Claire E Wakefield
Biographic Data
| ID | 322583 |
|---|---|
| NAME | Claire E Wakefield |
| GIVEN NAMES | Claire E |
| FAMILY NAME | Wakefield |
| SIGNATURE | WAKEFIELD C E |
| AFFILIATIONS | UNSW Sydney |
| ORCID | 0000-0001-7704-7067 |
| VERIFIED | Yes |
| TOTAL WORKS | 17 |
| TOTAL CITATIONS | 19 |
| WORKS AS AUTHOR | 17 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2015 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 2 |
Building capacity to treat childhood cancer in Papua New Guinea
Childhood cancer outcomes in low- and middle-income countries are impacted by the presentation of advanced disease and limited diagnostic and treatment resources. Papua New Guinea is highly populated with significant health coverage and workforce difficulties, in addition to unique geographical and political challenges affecting childhood cancer care. With improvements in communicable disease management, childhood cancer care has become an emergi…
The Rhythm of Connection
Music therapy in paediatric palliative care offers a unique opportunity for emotional support, legacy creation, and therapeutic connection for children and their families. This paper describes the Heartbeats Intervention, as delivered by a paediatric palliative care music therapist at Sydney Children's Hospital Australia. This intervention involves recording and creatively integrating the heartbeats of children and family members into personalise…
Support through the screen
‘High hopes for treatment’
INTRODUCTION: Advanced therapies offer unprecedented opportunities for treating rare neurological disorders (RNDs) in children. However, health literacy, perceptions and understanding of novel therapies need elucidation across the RND community. This study explored healthcare professionals' and carers' perspectives of advanced therapies in childhood-onset RNDs. METHODS: In this mixed-methodology cross-sectional study, 20 healthcare professionals …
Truce
Living (well) with cancer in the precision era
Surviving cancer in the precision era of targeted drugs and immunotherapies increasingly involves surviving-with malignancy. Against this backdrop of precision, innovation and chronicity, this paper offers a person-centred examination of some of the emerging intersections of chronic living and cancer treatment. Using a temporally extended qualitative methodology drawing on solicited diaries and successive in-depth interviews with people receiving…
‘Advocacy groups are the connectors’
INTRODUCTION: Biomedical progress has facilitated breakthrough advanced neurotherapeutic interventions, whose potential to improve outcomes in rare neurological diseases has increased hope among people with lived experiences and their carers. Nevertheless, gene, somatic cell and other advanced neurotherapeutic interventions carry significant risks. Rare disease patient organizations (RDPOs) may enhance patient experiences, inform expectations and…
Experiencing the Sars-CoV-2 Pandemic Whilst Living With Cancer
The SARS-CoV-2 pandemic has resulted in considerable consequences for many cancer patients, exacerbating pre-existing systemic health system limitations as well as creating new challenges. From socially distanced clinics and the widespread introduction of telehealth, to the halting of clinical trials and the reassessment of what constitutes "essential" treatment, care in oncology has abruptly changed. There is currently limited analysis of cancer…
The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors
Psychological outcomes, coping and illness perceptions among parents of children with neurological disorders
OBJECTIVE: To assess the Common Sense Model among parents of children with neurological disorders, by determining the prevalence of symptoms of anxiety and depression, and how illness perceptions relate to symptoms of anxiety and depression both directly, and indirectly via coping. DESIGN: 205 parents of children with neurological disorders in Hyderabad, India completed questionnaires. MAIN OUTCOME MEASURES: Hospital Anxiety and Depression Scale,…
We Have to Be Strong Ourselves”
Informal carers provide an important role in supporting people with cancer. Aboriginal and Torres Strait Islander peoples experience higher cancer mortality than other Australians. To date, very little is known about the support needs of carers of Aboriginal and Torres Strait Islander adults with cancer. This article explored these needs through a qualitative study. Twenty-two semi-structured qualitative interviews and one focus group were conduc…
A sociology of precision-in-practice
The idea of 'precision medicine', which has gained increasing traction since the early 2000s, is now ubiquitous in health and medicine. Though varied in its implementation across fields, precision medicine has raised hopes of revolutionary treatments and has spurred the proliferation of novel therapeutics, the alteration of professional trajectories and various reconfigurations of health/care. Nowhere is the promise of precision medicine more app…
Variables associated with grief and personal growth following the death of a child from cancer
This mixed method study explored parent and child characteristics that impact grief and personal growth in parents ( n = 119) after a child dies from cancer in Australia. Medical components of a child's cancer care including radiation treatment, referral to palliative care, and location of death had a significant impact on levels of grief. Parents' gender, religious affiliation, and education level had a significant impact on levels of personal g…
Brief report
As a research method, pilot studies may be utilized to minimize harm and maximize the potential benefits for vulnerable research participants. A mixed method approach allows researchers to generalize findings to a broader population while also drawing on the depth of the lived experience
A study protocol for Truce
Australian and New Zealand Clinical Trials Registry ACTRN12615000761561. Registered 22(nd) July 2015
Ethical and Clinical Challenges Delivering Group‐based Cognitive‐Behavioural Therapy to Adolescents and Young Adults with Cancer Using Videoconferencing Technology
ObjectiveAdolescents and young adults with cancer have poorer psychological outcomes relative to both younger and older patients. Their distress often peaks at the completion of cancer treatment, as they return to their normal lives while hospital‐based support is reduced. Telepsychology has the potential to reduce help‐seeking barriers in this group; nevertheless, other challenges remain. This article discusses the Recapture Life randomised cont…
Parent feeding interactions and practices during childhood cancer treatment. A qualitative investigation
A sociology of precision-in-practice
The idea of 'precision medicine', which has gained increasing traction since the early 2000s, is now ubiquitous in health and medicine. Though varied in its implementation across fields, precision medicine has raised hopes of revolutionary treatments and has spurred the proliferation of novel therapeutics, the alteration of professional trajectories and various reconfigurations of health/care. Nowhere is the promise of precision medicine more app…
Ethical and Clinical Challenges Delivering Group‐based Cognitive‐Behavioural Therapy to Adolescents and Young Adults with Cancer Using Videoconferencing Technology
ObjectiveAdolescents and young adults with cancer have poorer psychological outcomes relative to both younger and older patients. Their distress often peaks at the completion of cancer treatment, as they return to their normal lives while hospital‐based support is reduced. Telepsychology has the potential to reduce help‐seeking barriers in this group; nevertheless, other challenges remain. This article discusses the Recapture Life randomised cont…
Experiencing the Sars-CoV-2 Pandemic Whilst Living With Cancer
The SARS-CoV-2 pandemic has resulted in considerable consequences for many cancer patients, exacerbating pre-existing systemic health system limitations as well as creating new challenges. From socially distanced clinics and the widespread introduction of telehealth, to the halting of clinical trials and the reassessment of what constitutes "essential" treatment, care in oncology has abruptly changed. There is currently limited analysis of cancer…
Variables associated with grief and personal growth following the death of a child from cancer
This mixed method study explored parent and child characteristics that impact grief and personal growth in parents ( n = 119) after a child dies from cancer in Australia. Medical components of a child's cancer care including radiation treatment, referral to palliative care, and location of death had a significant impact on levels of grief. Parents' gender, religious affiliation, and education level had a significant impact on levels of personal g…
Brief report
As a research method, pilot studies may be utilized to minimize harm and maximize the potential benefits for vulnerable research participants. A mixed method approach allows researchers to generalize findings to a broader population while also drawing on the depth of the lived experience
A study protocol for Truce
Australian and New Zealand Clinical Trials Registry ACTRN12615000761561. Registered 22(nd) July 2015
Ethical and Clinical Challenges Delivering Group‐based Cognitive‐Behavioural Therapy to Adolescents and Young Adults with Cancer Using Videoconferencing Technology
ObjectiveAdolescents and young adults with cancer have poorer psychological outcomes relative to both younger and older patients. Their distress often peaks at the completion of cancer treatment, as they return to their normal lives while hospital‐based support is reduced. Telepsychology has the potential to reduce help‐seeking barriers in this group; nevertheless, other challenges remain. This article discusses the Recapture Life randomised cont…
Parent feeding interactions and practices during childhood cancer treatment. A qualitative investigation
Brief report
As a research method, pilot studies may be utilized to minimize harm and maximize the potential benefits for vulnerable research participants. A mixed method approach allows researchers to generalize findings to a broader population while also drawing on the depth of the lived experience
Variables associated with grief and personal growth following the death of a child from cancer
This mixed method study explored parent and child characteristics that impact grief and personal growth in parents ( n = 119) after a child dies from cancer in Australia. Medical components of a child's cancer care including radiation treatment, referral to palliative care, and location of death had a significant impact on levels of grief. Parents' gender, religious affiliation, and education level had a significant impact on levels of personal g…
The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors
Psychological outcomes, coping and illness perceptions among parents of children with neurological disorders
OBJECTIVE: To assess the Common Sense Model among parents of children with neurological disorders, by determining the prevalence of symptoms of anxiety and depression, and how illness perceptions relate to symptoms of anxiety and depression both directly, and indirectly via coping. DESIGN: 205 parents of children with neurological disorders in Hyderabad, India completed questionnaires. MAIN OUTCOME MEASURES: Hospital Anxiety and Depression Scale,…
We Have to Be Strong Ourselves”
Informal carers provide an important role in supporting people with cancer. Aboriginal and Torres Strait Islander peoples experience higher cancer mortality than other Australians. To date, very little is known about the support needs of carers of Aboriginal and Torres Strait Islander adults with cancer. This article explored these needs through a qualitative study. Twenty-two semi-structured qualitative interviews and one focus group were conduc…
A sociology of precision-in-practice
The idea of 'precision medicine', which has gained increasing traction since the early 2000s, is now ubiquitous in health and medicine. Though varied in its implementation across fields, precision medicine has raised hopes of revolutionary treatments and has spurred the proliferation of novel therapeutics, the alteration of professional trajectories and various reconfigurations of health/care. Nowhere is the promise of precision medicine more app…
Living (well) with cancer in the precision era
Surviving cancer in the precision era of targeted drugs and immunotherapies increasingly involves surviving-with malignancy. Against this backdrop of precision, innovation and chronicity, this paper offers a person-centred examination of some of the emerging intersections of chronic living and cancer treatment. Using a temporally extended qualitative methodology drawing on solicited diaries and successive in-depth interviews with people receiving…
‘Advocacy groups are the connectors’
INTRODUCTION: Biomedical progress has facilitated breakthrough advanced neurotherapeutic interventions, whose potential to improve outcomes in rare neurological diseases has increased hope among people with lived experiences and their carers. Nevertheless, gene, somatic cell and other advanced neurotherapeutic interventions carry significant risks. Rare disease patient organizations (RDPOs) may enhance patient experiences, inform expectations and…
Experiencing the Sars-CoV-2 Pandemic Whilst Living With Cancer
The SARS-CoV-2 pandemic has resulted in considerable consequences for many cancer patients, exacerbating pre-existing systemic health system limitations as well as creating new challenges. From socially distanced clinics and the widespread introduction of telehealth, to the halting of clinical trials and the reassessment of what constitutes "essential" treatment, care in oncology has abruptly changed. There is currently limited analysis of cancer…
Truce
‘High hopes for treatment’
INTRODUCTION: Advanced therapies offer unprecedented opportunities for treating rare neurological disorders (RNDs) in children. However, health literacy, perceptions and understanding of novel therapies need elucidation across the RND community. This study explored healthcare professionals' and carers' perspectives of advanced therapies in childhood-onset RNDs. METHODS: In this mixed-methodology cross-sectional study, 20 healthcare professionals …
Building capacity to treat childhood cancer in Papua New Guinea
Childhood cancer outcomes in low- and middle-income countries are impacted by the presentation of advanced disease and limited diagnostic and treatment resources. Papua New Guinea is highly populated with significant health coverage and workforce difficulties, in addition to unique geographical and political challenges affecting childhood cancer care. With improvements in communicable disease management, childhood cancer care has become an emergi…
The Rhythm of Connection
Music therapy in paediatric palliative care offers a unique opportunity for emotional support, legacy creation, and therapeutic connection for children and their families. This paper describes the Heartbeats Intervention, as delivered by a paediatric palliative care music therapist at Sydney Children's Hospital Australia. This intervention involves recording and creatively integrating the heartbeats of children and family members into personalise…
Support through the screen
Psychology (15 works) · Medicine (14 works) · Childhood Cancer Survivors' Quality of Life (8 works) · Clinical Psychology (7 works) · Family Support in Illness (7 works) · Psychotherapist (7 works) · Psychiatry (6 works) · Cancer (5 works) · Clinical Psychology (5 works) · Psychosocial (5 works)