Maria Berghs
Biographic Data
| ID | 270723 |
|---|---|
| NAME | Maria Berghs |
| GIVEN NAMES | Maria |
| FAMILY NAME | Berghs |
| SIGNATURE | BERGHS M |
| AFFILIATIONS | De Montfort University |
| VERIFIED | No |
| TOTAL WORKS | 8 |
| TOTAL CITATIONS | 19 |
| AUTHOR COUNT | 8 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2011 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
A Racialized Capitalism Perspective on the Work and Employment of Black and Minoritized Ethnic Workers Living With Sickle Cell Disorder
Little is known about the employment experiences of Black minoritized ethnic workers in England with sickle cell disorder (SCD). Using Satnam Virdee's concept of racialized capitalism within the context of a critical discussion of intersectionality, we argue that their experiences are usefully understood as shared occurrences of racism determined by structural conditions across three generations. Drawing on in‐depth interviews with 47 individuals…
Let's Get Back to Normal? Covid-19 and the Logic of Cure
The COVID-19 pandemic has inversed certainties of absolutes of cure in everyday life but paradoxically this has occurred during a time when novel scientific advancements seem to herald a new frontier of cures for rare diseases, chronic conditions, disabilities and viruses that were previously incurable. In this paper, I illustrate the development of a logic of cure by first of all noting a lacuna in the medical sociological and anthropological li…
Time to apply a social determinants of health lens to addressing sickle cell disorders in sub-Saharan Africa
Sickle cell disorders are a complex multisystem inherited genetic blood disorders that affect millions of people worldwide and complications of the disorders can include anaemia, pain episodes and organ damage. Medical advances, early detection, intervention in infancy and specialised care across the life-course are transforming these genetic blood disorders into chronic conditions, with longer life expectancies and better quality of life, yet pu…
Rights to social determinants of flourishing? A paradigm for disability and public health research and policy
We need to understand how disability might have an accumulative impact across the life course, as well as how to ensure equity for people living with disabilities. This means conceptualising a social determinants of flourishing where we evaluate how exactly randomised controlled trials and public health interventions, not only lead to greater equality but also ensure rights to health and wellbeing
Practices and discourses of ubuntu: Implications for an African model of disability
Background : Southern African scholars and activists working in disability studies have argued that ubuntu or unhu is a part of their world view. Objectives : Thinking seriously about ubuntu , as a shared collective humanness or social ethics, means to examine how Africans have framed a struggle for this shared humanity in terms of decolonisation and activism. Method : Three examples of applications of ubuntu are given, with two mainly linked to …
Resignifying the sickle cell gene: Narratives of genetic risk, impairment and repair
Connecting theoretical discussion with empirical qualitative work, this article examines how sickle cell became a site of public health intervention in terms of 'racialised' risks. Historically, sickle cell became socio-politically allied to ideas of repair, in terms of the state improving the health of a neglected ethnic minority population. Yet, we elucidate how partial improvements in care and education arose alongside preventative public heal…
Talk to Me. There’s Two of Us’: Fathers and Sickle Cell Screening
Studying kinship has involved doing family, displaying family and ‘displaying family’ as a sensitising concept to understand modalities troublesome to display. Fathers at antenatal screening clinics for sickle cell are faced with pressures to produce multiple displays – of family, illness knowledge, the good father and the model citizen – often in the face of racialised identities. Such fathers emphasise the importance of hypervisibility in gende…
Embodiment and Emotion in Sierra Leone
In this article, drawing on in-depth multi-sited ethnographic field research, a description is given of how an ‘amputee and war-wounded’ community formed in Sierra Leone after a 10-year civil war from 1991 to 2002. Through the shared experiences of life in a camp, medical care, participation in the rebuilding of the nation-state, to the ‘managing’ of the everyday structural violence of poverty, people find themselves dealing with new local and gl…
Practices and discourses of ubuntu: Implications for an African model of disability
Background : Southern African scholars and activists working in disability studies have argued that ubuntu or unhu is a part of their world view. Objectives : Thinking seriously about ubuntu , as a shared collective humanness or social ethics, means to examine how Africans have framed a struggle for this shared humanity in terms of decolonisation and activism. Method : Three examples of applications of ubuntu are given, with two mainly linked to …
Embodiment and Emotion in Sierra Leone
In this article, drawing on in-depth multi-sited ethnographic field research, a description is given of how an ‘amputee and war-wounded’ community formed in Sierra Leone after a 10-year civil war from 1991 to 2002. Through the shared experiences of life in a camp, medical care, participation in the rebuilding of the nation-state, to the ‘managing’ of the everyday structural violence of poverty, people find themselves dealing with new local and gl…
Talk to Me. There’s Two of Us’: Fathers and Sickle Cell Screening
Studying kinship has involved doing family, displaying family and ‘displaying family’ as a sensitising concept to understand modalities troublesome to display. Fathers at antenatal screening clinics for sickle cell are faced with pressures to produce multiple displays – of family, illness knowledge, the good father and the model citizen – often in the face of racialised identities. Such fathers emphasise the importance of hypervisibility in gende…
Resignifying the sickle cell gene: Narratives of genetic risk, impairment and repair
Connecting theoretical discussion with empirical qualitative work, this article examines how sickle cell became a site of public health intervention in terms of 'racialised' risks. Historically, sickle cell became socio-politically allied to ideas of repair, in terms of the state improving the health of a neglected ethnic minority population. Yet, we elucidate how partial improvements in care and education arose alongside preventative public heal…
Embodiment and Emotion in Sierra Leone
In this article, drawing on in-depth multi-sited ethnographic field research, a description is given of how an ‘amputee and war-wounded’ community formed in Sierra Leone after a 10-year civil war from 1991 to 2002. Through the shared experiences of life in a camp, medical care, participation in the rebuilding of the nation-state, to the ‘managing’ of the everyday structural violence of poverty, people find themselves dealing with new local and gl…
Talk to Me. There’s Two of Us’: Fathers and Sickle Cell Screening
Studying kinship has involved doing family, displaying family and ‘displaying family’ as a sensitising concept to understand modalities troublesome to display. Fathers at antenatal screening clinics for sickle cell are faced with pressures to produce multiple displays – of family, illness knowledge, the good father and the model citizen – often in the face of racialised identities. Such fathers emphasise the importance of hypervisibility in gende…
Practices and discourses of ubuntu: Implications for an African model of disability
Background : Southern African scholars and activists working in disability studies have argued that ubuntu or unhu is a part of their world view. Objectives : Thinking seriously about ubuntu , as a shared collective humanness or social ethics, means to examine how Africans have framed a struggle for this shared humanity in terms of decolonisation and activism. Method : Three examples of applications of ubuntu are given, with two mainly linked to …
Resignifying the sickle cell gene: Narratives of genetic risk, impairment and repair
Connecting theoretical discussion with empirical qualitative work, this article examines how sickle cell became a site of public health intervention in terms of 'racialised' risks. Historically, sickle cell became socio-politically allied to ideas of repair, in terms of the state improving the health of a neglected ethnic minority population. Yet, we elucidate how partial improvements in care and education arose alongside preventative public heal…
Rights to social determinants of flourishing? A paradigm for disability and public health research and policy
We need to understand how disability might have an accumulative impact across the life course, as well as how to ensure equity for people living with disabilities. This means conceptualising a social determinants of flourishing where we evaluate how exactly randomised controlled trials and public health interventions, not only lead to greater equality but also ensure rights to health and wellbeing
Time to apply a social determinants of health lens to addressing sickle cell disorders in sub-Saharan Africa
Sickle cell disorders are a complex multisystem inherited genetic blood disorders that affect millions of people worldwide and complications of the disorders can include anaemia, pain episodes and organ damage. Medical advances, early detection, intervention in infancy and specialised care across the life-course are transforming these genetic blood disorders into chronic conditions, with longer life expectancies and better quality of life, yet pu…
Let's Get Back to Normal? Covid-19 and the Logic of Cure
The COVID-19 pandemic has inversed certainties of absolutes of cure in everyday life but paradoxically this has occurred during a time when novel scientific advancements seem to herald a new frontier of cures for rare diseases, chronic conditions, disabilities and viruses that were previously incurable. In this paper, I illustrate the development of a logic of cure by first of all noting a lacuna in the medical sociological and anthropological li…
A Racialized Capitalism Perspective on the Work and Employment of Black and Minoritized Ethnic Workers Living With Sickle Cell Disorder
Little is known about the employment experiences of Black minoritized ethnic workers in England with sickle cell disorder (SCD). Using Satnam Virdee's concept of racialized capitalism within the context of a critical discussion of intersectionality, we argue that their experiences are usefully understood as shared occurrences of racism determined by structural conditions across three generations. Drawing on in‐depth interviews with 47 individuals…
Law (4 works) · Medicine (4 works) · Political science (4 works) · Psychology (4 works) · Sociology (4 works) · Gender Studies (3 works) · Hemoglobinopathies and Related Disorders (3 works) · Law (3 works) · Negotiation (3 works) · Social science (3 works)