Andrea Martani
Biographic Data
| ID | 2744589 |
|---|---|
| NAME | Andrea Martani |
| GIVEN NAMES | Andrea |
| FAMILY NAME | Martani |
| SIGNATURE | MARTANI A |
| AFFILIATIONS | University of Basel |
| ORCID | 0000-0003-2113-1002 |
| VERIFIED | Yes |
| TOTAL WORKS | 12 |
| TOTAL CITATIONS | 4 |
| AUTHOR COUNT | 12 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2021 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
The application of restrictive measures during the Covid-19 pandemic: Experiences from the Swiss healthcare system
The Covid-19 pandemic severely affected Switzerland and triggered a comprehensive government response, which included strict restriction measures that HealthCare sector Workers (HCWs) had to interpret and apply, especially concerning the care of older adults. The aim of our qualitative study is to explore HCWs’ perceptions, experiences and challenges regarding the implementation of various restrictive measures during the Covid-19 pandemic in Swit…
Normal for me, not for others: Experiences of young adults born to “advanced‐age” parents
“Should I continue with this profession or not?”: Moral distress during the Covid-19 pandemic among Swiss healthcare workers
The COVID-19 pandemic led to an extraordinary situation of resource scarcity and pushed healthcare to its limits. Consequently, healthcare professionals (HCPs) faced moral and ethical challenges that served as potential triggers for moral distress. The purpose of this study was to identify moral distress experiences of HCPs during the COVID-19 pandemic. We conducted 30 semi-structured interviews with HCPs working in the German part of Switzerland…
It was clear that I could be the grandchild and not the daughter’: A qualitative study on children of advanced age parents and their realization of and adaptation to their parents’ age
Having children at advanced parental age (APA), is becoming more and more common, but research on the lived experiences of children with APA parents is very limited. To investigate this topic, we conducted an explorative interview study in Switzerland. Participants had at least one parent that was at least 40 years old at the time of their birth and we interviewed them about the experiences and meaning of growing up with older parents. After enga…
Repoliticizing heritable human genome editing: Discursive Narrowing and Technomoral Change in the International Debate on Human Germline Modification
Since the birth of gene-edited babies in China in 2018, public debates about Human Germline Genome Editing (HGGE) have re-ignited. Based on a literature review, legal analysis, and our involvement in a consortium project aimed at fostering public deliberation on HGGE, this article offers a reflection on how debates around this technology are evolving. We argue that they tend to be subject to discursive narrowing, a form of framing that reduces th…
How are legal rules on advanced parental age and access to Assistive Reproductive Technologies experienced by Swiss care professionals? A qualitative interview-based study
Assisted Reproductive Technologies (ART) are increasingly used to conceive a child. Starting a family using ART requires the collaboration of healthcare professionals and medical interventions, and is thus heavily regulated. The law plays a central role in determining which patients and upon fulfilling which conditions can access ART. Although the law sets the general rules, it is care professionals who need to apply and enforce them in concrete …
Against age limits for men in reproductive care
Health in data space: Formative and experiential dimensions of cross-border health data sharing
Healthcare is increasingly datafied, and a wide range of actors-patients, clinicians, administrators, policymakers, and industry lobbyists-want to be able to exchange and access health data internationally and use them for an increasing number of purposes. Therefore, competing initiatives aimed at fostering international data integration proliferate, with the proposed European Health Data Space as one of the most prominent examples. But how do le…
Rethinking advanced motherhood: A new ethical narrative
The aim of the study is to rethink the ethics of advanced motherhood. In the literature, delayed childbearing is usually discussed in the context of reproductive justice, and in relationship to ethical issues associated with the use and risk of assisted reproductive technologies. We aim to go beyond these more “traditional” ways in which reproductive ethics is framed by revisiting ethics itself through the lens of the figure of the so-called “old…
The devil is in the details: An analysis of patient rights in Swiss cancer registries
Cancer registries are an important part of the public health infrastructure, since they allow to monitor the temporal trends of this illness as well as facilitate epidemiological research. In order to effectively set up such registries, it is necessary to create a system of data collection that permits to record health-related information from patients who are diagnosed with cancer. Given the sensitive nature of such data, it is debated whether t…
Systemic Fairness for Sharing Health Data: Perspectives From Swiss Stakeholders
Introduction: Health research is gradually embracing a more collectivist approach, fueled by a new movement of open science, data sharing and collaborative partnerships. However, the existence of systemic contradictions hinders the sharing of health data and such collectivist endeavor. Therefore, this qualitative study explores these systemic barriers to a fair sharing of health data from the perspectives of Swiss stakeholders. Methods: Purposive…
Evolution or Revolution? Recommendations to Improve the Swiss Health Data Framework
Background: Facilitating access to health data for public health and research purposes is an important element in the health policy agenda of many countries. Improvements in this sense can only be achieved with the development of an appropriate data infrastructure and the implementations of policies that also respect societal preferences. Switzerland is a revealing example of a country that has been struggling to achieve this aim. The objective o…
Health in data space: Formative and experiential dimensions of cross-border health data sharing
Healthcare is increasingly datafied, and a wide range of actors-patients, clinicians, administrators, policymakers, and industry lobbyists-want to be able to exchange and access health data internationally and use them for an increasing number of purposes. Therefore, competing initiatives aimed at fostering international data integration proliferate, with the proposed European Health Data Space as one of the most prominent examples. But how do le…
Systemic Fairness for Sharing Health Data: Perspectives From Swiss Stakeholders
Introduction: Health research is gradually embracing a more collectivist approach, fueled by a new movement of open science, data sharing and collaborative partnerships. However, the existence of systemic contradictions hinders the sharing of health data and such collectivist endeavor. Therefore, this qualitative study explores these systemic barriers to a fair sharing of health data from the perspectives of Swiss stakeholders. Methods: Purposive…
Evolution or Revolution? Recommendations to Improve the Swiss Health Data Framework
Background: Facilitating access to health data for public health and research purposes is an important element in the health policy agenda of many countries. Improvements in this sense can only be achieved with the development of an appropriate data infrastructure and the implementations of policies that also respect societal preferences. Switzerland is a revealing example of a country that has been struggling to achieve this aim. The objective o…
The devil is in the details: An analysis of patient rights in Swiss cancer registries
Cancer registries are an important part of the public health infrastructure, since they allow to monitor the temporal trends of this illness as well as facilitate epidemiological research. In order to effectively set up such registries, it is necessary to create a system of data collection that permits to record health-related information from patients who are diagnosed with cancer. Given the sensitive nature of such data, it is debated whether t…
Rethinking advanced motherhood: A new ethical narrative
The aim of the study is to rethink the ethics of advanced motherhood. In the literature, delayed childbearing is usually discussed in the context of reproductive justice, and in relationship to ethical issues associated with the use and risk of assisted reproductive technologies. We aim to go beyond these more “traditional” ways in which reproductive ethics is framed by revisiting ethics itself through the lens of the figure of the so-called “old…
Against age limits for men in reproductive care
Health in data space: Formative and experiential dimensions of cross-border health data sharing
Healthcare is increasingly datafied, and a wide range of actors-patients, clinicians, administrators, policymakers, and industry lobbyists-want to be able to exchange and access health data internationally and use them for an increasing number of purposes. Therefore, competing initiatives aimed at fostering international data integration proliferate, with the proposed European Health Data Space as one of the most prominent examples. But how do le…
Normal for me, not for others: Experiences of young adults born to “advanced‐age” parents
“Should I continue with this profession or not?”: Moral distress during the Covid-19 pandemic among Swiss healthcare workers
The COVID-19 pandemic led to an extraordinary situation of resource scarcity and pushed healthcare to its limits. Consequently, healthcare professionals (HCPs) faced moral and ethical challenges that served as potential triggers for moral distress. The purpose of this study was to identify moral distress experiences of HCPs during the COVID-19 pandemic. We conducted 30 semi-structured interviews with HCPs working in the German part of Switzerland…
It was clear that I could be the grandchild and not the daughter’: A qualitative study on children of advanced age parents and their realization of and adaptation to their parents’ age
Having children at advanced parental age (APA), is becoming more and more common, but research on the lived experiences of children with APA parents is very limited. To investigate this topic, we conducted an explorative interview study in Switzerland. Participants had at least one parent that was at least 40 years old at the time of their birth and we interviewed them about the experiences and meaning of growing up with older parents. After enga…
Repoliticizing heritable human genome editing: Discursive Narrowing and Technomoral Change in the International Debate on Human Germline Modification
Since the birth of gene-edited babies in China in 2018, public debates about Human Germline Genome Editing (HGGE) have re-ignited. Based on a literature review, legal analysis, and our involvement in a consortium project aimed at fostering public deliberation on HGGE, this article offers a reflection on how debates around this technology are evolving. We argue that they tend to be subject to discursive narrowing, a form of framing that reduces th…
How are legal rules on advanced parental age and access to Assistive Reproductive Technologies experienced by Swiss care professionals? A qualitative interview-based study
Assisted Reproductive Technologies (ART) are increasingly used to conceive a child. Starting a family using ART requires the collaboration of healthcare professionals and medical interventions, and is thus heavily regulated. The law plays a central role in determining which patients and upon fulfilling which conditions can access ART. Although the law sets the general rules, it is care professionals who need to apply and enforce them in concrete …
The application of restrictive measures during the Covid-19 pandemic: Experiences from the Swiss healthcare system
The Covid-19 pandemic severely affected Switzerland and triggered a comprehensive government response, which included strict restriction measures that HealthCare sector Workers (HCWs) had to interpret and apply, especially concerning the care of older adults. The aim of our qualitative study is to explore HCWs’ perceptions, experiences and challenges regarding the implementation of various restrictive measures during the Covid-19 pandemic in Swit…
Political science (8 works) · Medicine (7 works) · Sociology (7 works) · Health care (5 works) · Law (5 works) · Computer Science (4 works) · Ethics in Clinical Research (4 works) · Psychology (4 works) · Qualitative research (4 works) · Knowledge management (3 works)