Rowan Forbes Shepherd
Biographic Data
| ID | 328928 |
|---|---|
| NAME | Rowan Forbes Shepherd |
| GIVEN NAMES | Rowan Forbes |
| FAMILY NAME | Shepherd |
| SIGNATURE | SHEPHERD R F |
| AFFILIATIONS | Division of Cancer Epidemiology and Genetics |
| ORCID | 0000-0003-4510-0542 |
| VERIFIED | Yes |
| TOTAL WORKS | 5 |
| TOTAL CITATIONS | 2 |
| AUTHOR COUNT | 5 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2022 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 1 |
‘I told them they had to get tested, and they did’: Social influence among siblings with Li-Fraumeni syndrome
OBJECTIVES: Health-related social influence refers to individual efforts to change another person's health beliefs and/or behavior. We sought to understand perspectives on social influence among adult siblings in families with an inherited cancer syndrome, Li-Fraumeni Syndrome (LFS). DESIGN: = 29, aged 18-66, 2-3 siblings per group) enrolled in the NCI's LFS Study. MAIN OUTCOME MEASURES: A semi-structured interview guide included questions target…
Relational Aspects to Screening-Associated Distress Among Individuals With Li-Fraumeni Syndrome: The All-Clear for Me Is Good. The All-Clear for My Kids Is Great
Screening-associated distress, or "scanxiety," is a recognized challenge for individuals at risk of cancer diagnosis or recurrence, particularly for those with Li-Fraumeni syndrome (LFS), a cancer predisposition syndrome with high lifetime cancer risks. Despite the benefits of early detection, individuals with LFS report emotional and logistical burdens associated with intense screening. Existing research lacks a relational perspective on how dis…
A “rotating menu” of medical uncertainty for families affected by telomere biology disorders: A qualitative interview study
Background: Medical uncertainty may cause distress and challenge medical decision-making for patients with rare diseases and their caregivers. Few studies have examined the experience and management of medical uncertainty in rare disease and the dynamics of multiple medical uncertainty sources, issues, and management strategies. Objective: We explored the experience and management of uncertainty in individuals with telomere biology disorders (TBD…
Reproduction and Genetic Responsibility: An Interpretive Description of Reproductive Decision-Making for Young People With Li-Fraumeni Syndrome
The reproductive decision-making of young people (aged 15–39 years) with Li-Fraumeni syndrome (LFS), an early onset inherited cancer syndrome, has not been studied in depth. Using interpretive description methodology, we conducted semi-structured interviews with 30 young Australians (mean age 25.5 years) diagnosed with LFS or at 50% genetic risk. With reflexive thematic analysis, we show how young people’s reproductive decision-making and ideals …
Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body
Reproduction and Genetic Responsibility: An Interpretive Description of Reproductive Decision-Making for Young People With Li-Fraumeni Syndrome
The reproductive decision-making of young people (aged 15–39 years) with Li-Fraumeni syndrome (LFS), an early onset inherited cancer syndrome, has not been studied in depth. Using interpretive description methodology, we conducted semi-structured interviews with 30 young Australians (mean age 25.5 years) diagnosed with LFS or at 50% genetic risk. With reflexive thematic analysis, we show how young people’s reproductive decision-making and ideals …
Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body
A “rotating menu” of medical uncertainty for families affected by telomere biology disorders: A qualitative interview study
Background: Medical uncertainty may cause distress and challenge medical decision-making for patients with rare diseases and their caregivers. Few studies have examined the experience and management of medical uncertainty in rare disease and the dynamics of multiple medical uncertainty sources, issues, and management strategies. Objective: We explored the experience and management of uncertainty in individuals with telomere biology disorders (TBD…
‘I told them they had to get tested, and they did’: Social influence among siblings with Li-Fraumeni syndrome
OBJECTIVES: Health-related social influence refers to individual efforts to change another person's health beliefs and/or behavior. We sought to understand perspectives on social influence among adult siblings in families with an inherited cancer syndrome, Li-Fraumeni Syndrome (LFS). DESIGN: = 29, aged 18-66, 2-3 siblings per group) enrolled in the NCI's LFS Study. MAIN OUTCOME MEASURES: A semi-structured interview guide included questions target…
Relational Aspects to Screening-Associated Distress Among Individuals With Li-Fraumeni Syndrome: The All-Clear for Me Is Good. The All-Clear for My Kids Is Great
Screening-associated distress, or "scanxiety," is a recognized challenge for individuals at risk of cancer diagnosis or recurrence, particularly for those with Li-Fraumeni syndrome (LFS), a cancer predisposition syndrome with high lifetime cancer risks. Despite the benefits of early detection, individuals with LFS report emotional and logistical burdens associated with intense screening. Existing research lacks a relational perspective on how dis…
BRCA gene mutations in cancer (4 works) · Psychology (4 works) · Qualitative research (4 works) · Biology (3 works) · Developmental psychology (3 works) · Epigenetics and DNA Methylation (3 works) · Genetics (3 works) · Sociology (3 works) · Cancer-related Molecular Pathways (2 works) · Germline mutation (2 works)