Payne
Biographic Data
| ID | 31251 |
|---|---|
| NAME | Payne |
| FAMILY NAME | Payne |
| SIGNATURE | PAYNE |
| AFFILIATIONS | Lancaster University |
| ORCID | 0000-0001-6982-9181 |
| VERIFIED | Yes |
| TOTAL WORKS | 54 |
| TOTAL CITATIONS | 173 |
| AUTHOR COUNT | 54 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1992 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 8 |
How are transitions from oncology to palliative care regulated across Europe? A grey literature review in eight countries
BACKGROUND: Patients with advanced cancer often encounter significant challenges during the transition from oncology to palliative care, particularly due to hospital discharges that lack clear communication and follow-up plans. This discontinuity in care may be addressed through various regulatory strategies designed to facilitate smooth transitions. OBJECTIVE: To investigate the regulatory landscape governing transitions from oncology to palliat…
Social relationships and community end of life care in Hong Kong
End-of-life (EOL) care is a crucial public health issue in Hong Kong, and one in which the community social service sector has become increasingly involved, as healthcare policy in the city shifts towards greater emphasis on social relationships in non-medical forms of EOL care. This study used abductive grounded theory methodology to illustrate the dynamics and mechanisms involved in social relationships between dying people (and their families)…
An exploration of the views of staff on cultural aspects of end-of-life care in Japanese long-term care facilities
Long-term care facilities are increasingly important places for palliative and end-of-life care provision in Japan. While the importance of culture has been noted for palliative and end-of-life care, an exploration of its influence on care provision in long-term care settings has received little direct attention in Japan. Exploring staff views and beliefs in palliative and end-of-life care in these settings can potentially enhance our understandi…
Adapting the Pillar Integration Process for Theory Development
Mixed methods research offers a unique opportunity to advance understanding of a phenomenon. However, practical guidance on the use of mixed methods to develop theoretical frameworks is limited. We present a novel adaptation of the Pillar Integration Process (PIP) to support development and refinement of a theoretical framework explaining the processes by which healthcare factors influence cancer survivors’ quality of life. Deductive integration …
Prevalence vs impact
Although cancer survivors report positive QoL outcomes, many experience distressing physical, psychological and social effects. The findings suggest less common and difficult to manage symptoms are the greatest source of distress and unmet need. Support and information must be tailored to address survivors' individual needs and preferences for support, informed by holistic person-centred assessment
Associations between Length of Stay in Long Term Care Facilities and End of Life Care. Analysis of the Pace Cross-Sectional Study
Long term care facilities (LTCFs) are increasingly a place of care at end of life in Europe. Longer residence in an LTCF prior to death has been associated with higher indicators of end of life care; however, the relationship has not been fully explored. The purpose of this analysis is to explore associations between length of stay and end of life care. The analysis used data collected in the Palliative Care for Older People in care and nursing h…
Ageing and dying in the contemporary neoliberal prison system
Prison populations across the world are increasing. In the United Kingdom, numbers have doubled in the last two decades, and older prisoners now constitute the fastest growing section of the prison population. One key reason for this shifting prisoner demographic is the growing numbers of men convicted of 'historic' sexual offences, many of whom are imprisoned for the first time in old age, and housed in prisons not suited to their needs. These d…
The online use of Violence and Journey metaphors by patients with cancer, as compared with health professionals
OBJECTIVE: To compare the frequencies with which patients with cancer and health professionals use Violence and Journey metaphors when writing online; and to investigate the use of these metaphors by patients with cancer, in view of critiques of war-related metaphors for cancer and the adoption of the notion of the 'cancer journey' in UK policy documents. DESIGN: Computer-assisted quantitative and qualitative study of two data sets totalling 753 …
Definition and recommendations for advance care planning
Hospice volunteers
Current demographic, policy and management changes are a challenge to hospices to develop their volunteering practices. The study upon which this paper is based aimed to explore good practice in volunteer involvement and identify ways of improving care through developing volunteering. The project consisted of a narrative literature review; a survey of volunteer managers; and organisational case studies selected through purposive diversity samplin…
Older men and social activity
Finding ways of improving the health and wellbeing of older men is an important challenge for public health. This review aimed to assess evidence for the effects of Men's Sheds and other gendered social activities on the health and wellbeing of older men, and to consider their effective components and theoretical frameworks. A scoping review using standardised search criteria and terms identified 31 relevant papers of sufficient quality for inclu…
Unpacking the impact of older adults' home death on family care-givers' experiences of home
A computer-assisted study of the use of Violence metaphors for cancer and end of life by patients, family carers and health professionals
This study combines quantitative semi-automated corpus methods with manual qualitative analysis to investigate the use of Violence metaphors for cancer and end of life in a 1,500,000-word corpus of data from three stakeholder groups in healthcare: patients, family carers and healthcare professionals. Violence metaphors in general, especially military metaphors, are conventionally used to talk about illness, particularly cancer. However, they have…
Place and wellbeing
In the United Kingdom, one in five of the population is an older man, many of whom live alone. Loneliness and social isolation is a growing issue for many of these older men, one that has been associated with elevated blood pressure, poor physical health, increased mortality and mental ill-health, including depression, suicide and dementia. Lone dwelling and social isolation have tended to be viewed largely as issues affecting older women due to …
The language of sedation in end-of-life care
The application of ethically controversial medical procedures may differ from one place to another. Drawing on a keyword and text-mining analysis of 156 interviews with doctors and nurses involved in end-of-life care ('care providers'), differences between countries in care providers' ethical rationales for the use of sedation are reported. In the United Kingdom, an emphasis on titrating doses proportionately against symptoms is more likely, main…
Humour in health‐care interactions
Background Humour is a complex, dynamic phenomenon that mainly occurs in social situations between two or more people. Most humour research reviews rehearsed as opposed to spontaneous humour and rarely review the patients’ perspective. Aim We explore patients’ perspectives on the use of humour in health care. We discuss the asymmetrical and divergent humour use between patients and clinical nurse specialists and posit nurses’ approaches to risk a…
Experiences of patients, family caregivers and professional caregivers with integrated palliative care in Europe
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 2.913 (2021 JCR, received in June 2022)The IJIC 20th Anniversary Issue was published in 2021
Sensing the presence of the deceased
A qualitative exploration of sensing the presence of the deceased following bereavement
Grief is an experience that is common to most people following loss. Researchers have reported that people can often sense the presence of the deceased person as an aspect of their grief experience. The aim of the current review was to synthesise the results on the topic of sensing the presence of the deceased to provide a comprehensive over-view for practicing clinicians to be able to offer support to bereaved people who report these experiences…
You get old, you get breathless, and you die”
Exploring the influence of service user involvement on health and social care services for cancer
BACKGROUND: Service user involvement in health and social care is a key policy driver in the UK. In cancer care it is central to developing services which are effective, responsive and accessible to patients. Cancer network partnership groups are set up to enable joint working between service users and health care professionals and to drive service improvements. AIMS AND OBJECTIVES: The aim of this study was to explore the influence of the cancer…
From personal challenge to technical fix
Our research focuses on the complexity of needs associated with distress in people with advanced cancer. We have recently completed a large longitudinal survey exploring the interplay between a number of components of distress, including depression, demoralisation, debility and spirituality, amongst a cohort of people living with terminal cancer. Participants were recruited from 25 hospices across the Northwest of England between 2007-2009. A pur…
Interviews on End-of-Life Care With Older People
Qualitative research provides important insights into the experiences and perspectives of older people on end-of-life issues, but such research is methodologically and ethically complex. We offer a set of reflections from six end-of-life care studies conducted with older people in four European countries: Belgium, Germany, the Netherlands, and the United Kingdom. The reflection process was informed by four full-day meetings between the authors an…
Unpacking the Politics of Evaluation
This article draws on a four-year evaluation that assessed the delivery of support services by 15 British hospices and social agencies to family carers of terminally ill people. It aims to examine the politics of evaluation research. Three main arguments are posited: first, that evaluation research is distinguishable from ‘quick and dirty’ evaluations, which are insufficiently resourced and not implemented properly; second, what constitutes a con…
P27 Older adults with cancer—are those who live alone at the end of life a disadvantaged group? A qualitative study
Health status will help to determine where an older adult can live, but it is also possible that living arrangements may themselves have consequences for the health experience of older adults towards the end of life. This study will explore the relevance to cancer patients of factors that the literature suggests might account for poor health and different patterns of service use amongst solitary living older people
Older people's views of a good death in heart failure
Revisiting biographical disruption
Biographical accounts of illness offer useful insights into the social and adaptive processes of living with chronic illness. Yet there are concerns that the underlying theoretical assumptions of a reflexive self seeking to maintain meaning may not reflect the lived experience of individuals. A narrative emphasis may neglect the importance of emotional/felt experiences; while an analytical focus on disruptive processes may not adequately reflect …
Place and wellbeing
In the United Kingdom, one in five of the population is an older man, many of whom live alone. Loneliness and social isolation is a growing issue for many of these older men, one that has been associated with elevated blood pressure, poor physical health, increased mortality and mental ill-health, including depression, suicide and dementia. Lone dwelling and social isolation have tended to be viewed largely as issues affecting older women due to …
A computer-assisted study of the use of Violence metaphors for cancer and end of life by patients, family carers and health professionals
This study combines quantitative semi-automated corpus methods with manual qualitative analysis to investigate the use of Violence metaphors for cancer and end of life in a 1,500,000-word corpus of data from three stakeholder groups in healthcare: patients, family carers and healthcare professionals. Violence metaphors in general, especially military metaphors, are conventionally used to talk about illness, particularly cancer. However, they have…
Processing of milk products in pottery vessels through British prehistory
By extracting residues from pottery sherds the authors show that it is possible to say whether they had contained dairy or carcass fat residues. Correlation with faunal assemblages showed a good match between the incidence of dairy fat in pottery which implied a strong dairy fraction in the diet and a milking herd implied by the animal bones. They also show that dairy fat was more likely to be found in the smaller pots while carcass fats occurred…
Ageing and dying in the contemporary neoliberal prison system
Prison populations across the world are increasing. In the United Kingdom, numbers have doubled in the last two decades, and older prisoners now constitute the fastest growing section of the prison population. One key reason for this shifting prisoner demographic is the growing numbers of men convicted of 'historic' sexual offences, many of whom are imprisoned for the first time in old age, and housed in prisons not suited to their needs. These d…
Hospice or home? Expectations of end-of-life care among white and Chinese older people in the UK
This paper presents findings from two linked studies of white (n = 77) and Chinese (n = 92) older adults living in the UK, which sought their views about end-of-life care. We focus particularly on experiences and expectations in relation to the provision of end-of-life care at home and in hospices. White elders perceived hospices in idealised terms which resonate with a 'revivalist' discourse of the 'good death'. In marked comparison, for those C…
Dissonant loss
The construction of the risk of falling among and by older people
Risk is frequently invoked in contemporary accounts of ill health, but its construction is often constrained by a rationalist perspective that focuses on physical causes and functional outcomes, and that presents risk as external to the self and predictable. This paper describes an empirical study of the ways in which risk was realised and managed in a day hospital for older people. An ethnographic approach, with participant observation and semi-…
Discharge from physiotherapy following stroke
Unpacking the impact of older adults' home death on family care-givers' experiences of home
From personal challenge to technical fix
Our research focuses on the complexity of needs associated with distress in people with advanced cancer. We have recently completed a large longitudinal survey exploring the interplay between a number of components of distress, including depression, demoralisation, debility and spirituality, amongst a cohort of people living with terminal cancer. Participants were recruited from 25 hospices across the Northwest of England between 2007-2009. A pur…
Older Chinese people's views on food
Understanding the perceived cultural and therapeutic significance of food and its functions in social exchange is one important aspect of promoting supportive and end-of-life cancer care for minority communities. These views helped explain the diversity and salience of food use in illness for older Chinese people resident in the UK
Impact of witnessing death on hospice patients
Adapting the Pillar Integration Process for Theory Development
Mixed methods research offers a unique opportunity to advance understanding of a phenomenon. However, practical guidance on the use of mixed methods to develop theoretical frameworks is limited. We present a novel adaptation of the Pillar Integration Process (PIP) to support development and refinement of a theoretical framework explaining the processes by which healthcare factors influence cancer survivors’ quality of life. Deductive integration …
Unpacking the Politics of Evaluation
This article draws on a four-year evaluation that assessed the delivery of support services by 15 British hospices and social agencies to family carers of terminally ill people. It aims to examine the politics of evaluation research. Three main arguments are posited: first, that evaluation research is distinguishable from ‘quick and dirty’ evaluations, which are insufficiently resourced and not implemented properly; second, what constitutes a con…
The language of sedation in end-of-life care
The application of ethically controversial medical procedures may differ from one place to another. Drawing on a keyword and text-mining analysis of 156 interviews with doctors and nurses involved in end-of-life care ('care providers'), differences between countries in care providers' ethical rationales for the use of sedation are reported. In the United Kingdom, an emphasis on titrating doses proportionately against symptoms is more likely, main…
Some issues in the provision of adult bereavement support by UK hospices
Cadaveric donotransplantation
A study of quality of life in cancer patients receiving palliative chemotherapy
Interviews on End-of-Life Care With Older People
Qualitative research provides important insights into the experiences and perspectives of older people on end-of-life issues, but such research is methodologically and ethically complex. We offer a set of reflections from six end-of-life care studies conducted with older people in four European countries: Belgium, Germany, the Netherlands, and the United Kingdom. The reflection process was informed by four full-day meetings between the authors an…
A survey of end-of-life care in care homes
Care homes throughout the UK provide long-term care for frail older people. Whilst care homes are a home for life, many of the older people living in this setting also die there. There is increased interest in improving the care that older people receive in care homes towards the end of life. One way to achieve this has been through links with specialist palliative care services. The knowledge held in care homes by staff, residents and their fami…
Implications of social isolation during cancer treatment
Patient views of social service provision for older people with advanced heart failure
The objective of the present paper is to explore levels of social service provision, the barriers to receiving these services and the experiences of social service provision amongst older people with heart failure. Five hundred and forty-two people aged over 60 years with heart failure were recruited from UK general practices in four areas of the UK, and these subjects completed quality-of-life and service-use questionnaires every 3 months for 24…
Experiences of end-of-life care in community hospitals
Concerns remain that health and social care services often fail people dying of chronic illnesses other than those with cancer. British government policy aims to improve end-of-life care and to enable people to make choices about place of care near the end of life, with the assumption that home is often the preferred option. However, some elderly people may lack suitable social networks, family carers and other resources to remain at home. Commun…
A study of quality of life in cancer patients receiving palliative chemotherapy
Impact of witnessing death on hospice patients
Dissonant loss
To supplant, supplement or support? Organisational issues for hospices
The impact of stroke on informal carers
Bereaved children's questions to a doctor
This two-part study was undertaken to determine a) what questions bereaved children would like to ask a doctor; b) how a doctor responds to these questions; and c) the factors that may influence this process. The first set of data was collected by a retrospective sample of 121 questions posed by 99 children who had attended a residential grief support programme. These questions were sorted and later assigned to one of five categories, namely a) c…
Cadaveric donotransplantation
Implications of social isolation during cancer treatment
Appraising the Evidence
The authors describe a method of systematically reviewing research from different paradigms. They draw on the methods adapted, developed, and designed during a study concerned with the delivery of care across professional boundaries. Informed by the established method of systematic review, the authors undertook the review in distinct stages. They describe the methods developed for each stage and outline the difficulties encountered, the solutions…
Dilemmas in the use of volunteers to provide hospice bereavement support
This paper seeks to explore the tension between professionalization and volunteerism in health care. It focuses on the role of volunteers who provide bereavement support services within hospices and palliative care services. The paper draws on evidence from a study of hospice bereavement volunteers conducted in New Zealand. Interviews with 34 co-ordinators, and questionnaires completed by 121 volunteers, from 26 hospices, provided data about the …
The construction of the risk of falling among and by older people
Risk is frequently invoked in contemporary accounts of ill health, but its construction is often constrained by a rationalist perspective that focuses on physical causes and functional outcomes, and that presents risk as external to the self and predictable. This paper describes an empirical study of the ways in which risk was realised and managed in a day hospital for older people. An ethnographic approach, with participant observation and semi-…
Childhood bereavement services
This paper outlines the broad key findings from a research project on UK childhood bereavement service provision, using eight organizational case studies. Despite a shared objective of 'helping bereaved children' services were very diverse. Three organizational types were identified with differing management and administrative structures, each of which had different implications for staff. Although the overall size and employment status (paid or …
Discharge from physiotherapy following stroke
DDD7 The Social Context of Death, Dying and Disposal
(2005). DDD7 The Social Context of Death, Dying and Disposal: 7th International Conference, 15th-18th September 2005, University of Bath, UK. Mortality: Vol. 10, Abstracts Supplement: DDD7 - The Social Context of Death, Dying & Disposal Conference 2005, pp. 1-88
Processing of milk products in pottery vessels through British prehistory
By extracting residues from pottery sherds the authors show that it is possible to say whether they had contained dairy or carcass fat residues. Correlation with faunal assemblages showed a good match between the incidence of dairy fat in pottery which implied a strong dairy fraction in the diet and a milking herd implied by the animal bones. They also show that dairy fat was more likely to be found in the smaller pots while carcass fats occurred…
Current issues in organ donation and transplantation
Human organ transplantation was undoubtedly one of the outstanding medico-surgical advances of the twentieth century offering individuals, facing certain death from end stage organ failure, a secon
Gift of life or sacrifice
Globally, there is a critical shortage of donor organs to meet the demands for human organ transplantation. An understanding of what motivates families to agree to donation is therefore essential to maximise organ availability. The “gift of life” is a popular discourse long associated with pro-donation and transplant activists, its use seemingly directed at heightening public awareness about the perceived benefits of organ donation. However the p…
A survey of end-of-life care in care homes
Care homes throughout the UK provide long-term care for frail older people. Whilst care homes are a home for life, many of the older people living in this setting also die there. There is increased interest in improving the care that older people receive in care homes towards the end of life. One way to achieve this has been through links with specialist palliative care services. The knowledge held in care homes by staff, residents and their fami…
Children and young people's experience of UK childhood bereavement services
This paper describes the experiences of bereaved children and parents and their use of UK childhood bereavement services. It forms part of a larger qualitative study and was undertaken in the context of questions about the impact of bereavement on children and their status and participation in research, raising important methodological and ethical issues. Interviews were undertaken with 24 bereaved children and 16 parents who had used one of eigh…
Patient views of social service provision for older people with advanced heart failure
The objective of the present paper is to explore levels of social service provision, the barriers to receiving these services and the experiences of social service provision amongst older people with heart failure. Five hundred and forty-two people aged over 60 years with heart failure were recruited from UK general practices in four areas of the UK, and these subjects completed quality-of-life and service-use questionnaires every 3 months for 24…
Experiences of end-of-life care in community hospitals
Concerns remain that health and social care services often fail people dying of chronic illnesses other than those with cancer. British government policy aims to improve end-of-life care and to enable people to make choices about place of care near the end of life, with the assumption that home is often the preferred option. However, some elderly people may lack suitable social networks, family carers and other resources to remain at home. Commun…
Some issues in the provision of adult bereavement support by UK hospices
Hospice or home? Expectations of end-of-life care among white and Chinese older people in the UK
This paper presents findings from two linked studies of white (n = 77) and Chinese (n = 92) older adults living in the UK, which sought their views about end-of-life care. We focus particularly on experiences and expectations in relation to the provision of end-of-life care at home and in hospices. White elders perceived hospices in idealised terms which resonate with a 'revivalist' discourse of the 'good death'. In marked comparison, for those C…
The voluntary contribution to UK childhood bereavement services
This paper describes the unpaid contribution to UK childhood bereavement service provision. Data on staffing was gained through a national postal survey and eight organizational case studies. Compared to volunteers in specialist palliative care and hospice settings, unpaid staff were drawn from a younger age range, were more likely to be in full or part-time employment, and had more personal experience of a close bereavement. Whilst services were…
Older Chinese people's views on food
Understanding the perceived cultural and therapeutic significance of food and its functions in social exchange is one important aspect of promoting supportive and end-of-life cancer care for minority communities. These views helped explain the diversity and salience of food use in illness for older Chinese people resident in the UK
Medicine (43 works) · Psychology (33 works) · Nursing (28 works) · Palliative Care and End-of-Life Issues (28 works) · Sociology (26 works) · Political science (24 works) · Grief, Bereavement, and Mental Health (19 works) · Palliative care (17 works) · Qualitative research (17 works) · Gerontology (15 works)