Brenda Agyeiwaa Poku
Biographic Data
| ID | 263590 |
|---|---|
| NAME | Brenda Agyeiwaa Poku |
| GIVEN NAMES | Brenda Agyeiwaa |
| FAMILY NAME | Poku |
| SIGNATURE | POKU B A |
| AFFILIATIONS | University of Nottingham |
| ORCID | 0000-0002-2265-7041 |
| VERIFIED | Yes |
| TOTAL WORKS | 9 |
| TOTAL CITATIONS | 18 |
| WORKS AS AUTHOR | 9 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2019 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
Invisible Navigators
Migrant parents of children and young people (CYP) living with sickle cell disease (SCD) must manage complex care needs within unfamiliar healthcare systems. Drawing on qualitative interviews with migrant parents in England, this study examines how migration reshapes healthcare navigation. Using navigation as an analytical lens, the findings show that parents act as de facto navigators, coordinating services across healthcare, education and welfa…
Connecting care
Migrant children and young people (CYP) living with sickle cell disease (SCD) in the UK face persistent, intersecting barriers to care. While existing research often maps these barriers, less is known about how service providers navigate them in practice. This study draws on Tronto’s ethics of care framework (1993; 2013) to examine how healthcare professionals and third-sector organisation workers enact care for migrant CYP living with SCD within…
Self‐management interventions for children and young people with sickle cell disease
Indigenous or Biomedical Ethics, or Both? A Consideration From Health-Related Ethnographic Research Conducted in a Rural Setting
Generally, conventional biomedically rooted ethical guidelines developed in Western countries for ethnographic research in non-Western countries are often impractical and raise contention. Ethical approval from research ethics committees (RECs) is a significant aspect of the research process. However, for researchers wanting to conduct a research study in an African context in a culturally sensitive manner, identifying ethics procedures that meet…
Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana
INTRODUCTION: Effective transfer of research findings to key knowledge users, particularly in low- and middle-income countries, is not always achieved, despite being a shared priority among researchers, funders, healthcare and community stakeholders and decision-makers. A constructivist grounded theory study conducted in 2015-2019 in Ghana that explored sickle cell-related fatigue in adolescence resulted in numerous implications for practice and …
How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease
Despite the chronicity and biopsychosocial significance of fatigue in sickle cell disease (SCD), it is rarely prioritized in understanding illness experiences and the social consequences of SCD for children, young people and their families. This study examined fatigue's social meaning and significance for young people with SCD. This examination involved perspectives on parental (maternal) care/support. We adopted a constructivist grounded theory …
Biographical accounts of the impact of fatigue in young people with sickle cell disease
Children and young people (CYP) with sickle cell disease (SCD) are a 'missing voice' in the debate on biography and sociology of chronic illness, meaning we know little about the social consequences of the illness for CYP. This paper examines the meaning of fatigue (a common symptom) for adolescents with SCD. Analysing 24 in-depth interviews with adolescents aged 12-17 years in Ghana, we draw on the distinction proposed by Bury (1988) between 'me…
Body as a Machine
Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative and picture-elicitation interviews with 24 adolescents in Ghana. A grounded theory, "body as a machine," was constructed from the narratives. Fatigue represented the most restrictive and disruptive aspect of gro…
The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research
In the last three decades, there has been a growing interest in listening to children's voices in child health research. Ensuring an appropriate level of dialogical engagement with children calls for participatory methods. Auto-driven photo-elicitation interviews (PEIs) are a powerful approach to obtain rich data from children. This article discusses the opportunities and challenges of using auto-driven PEIs in a health-related child-centered con…
Biographical accounts of the impact of fatigue in young people with sickle cell disease
Children and young people (CYP) with sickle cell disease (SCD) are a 'missing voice' in the debate on biography and sociology of chronic illness, meaning we know little about the social consequences of the illness for CYP. This paper examines the meaning of fatigue (a common symptom) for adolescents with SCD. Analysing 24 in-depth interviews with adolescents aged 12-17 years in Ghana, we draw on the distinction proposed by Bury (1988) between 'me…
The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research
In the last three decades, there has been a growing interest in listening to children's voices in child health research. Ensuring an appropriate level of dialogical engagement with children calls for participatory methods. Auto-driven photo-elicitation interviews (PEIs) are a powerful approach to obtain rich data from children. This article discusses the opportunities and challenges of using auto-driven PEIs in a health-related child-centered con…
Indigenous or Biomedical Ethics, or Both? A Consideration From Health-Related Ethnographic Research Conducted in a Rural Setting
Generally, conventional biomedically rooted ethical guidelines developed in Western countries for ethnographic research in non-Western countries are often impractical and raise contention. Ethical approval from research ethics committees (RECs) is a significant aspect of the research process. However, for researchers wanting to conduct a research study in an African context in a culturally sensitive manner, identifying ethics procedures that meet…
Body as a Machine
Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative and picture-elicitation interviews with 24 adolescents in Ghana. A grounded theory, "body as a machine," was constructed from the narratives. Fatigue represented the most restrictive and disruptive aspect of gro…
The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research
In the last three decades, there has been a growing interest in listening to children's voices in child health research. Ensuring an appropriate level of dialogical engagement with children calls for participatory methods. Auto-driven photo-elicitation interviews (PEIs) are a powerful approach to obtain rich data from children. This article discusses the opportunities and challenges of using auto-driven PEIs in a health-related child-centered con…
Body as a Machine
Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative and picture-elicitation interviews with 24 adolescents in Ghana. A grounded theory, "body as a machine," was constructed from the narratives. Fatigue represented the most restrictive and disruptive aspect of gro…
Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana
INTRODUCTION: Effective transfer of research findings to key knowledge users, particularly in low- and middle-income countries, is not always achieved, despite being a shared priority among researchers, funders, healthcare and community stakeholders and decision-makers. A constructivist grounded theory study conducted in 2015-2019 in Ghana that explored sickle cell-related fatigue in adolescence resulted in numerous implications for practice and …
How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease
Despite the chronicity and biopsychosocial significance of fatigue in sickle cell disease (SCD), it is rarely prioritized in understanding illness experiences and the social consequences of SCD for children, young people and their families. This study examined fatigue's social meaning and significance for young people with SCD. This examination involved perspectives on parental (maternal) care/support. We adopted a constructivist grounded theory …
Biographical accounts of the impact of fatigue in young people with sickle cell disease
Children and young people (CYP) with sickle cell disease (SCD) are a 'missing voice' in the debate on biography and sociology of chronic illness, meaning we know little about the social consequences of the illness for CYP. This paper examines the meaning of fatigue (a common symptom) for adolescents with SCD. Analysing 24 in-depth interviews with adolescents aged 12-17 years in Ghana, we draw on the distinction proposed by Bury (1988) between 'me…
Self‐management interventions for children and young people with sickle cell disease
Indigenous or Biomedical Ethics, or Both? A Consideration From Health-Related Ethnographic Research Conducted in a Rural Setting
Generally, conventional biomedically rooted ethical guidelines developed in Western countries for ethnographic research in non-Western countries are often impractical and raise contention. Ethical approval from research ethics committees (RECs) is a significant aspect of the research process. However, for researchers wanting to conduct a research study in an African context in a culturally sensitive manner, identifying ethics procedures that meet…
Invisible Navigators
Migrant parents of children and young people (CYP) living with sickle cell disease (SCD) must manage complex care needs within unfamiliar healthcare systems. Drawing on qualitative interviews with migrant parents in England, this study examines how migration reshapes healthcare navigation. Using navigation as an analytical lens, the findings show that parents act as de facto navigators, coordinating services across healthcare, education and welfa…
Connecting care
Migrant children and young people (CYP) living with sickle cell disease (SCD) in the UK face persistent, intersecting barriers to care. While existing research often maps these barriers, less is known about how service providers navigate them in practice. This study draws on Tronto’s ethics of care framework (1993; 2013) to examine how healthcare professionals and third-sector organisation workers enact care for migrant CYP living with SCD within…
Disease (5 works) · Psychology (5 works) · Sociology (5 works) · Hemoglobinopathies and Related Disorders (4 works) · Medicine (4 works) · Political science (4 works) · Qualitative research (4 works) · Developmental psychology (3 works) · Context (archaeology (2 works) · Food Security and Health in Diverse Populations (2 works)