Kenneth Chambaere
Biographic Data
| ID | 313126 |
|---|---|
| NAME | Kenneth Chambaere |
| GIVEN NAMES | Kenneth |
| FAMILY NAME | Chambaere |
| SIGNATURE | CHAMBAERE K |
| AFFILIATIONS | Vrije Universiteit Brussel |
| ORCID | 0000-0001-6277-072X |
| VERIFIED | Yes |
| TOTAL WORKS | 33 |
| TOTAL CITATIONS | 8 |
| AUTHOR COUNT | 33 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2008 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
Ensuring High Quality Oyster Care for People Experiencing Severe and Persistent Mental Illness – A Three-Phase Development of A Quality Monitoring Tool
Oyster Care is an innovative care model designed to meet the needs of people experiencing severe and persistent mental illness. A population often overlooked within healthcare systems and at heightened risk when care becomes either ineffective or prematurely discontinued. In recent years, the adoption of Oyster Care principles has gained attention within Flemish mental health care. Consequently, there is growing recognition of the need for a tool…
Physicians’ preferences for their own end of life
OBJECTIVE: To study physicians' personal preferences for end-of-life practices, including life-sustaining and life-shortening practices, and the factors that influence preferences. DESIGN: A cross-sectional survey (May 2022-February 2023). SETTING: Eight jurisdictions: Belgium, Italy, Canada, USA (Oregon, Wisconsin, and Georgia), Australia (Victoria and Queensland). PARTICIPANTS: Three physician types: general practitioners, palliative care physi…
Citizens with a caregiving experience in the past year are more likely to participate in neighbourhood activities regarding serious illness, death or loss
While death literacy is believed to foster social connections around serious illness, death and loss, limited evidence exists on whether it stimulates neighbourhood participation concerning these topics. This study measured the association between personal experiences with serious illness, death or loss in the past year and neighbourhood participation around these topics, and whether citizens' self-perceived capacity, skills and self-efficacy dev…
Understanding the Experiences and Support Needs of Close Relatives in Psychiatric Euthanasia Trajectories
In Belgium, adults with psychiatric disorders can opt for euthanasia under strict conditions. The impact of these euthanasia trajectories on close relatives remains insufficiently studied. This research is the first in Belgium to explore the concrete experiences and support needs of relatives involved in psychiatric-based euthanasia trajectories by means of an in-depth interview study. The interviews with 18 relatives were conducted from March to…
The use of arguments and justifications in Westminster parliamentary debates on assisted dying
Perspectives on the eligibility criteria for euthanasia for mental suffering caused by psychiatric disorder under the Belgian Euthanasia Law
The Evolving Complexities of Maid Care in Canada From a Nursing Perspective
Medical Assistance in Dying (MAID) legislation has evolved rapidly in Canada with significant impacts on nursing practice. The purpose of this paper is to describe evolving complexities in legislative context and practice standards that influence the experiences nurse practitioners and registered nurses have with MAID. Qualitative interviews were conducted with 25 registered nurses and 10 nurse practitioners from diverse contexts across Canada. P…
Developing a compassionate university
Compassionate communities are gaining momentum as a new public health approach emphasizing community support during times of serious illness, death, and bereavement. However, evidence on their development, particularly in higher education, is limited. This study investigates the development of a Compassionate University, examining the underlying processes and contextual factors shaping its development. A longitudinal process evaluation was conduc…
Patterns of shared meaning across personal narratives surrounding experiences with palliative care, serious illness, and the end of life
Public Awareness Campaigns on Palliative Care
Public awareness campaigns on palliative care aim to tackle limited public knowledge and negative perceptions of palliative care. However, little is known about their public reception. This study examined how existing campaigns are interpreted, evaluated, and engaged with by members of the general public. Three public campaigns, launched in Flanders or the Netherlands between 2020 and 2023, were discussed in 10 focus groups (total of 65 participa…
Characteristics and outcomes of peer consultations for assisted dying request assessments
Background: In most jurisdictions where assisted dying practices are legal, attending physicians must consult another practitioner to assess the patient's eligibility. Consequently, in some jurisdictions, they can rely on the expertise of trained assisted dying consultants (trained consultants). However, these peer consultations remain under-researched. We examined the characteristics and outcomes of peer consultations to assess an assisted dying…
Eu Navigate
Background: Most people who have cancer are older people, and this affects millions of Europeans yearly. Integrating high-quality, equitable, and cost-effective care across the continuum of supportive, palliative, end-of-life, and survivorship care for both patients and family caregivers is highly relevant from a healthcare, prevention, and economic perspective. Aims: EU NAVIGATE is an interdisciplinary, cross-country, and intersectoral project f…
Neighbourhood civic engagement around serious illness, death, and loss
Introduction/background: Worldwide, civic engagement initiatives concerning serious illness, caregiving, and bereavement are gaining momentum, as a result of the increasing interest in communities addressing challenges around these topics. In Flanders too, a diverse range of civic engagement initiatives are being developed, among which two research-initiated neighbourhood initiatives in municipalities in Herzele and Sint-Kruis (Flanders, Belgium)…
Attentive visitors
Background: Community volunteers often notice palliative care (PC) needs that healthcare professionals (HCP) and family caregivers miss, potentially playing an important signposting role. In order to fulfill this role, volunteers need knowledge about PC needs and community resources; and they should have good relational, communication and observation skills. These skills and knowledge can be enhanced through training. Aims: To develop a training …
Researching two Compassionate Cities
Background/Targeted community: Compassionate Cities are social ecology approaches that apply a set of actions, targeting a broad range of stakeholders, with the intention of renormalising caring, dying and grieving in everyday life. While several initiatives have been described in the literature, a rigorous evaluation of their processes and outcomes is lacking. This paper describes the protocol for a mixed-methods study to evaluate the developmen…
What knowledge and skills do community volunteers need to signpost palliative care needs to professionals? A qualitative study
Background: Volunteers often notice palliative care (PC) needs that healthcare professionals (HCP) and family caregivers miss, potentially playing an important signposting role. It is unknown what particular knowledge and skills are lacking and required to optimally fulfil this role in community homecare. Aims: To explore the desired and required knowledge and skills for volunteers to recognize, describe and communicate PC needs to HCPs. Methods:…
How compassionate is your neighborhood? Results of a cross-sectional survey on neighborhood participation regarding serious illness, death, and loss
We conducted a cross-sectional survey measuring the extent and nature of neighborhood participation regarding serious illness, death and loss and the factors that are associated with it. We distributed the survey to 2324 adult citizens in two neighborhoods in Flanders, Belgium, to which 714 citizens responded (response rate 30.7%). Of the respondents, 42.4% participated in at least one action in their neighborhood around serious illness, death, o…
A compassionate university for serious illness, death, and bereavement
Serious illness, death, and bereavement are common experiences within the work and study context. This study aims to explore the experiences and support needs of university students and staff confronted with serious illness, death, and bereavement. Semi-structured interviews and focus groups were conducted with 21 students and 26 staff. A thematic analysis resulted in three overarching themes: the university as a high-pressure environment; naviga…
Concrete Experiences and Support Needs Regarding the Euthanasia Practice in Adults With Psychiatric Conditions
The health care professionals and volunteers reported many positive and negative experiences in dealing with euthanasia requests in adult psychiatry. They reported several support needs across the extensive euthanasia trajectory, pertaining to concrete management of thorny issues that guidelines do not (yet) touch on. Important implications of our study relate to tackling these existing issues, and to paying sufficient attention to the impact of …
Physicians’ Experiences and Perceptions of Environmental Factors Affecting Their Practices of Continuous Deep Sedation until Death
As previous research has paid little attention to environmental factors affecting the practice of continuous deep sedation until death (CDS), we aimed to explore these using physicians' experiences and perceptions. We performed an interpretative thematic analysis of primary data from a qualitative interview study conducted from February to May 2019 in Belgium with 47 physicians. Structural factors were identified: the lack of professional and/or …
Views of disability rights organisations on assisted dying legislation in England, Wales and Scotland
Assisted dying is a divisive and controversial topic and it is therefore desirable that a broad range of interests inform any proposed policy changes. The purpose of this study is to collect and synthesize the views of an important stakeholder group—namely people with disabilities (PwD)—as expressed by disability rights organisations (DROs) in Great Britain. Parliamentary consultations were reviewed, together with an examination of the contempora…
The Online Representation of Palliative Care by Practice, Policy, and Advocacy Organizations
Negative beliefs and a lack of clarity surrounding the meaning of palliative care have been widely reported as obstacles to its uptake. Information available to the public possibly contributes to this. A descriptive and discourse-theoretical analysis was conducted of information spread online by palliative care policy, advocacy, and practice organizations. Discrepancies were found in the way palliative care was defined in relation to curative, en…
The added value of palliative day care centres
In addition to palliative care delivery at home or in hospital, palliative day care centres occupy an in-between position in palliative care. In palliative day care centres, multidisciplinary teams provide holistic care and support for people with (chronic) life-limiting conditions, or clients, in a homely surrounding, allowing them to remain living at home while attending a specialist palliative care service. This study aims to evaluate palliati…
Control Measures for Continuous Deep Sedation Until Death
Physicians have been subject to increasing external control to improve their medical practice, and scholars have theorized extensively about their opposition to such control. However, little empirical attention has been paid to the views and reasoning that lie behind this opposition. An in-depth understanding is necessary for enhancing the effectiveness and efficiency of external controls, and continuous deep sedation until death (CDS) is an inte…
Trends in place of death in a small developing country
Background Valuable information for planning future end-of-life care (EOLC) services and care facilities can be gained by studying trends in place of death (POD). Scarce data exist on the POD in small developing countries. This study aims to examine shifts in the POD of all persons dying between 1999 and 2010 in Trinidad and Tobago, to draw conclusions about changes in the distribution of POD over time and the possible implications for EOLC pract…
A compassionate university for serious illness, death, and bereavement
Serious illness, death, and bereavement are common experiences within the work and study context. This study aims to explore the experiences and support needs of university students and staff confronted with serious illness, death, and bereavement. Semi-structured interviews and focus groups were conducted with 21 students and 26 staff. A thematic analysis resulted in three overarching themes: the university as a high-pressure environment; naviga…
Patterns of shared meaning across personal narratives surrounding experiences with palliative care, serious illness, and the end of life
Eu Navigate
Background: Most people who have cancer are older people, and this affects millions of Europeans yearly. Integrating high-quality, equitable, and cost-effective care across the continuum of supportive, palliative, end-of-life, and survivorship care for both patients and family caregivers is highly relevant from a healthcare, prevention, and economic perspective. Aims: EU NAVIGATE is an interdisciplinary, cross-country, and intersectoral project f…
Volunteer involvement in the organisation of palliative care
Ageing populations increasingly face chronic and terminal illnesses, emphasising the importance of palliative care and quality of life for terminally ill people. Facing resource constraints in professional healthcare, some governments expect informal caregivers like volunteers to assume a greater share of care provision. We know volunteers are present in palliative care and perform many roles, ranging from administration to providing companionshi…
Influence of the metropolitan environment on end-of-life decisions
A post-mortem survey on end-of-life decisions using a representative sample of death certificates in Flanders, Belgium
The protocol of the 2007 ELD Study in Flanders, Belgium, is appropriate for achieving the objectives of the study; as past studies in Belgium, the Netherlands, and other European countries have shown, strictly anonymous and thorough surveys among physicians using a large, stratified, and representative death certificate sample are most suitable in nationwide studies of incidence and characteristics of end-of-life decisions. There are however also…
Influence of the metropolitan environment on end-of-life decisions
Age-based disparities in end-of-life decisions in Belgium
Age is not a determining factor in the rate of end-of-life decisions, but is in decision making as patient inclusion rates decrease with old age. Our results suggest there is a need to focus advance care planning initiatives on elderly patients. The slippery slope hypothesis cannot be confirmed either in general or among older people, as since the euthanasia law fewer LAWER cases were found
Sex-based Differences in End-of-Life Decision Making in Flanders, Belgium
BACKGROUND: Sex-related differences in end-of-life decisions (EOLD) are underresearched and unexplored. OBJECTIVES: To investigate whether there are (1) differences in demographic and/or clinical characteristics between male and female decedents; (2) differences between men and women in the prevalence of EOLD with a possible or certain life-shortening effect; (3) differences in EOL decision making between men and women. METHODS: In 2007, we perfo…
Is educational attainment related to end-of-life decision-making? A large post-mortem survey in Belgium
There are some important differences and possible inequities between educational groups in end-of-life decision-making in Belgium. Future research should investigate whether the found differences reflect differences in knowledge of and adherence to patient preferences, and indicate a discrepancy in quality of the end of life
Main themes, barriers, and solutions to palliative and end-of-life care in the English-speaking Caribbean
OBJECTIVES: To identify common themes documented in the literature on palliative and end-of-life care in English-speaking Caribbean small island developing states (SIDS), and to describe barriers, improvement strategies, and suggested ways forward. METHODS: In 2015, we conducted a systematic scoping review of relevant literature identified through the MEDLINE and Web of Science databases. We supplemented that with searches of other electronic and…
Volunteer involvement in the organisation of palliative care
Ageing populations increasingly face chronic and terminal illnesses, emphasising the importance of palliative care and quality of life for terminally ill people. Facing resource constraints in professional healthcare, some governments expect informal caregivers like volunteers to assume a greater share of care provision. We know volunteers are present in palliative care and perform many roles, ranging from administration to providing companionshi…
The involvement of volunteers in palliative care and their collaboration with healthcare professionals
Volunteers occupy a specific space in the delivery of palliative care (PC), addressing specific aspects of care and providing a link between professional healthcare providers and informal care. Engaging and empowering these volunteers can be an important strategy to deliver more integrated and comprehensive PC. Insights into current actual volunteer involvement and collaboration across different healthcare services providing generalist and specia…
Trends in place of death in a small developing country
Background Valuable information for planning future end-of-life care (EOLC) services and care facilities can be gained by studying trends in place of death (POD). Scarce data exist on the POD in small developing countries. This study aims to examine shifts in the POD of all persons dying between 1999 and 2010 in Trinidad and Tobago, to draw conclusions about changes in the distribution of POD over time and the possible implications for EOLC pract…
Views of disability rights organisations on assisted dying legislation in England, Wales and Scotland
Assisted dying is a divisive and controversial topic and it is therefore desirable that a broad range of interests inform any proposed policy changes. The purpose of this study is to collect and synthesize the views of an important stakeholder group—namely people with disabilities (PwD)—as expressed by disability rights organisations (DROs) in Great Britain. Parliamentary consultations were reviewed, together with an examination of the contempora…
The Online Representation of Palliative Care by Practice, Policy, and Advocacy Organizations
Negative beliefs and a lack of clarity surrounding the meaning of palliative care have been widely reported as obstacles to its uptake. Information available to the public possibly contributes to this. A descriptive and discourse-theoretical analysis was conducted of information spread online by palliative care policy, advocacy, and practice organizations. Discrepancies were found in the way palliative care was defined in relation to curative, en…
The added value of palliative day care centres
In addition to palliative care delivery at home or in hospital, palliative day care centres occupy an in-between position in palliative care. In palliative day care centres, multidisciplinary teams provide holistic care and support for people with (chronic) life-limiting conditions, or clients, in a homely surrounding, allowing them to remain living at home while attending a specialist palliative care service. This study aims to evaluate palliati…
Control Measures for Continuous Deep Sedation Until Death
Physicians have been subject to increasing external control to improve their medical practice, and scholars have theorized extensively about their opposition to such control. However, little empirical attention has been paid to the views and reasoning that lie behind this opposition. An in-depth understanding is necessary for enhancing the effectiveness and efficiency of external controls, and continuous deep sedation until death (CDS) is an inte…
Concrete Experiences and Support Needs Regarding the Euthanasia Practice in Adults With Psychiatric Conditions
The health care professionals and volunteers reported many positive and negative experiences in dealing with euthanasia requests in adult psychiatry. They reported several support needs across the extensive euthanasia trajectory, pertaining to concrete management of thorny issues that guidelines do not (yet) touch on. Important implications of our study relate to tackling these existing issues, and to paying sufficient attention to the impact of …
Physicians’ Experiences and Perceptions of Environmental Factors Affecting Their Practices of Continuous Deep Sedation until Death
As previous research has paid little attention to environmental factors affecting the practice of continuous deep sedation until death (CDS), we aimed to explore these using physicians' experiences and perceptions. We performed an interpretative thematic analysis of primary data from a qualitative interview study conducted from February to May 2019 in Belgium with 47 physicians. Structural factors were identified: the lack of professional and/or …
Characteristics and outcomes of peer consultations for assisted dying request assessments
Background: In most jurisdictions where assisted dying practices are legal, attending physicians must consult another practitioner to assess the patient's eligibility. Consequently, in some jurisdictions, they can rely on the expertise of trained assisted dying consultants (trained consultants). However, these peer consultations remain under-researched. We examined the characteristics and outcomes of peer consultations to assess an assisted dying…
Eu Navigate
Background: Most people who have cancer are older people, and this affects millions of Europeans yearly. Integrating high-quality, equitable, and cost-effective care across the continuum of supportive, palliative, end-of-life, and survivorship care for both patients and family caregivers is highly relevant from a healthcare, prevention, and economic perspective. Aims: EU NAVIGATE is an interdisciplinary, cross-country, and intersectoral project f…
Neighbourhood civic engagement around serious illness, death, and loss
Introduction/background: Worldwide, civic engagement initiatives concerning serious illness, caregiving, and bereavement are gaining momentum, as a result of the increasing interest in communities addressing challenges around these topics. In Flanders too, a diverse range of civic engagement initiatives are being developed, among which two research-initiated neighbourhood initiatives in municipalities in Herzele and Sint-Kruis (Flanders, Belgium)…
Attentive visitors
Background: Community volunteers often notice palliative care (PC) needs that healthcare professionals (HCP) and family caregivers miss, potentially playing an important signposting role. In order to fulfill this role, volunteers need knowledge about PC needs and community resources; and they should have good relational, communication and observation skills. These skills and knowledge can be enhanced through training. Aims: To develop a training …
Researching two Compassionate Cities
Background/Targeted community: Compassionate Cities are social ecology approaches that apply a set of actions, targeting a broad range of stakeholders, with the intention of renormalising caring, dying and grieving in everyday life. While several initiatives have been described in the literature, a rigorous evaluation of their processes and outcomes is lacking. This paper describes the protocol for a mixed-methods study to evaluate the developmen…
What knowledge and skills do community volunteers need to signpost palliative care needs to professionals? A qualitative study
Background: Volunteers often notice palliative care (PC) needs that healthcare professionals (HCP) and family caregivers miss, potentially playing an important signposting role. It is unknown what particular knowledge and skills are lacking and required to optimally fulfil this role in community homecare. Aims: To explore the desired and required knowledge and skills for volunteers to recognize, describe and communicate PC needs to HCPs. Methods:…
How compassionate is your neighborhood? Results of a cross-sectional survey on neighborhood participation regarding serious illness, death, and loss
We conducted a cross-sectional survey measuring the extent and nature of neighborhood participation regarding serious illness, death and loss and the factors that are associated with it. We distributed the survey to 2324 adult citizens in two neighborhoods in Flanders, Belgium, to which 714 citizens responded (response rate 30.7%). Of the respondents, 42.4% participated in at least one action in their neighborhood around serious illness, death, o…
A compassionate university for serious illness, death, and bereavement
Serious illness, death, and bereavement are common experiences within the work and study context. This study aims to explore the experiences and support needs of university students and staff confronted with serious illness, death, and bereavement. Semi-structured interviews and focus groups were conducted with 21 students and 26 staff. A thematic analysis resulted in three overarching themes: the university as a high-pressure environment; naviga…
The use of arguments and justifications in Westminster parliamentary debates on assisted dying
Perspectives on the eligibility criteria for euthanasia for mental suffering caused by psychiatric disorder under the Belgian Euthanasia Law
Medicine (28 works) · Palliative Care and End-of-Life Issues (26 works) · Psychology (21 works) · Nursing (18 works) · Grief, Bereavement, and Mental Health (15 works) · Palliative care (15 works) · Sociology (14 works) · Political science (11 works) · Gerontology (9 works) · Health care (8 works)