Anne Parkinson
Biographic Data
| ID | 293126 |
|---|---|
| NAME | Anne Parkinson |
| GIVEN NAMES | Anne |
| FAMILY NAME | Parkinson |
| SIGNATURE | PARKINSON A |
| AFFILIATIONS | Griffith University |
| ORCID | 0000-0001-9053-0707 |
| VERIFIED | Yes |
| TOTAL WORKS | 11 |
| TOTAL CITATIONS | 8 |
| AUTHOR COUNT | 11 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1981 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
Consumer Engagement in Chronic Conditions Research
BACKGROUND: Consumer engagement ensures that health research reflects lived experiences and generates outcomes relevant to those most affected. However, frameworks guiding engagement in research about chronic conditions remain limited and often lack theoretical grounding. OBJECTIVE: To develop an integrated, evidence-based framework to support consumer engagement in research about chronic conditions. METHODS: We integrated findings from (1) a sco…
Lived experience of out-of-pocket costs of health care and medicines by people with chronic conditions and their families in Australia
A framework for involving coproduction partners in research about young people with type 1 diabetes
BACKGROUND: Involvement of end-users in research can enhance its quality, relevance, credibility and legitimacy; however, the processes through which these changes occur are unclear. Our aim was to explore a coproduction research team's experiences of their involvement in research about young people with type 1 diabetes mellitus (T1DM). METHODS: Semi-structured interviews conducted with two young people with T1DM, two parents, one diabetes educat…
Intertwined like a double helix
‘They're getting a taste of our world’
BACKGROUND: People with multiple sclerosis (MS), who are often immunocompromised, require complex care and engage with a variety of health-care providers to manage their health. OBJECTIVE: To elucidate people with MS' experiences of accessing health care during the COVID-19 pandemic in Australia. DESIGN: A qualitative study involving semi-structured interviews and thematic analysis. SETTINGS AND PARTICIPANTS: Eight adults with a clinical diagnosi…
‘It struck at the heart of who I thought I was’
Experiencing integration in Australian primary health care
Introduction: Integrated care means different things to different people. We often find the terms ‘integration’ and ‘integrated care’ used interchangeably. However, Kodner and Spreeuwenberg (2002) suggest ‘integration’ refers to structures and processes, while ‘integrated care’ refers more to patient experiences and the outcomes of such processes. Contributing further to its complexity, integration occurs between different levels of the health sy…
Time to manage
This paper examines how people with chronic illnesses respond to absences of continuity and coordination of care. Little work has been done on how the ill person might mitigate flaws in a less than optimal system. Our qualitative research, carried out among 91 participants in Australia, reveals that people with chronic illnesses create strategies to facilitate the management of their care. These strategies included efforts to improve communicatio…
Does it matter who organises your health care
In moving towards care coordination there are opportunities to improve the care coordination process itself, and the key enablers to improving care coordination appear to be the availability and communication of clinical information and the role of the clinical team
The public inquiry as a contested political technology
In 2007, the Australian states of Victoria and New South Wales held reviews of their moratoriums on the commercial release of genetically modified (GM) food crops. The public inquiry form of review selected offered the best strategic pathway to amend these moratoriums to allow commercial release. As such, the reviews represented ‘political technologies’. This proposition is informed by: their formation within a policy context of pro-GM developmen…
Distributive industry in the UK to the year 1995
Time to manage
This paper examines how people with chronic illnesses respond to absences of continuity and coordination of care. Little work has been done on how the ill person might mitigate flaws in a less than optimal system. Our qualitative research, carried out among 91 participants in Australia, reveals that people with chronic illnesses create strategies to facilitate the management of their care. These strategies included efforts to improve communicatio…
The public inquiry as a contested political technology
In 2007, the Australian states of Victoria and New South Wales held reviews of their moratoriums on the commercial release of genetically modified (GM) food crops. The public inquiry form of review selected offered the best strategic pathway to amend these moratoriums to allow commercial release. As such, the reviews represented ‘political technologies’. This proposition is informed by: their formation within a policy context of pro-GM developmen…
Distributive industry in the UK to the year 1995
The public inquiry as a contested political technology
In 2007, the Australian states of Victoria and New South Wales held reviews of their moratoriums on the commercial release of genetically modified (GM) food crops. The public inquiry form of review selected offered the best strategic pathway to amend these moratoriums to allow commercial release. As such, the reviews represented ‘political technologies’. This proposition is informed by: their formation within a policy context of pro-GM developmen…
Does it matter who organises your health care
In moving towards care coordination there are opportunities to improve the care coordination process itself, and the key enablers to improving care coordination appear to be the availability and communication of clinical information and the role of the clinical team
Experiencing integration in Australian primary health care
Introduction: Integrated care means different things to different people. We often find the terms ‘integration’ and ‘integrated care’ used interchangeably. However, Kodner and Spreeuwenberg (2002) suggest ‘integration’ refers to structures and processes, while ‘integrated care’ refers more to patient experiences and the outcomes of such processes. Contributing further to its complexity, integration occurs between different levels of the health sy…
Time to manage
This paper examines how people with chronic illnesses respond to absences of continuity and coordination of care. Little work has been done on how the ill person might mitigate flaws in a less than optimal system. Our qualitative research, carried out among 91 participants in Australia, reveals that people with chronic illnesses create strategies to facilitate the management of their care. These strategies included efforts to improve communicatio…
‘It struck at the heart of who I thought I was’
‘They're getting a taste of our world’
BACKGROUND: People with multiple sclerosis (MS), who are often immunocompromised, require complex care and engage with a variety of health-care providers to manage their health. OBJECTIVE: To elucidate people with MS' experiences of accessing health care during the COVID-19 pandemic in Australia. DESIGN: A qualitative study involving semi-structured interviews and thematic analysis. SETTINGS AND PARTICIPANTS: Eight adults with a clinical diagnosi…
A framework for involving coproduction partners in research about young people with type 1 diabetes
BACKGROUND: Involvement of end-users in research can enhance its quality, relevance, credibility and legitimacy; however, the processes through which these changes occur are unclear. Our aim was to explore a coproduction research team's experiences of their involvement in research about young people with type 1 diabetes mellitus (T1DM). METHODS: Semi-structured interviews conducted with two young people with T1DM, two parents, one diabetes educat…
Intertwined like a double helix
Lived experience of out-of-pocket costs of health care and medicines by people with chronic conditions and their families in Australia
Consumer Engagement in Chronic Conditions Research
BACKGROUND: Consumer engagement ensures that health research reflects lived experiences and generates outcomes relevant to those most affected. However, frameworks guiding engagement in research about chronic conditions remain limited and often lack theoretical grounding. OBJECTIVE: To develop an integrated, evidence-based framework to support consumer engagement in research about chronic conditions. METHODS: We integrated findings from (1) a sco…
Psychology (6 works) · Medicine (5 works) · Qualitative research (5 works) · Sociology (5 works) · Health care (4 works) · Nursing (4 works) · Political science (4 works) · Family medicine (3 works) · Mental Health and Patient Involvement (3 works) · Multiple Sclerosis Research Studies (3 works)