Rebecca Dimond
Datos Biográficos
| ID | 317323 |
|---|---|
| NOMBRE | Rebecca Dimond |
| NOMBRES | Rebecca |
| APELLIDO | Dimond |
| FIRMA | DIMOND R |
| AFILIACIONES | Cardiff University |
| ORCID | 0000-0003-1974-7289 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 22 |
| TOTAL DE CITAS | 49 |
| TOTAL COMO AUTOR | 22 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2013 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 5 |
Non‐Directiveness and Authenticity in the Predictive Genetic Clinic
The predictive genetic clinic is a space where counsellors use non‐directive counselling to facilitate asymptomatic patients at risk of carrying a dominantly inherited disease access a predictive genetic test. The social science literature has a history of examining practices within this clinic, but with little attention from the sociology of identity. In this paper, we highlight the importance of identity within these clinics by examining how cu…
My full-time unpaid role
Rare disease organisations can play a crucial role in shaping the medical and scientific landscape. This article draws from interviews with sixteen founders of UK-based, rare disease organisations, all of whom were patients, parents or family members, to understand their experiences and commitment to the organisation and its community. First, we explore the work involved in creating a professional community and addressing the challenge of expert …
Science and democracy on stage at the Science and Technology Select Committee
Making patients political
In this article we develop the concept of the 'idealised policy patient' to contribute to a better understanding of patient-family activism and the mechanisms through which powerful and persuasive patient narratives are facilitated and mobilised. The context through which we explore the idealised policy patient is the UK debates about the legalisation of mitochondrial donation, which primarily took place between 2011 and 2015. In our example, the…
Genetic testing and family entanglements
The development of the 'new genetics' in the early 1990's opened up a new space which required some patients and families to understand and navigate genetic testing. The social science literature that has grown alongside the 'new genetics', now spanning more than thirty years, has continued to explore and question assumptions about attitudes and responses towards genetic technologies. In this article we highlight how individual experience of gene…
Reproductive decision making
Narrating the First “Three-Parent Baby”
In 2016, the New Scientist announced the birth and good health of the world’s first baby conceived using spindle nuclear transfer (SNT). The story was immediately circulated worldwide. In this article, we analyze 39 articles published within the first 48 hours of the announcement, in the Mexican, British, and U.S. press. These articles constitute the initial press reactions to the announcement, and as such, they offer a narrative ground on which …
Three persons, three genetic contributors, three parents
In 2015, two novel in vitro fertilisation techniques intended to prevent the inheritance of mitochondrial disease were legalised in the United Kingdom, following an intense period of inquiry including scientific reviews, public consultations, government guidance and debates within the Houses of Parliament. The techniques were controversial because (1) they introduced a third genetic contributor into the reproductive process and (2) they are germl…
Mitochondrial donation, patient engagement and narratives of hope
This article develops the sociology of hope and patient engagement by exploring how patients' perceptions and actions are shaped by narratives of hope surrounding the clinical introduction of novel reproductive techniques. In 2015, after extensive public debates, the UK became the first country to legalise a mitochondrial donation technique aimed at preventing the transmission of inherited disorders. The article draws on the accounts of twenty-tw…
Paul Atkinson Festschrift
Debating CRISPR/cas9 and Mitochondrial Donation
Conferences are important performative sites. Here we detail a UK science policy conference debating the novel biomedical techniques CRISPR/cas9 and mitochondrial donation. Both techniques have received significant attention from scientists and bioethicists about their clinical potential, social implications, and the prospects of genetic and germline modification. In many countries the policy debates on regulating both technologies is ongoing and…
Teaching & Learning Guide for
Sociology CompassVolume 9, Issue 5 p. 422-425 Article Teaching & Learning Guide for: Medical and Scientific Conferences as Sites of Sociological Interest: A Review of the Field Sandra P. González-Santos, Corresponding Author Sandra P. González-Santos Independent AcademicCorrespondence address: Sandra González-Santos, Plaza Popocatépetl 41–2, Col. Hipódromo, Mexico DF, 06100, Mexico. E-mail: [email protected] for more papers by …
Medical and Scientific Conferences as Sites of Sociological Interest
Conferences play a pivotal role in the production and circulation of knowledge and in shaping and establishing academic and professional disciplines. As collective events, they facilitate intense moments of interaction where scientific and medical knowledge can be observed in the making. This paper calls attention to conferences as fascinating sites for sociologists of science, technology and medicine. By bringing together authors who look at con…
The public shaping of medical research
Closure of a human tissue biobank
Biobanks are increasingly being established to act as mediators between patient-donors and researchers. In practice, some of these will close. This paper details the experiences of one such bank. We report interviews with the bank's staff and oversight group during the period when the bank ceased biobanking activity, reconfigured as a disseminator of best practice, before then closing altogether. The paper makes three distinct contributions: (i) …
Unexpected tissue and the biobank that closed
Unanticipated situations can arise in biobanking. This paper empirically documents unexpected situations at the anonymous biobank 'Xbank'. Firstly, Xbank received an unexpected and significant quantity of tissue from the historical archive of a hospital network. Secondly, Xbank had its funding withdrawn before the designated end date for the grant, meaning the bank needed to either re-house or destroy its holdings. This paper articulates and uses…
Negotiating blame and responsibility in the context of a “ de novo ” mutation
This article examines the implications for parents and family members when a child is diagnosed with a genetic syndrome. In particular, it describes how practices of understanding are shaped when the syndrome occurs “de novo,” that is, when it has not been inherited from either parent and where there is no family history. Despite a significant body of research exploring the social implications of genetic disease and diagnostic technologies, socio…
Parent-led conferences as sites of medical work
Conferences are novel sites for understanding medical work. Through describing styles of presentation that take place at conferences attended by patients and parents, this article highlights how clinicians on stage present ordinary and extraordinary aspects of medicine. Attention is drawn to the reaction of the parents in the audience. The power of the presenter to direct proceedings highlights the potential vulnerability of the audience. The rel…
What binds biosociality? The collective effervescence of the parent-led conference
Negotiating identity at the intersection of paediatric and genetic medicine
This article identifies a significant transformation in the role and identity of parents accompanying their child to clinic. This shift is a product of the intersection between paediatric and genetic medicine, where parents play a critical role in providing information about their child, family and ultimately, about themselves. To provide a context for this matrix, two broad areas of sociological inquiry are highlighted. The first is explanations…
Telecare technologies and the transformation of healthcare
Telecare technologies and the transformation of healthcare, by Nelly Oudshoorn, Basingstoke, Palgrave Macmillan, 2011, 256 pp., £55 (hardback), ISBN 978-0-230-30020-0 Telecare technologies and the
Patient and family trajectories of mitochondrial disease
Mitochondrial disease can be a devastating, degenerative illness, with limited treatment and no cure. Novel reproductive techniques involving mitochondria donation present an opportunity for women with mitochondrial disease to prevent the transmission of disease to her offspring. Current IVF techniques, such as pre-implantation genetic diagnosis, reduce but do not eliminate the risk for the child. However, knowledge of the contexts within which t…
Genetic testing and family entanglements
The development of the 'new genetics' in the early 1990's opened up a new space which required some patients and families to understand and navigate genetic testing. The social science literature that has grown alongside the 'new genetics', now spanning more than thirty years, has continued to explore and question assumptions about attitudes and responses towards genetic technologies. In this article we highlight how individual experience of gene…
Mitochondrial donation, patient engagement and narratives of hope
This article develops the sociology of hope and patient engagement by exploring how patients' perceptions and actions are shaped by narratives of hope surrounding the clinical introduction of novel reproductive techniques. In 2015, after extensive public debates, the UK became the first country to legalise a mitochondrial donation technique aimed at preventing the transmission of inherited disorders. The article draws on the accounts of twenty-tw…
What binds biosociality? The collective effervescence of the parent-led conference
Negotiating identity at the intersection of paediatric and genetic medicine
This article identifies a significant transformation in the role and identity of parents accompanying their child to clinic. This shift is a product of the intersection between paediatric and genetic medicine, where parents play a critical role in providing information about their child, family and ultimately, about themselves. To provide a context for this matrix, two broad areas of sociological inquiry are highlighted. The first is explanations…
Narrating the First “Three-Parent Baby”
In 2016, the New Scientist announced the birth and good health of the world’s first baby conceived using spindle nuclear transfer (SNT). The story was immediately circulated worldwide. In this article, we analyze 39 articles published within the first 48 hours of the announcement, in the Mexican, British, and U.S. press. These articles constitute the initial press reactions to the announcement, and as such, they offer a narrative ground on which …
Patient and family trajectories of mitochondrial disease
Mitochondrial disease can be a devastating, degenerative illness, with limited treatment and no cure. Novel reproductive techniques involving mitochondria donation present an opportunity for women with mitochondrial disease to prevent the transmission of disease to her offspring. Current IVF techniques, such as pre-implantation genetic diagnosis, reduce but do not eliminate the risk for the child. However, knowledge of the contexts within which t…
Three persons, three genetic contributors, three parents
In 2015, two novel in vitro fertilisation techniques intended to prevent the inheritance of mitochondrial disease were legalised in the United Kingdom, following an intense period of inquiry including scientific reviews, public consultations, government guidance and debates within the Houses of Parliament. The techniques were controversial because (1) they introduced a third genetic contributor into the reproductive process and (2) they are germl…
Making patients political
In this article we develop the concept of the 'idealised policy patient' to contribute to a better understanding of patient-family activism and the mechanisms through which powerful and persuasive patient narratives are facilitated and mobilised. The context through which we explore the idealised policy patient is the UK debates about the legalisation of mitochondrial donation, which primarily took place between 2011 and 2015. In our example, the…
Paul Atkinson Festschrift
Unexpected tissue and the biobank that closed
Unanticipated situations can arise in biobanking. This paper empirically documents unexpected situations at the anonymous biobank 'Xbank'. Firstly, Xbank received an unexpected and significant quantity of tissue from the historical archive of a hospital network. Secondly, Xbank had its funding withdrawn before the designated end date for the grant, meaning the bank needed to either re-house or destroy its holdings. This paper articulates and uses…
Telecare technologies and the transformation of healthcare
Telecare technologies and the transformation of healthcare, by Nelly Oudshoorn, Basingstoke, Palgrave Macmillan, 2011, 256 pp., £55 (hardback), ISBN 978-0-230-30020-0 Telecare technologies and the
Patient and family trajectories of mitochondrial disease
Mitochondrial disease can be a devastating, degenerative illness, with limited treatment and no cure. Novel reproductive techniques involving mitochondria donation present an opportunity for women with mitochondrial disease to prevent the transmission of disease to her offspring. Current IVF techniques, such as pre-implantation genetic diagnosis, reduce but do not eliminate the risk for the child. However, knowledge of the contexts within which t…
Negotiating blame and responsibility in the context of a “ de novo ” mutation
This article examines the implications for parents and family members when a child is diagnosed with a genetic syndrome. In particular, it describes how practices of understanding are shaped when the syndrome occurs “de novo,” that is, when it has not been inherited from either parent and where there is no family history. Despite a significant body of research exploring the social implications of genetic disease and diagnostic technologies, socio…
Parent-led conferences as sites of medical work
Conferences are novel sites for understanding medical work. Through describing styles of presentation that take place at conferences attended by patients and parents, this article highlights how clinicians on stage present ordinary and extraordinary aspects of medicine. Attention is drawn to the reaction of the parents in the audience. The power of the presenter to direct proceedings highlights the potential vulnerability of the audience. The rel…
What binds biosociality? The collective effervescence of the parent-led conference
Negotiating identity at the intersection of paediatric and genetic medicine
This article identifies a significant transformation in the role and identity of parents accompanying their child to clinic. This shift is a product of the intersection between paediatric and genetic medicine, where parents play a critical role in providing information about their child, family and ultimately, about themselves. To provide a context for this matrix, two broad areas of sociological inquiry are highlighted. The first is explanations…
Teaching & Learning Guide for
Sociology CompassVolume 9, Issue 5 p. 422-425 Article Teaching & Learning Guide for: Medical and Scientific Conferences as Sites of Sociological Interest: A Review of the Field Sandra P. González-Santos, Corresponding Author Sandra P. González-Santos Independent AcademicCorrespondence address: Sandra González-Santos, Plaza Popocatépetl 41–2, Col. Hipódromo, Mexico DF, 06100, Mexico. E-mail: [email protected] for more papers by …
Medical and Scientific Conferences as Sites of Sociological Interest
Conferences play a pivotal role in the production and circulation of knowledge and in shaping and establishing academic and professional disciplines. As collective events, they facilitate intense moments of interaction where scientific and medical knowledge can be observed in the making. This paper calls attention to conferences as fascinating sites for sociologists of science, technology and medicine. By bringing together authors who look at con…
The public shaping of medical research
Closure of a human tissue biobank
Biobanks are increasingly being established to act as mediators between patient-donors and researchers. In practice, some of these will close. This paper details the experiences of one such bank. We report interviews with the bank's staff and oversight group during the period when the bank ceased biobanking activity, reconfigured as a disseminator of best practice, before then closing altogether. The paper makes three distinct contributions: (i) …
Unexpected tissue and the biobank that closed
Unanticipated situations can arise in biobanking. This paper empirically documents unexpected situations at the anonymous biobank 'Xbank'. Firstly, Xbank received an unexpected and significant quantity of tissue from the historical archive of a hospital network. Secondly, Xbank had its funding withdrawn before the designated end date for the grant, meaning the bank needed to either re-house or destroy its holdings. This paper articulates and uses…
Debating CRISPR/cas9 and Mitochondrial Donation
Conferences are important performative sites. Here we detail a UK science policy conference debating the novel biomedical techniques CRISPR/cas9 and mitochondrial donation. Both techniques have received significant attention from scientists and bioethicists about their clinical potential, social implications, and the prospects of genetic and germline modification. In many countries the policy debates on regulating both technologies is ongoing and…
Paul Atkinson Festschrift
Reproductive decision making
Narrating the First “Three-Parent Baby”
In 2016, the New Scientist announced the birth and good health of the world’s first baby conceived using spindle nuclear transfer (SNT). The story was immediately circulated worldwide. In this article, we analyze 39 articles published within the first 48 hours of the announcement, in the Mexican, British, and U.S. press. These articles constitute the initial press reactions to the announcement, and as such, they offer a narrative ground on which …
Three persons, three genetic contributors, three parents
In 2015, two novel in vitro fertilisation techniques intended to prevent the inheritance of mitochondrial disease were legalised in the United Kingdom, following an intense period of inquiry including scientific reviews, public consultations, government guidance and debates within the Houses of Parliament. The techniques were controversial because (1) they introduced a third genetic contributor into the reproductive process and (2) they are germl…
Mitochondrial donation, patient engagement and narratives of hope
This article develops the sociology of hope and patient engagement by exploring how patients' perceptions and actions are shaped by narratives of hope surrounding the clinical introduction of novel reproductive techniques. In 2015, after extensive public debates, the UK became the first country to legalise a mitochondrial donation technique aimed at preventing the transmission of inherited disorders. The article draws on the accounts of twenty-tw…
Genetic testing and family entanglements
The development of the 'new genetics' in the early 1990's opened up a new space which required some patients and families to understand and navigate genetic testing. The social science literature that has grown alongside the 'new genetics', now spanning more than thirty years, has continued to explore and question assumptions about attitudes and responses towards genetic technologies. In this article we highlight how individual experience of gene…
Making patients political
In this article we develop the concept of the 'idealised policy patient' to contribute to a better understanding of patient-family activism and the mechanisms through which powerful and persuasive patient narratives are facilitated and mobilised. The context through which we explore the idealised policy patient is the UK debates about the legalisation of mitochondrial donation, which primarily took place between 2011 and 2015. In our example, the…
Science and democracy on stage at the Science and Technology Select Committee
My full-time unpaid role
Rare disease organisations can play a crucial role in shaping the medical and scientific landscape. This article draws from interviews with sixteen founders of UK-based, rare disease organisations, all of whom were patients, parents or family members, to understand their experiences and commitment to the organisation and its community. First, we explore the work involved in creating a professional community and addressing the challenge of expert …
Non‐Directiveness and Authenticity in the Predictive Genetic Clinic
The predictive genetic clinic is a space where counsellors use non‐directive counselling to facilitate asymptomatic patients at risk of carrying a dominantly inherited disease access a predictive genetic test. The social science literature has a history of examining practices within this clinic, but with little attention from the sociology of identity. In this paper, we highlight the importance of identity within these clinics by examining how cu…
Sociology (17 obras) · Political science (13 obras) · Psychology (11 obras) · Biology (8 obras) · Law (8 obras) · Medicine (8 obras) · Public relations (8 obras) · Biomedical Ethics and Regulation (7 obras) · Engineering (6 obras) · Social Psychology (6 obras)