Ulla Werlauff
Biographic Data
| ID | 326236 |
|---|---|
| NAME | Ulla Werlauff |
| GIVEN NAMES | Ulla |
| FAMILY NAME | Werlauff |
| SIGNATURE | WERLAUFF U |
| AFFILIATIONS | National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark |
| ORCID | 0000-0002-5294-2046 |
| VERIFIED | Yes |
| TOTAL WORKS | 4 |
| TOTAL CITATIONS | 0 |
| AUTHOR COUNT | 4 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2013 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 0 |
This Disease Is a Verdict You Must Live With for the Rest of Your Life: Experiences and Perspectives From People Living With Adult-Onset Myotonic Dystrophy Type 1
Myotonic dystrophy type 1 (DM1) is a progressive, multisystemic neuromuscular disease. DM1 has a biopsychosocial impact, causing physical and cognitive impairment and limitations in activity and participation as well as having social consequences. The aim of our study was to investigate experiences of and perspectives on living and coping with adult-onset DM1 to inform future targeted rehabilitation services. We conducted semi-structured individu…
Challenges Faced by Women With Neuromuscular Diseases When Having to Urinate Away From Home
The aim of this study was to investigate the challenges women with neuromuscular disease face when having to urinate when away from home. The design for this study was qualitative using the interpretive description methodology and the Sense of Coherence theory. The method was three semi-structured focus group interviews with 12 women (3 ambulant and 9 non-ambulant) with neuromuscular diseases at a specialized rehabilitation hospital. We found tha…
Perspectives on Everyday Life Challenges of Danish Young People With Duchenne Muscular Dystrophy (DMD) on Corticosteroids
This study aimed to investigate perspectives on everyday life challenges of young persons with Duchenne muscular dystrophy in Denmark treated with corticosteroids perceived by young persons and their parents to improve rehabilitation interventions. Nineteen semi-structured interviews were conducted: 10 individual interviews with 10 persons with DMD and six individual interviews with parents (five mothers and one father) and three couple interview…
Fatigue in patients with spinal muscular atrophy type II and congenital myopathies: Evaluation of the fatigue severity scale
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Fatigue in patients with spinal muscular atrophy type II and congenital myopathies: Evaluation of the fatigue severity scale
Perspectives on Everyday Life Challenges of Danish Young People With Duchenne Muscular Dystrophy (DMD) on Corticosteroids
This study aimed to investigate perspectives on everyday life challenges of young persons with Duchenne muscular dystrophy in Denmark treated with corticosteroids perceived by young persons and their parents to improve rehabilitation interventions. Nineteen semi-structured interviews were conducted: 10 individual interviews with 10 persons with DMD and six individual interviews with parents (five mothers and one father) and three couple interview…
Challenges Faced by Women With Neuromuscular Diseases When Having to Urinate Away From Home
The aim of this study was to investigate the challenges women with neuromuscular disease face when having to urinate when away from home. The design for this study was qualitative using the interpretive description methodology and the Sense of Coherence theory. The method was three semi-structured focus group interviews with 12 women (3 ambulant and 9 non-ambulant) with neuromuscular diseases at a specialized rehabilitation hospital. We found tha…
This Disease Is a Verdict You Must Live With for the Rest of Your Life: Experiences and Perspectives From People Living With Adult-Onset Myotonic Dystrophy Type 1
Myotonic dystrophy type 1 (DM1) is a progressive, multisystemic neuromuscular disease. DM1 has a biopsychosocial impact, causing physical and cognitive impairment and limitations in activity and participation as well as having social consequences. The aim of our study was to investigate experiences of and perspectives on living and coping with adult-onset DM1 to inform future targeted rehabilitation services. We conducted semi-structured individu…
Medicine (4 works) · Psychology (3 works) · Disease (2 works) · Health, psychology, and well-being (2 works) · Physical therapy (2 works) · Sociology (2 works) · Adolescent and Pediatric Healthcare (1 works) · Biology (1 works) · Child Nutrition and Feeding Issues (1 works) · Childhood Cancer Survivors' Quality of Life (1 works)