Barbara Groot
Biographic Data
| ID | 326179 |
|---|---|
| NAME | Barbara Groot |
| GIVEN NAMES | Barbara |
| FAMILY NAME | Groot |
| SIGNATURE | GROOT B |
| AFFILIATIONS | Leiden University Medical Center |
| ORCID | 0000-0001-7495-3048 |
| VERIFIED | Yes |
| TOTAL WORKS | 18 |
| TOTAL CITATIONS | 8 |
| AUTHOR COUNT | 18 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2020 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 2 |
Opening up creative resources
Globally, many complex issues, like the ageing population and health inequalities, require attention. People are experimenting to combat these issues in their local contexts through bigger or smaller networks; however, much of the knowledge about these initiatives remains localised and elitist and omits the voices and perspectives of citizens. This article identifies the characteristics of a more horizontal, emergent and plural epistemology to mo…
Visual art in a hospital from patients’ and families’ perspectives
Little is known about the effects of visual art in hospitals on the health and well-being of patients and their families. This study investigates how patients and their families experience visual art in a hospital and what it means to them. The authors employ a phenomenological-interpretive design, incorporating participant observations, micro-interviews, in-depth interviews and a co-creative session with patients and their families. The experien…
Improving Collaboration Between Staff, Family Members, and Artists in Long-Term Dementia Care
A growing amount of evidence shows the positive impact of arts-based interventions in dementia care. Existing studies focus on the impact of such interventions on individuals with dementia, yet there is little known about contextual factors influencing the impact of such practices. Contextual factors include personal and relational processes, such as the collaboration between staff, family members, and artists. It also includes making specific or…
Soft drinks are normal’
The study provides comprehensive insights into teenagers' lived experiences in relation to SSBs. It highlights the prominent roles of strong social norms, conflicting beliefs, and the pervasive marketing, easy availability and low prices of SSBs. This underlines the need for a systems approach, applying combinations of effective, integrated strategies that can be specifically tailored to the perspectives of today's teenagers
Building an alternative conceptualization of participation
The paper presents an alternative conceptualization of participation in order to offer legitimation and guidance for (new) scholars, policymakers and citizens, and to prepare them for the work that needs to be done to develop genuine participation practices that bring about positive change. Metaphors like the participation ladder not only explain and shape our communication but also shape the way we think and act. Metaphors can shape our percepti…
Making invisible care visible. Ethics and aesthetics of care in participatory arts practices in times of Covid-19
The COVID-19 pandemic emphasises the importance of care for our societies, yet underscores the inferiority of relational caring practices. During this time, we studied the participatory work of artists working with older adults using participant observations, in-depth interviews and visual ethnography. In this article, we present a case study of one arts initiative, a theatre company engaging seniors in the Netherlands, using ethics and aesthetic…
The complex nature of boundary work in arts and health
We add to the conceptualisation of boundary work in arts and health by showing that it takes place on different levels: personal, relational, organisational and public
Ethical Issues in Participatory Action Research on Covid-appropriate Behaviour and Vaccine Hesitancy in India
This article starts with a case outlining ethical challenges encountered in participatory action research (PAR) on vaccine hesitancy in rural India during Covid-19. Community researchers were recruited by a not-for-profit organisation, with the aim of both discovering the reasons for vaccine hesitancy and encouraging take-up. This raised issues about the roles and responsibilities of local researchers in their own communities, where they might be…
In search of epistemic justice. Dialogical reflection of researchers on situated ethics in studies with people living with language and/or cognitive impairment
Approximating epistemic justice in research with people with cognitive and/or language impairment requires extra effort in daily research routines. Sharing everyday ethical issues via case stories and reflecting on these issues encourages moral learning and brings new knowledge about the craftsmanship of researchers. Especially the collaborative and dialogical reflection helped the researchers to dig deeper and find words for intangible processes…
Knowledge Translation During Covid-19 Times
This article provides an example of experiential learning and includes a video with music and sound to demonstrate collective and individual responses to Covid-19
What Patients Prioritize for Research to Improve Their Lives and How Their Priorities Get Dismissed again
Health researchers increasingly work with patients in a participatory fashion. Active patient involvement throughout the research process can provide epistemic justice to patients who have often only had an informant role in traditional health research. This study aims to conduct participatory research on patient experiences to create a solid research agenda with patients and discuss it with relevant stakeholders. We followed a participatory rese…
Older Adults’ Engagement in Residential Care
Over the previous years, the residential care sector has gone through a transition from a rather paternalistic approach towards a more democratic way of caregiving. Nevertheless, many care organizations still find it challenging to engage their residents in the process of care. In this study, we investigated the challenges regarding the engagement of older adults in residential care. As recent studies indicated the increasing opportunities of ICT…
How participatory arts can contribute to Dutch older adults’ wellbeing – revisiting a taxonomy of arts interventions for people with dementia
This article demonstrates the important social function participatory art can have for older adults, and argues for the importance of a thorough consideration of the context wherein underlying mechanisms and outcomes emerge
Circles of impacts within and beyond participatory action research with older people
Participatory action research (PAR) advocates end-user involvement in various societal domains. This paper aims to identify and analyse impacts of PAR involving older persons as co-researchers, and how these impacts spread and are enhanced throughout the research process and after its completion. By impact we mean transformational change throughout and after a PAR study. We present a qualitative community-based research project involving older pe…
Boundary Objects
Participatory health research (PHR) is a research approach in which people, including hidden populations, share lived experiences about health inequities to improve their situation through collective action. Boundary objects are produced, using arts-based methods, to be heard by stakeholders. These can bring about dialogue, connection, and involvement in a mission for social justice. This study aims to gain insight into the value and ethical issu…
The Value of Active Arts Engagement on Health and Well-Being of Older Adults
An emerging body of research indicates that active arts engagement can enhance older adults' health and experienced well-being, but scientific evidence is still fragmented. There is a research gap in understanding arts engagement grounded in a multidimensional conceptualization of the value of health and well-being from older participants' perspectives. This Dutch nation-wide study aimed to explore the broader value of arts engagement on older pe…
Making a Difference
Qualitative researchers are more and more keen to have social impact and make their research actionable. Participatory health research (PHR) involves people who live in vulnerable situations and fosters collaboration with other stakeholders, including policymakers, to improve the health and well-being of those whose lives are at stake. People who it concerns are engaged in every step of the research process of PHR to make a difference and strive …
Relational, ethically sound co-production in mental health care research
Co-production and service user involvement are increasingly encouraged in mental health care research. However, power hierarchies in knowledge can affect the co-production of knowledge by stakeholders. Therefore, the purpose of this article is to deepen our understanding of the relational dynamics at stake in co-researching teams and larger groups of stakeholders involved in research. We reflect on a process of co-production in psychiatric emerge…
In search of epistemic justice. Dialogical reflection of researchers on situated ethics in studies with people living with language and/or cognitive impairment
Approximating epistemic justice in research with people with cognitive and/or language impairment requires extra effort in daily research routines. Sharing everyday ethical issues via case stories and reflecting on these issues encourages moral learning and brings new knowledge about the craftsmanship of researchers. Especially the collaborative and dialogical reflection helped the researchers to dig deeper and find words for intangible processes…
The complex nature of boundary work in arts and health
We add to the conceptualisation of boundary work in arts and health by showing that it takes place on different levels: personal, relational, organisational and public
Making a Difference
Qualitative researchers are more and more keen to have social impact and make their research actionable. Participatory health research (PHR) involves people who live in vulnerable situations and fosters collaboration with other stakeholders, including policymakers, to improve the health and well-being of those whose lives are at stake. People who it concerns are engaged in every step of the research process of PHR to make a difference and strive …
Relational, ethically sound co-production in mental health care research
Co-production and service user involvement are increasingly encouraged in mental health care research. However, power hierarchies in knowledge can affect the co-production of knowledge by stakeholders. Therefore, the purpose of this article is to deepen our understanding of the relational dynamics at stake in co-researching teams and larger groups of stakeholders involved in research. We reflect on a process of co-production in psychiatric emerge…
Boundary Objects
Participatory health research (PHR) is a research approach in which people, including hidden populations, share lived experiences about health inequities to improve their situation through collective action. Boundary objects are produced, using arts-based methods, to be heard by stakeholders. These can bring about dialogue, connection, and involvement in a mission for social justice. This study aims to gain insight into the value and ethical issu…
The Value of Active Arts Engagement on Health and Well-Being of Older Adults
An emerging body of research indicates that active arts engagement can enhance older adults' health and experienced well-being, but scientific evidence is still fragmented. There is a research gap in understanding arts engagement grounded in a multidimensional conceptualization of the value of health and well-being from older participants' perspectives. This Dutch nation-wide study aimed to explore the broader value of arts engagement on older pe…
Knowledge Translation During Covid-19 Times
This article provides an example of experiential learning and includes a video with music and sound to demonstrate collective and individual responses to Covid-19
What Patients Prioritize for Research to Improve Their Lives and How Their Priorities Get Dismissed again
Health researchers increasingly work with patients in a participatory fashion. Active patient involvement throughout the research process can provide epistemic justice to patients who have often only had an informant role in traditional health research. This study aims to conduct participatory research on patient experiences to create a solid research agenda with patients and discuss it with relevant stakeholders. We followed a participatory rese…
Older Adults’ Engagement in Residential Care
Over the previous years, the residential care sector has gone through a transition from a rather paternalistic approach towards a more democratic way of caregiving. Nevertheless, many care organizations still find it challenging to engage their residents in the process of care. In this study, we investigated the challenges regarding the engagement of older adults in residential care. As recent studies indicated the increasing opportunities of ICT…
How participatory arts can contribute to Dutch older adults’ wellbeing – revisiting a taxonomy of arts interventions for people with dementia
This article demonstrates the important social function participatory art can have for older adults, and argues for the importance of a thorough consideration of the context wherein underlying mechanisms and outcomes emerge
Circles of impacts within and beyond participatory action research with older people
Participatory action research (PAR) advocates end-user involvement in various societal domains. This paper aims to identify and analyse impacts of PAR involving older persons as co-researchers, and how these impacts spread and are enhanced throughout the research process and after its completion. By impact we mean transformational change throughout and after a PAR study. We present a qualitative community-based research project involving older pe…
Building an alternative conceptualization of participation
The paper presents an alternative conceptualization of participation in order to offer legitimation and guidance for (new) scholars, policymakers and citizens, and to prepare them for the work that needs to be done to develop genuine participation practices that bring about positive change. Metaphors like the participation ladder not only explain and shape our communication but also shape the way we think and act. Metaphors can shape our percepti…
Making invisible care visible. Ethics and aesthetics of care in participatory arts practices in times of Covid-19
The COVID-19 pandemic emphasises the importance of care for our societies, yet underscores the inferiority of relational caring practices. During this time, we studied the participatory work of artists working with older adults using participant observations, in-depth interviews and visual ethnography. In this article, we present a case study of one arts initiative, a theatre company engaging seniors in the Netherlands, using ethics and aesthetic…
The complex nature of boundary work in arts and health
We add to the conceptualisation of boundary work in arts and health by showing that it takes place on different levels: personal, relational, organisational and public
Ethical Issues in Participatory Action Research on Covid-appropriate Behaviour and Vaccine Hesitancy in India
This article starts with a case outlining ethical challenges encountered in participatory action research (PAR) on vaccine hesitancy in rural India during Covid-19. Community researchers were recruited by a not-for-profit organisation, with the aim of both discovering the reasons for vaccine hesitancy and encouraging take-up. This raised issues about the roles and responsibilities of local researchers in their own communities, where they might be…
In search of epistemic justice. Dialogical reflection of researchers on situated ethics in studies with people living with language and/or cognitive impairment
Approximating epistemic justice in research with people with cognitive and/or language impairment requires extra effort in daily research routines. Sharing everyday ethical issues via case stories and reflecting on these issues encourages moral learning and brings new knowledge about the craftsmanship of researchers. Especially the collaborative and dialogical reflection helped the researchers to dig deeper and find words for intangible processes…
Opening up creative resources
Globally, many complex issues, like the ageing population and health inequalities, require attention. People are experimenting to combat these issues in their local contexts through bigger or smaller networks; however, much of the knowledge about these initiatives remains localised and elitist and omits the voices and perspectives of citizens. This article identifies the characteristics of a more horizontal, emergent and plural epistemology to mo…
Visual art in a hospital from patients’ and families’ perspectives
Little is known about the effects of visual art in hospitals on the health and well-being of patients and their families. This study investigates how patients and their families experience visual art in a hospital and what it means to them. The authors employ a phenomenological-interpretive design, incorporating participant observations, micro-interviews, in-depth interviews and a co-creative session with patients and their families. The experien…
Improving Collaboration Between Staff, Family Members, and Artists in Long-Term Dementia Care
A growing amount of evidence shows the positive impact of arts-based interventions in dementia care. Existing studies focus on the impact of such interventions on individuals with dementia, yet there is little known about contextual factors influencing the impact of such practices. Contextual factors include personal and relational processes, such as the collaboration between staff, family members, and artists. It also includes making specific or…
Soft drinks are normal’
The study provides comprehensive insights into teenagers' lived experiences in relation to SSBs. It highlights the prominent roles of strong social norms, conflicting beliefs, and the pervasive marketing, easy availability and low prices of SSBs. This underlines the need for a systems approach, applying combinations of effective, integrated strategies that can be specifically tailored to the perspectives of today's teenagers
Sociology (14 works) · Political science (13 works) · Psychology (13 works) · Citizen journalism (9 works) · Medicine (9 works) · Public relations (9 works) · Participatory Visual Research Methods (8 works) · Participatory action research (7 works) · Art (6 works) · Art Therapy and Mental Health (6 works)