Catherine Heeney
Biographic Data
| ID | 2817626 |
|---|---|
| NAME | Catherine Heeney |
| GIVEN NAMES | Catherine |
| FAMILY NAME | Heeney |
| SIGNATURE | HEENEY C |
| AFFILIATIONS | University of Oxford |
| ORCID | 0000-0002-0725-974X |
| VERIFIED | Yes |
| TOTAL WORKS | 7 |
| TOTAL CITATIONS | 40 |
| AUTHOR COUNT | 7 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2006 |
| LATEST PUBLICATION YEAR | 2021 |
| H-INDEX | 3 |
Problems and promises: How to tell the story of a Genome Wide Association Study
An "Ethical Moment" in Data Sharing
This study draws on interviews with forty-nine members of a biomedical research community in the UK that is involved in negotiating data sharing and access. During an interview, an interviewee used the words "ethical moment" to describe a confrontation between collaborators in relation to data sharing. In this article, I use this as a lens for thinking about relations between "the conceptual and the empirical" in a way that allows both analyst an…
Breaching the Contract? Privacy and the UK Census
Along with informed consent, anonymization is an accepted method of protecting the interests of research participants, while allowing data collected for official statistical purposes to be reused by other agencies within and outside government. The Decennial Census, carried out in a number of countries, including the United Kingdom, is a major event in the production of research data and provides an important resource for a variety of organizatio…
Public Health Genomics (PHG) and Public Participation: Points to Consider
Large-scale population biobanks, which aim to collect biological tissues, personal health information, and genomic data, are being introduced worldwide with the promise of increasing knowledge on chronic diseases such as diabetes and heart disease. Experts recognize the need for public participation to address the many social, legal and ethical complexities raised by the introduction of biobanks for public health research. However many researcher…
Information‐sharing and Confidentiality in Social Policy: Regulating Multi‐agency Working
In recent years, there has been growing concern in the UK that local services aimed at risky or vulnerable people are ineffective, because of agencies’ persistent failure to share information about their clients. Despite considerable national policy effort to encourage better information‐sharing, previous research indicates that there are many cases where information is still not shared when it should be, or where it is shared when it should not …
Governing Genetic Databases: Challenges Facing Research Regulation and Practice
This paper reports on the initial findings of an interdisciplinary research project on the governance of human genetic databases in England and Wales. The number of biosample and information collections has expanded, yet considerable legal uncertainty surrounds their definition, collection, storage, management, and use which could inhibit research and clinical practice, while failing to protect the rights and interests of all stakeholders. We rep…
Institutional Shaping of Interagency Working: Managing Tensions between Collaborative Working and Client Confidentiality
This article was accepted for publication in the journal, Journal of Public Administration Research and Theory [Oxford University Press / © The Authors]. The definitive version is available at: http://jpart.oxfordjournals.org/cgi/content/full/17/3/379
Information‐sharing and Confidentiality in Social Policy: Regulating Multi‐agency Working
In recent years, there has been growing concern in the UK that local services aimed at risky or vulnerable people are ineffective, because of agencies’ persistent failure to share information about their clients. Despite considerable national policy effort to encourage better information‐sharing, previous research indicates that there are many cases where information is still not shared when it should be, or where it is shared when it should not …
Institutional Shaping of Interagency Working: Managing Tensions between Collaborative Working and Client Confidentiality
This article was accepted for publication in the journal, Journal of Public Administration Research and Theory [Oxford University Press / © The Authors]. The definitive version is available at: http://jpart.oxfordjournals.org/cgi/content/full/17/3/379
Governing Genetic Databases: Challenges Facing Research Regulation and Practice
This paper reports on the initial findings of an interdisciplinary research project on the governance of human genetic databases in England and Wales. The number of biosample and information collections has expanded, yet considerable legal uncertainty surrounds their definition, collection, storage, management, and use which could inhibit research and clinical practice, while failing to protect the rights and interests of all stakeholders. We rep…
An "Ethical Moment" in Data Sharing
This study draws on interviews with forty-nine members of a biomedical research community in the UK that is involved in negotiating data sharing and access. During an interview, an interviewee used the words "ethical moment" to describe a confrontation between collaborators in relation to data sharing. In this article, I use this as a lens for thinking about relations between "the conceptual and the empirical" in a way that allows both analyst an…
Breaching the Contract? Privacy and the UK Census
Along with informed consent, anonymization is an accepted method of protecting the interests of research participants, while allowing data collected for official statistical purposes to be reused by other agencies within and outside government. The Decennial Census, carried out in a number of countries, including the United Kingdom, is a major event in the production of research data and provides an important resource for a variety of organizatio…
Institutional Shaping of Interagency Working: Managing Tensions between Collaborative Working and Client Confidentiality
This article was accepted for publication in the journal, Journal of Public Administration Research and Theory [Oxford University Press / © The Authors]. The definitive version is available at: http://jpart.oxfordjournals.org/cgi/content/full/17/3/379
Governing Genetic Databases: Challenges Facing Research Regulation and Practice
This paper reports on the initial findings of an interdisciplinary research project on the governance of human genetic databases in England and Wales. The number of biosample and information collections has expanded, yet considerable legal uncertainty surrounds their definition, collection, storage, management, and use which could inhibit research and clinical practice, while failing to protect the rights and interests of all stakeholders. We rep…
Information‐sharing and Confidentiality in Social Policy: Regulating Multi‐agency Working
In recent years, there has been growing concern in the UK that local services aimed at risky or vulnerable people are ineffective, because of agencies’ persistent failure to share information about their clients. Despite considerable national policy effort to encourage better information‐sharing, previous research indicates that there are many cases where information is still not shared when it should be, or where it is shared when it should not …
Public Health Genomics (PHG) and Public Participation: Points to Consider
Large-scale population biobanks, which aim to collect biological tissues, personal health information, and genomic data, are being introduced worldwide with the promise of increasing knowledge on chronic diseases such as diabetes and heart disease. Experts recognize the need for public participation to address the many social, legal and ethical complexities raised by the introduction of biobanks for public health research. However many researcher…
Breaching the Contract? Privacy and the UK Census
Along with informed consent, anonymization is an accepted method of protecting the interests of research participants, while allowing data collected for official statistical purposes to be reused by other agencies within and outside government. The Decennial Census, carried out in a number of countries, including the United Kingdom, is a major event in the production of research data and provides an important resource for a variety of organizatio…
An "Ethical Moment" in Data Sharing
This study draws on interviews with forty-nine members of a biomedical research community in the UK that is involved in negotiating data sharing and access. During an interview, an interviewee used the words "ethical moment" to describe a confrontation between collaborators in relation to data sharing. In this article, I use this as a lens for thinking about relations between "the conceptual and the empirical" in a way that allows both analyst an…
Problems and promises: How to tell the story of a Genome Wide Association Study
Political science (7 works) · Law (5 works) · Sociology (5 works) · Business (4 works) · Law (4 works) · Mental Health and Patient Involvement (4 works) · Public relations (4 works) · Computer Science (3 works) · Confidentiality (3 works) · Empirical research (3 works)