citizen Involvement in Healthcare
This ethnographic study examines how participatory spaces and citizenship are co-constituted in participatory healthcare improvement efforts. We propose a theoretical framework for participatory citizenship in which acts of citizenship in healthcare are understood in terms of the spaces they are in. Participatory spaces consist of material, temporal and social dimensions that constrain citizens' actions. Participants draw on external resources to…
The co-production of what? Knowledge, values, and social relations in health care
"Co-production" is becoming an increasingly popular term in policymaking, governance, and research. While the shift from engagement and involvement to co-production in health care holds the promise of revolutionising health services and research, it is not always evident what counts as co-production: what is being produced, under what circumstances, and with what implications for participants. We discuss these questions and propose that co-produc…
Improving the Measurement of Fertility Regulation Practices
CONTEXT: According to Demographic and Health Survey (DHS) data, highly educated urban women in some West African countries simultaneously have low rates of both contraceptive use and fertility-suggesting that the DHS may not be capturing a complete picture of women's contraceptive practices. METHODS: Individual in-depth interviews and focus group discussions were conducted with a total of 48 women aged 18-49 in Accra, Ghana, who had at least a se…
Fertility regulation as identity maintenance
We take a dialogical approach to exploring fertility regulation practices and show how they can maintain or express social identity. We identify three themes in educated Ghanaian women's accounts of how they navigate conflicting social demands on their identity when trying to regulate fertility: secrecy and silence - hiding contraception use and avoiding talking about it; tolerating uncertainty - such as using unreliable but more socially accepta…
Experience as Evidence
This article investigates how healthcare professionals articulate the relationship between patient experience and 'evidence', creating hybrid forms of knowledge. We propose a Bakhtinian dialogical framework to theorise this process. Drawing on ethnographic work from patient involvement initiatives in England, we show how patient experiences are re-articulated by professionals who add their own intentions and accents in a dialogical process which …
Obstacles to use of patient expertise to improve care
Involving young people in their own healthcare is a global priority, yet we know little about how this might work in practice. In this paper, co-produced between academic researchers and people with lived experiences of sickle cell and its treatment, we examine how young people with sickle cell disease attempt to use their expertise in their own condition during emergency hospital admissions and through encounters with healthcare workers who are …
Citizen Participation in Neoliberal Times
As we write this introduction, much of the global economy remains in crisis, a wave of ethno-nationalist populism continues to sweep countries across the global north and south, while neoliberal politics reaffirms its firm grip on their future. At the same time, the role of borders, both physical and symbolic, acquires renewed importance, creating new exclusionary zones and unsettling modernity’s settled concepts of democratic ‘citizenship’. How …
Community participation is crucial in a pandemic
Systematic review of frameworks used to conceptualise health pathways of individuals diagnosed with cardiovascular diseases
The treatment of cardiovascular disease (CVD) is managed inadequately globally. Theoretically informed frameworks have the potential to account for the multiple elements which constitute the CVD patient pathway, and capture their inter-relationships and processes of change. However, a review and critique of such frameworks is currently lacking. This systematic review aims to identify and critically assess frameworks of access to and utilisation o…
Nasa dugo (‘It’s in the blood’)
INTRODUCTION: Understanding explanatory models is important for hypertension, a leading risk factor for cardiovascular disease and stroke. This article aims to determine what adult patients with hypertension in the Philippines attribute their condition to, how these views might be explained and what the implications are for hypertension management. METHODS: This is a qualitative study drawing on 71 semistructured interviews (40 initial and 31 fol…
Transitions to adulthood
Young people develop new behaviours and redefine their identities during health transitions when they move from paediatric to adult healthcare environments. Their identities help to guide their health-related actions in response to life changes. Young people's health is increasingly recognised as important, yet we lack understanding of how health transitions shape identities and how they relate to other transitions to adulthood. We conducted a lo…
Reimagining authorship guidelines to promote equity in co-produced academic collaborations
Authorship of academic papers is a currency that can bring career advantages in academia and other industries. How authorship should be decided is not always clear, particularly in co-produced research with non-academic collaborators, for which existing authorship guidelines are largely silent. In this paper, we critically reflect on what constitutes written authorship in the context of co-produced health research. We present examples from our ow…
Strengths and Weaknesses of Digital Diaries as a Means to Study Patient Pathways
The rise of digital mobile communications has made possible novel research methods that can provide a better understanding of patients' experience of non-communicable diseases. This study explores the opportunities and challenges in employing 'digital diaries' via mobile phones to track the lived experiences of people with hypertension in the Philippines. Following in-depth interviews, 40 hypertensive adults were invited to submit digital diaries…
Strong structuration analysis of patterns of adherence to hypertension medication
Achieving blood pressure control is among the highest priorities for reducing the burden of cardiovascular diseases globally. Control is poor in the Philippines, especially in socioeconomically marginalised communities. This paper explores long-term adherence to anti-hypertensive medication in these communities, identifying 4 distinct medication adherence patterns. We draw on Strong Structuration Theory to explore motivations of action for those …
Communicating and understanding pain
Pain communication in healthcare is challenging. We examine use of pain scales to communicate pain severity via a case study of people with sickle cell disorder (SCD). We show how pain communication involves complex social interactions between patients, healthcare professionals and significant others - none of which are included in pain ratings. Failure to account for relational aspects of pain may cause problems for any patient. For SCD, mutual …
(De)constructing 'therapeutic itineraries' of hypertension care
Hypertension, a major risk factor for non-communicable diseases, remains poorly controlled in many countries. In the Philippines, it is still one of the leading causes of preventable deaths despite the accessibility and availability of essential technologies and medicine to detect and treat hypertension. This paper characterizes the 'therapeutic itineraries' of people with hypertension from poor communities in rural and urban settings in the Phil…
Participant Use of Digital Diaries in Qualitative Research
Lived experiences of chronic conditions are marked by fluidity and change, which should be considered if care is to be truly patient-centered. Seeking to capture this fluidity, we used digital diaries via mobile phones to communicate with hypertensive patients in the Philippines over approximately 12 months. This paper draws on Strong Structuration Theory to conceptualize the complex array of factors shaping participants' usage (and non-usage) of…
Doing' hypertension
Patients' embodied experiences do not always correspond to the biomedical concepts of particular diseases. Drawing from year-long fieldwork in the Philippines that involved semi-structured interviews, focus group discussions and digital diaries, we examine how individuals 'do' hypertension through their embodied experiences and the knowledge and practice that emerge from them. Drawing inspiration from Annemarie Mol's work on the notion of 'multip…
Community-led responses to Covid-19 within Gypsy and Traveller communities in England
Individuals were asked to play an active role in infection control in the COVID-19 pandemic. Yet while government messages emphasised taking responsibility for the public good (e.g. to protect the National Health Service), they appeared to overlook social, economic and political factors affecting the ways that people were able to respond. We co-produced participatory qualitative research with members of Gypsy and Traveller communities in England …
Health risks at work mean risks at home
During COVID-19 lockdowns in England, 'key workers' including factory workers, carers and cleaners had to continue to travel to workplaces. Those in key worker jobs were often from more marginalised communities, including migrant workers in precarious employment. Recognising space as materially and socially produced, this qualitative study explores migrant workers' experiences of navigating COVID-19 risks at work and its impacts on their home spa…
The rhetoric of community participation in maternal and perinatal death surveillance and response (MPDSR) in Kenya
Maternal and perinatal death surveillance and response (MPDSR) aims to prevent maternal and perinatal deaths by analysing clinical and social data after the death and using these insights to generate knowledge in the form of recommendations. This requires collaboration between health professionals and community members to co-produce knowledge to prevent future deaths. Our study asked: how do interactions between community members and health worke…
Sociology (18 obras) · Medicine (15 obras) · Political science (14 obras) · Psychology (12 obras) · Health care (11 obras) · Qualitative research (8 obras) · Public relations (7 obras) · Social science (6 obras) · Law (5 obras) · Mental Health and Patient Involvement (5 obras)