Egmar Longo
Biographic Data
| ID | 2817218 |
|---|---|
| NAME | Egmar Longo |
| GIVEN NAMES | Egmar |
| FAMILY NAME | Longo |
| SIGNATURE | LONGO E |
| AFFILIATIONS | Universidade Federal do Rio Grande do Norte |
| ORCID | 0000-0001-6263-1818 |
| VERIFIED | Yes |
| TOTAL WORKS | 9 |
| TOTAL CITATIONS | 0 |
| AUTHOR COUNT | 9 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2018 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 0 |
Families' Perceptions of Powered Mobility for Participation in Children With Spinal Muscular Atrophy Type 1: A Photovoice Study
BACKGROUND AND PURPOSE: Spinal muscular atrophy type 1 (SMA1) is a neuromuscular disorder that severely limits movement and autonomy in young children. Early powered mobility has proved to be a valuable intervention to promote participation, social engagement and emotional well-being. To understand the potential impact of powered mobility, it is critical to explore children and families' experiences with participatory methodologies, such as the p…
The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the Covid‐19 pandemic
INTRODUCTION: In Brazil, more than 3500 children with congenital Zika syndrome (CZS) face difficulties participating in activities of daily living, which may be aggravated by health emergencies, such as the COVID-19 pandemic. Participation could be defined as the individual's involvement in daily life situations, and participation restrictions are problems that may arise in involvement in everyday situations. AIM: To explore the daily lives of ch…
My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions
INTRODUCTION: Promoting social inclusion of children with congenital Zika virus syndrome (CZS) is challenging, mostly, when there is a transport problem, low access to information and a long distance between the house and health services. Participation can be understood as involvement in a life situation and is strongly influenced by physical, social and attitudinal environmental factors; however, was still little explored in the case of children…
A Clareza de Papéis entre os Profissionais de Saúde do Nasf: Você sabe o papel do seu colega de trabalho na equipe
Este relato de experiência busca trazer discussões sobre a clareza de papéis entre profissionais a partir da observação participante realizada no Núcleo Ampliado de Saúde da Família, localizado em Santa Cruz, interior do Rio Grande do Norte. Durante o processo, o grupo de apoio matricial, do Programa de Educação pela Saúde no âmbito da Interprofissionalidade, se inseriu no dia a dia no serviço e, mais especificamente, nas visitas domiciliares rea…
Engaging local health research communities to enhance long-term capacity building in Brazil
The ‘2019 Research Capacity Network (REDe) workshop series’ was an initiative led by Brazil-based REDe coordinators and The Global Health Network (TGHN) in partnership with Brazilian researchers interested in arboviruses. This workshop initiative has provided crucial training to the local research community offering transferable skills to effectively respond to health emergencies, with an impact beyond arboviral diseases, as evidenced by further …
Go Zika Go: A Feasibility Protocol of a Modified Ride-on Car Intervention for Children with Congenital Zika Syndrome in Brazil
Children with congenital Zika syndrome (CZS) present severe motor disability and can benefit from early powered mobility. The Go Zika Go project uses modified ride-on toy cars, which may advance the body functions, activities, and participation of children. This paper describes the study protocol aiming to assess the feasibility of a modified ride-on car intervention for children with CZS in Brazil. A mixed-methods design with a multiple 1-week b…
Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection
This is the first study that describes the functioning profile of children with microcephaly associated with ZIKV, using a tool based on the ICF in Brazil. Our findings reinforce the need to maximize health care and access to information, based on the ICF, for multiprofessional teams, administrators, family members, and children
Growth and Development of Children with Microcephaly Associated with Congenital Zika Virus Syndrome in Brazil
The outbreak of Zika virus in Latin America in the period 2015−2016 has caused a sudden increase in the number of severe manifestations and reports of congenital changes in newborns in Brazil. This is the first study that evaluated and compared the growth and cognitive and motor development of children with microcephaly due to Congenital Zika Virus Syndrome (CZS) in relation to typical children. It was an observational, analytical, cross-sectiona…
Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning
Background: The International Classification of Functioning, Disability, and Health (ICF) Core Sets for children and youth with cerebral palsy (CP) offer service providers and stakeholders a specific framework to explore functioning and disability for assessment, treatment, evaluation, and policy purposes in a global context. Objective: Describe global initiatives applying the ICF Core Sets for children and youth with CP, with a focus on contribu…
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Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection
This is the first study that describes the functioning profile of children with microcephaly associated with ZIKV, using a tool based on the ICF in Brazil. Our findings reinforce the need to maximize health care and access to information, based on the ICF, for multiprofessional teams, administrators, family members, and children
Growth and Development of Children with Microcephaly Associated with Congenital Zika Virus Syndrome in Brazil
The outbreak of Zika virus in Latin America in the period 2015−2016 has caused a sudden increase in the number of severe manifestations and reports of congenital changes in newborns in Brazil. This is the first study that evaluated and compared the growth and cognitive and motor development of children with microcephaly due to Congenital Zika Virus Syndrome (CZS) in relation to typical children. It was an observational, analytical, cross-sectiona…
Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning
Background: The International Classification of Functioning, Disability, and Health (ICF) Core Sets for children and youth with cerebral palsy (CP) offer service providers and stakeholders a specific framework to explore functioning and disability for assessment, treatment, evaluation, and policy purposes in a global context. Objective: Describe global initiatives applying the ICF Core Sets for children and youth with CP, with a focus on contribu…
Go Zika Go: A Feasibility Protocol of a Modified Ride-on Car Intervention for Children with Congenital Zika Syndrome in Brazil
Children with congenital Zika syndrome (CZS) present severe motor disability and can benefit from early powered mobility. The Go Zika Go project uses modified ride-on toy cars, which may advance the body functions, activities, and participation of children. This paper describes the study protocol aiming to assess the feasibility of a modified ride-on car intervention for children with CZS in Brazil. A mixed-methods design with a multiple 1-week b…
Engaging local health research communities to enhance long-term capacity building in Brazil
The ‘2019 Research Capacity Network (REDe) workshop series’ was an initiative led by Brazil-based REDe coordinators and The Global Health Network (TGHN) in partnership with Brazilian researchers interested in arboviruses. This workshop initiative has provided crucial training to the local research community offering transferable skills to effectively respond to health emergencies, with an impact beyond arboviral diseases, as evidenced by further …
My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions
INTRODUCTION: Promoting social inclusion of children with congenital Zika virus syndrome (CZS) is challenging, mostly, when there is a transport problem, low access to information and a long distance between the house and health services. Participation can be understood as involvement in a life situation and is strongly influenced by physical, social and attitudinal environmental factors; however, was still little explored in the case of children…
A Clareza de Papéis entre os Profissionais de Saúde do Nasf: Você sabe o papel do seu colega de trabalho na equipe
Este relato de experiência busca trazer discussões sobre a clareza de papéis entre profissionais a partir da observação participante realizada no Núcleo Ampliado de Saúde da Família, localizado em Santa Cruz, interior do Rio Grande do Norte. Durante o processo, o grupo de apoio matricial, do Programa de Educação pela Saúde no âmbito da Interprofissionalidade, se inseriu no dia a dia no serviço e, mais especificamente, nas visitas domiciliares rea…
The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the Covid‐19 pandemic
INTRODUCTION: In Brazil, more than 3500 children with congenital Zika syndrome (CZS) face difficulties participating in activities of daily living, which may be aggravated by health emergencies, such as the COVID-19 pandemic. Participation could be defined as the individual's involvement in daily life situations, and participation restrictions are problems that may arise in involvement in everyday situations. AIM: To explore the daily lives of ch…
Families' Perceptions of Powered Mobility for Participation in Children With Spinal Muscular Atrophy Type 1: A Photovoice Study
BACKGROUND AND PURPOSE: Spinal muscular atrophy type 1 (SMA1) is a neuromuscular disorder that severely limits movement and autonomy in young children. Early powered mobility has proved to be a valuable intervention to promote participation, social engagement and emotional well-being. To understand the potential impact of powered mobility, it is critical to explore children and families' experiences with participatory methodologies, such as the p…
Medicine (8 works) · Psychology (6 works) · Mosquito-borne diseases and control (5 works) · Cerebral Palsy and Movement Disorders (4 works) · Political science (4 works) · Psychiatry (4 works) · Sociology (4 works) · Assistive Technology in Communication and Mobility (3 works) · Family and Disability Support Research (3 works) · Focus group (3 works)