R Grob
Biographic Data
| ID | 25614 |
|---|---|
| NAME | R Grob |
| GIVEN NAMES | R |
| FAMILY NAME | Grob |
| SIGNATURE | GROB R |
| AFFILIATIONS | University of Wisconsin–Madison |
| ORCID | 0000-0002-1017-4536 |
| VERIFIED | Yes |
| TOTAL WORKS | 17 |
| TOTAL CITATIONS | 12 |
| WORKS AS AUTHOR | 17 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 1949 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
The Patient Experience Divide
BACKGROUND: Income is closely linked to morbidity and mortality in the United States, potentially due in part to differences in patient experience. However, existing studies on income and care experiences are outdated and have other important limitations. METHODS: Using data from a recent national sample of adults (N=5016), we conducted a mixed-methods investigation of the relationship between income and primary care experiences. Patient experien…
Improving Diagnosis
BACKGROUND: Understanding patients' experiences with diagnosis is crucial for improving care. Clarifying how best to ask about these experiences is an essential step in doing so. OBJECTIVE: To elicit and then categorize diagnostic problems and mistakes in a national, population-based survey. METHODS: Drawing from a nationally representative panel, respondents were asked whether they had experienced (directly or as a care partner) a diagnostic pro…
Exploring sociodemographic disparities in diagnostic problems and mistakes in the quest for diagnostic equity
Introduction: As part of building a platform for epidemiological research on diagnostic errors and problems that centers on patients and equity, this paper summarizes the development and analysis of data collected from fielding a survey in a nationally representative U.S. population to explore the prevalence and harm consequences of diagnostic problems or mistakes (referred to here as "diagnostic P&Ms") by respondent-reported sociodemographic cha…
Cross country analysis of qualitative interviews
ZORA (Zurich Open Repository and Archive) provides open and worldwide access to the research and scholarly output of the University of Zurich, Switzerland. A focus is on qualified scientific publications. ZORA is operated by the University Library together with the Central IT of the University of Zurich
Navigating responsible bio-political citizenship
This paper aims to further understanding of discourses of responsible bio-political citizenship during the first year of the Covid-19 pandemic. This was an interview-based qualitative study comparing experiences of 103 people who were ill with Covid for the first time across 2020 in Japan, Germany, the USA and the UK. Comparative thematic analysis explored discussion of responsibility in relation to Covid illness, experiences of social fracture a…
Talking about inequities
Disproportionate mortality and morbidity burdens of the COVID-19 pandemic and coinciding media coverage of public acts of violence perpetrated against people of color in 2020 precipitated reckonings with structural inequities in global, national, and local contexts. This cross-country comparative analysis aims to describe how people voice and make sense race, racism, and privilege in their experiences with COVID-19 infection in the United States,…
The familial canopy as thought space for meaning making, emotional calibration and planful action around inherited cancer risk
The identification of genetic cancer risk often induces a reconsideration of self-concept. • Familial context is salient to individuals' engagement with elevated risk and subsequent action. • Familial generations offer distinct resources for meaning-making that are not temporally bound. • Generational peers can be salient for integration of hereditary cancer into individual identity
Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic
This analysis of people's accounts of establishing their need and experiences of healthcare for long Covid (LC) symptoms draws on interview data from five countries (UK, US, Netherlands, Canada, Australia) during the first ∼18 months of the Covid-19 pandemic when LC was an emerging, sometimes contested, condition with scant scientific or lay knowledge to guide patients and professionals in their sense-making of often bewildering constellations of…
When Mistakes Multiply
In this essay, we explore consequences of the systemic failure to track and to publicize the prevalence of patient‐safety threats in American medicine. Tens of millions of Americans lose trust in medical care every year due to safety shortfalls. Because this loss of trust is long‐lasting, the corrosive effects build up over time, yielding a collective maelstrom of mistrust among the American public. Yet no one seems to notice that patient safety …
“You have to trust yourself”
Self‐trust is essential to the well‐being of people with chronic illnesses and those who care for them. In this exploratory essay, we draw on a trove of health narratives to catalyze examination of this important but often overlooked topic. We explore how self‐trust is impeded at both personal and structural levels, how it can best be nourished, and how it is related to self‐advocacy. Because people's ability to trust themselves is intrinsically …
Broadening Medical Students’ Exposure to the Range of Illness Experiences
PROBLEM: Exposing medical students to a broad range of illness experiences is crucial for teaching them to practice patient-centered care, but students often have limited interaction with patients with diverse illness presentations. APPROACH: The authors developed, implemented, and evaluated a self-directed online curriculum followed by a small-group discussion focused on depression education. The curriculum was based on a module created using th…
Stumbling Into Adulthood
Depression manifests in distinct ways across the life course. Recent research emphasizes how depression impedes development during emerging adulthood. However, our study-based on 40 interviews with emerging adults from multiple regions in the United States, analyzed following grounded theory-suggests a more complex narrative. Increasing experience with cycles of depression can also catalyze (a) mature perspectives and coping mechanisms that prote…
Qualitative Research on Expanded Prenatal and Newborn Screening
If I told you that screening technologies are iteratively transforming how people experience pregnancy and early parenting, you might take notice. If I mentioned that a new class of newborn patients was being created and that particular forms of parental vigilance were emerging, you might want to know more. If I described how the particular stories told about screening in public, combined with parents’ fierce commitment to safeguarding their chil…
Families’ Experiences with Newborn Screening
Debates about expanding newborn screening with whole genome sequencing are fueled by data about public perception, public opinion, and the positions taken by public advocates and advocacy groups. One form of evidence that merits attention as we consider possible uses of whole‐genome sequencing during the newborn period is parents’ (and children's) diverse experiences with existing expanded screening protocols. What do we know about this experienc…
Is my sick child healthy? Is my healthy child sick
Parenting in the genomic age
Newborn screening for genetic disorders is the most widely-used form of genetic testing in the United States, and the number of disorders for which infants are screened is now expanding rapidly. This article explores the dominant narratives structuring public understanding about the need for mandatory screening, and about screening programs' unprecedented practice of testing for non-infectious diseases without parental consent. Using primary data…
Zur Neuauflage der Berner-Oberland-Karte
No abstract available
Is my sick child healthy? Is my healthy child sick
Stumbling Into Adulthood
Depression manifests in distinct ways across the life course. Recent research emphasizes how depression impedes development during emerging adulthood. However, our study-based on 40 interviews with emerging adults from multiple regions in the United States, analyzed following grounded theory-suggests a more complex narrative. Increasing experience with cycles of depression can also catalyze (a) mature perspectives and coping mechanisms that prote…
Zur Neuauflage der Berner-Oberland-Karte
No abstract available
Parenting in the genomic age
Newborn screening for genetic disorders is the most widely-used form of genetic testing in the United States, and the number of disorders for which infants are screened is now expanding rapidly. This article explores the dominant narratives structuring public understanding about the need for mandatory screening, and about screening programs' unprecedented practice of testing for non-infectious diseases without parental consent. Using primary data…
Is my sick child healthy? Is my healthy child sick
Families’ Experiences with Newborn Screening
Debates about expanding newborn screening with whole genome sequencing are fueled by data about public perception, public opinion, and the positions taken by public advocates and advocacy groups. One form of evidence that merits attention as we consider possible uses of whole‐genome sequencing during the newborn period is parents’ (and children's) diverse experiences with existing expanded screening protocols. What do we know about this experienc…
Qualitative Research on Expanded Prenatal and Newborn Screening
If I told you that screening technologies are iteratively transforming how people experience pregnancy and early parenting, you might take notice. If I mentioned that a new class of newborn patients was being created and that particular forms of parental vigilance were emerging, you might want to know more. If I described how the particular stories told about screening in public, combined with parents’ fierce commitment to safeguarding their chil…
Broadening Medical Students’ Exposure to the Range of Illness Experiences
PROBLEM: Exposing medical students to a broad range of illness experiences is crucial for teaching them to practice patient-centered care, but students often have limited interaction with patients with diverse illness presentations. APPROACH: The authors developed, implemented, and evaluated a self-directed online curriculum followed by a small-group discussion focused on depression education. The curriculum was based on a module created using th…
Stumbling Into Adulthood
Depression manifests in distinct ways across the life course. Recent research emphasizes how depression impedes development during emerging adulthood. However, our study-based on 40 interviews with emerging adults from multiple regions in the United States, analyzed following grounded theory-suggests a more complex narrative. Increasing experience with cycles of depression can also catalyze (a) mature perspectives and coping mechanisms that prote…
Navigating responsible bio-political citizenship
This paper aims to further understanding of discourses of responsible bio-political citizenship during the first year of the Covid-19 pandemic. This was an interview-based qualitative study comparing experiences of 103 people who were ill with Covid for the first time across 2020 in Japan, Germany, the USA and the UK. Comparative thematic analysis explored discussion of responsibility in relation to Covid illness, experiences of social fracture a…
Talking about inequities
Disproportionate mortality and morbidity burdens of the COVID-19 pandemic and coinciding media coverage of public acts of violence perpetrated against people of color in 2020 precipitated reckonings with structural inequities in global, national, and local contexts. This cross-country comparative analysis aims to describe how people voice and make sense race, racism, and privilege in their experiences with COVID-19 infection in the United States,…
The familial canopy as thought space for meaning making, emotional calibration and planful action around inherited cancer risk
The identification of genetic cancer risk often induces a reconsideration of self-concept. • Familial context is salient to individuals' engagement with elevated risk and subsequent action. • Familial generations offer distinct resources for meaning-making that are not temporally bound. • Generational peers can be salient for integration of hereditary cancer into individual identity
Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic
This analysis of people's accounts of establishing their need and experiences of healthcare for long Covid (LC) symptoms draws on interview data from five countries (UK, US, Netherlands, Canada, Australia) during the first ∼18 months of the Covid-19 pandemic when LC was an emerging, sometimes contested, condition with scant scientific or lay knowledge to guide patients and professionals in their sense-making of often bewildering constellations of…
When Mistakes Multiply
In this essay, we explore consequences of the systemic failure to track and to publicize the prevalence of patient‐safety threats in American medicine. Tens of millions of Americans lose trust in medical care every year due to safety shortfalls. Because this loss of trust is long‐lasting, the corrosive effects build up over time, yielding a collective maelstrom of mistrust among the American public. Yet no one seems to notice that patient safety …
“You have to trust yourself”
Self‐trust is essential to the well‐being of people with chronic illnesses and those who care for them. In this exploratory essay, we draw on a trove of health narratives to catalyze examination of this important but often overlooked topic. We explore how self‐trust is impeded at both personal and structural levels, how it can best be nourished, and how it is related to self‐advocacy. Because people's ability to trust themselves is intrinsically …
Cross country analysis of qualitative interviews
ZORA (Zurich Open Repository and Archive) provides open and worldwide access to the research and scholarly output of the University of Zurich, Switzerland. A focus is on qualified scientific publications. ZORA is operated by the University Library together with the Central IT of the University of Zurich
Exploring sociodemographic disparities in diagnostic problems and mistakes in the quest for diagnostic equity
Introduction: As part of building a platform for epidemiological research on diagnostic errors and problems that centers on patients and equity, this paper summarizes the development and analysis of data collected from fielding a survey in a nationally representative U.S. population to explore the prevalence and harm consequences of diagnostic problems or mistakes (referred to here as "diagnostic P&Ms") by respondent-reported sociodemographic cha…
The Patient Experience Divide
BACKGROUND: Income is closely linked to morbidity and mortality in the United States, potentially due in part to differences in patient experience. However, existing studies on income and care experiences are outdated and have other important limitations. METHODS: Using data from a recent national sample of adults (N=5016), we conducted a mixed-methods investigation of the relationship between income and primary care experiences. Patient experien…
Improving Diagnosis
BACKGROUND: Understanding patients' experiences with diagnosis is crucial for improving care. Clarifying how best to ask about these experiences is an essential step in doing so. OBJECTIVE: To elicit and then categorize diagnostic problems and mistakes in a national, population-based survey. METHODS: Drawing from a nationally representative panel, respondents were asked whether they had experienced (directly or as a care partner) a diagnostic pro…
Psychology (13 works) · Medicine (10 works) · Political science (9 works) · Health care (5 works) · Nursing (5 works) · Social Psychology (5 works) · Sociology (5 works) · Narrative (4 works) · Newborn screening (4 works) · Prenatal Screening and Diagnostics (4 works)