Glenys Caswell
Datos Biográficos
| ID | 312928 |
|---|---|
| NOMBRE | Glenys Caswell |
| NOMBRES | Glenys |
| APELLIDO | Caswell |
| FIRMA | CASWELL G |
| AFILIACIONES | University of Nottingham |
| ORCID | 0000-0002-8246-8189 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 16 |
| TOTAL DE CITAS | 10 |
| TOTAL COMO AUTOR | 16 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2011 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 2 |
Digital mourning
The COVID-19 pandemic substantially disrupted funeral practices across the world, as public health restrictions limited gatherings and altered how funerals and mourning practices could take place. This study serves as a retrospective account of funeral-related discourse on Twitter, now X, during the first year of the pandemic. We conducted a mixed-methods content analysis of a random sample of 900 English-language posts containing the hashtag #fu…
The Rights and Wrongs of Witnessing Dying in a Semipublic Space
This article weighs up the rights and wrongs of witnessing and reporting on the dying of a stranger. As a sociologist interested in death and dying, I have researched hospital end-of-life care. While a patient in the hospital, I was privy to the dying of another patient, whom I could see from my bed. Family members and medical staff discussed the woman's situation within my hearing. The family disagreed with each other about how best to proceed. …
Talking about death and dying
Talking about death and dying is promoted in UK health policy and practice, from a perception that to do so encourages people to plan for their end of life and so increase their likelihood of experiencing a good death. This encouragement occurs alongside a belief that members of the public are reluctant to talk about death, although surveys suggest this is not the case. This paper describes findings from a research study in which people participa…
Patient and family caregiver perspectives of Advance Care Planning
Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants’ ambivalence towards confronting the future and the factors underlying their motivation to accept or defer anticipatory planning. They show how ACP impacts on, and can be determined by, relationships between pa…
Beyond the Reach of Palliative Care
The demands and costs of health care resulting from increasingly ageing populations have become a major public health issue in the United Kingdom and other industrially developed nations. Concern with cost containment and shortage of resources has prompted a progressive shift in responsibility from state provision of care to individual patients and their families, and from the institutional setting of the hospital to the domestic home. Under the …
The impact of home mechanical ventilation on the time and manner of death for those with Motor neurone disease (MND)
The ideal and the real
Home has become established as the preferred place of death within health policy and practice in the UK and internationally. However, growing awareness of the structured inequalities underpinning end-of-life care and the challenges for family members undertaking care at home raise questions about the nature of patient and public preferences and priorities regarding place of death and the feasibility of home management of the complex care needs at…
It’s Not Like in the Films’
This paper explores how people enact and experience the deathbed vigil when someone close to them is dying. It draws on qualitative interviews with 34 bereaved people carried out as part of a wider study exploring public perceptions of death and dying. Participants were aware of the expectation that they would attend the deathbed and did their best to do so. Findings are reported using four themes: gathering, enacting the deathbed vigil, experien…
Ethical challenges in researching and telling the stories of recently deceased people
This paper explores ethical challenges encountered when conducting research about, and telling, the stories of individuals who had died before the research began. Cases were explored where individuals who lived alone had died alone at home and where their bodies had been undiscovered for an extended period. The ethical review process had not had anything significant to say about the deceased ‘participants’. As social researchers we considered whe…
Moral ambiguity in media reports of dying alone
More older people are living alone in the UK, thereby increasing the prospect of dying alone at home. Lone deaths tend to be regarded as bad deaths, in that they contravene notions of accompaniment and open awareness espoused in UK end of life care policies. We describe a media analysis of dying alone conducted in two phases. First, we revisited a previous media analysis to examine whether news reporting of dying alone has changed. Second, we foc…
A Relative Absence
When someone dies, it is usual for relatives to gather at a funeral to embody a collective act of eulogy for the deceased and stand against the finality of death. When someone who lived alone dies alone at home, it is not always possible to identify anyone to attend a funeral. In such cases, funeral professionals are required to perform the appropriate social rites in the absence of the confirmatory power of a society. Drawing on interviews with …
I’ve no fear of dying alone’
Dying alone is portrayed as undesirable in terms of policy, health and social care provision, the wishes of family and friends, and in popular culture. Despite this, people do often die alone, both in institutional and domestic settings. This paper reports findings from a study which explored ways of investigating individuals’ perspectives on dying alone at home. It tested methods of recruitment and data collection, gathered preliminary data and …
The death café movement
Although Bernard Crettaz held the first of his 40 cafe mortels in 2004, the movement did not really come to international attention until 2011 when Jon Underwood and his mother, Sue Barsky Reid, he
Agency in the context of social death
Each year, a number of bodies are found of people who have died alone at home and whose absence from daily life has not been noticed. Media reports tend to cast either these individuals as deviant, or wider society as having abandoned them to a lonely death. This paper proposes an alternative view, one in which some individuals choose to withdraw from society and enter a period of social death prior to their biological deaths. They may then be su…
Personalisation in Scottish funerals
While there is a wide variation in the ways in which the term personalisation is used in the funeral context, there are a number of common threads. For example, there is a broad consensus that a personalised funeral will feature references to the life and character of the deceased person and such a funeral will probably have been planned by the bereaved family, who may even participate in its conduct. However, academics working with the concept d…
Death as a Fateful Moment? The Reflexive Individual and Scottish Funeral Practices
Death is considered by some commentators to be problematic for the inhabitants of a late modern era, so that when individuals are confronted by death they revert to using traditional institutions and practices. This paper draws on sociological research exploring Scottish funeral practices to consider whether this is the case, or whether individuals are able to employ a process of self-reflexivity even when they are planning the funeral of someone…
Beyond the Reach of Palliative Care
The demands and costs of health care resulting from increasingly ageing populations have become a major public health issue in the United Kingdom and other industrially developed nations. Concern with cost containment and shortage of resources has prompted a progressive shift in responsibility from state provision of care to individual patients and their families, and from the institutional setting of the hospital to the domestic home. Under the …
The ideal and the real
Home has become established as the preferred place of death within health policy and practice in the UK and internationally. However, growing awareness of the structured inequalities underpinning end-of-life care and the challenges for family members undertaking care at home raise questions about the nature of patient and public preferences and priorities regarding place of death and the feasibility of home management of the complex care needs at…
Death as a Fateful Moment? The Reflexive Individual and Scottish Funeral Practices
Death is considered by some commentators to be problematic for the inhabitants of a late modern era, so that when individuals are confronted by death they revert to using traditional institutions and practices. This paper draws on sociological research exploring Scottish funeral practices to consider whether this is the case, or whether individuals are able to employ a process of self-reflexivity even when they are planning the funeral of someone…
The impact of home mechanical ventilation on the time and manner of death for those with Motor neurone disease (MND)
Personalisation in Scottish funerals
While there is a wide variation in the ways in which the term personalisation is used in the funeral context, there are a number of common threads. For example, there is a broad consensus that a personalised funeral will feature references to the life and character of the deceased person and such a funeral will probably have been planned by the bereaved family, who may even participate in its conduct. However, academics working with the concept d…
Death as a Fateful Moment? The Reflexive Individual and Scottish Funeral Practices
Death is considered by some commentators to be problematic for the inhabitants of a late modern era, so that when individuals are confronted by death they revert to using traditional institutions and practices. This paper draws on sociological research exploring Scottish funeral practices to consider whether this is the case, or whether individuals are able to employ a process of self-reflexivity even when they are planning the funeral of someone…
Agency in the context of social death
Each year, a number of bodies are found of people who have died alone at home and whose absence from daily life has not been noticed. Media reports tend to cast either these individuals as deviant, or wider society as having abandoned them to a lonely death. This paper proposes an alternative view, one in which some individuals choose to withdraw from society and enter a period of social death prior to their biological deaths. They may then be su…
I’ve no fear of dying alone’
Dying alone is portrayed as undesirable in terms of policy, health and social care provision, the wishes of family and friends, and in popular culture. Despite this, people do often die alone, both in institutional and domestic settings. This paper reports findings from a study which explored ways of investigating individuals’ perspectives on dying alone at home. It tested methods of recruitment and data collection, gathered preliminary data and …
The death café movement
Although Bernard Crettaz held the first of his 40 cafe mortels in 2004, the movement did not really come to international attention until 2011 when Jon Underwood and his mother, Sue Barsky Reid, he
Moral ambiguity in media reports of dying alone
More older people are living alone in the UK, thereby increasing the prospect of dying alone at home. Lone deaths tend to be regarded as bad deaths, in that they contravene notions of accompaniment and open awareness espoused in UK end of life care policies. We describe a media analysis of dying alone conducted in two phases. First, we revisited a previous media analysis to examine whether news reporting of dying alone has changed. Second, we foc…
A Relative Absence
When someone dies, it is usual for relatives to gather at a funeral to embody a collective act of eulogy for the deceased and stand against the finality of death. When someone who lived alone dies alone at home, it is not always possible to identify anyone to attend a funeral. In such cases, funeral professionals are required to perform the appropriate social rites in the absence of the confirmatory power of a society. Drawing on interviews with …
Ethical challenges in researching and telling the stories of recently deceased people
This paper explores ethical challenges encountered when conducting research about, and telling, the stories of individuals who had died before the research began. Cases were explored where individuals who lived alone had died alone at home and where their bodies had been undiscovered for an extended period. The ethical review process had not had anything significant to say about the deceased ‘participants’. As social researchers we considered whe…
It’s Not Like in the Films’
This paper explores how people enact and experience the deathbed vigil when someone close to them is dying. It draws on qualitative interviews with 34 bereaved people carried out as part of a wider study exploring public perceptions of death and dying. Participants were aware of the expectation that they would attend the deathbed and did their best to do so. Findings are reported using four themes: gathering, enacting the deathbed vigil, experien…
The ideal and the real
Home has become established as the preferred place of death within health policy and practice in the UK and internationally. However, growing awareness of the structured inequalities underpinning end-of-life care and the challenges for family members undertaking care at home raise questions about the nature of patient and public preferences and priorities regarding place of death and the feasibility of home management of the complex care needs at…
Talking about death and dying
Talking about death and dying is promoted in UK health policy and practice, from a perception that to do so encourages people to plan for their end of life and so increase their likelihood of experiencing a good death. This encouragement occurs alongside a belief that members of the public are reluctant to talk about death, although surveys suggest this is not the case. This paper describes findings from a research study in which people participa…
Patient and family caregiver perspectives of Advance Care Planning
Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants’ ambivalence towards confronting the future and the factors underlying their motivation to accept or defer anticipatory planning. They show how ACP impacts on, and can be determined by, relationships between pa…
Beyond the Reach of Palliative Care
The demands and costs of health care resulting from increasingly ageing populations have become a major public health issue in the United Kingdom and other industrially developed nations. Concern with cost containment and shortage of resources has prompted a progressive shift in responsibility from state provision of care to individual patients and their families, and from the institutional setting of the hospital to the domestic home. Under the …
The impact of home mechanical ventilation on the time and manner of death for those with Motor neurone disease (MND)
The Rights and Wrongs of Witnessing Dying in a Semipublic Space
This article weighs up the rights and wrongs of witnessing and reporting on the dying of a stranger. As a sociologist interested in death and dying, I have researched hospital end-of-life care. While a patient in the hospital, I was privy to the dying of another patient, whom I could see from my bed. Family members and medical staff discussed the woman's situation within my hearing. The family disagreed with each other about how best to proceed. …
Digital mourning
The COVID-19 pandemic substantially disrupted funeral practices across the world, as public health restrictions limited gatherings and altered how funerals and mourning practices could take place. This study serves as a retrospective account of funeral-related discourse on Twitter, now X, during the first year of the pandemic. We conducted a mixed-methods content analysis of a random sample of 900 English-language posts containing the hashtag #fu…
Grief, Bereavement, and Mental Health (15 obras) · Psychology (12 obras) · Palliative Care and End-of-Life Issues (11 obras) · Sociology (10 obras) · Medicine (6 obras) · Political science (6 obras) · Social Psychology (6 obras) · Social Psychology (6 obras) · History (5 obras) · Law (5 obras)