Phoebe Friesen
Dados Biográficos
| ID | 329839 |
|---|---|
| NOME | Phoebe Friesen |
| PRENOMES | Phoebe |
| SOBRENOME | Friesen |
| ASSINATURA | FRIESEN P |
| AFILIAÇÕES | McGill University |
| ORCID | 0000-0002-1529-916X |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 18 |
| TOTAL DE CITAÇÕES | 14 |
| TOTAL COMO AUTOR | 18 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2019 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 3 |
Why Should People with Lived Experience Be Included in the DSM Revision Process
Increasingly, scholars and advocates are recognizing the importance of including individuals with lived experience of mental health issues in the development of psychiatric research and policy. Here, we hope to contribute to discussions regarding the specific context of the Diagnostic and Statistical Manual of Mental Disorders (DSM) revision process. We argue that this process is not inclusive enough, but also that those who have advocated for be…
Community-led approaches to research governance
Around the world, a growing number of communities are voicing their demands for authority in the governance of research involving them. Many such communities have experienced histories of exploitative, stigmatizing, intrusive research that failed to benefit them. To better understand what strategies communities are developing in order to have a say in research oversight, we conducted a scoping review of the international peer-reviewed and grey li…
Persons or data points? Ethics, artificial intelligence, and the participatory turn in mental health research
This article identifies and examines a tension in mental health researchers' growing enthusiasm for the use of computational tools powered by advances in artificial intelligence and machine learning (AI/ML). Although there is increasing recognition of the value of participatory methods in science generally and in mental health research specifically, many AI/ML approaches, fueled by an ever-growing number of sensors collecting multimodal data, ris…
“It’s All in Your Head”
In this contribution, we examine three stories of beneficent deception in medicine: the placebo machine invites children with treatment-resistant disorders to enter a high-tech machine and let their brains heal themselves; dementia villages extend validation therapy to the lived environment of geriatric care, supporting the illusion of living in the past through architecture; provocative testing relies on tricking patients suspected of fakery int…
Misdirection in Global Health
Consent for Intimate Exams on Unconscious Patients
The practice of nonconsensual intimate exams performed on unconscious patients by medical students during their training has received significant attention in the last several years. Clinicians, medical students, bioethicists, lawyers, and the public have called for explicit and specific consent to take place before all educational intimate examinations of unconscious patients. In response, since January of 2019, dozens of bills have been propose…
Protecting the Vulnerable and Including the Under-Represented
Since their inception, Institutional Review Boards (IRBs) have been charged with protecting the vulnerable in research. More recently, attention has turned to whether IRBs also have a role to play in ensuring representative study samples and promoting the inclusion of historically under-represented groups. These two aims-protecting the vulnerable and including the under-represented-can pull in different directions, given the potential for overlap…
Standpoint Theory and the Psy Sciences
As participatory research practices are increasingly taken up in health research, claims related to experiential authority and expertise are frequently made. Here, in an exploration of what grounds such claims, we consider how feminist standpoint theory might apply to the psy sciences (psychiatry, psychology, psychotherapy, psychoanalysis, and so on). Standpoint theory claims that experiences of marginalization and critical engagement can lead to…
Psychosis and psychedelics
Experiences of psychedelics and psychosis were deeply entangled in scientific practices in the mid-20th century, from uses of psychedelic drugs that could model psychosis, to detailed phenomenological comparisons of endogenous and drug-induced madness. After the moral panic of the 1960s shut down psychedelic research, however, these two phenomena became disentangled. In the decades following, the science of psychosis transformed, shedding the lan…
Trust, trustworthiness and sharing patient data for research
When it comes to using patient data from the National Health Service (NHS) for research, we are often told that it is a matter of trust: we need to trust, we need to build trust, we need to restore trust. Various policy papers and reports articulate and develop these ideas and make very important contributions to public dialogue on the trustworthiness of our research institutions. But these documents and policies are apparently constructed with l…
Public involvement in the governance of population-level biomedical research
Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 exper…
Pain, placebo, and cognitive penetration
There is compelling evidence that pain experience is influenced by cognitive states. We explore one specific form of such influence, namely placebo analgesia, and examine its relevance for the cognitive penetration debate in philosophy of mind. We single out as important a form of influence on experience that we term radical cognitive penetration, and argue that some cases of placebo analgesia constitute compelling instances of this phenomenon. S…
Mind the Gaps
Well before the Covid‐19 pandemic, proponents of digital psychiatry were touting the promise of various digital tools and techniques to revolutionize mental health care. As social distancing and its knock‐on effects have strained existing mental health infrastructures, calls have grown louder for implementing various digital mental health solutions at scale. Decisions made today will shape the future of mental health care for the foreseeable futu…
Measuring the impact of participatory research in psychiatry
Birthing Alone
During the COVID-19 pandemic, several hospitals implemented “birthing alone” policies, banning companions (e.g., partners, family members, doulas) from accompanying individuals giving birth. We offer an ethical analysis of these policies. First, we examine them through a consequentialist framework of risks and benefits. Second, we consider the significance of birth, highlighting the unique ways in which risks, relationships, and rights are unders…
Medically Assisted Dying and Suicide
The practice of medically assisted dying has long been contentious, and the question of what to call it has become increasingly contentious as well. Particularly among U.S. proponents of legalizing the practice, there has been a growing push away from calling it “physician‐assisted suicide,” with assertions that medically assisted dying is fundamentally different from suicide. Digging deeper into this claim about difference leads to an examinatio…
Experiences of Parachute NYC
Mesmer, the placebo effect, and the efficacy paradox
Drawing on Isabelle Stengers’ discussion of the investigation of Mesmer and the starring role that experimentation plays in the rationality of modern medicine, this paper examines longstanding tensions between the realms of evidence based medicine and complementary and alternative medicine. While evidence based medicine often claims the ability to demarcate between pseudoscience and science, and complementary and alternative medicine often claims…
Experiences of Parachute NYC
Standpoint Theory and the Psy Sciences
As participatory research practices are increasingly taken up in health research, claims related to experiential authority and expertise are frequently made. Here, in an exploration of what grounds such claims, we consider how feminist standpoint theory might apply to the psy sciences (psychiatry, psychology, psychotherapy, psychoanalysis, and so on). Standpoint theory claims that experiences of marginalization and critical engagement can lead to…
Protecting the Vulnerable and Including the Under-Represented
Since their inception, Institutional Review Boards (IRBs) have been charged with protecting the vulnerable in research. More recently, attention has turned to whether IRBs also have a role to play in ensuring representative study samples and promoting the inclusion of historically under-represented groups. These two aims-protecting the vulnerable and including the under-represented-can pull in different directions, given the potential for overlap…
Psychosis and psychedelics
Experiences of psychedelics and psychosis were deeply entangled in scientific practices in the mid-20th century, from uses of psychedelic drugs that could model psychosis, to detailed phenomenological comparisons of endogenous and drug-induced madness. After the moral panic of the 1960s shut down psychedelic research, however, these two phenomena became disentangled. In the decades following, the science of psychosis transformed, shedding the lan…
Mesmer, the placebo effect, and the efficacy paradox
Drawing on Isabelle Stengers’ discussion of the investigation of Mesmer and the starring role that experimentation plays in the rationality of modern medicine, this paper examines longstanding tensions between the realms of evidence based medicine and complementary and alternative medicine. While evidence based medicine often claims the ability to demarcate between pseudoscience and science, and complementary and alternative medicine often claims…
Medically Assisted Dying and Suicide
The practice of medically assisted dying has long been contentious, and the question of what to call it has become increasingly contentious as well. Particularly among U.S. proponents of legalizing the practice, there has been a growing push away from calling it “physician‐assisted suicide,” with assertions that medically assisted dying is fundamentally different from suicide. Digging deeper into this claim about difference leads to an examinatio…
Experiences of Parachute NYC
Trust, trustworthiness and sharing patient data for research
When it comes to using patient data from the National Health Service (NHS) for research, we are often told that it is a matter of trust: we need to trust, we need to build trust, we need to restore trust. Various policy papers and reports articulate and develop these ideas and make very important contributions to public dialogue on the trustworthiness of our research institutions. But these documents and policies are apparently constructed with l…
Public involvement in the governance of population-level biomedical research
Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 exper…
Pain, placebo, and cognitive penetration
There is compelling evidence that pain experience is influenced by cognitive states. We explore one specific form of such influence, namely placebo analgesia, and examine its relevance for the cognitive penetration debate in philosophy of mind. We single out as important a form of influence on experience that we term radical cognitive penetration, and argue that some cases of placebo analgesia constitute compelling instances of this phenomenon. S…
Mind the Gaps
Well before the Covid‐19 pandemic, proponents of digital psychiatry were touting the promise of various digital tools and techniques to revolutionize mental health care. As social distancing and its knock‐on effects have strained existing mental health infrastructures, calls have grown louder for implementing various digital mental health solutions at scale. Decisions made today will shape the future of mental health care for the foreseeable futu…
Measuring the impact of participatory research in psychiatry
Birthing Alone
During the COVID-19 pandemic, several hospitals implemented “birthing alone” policies, banning companions (e.g., partners, family members, doulas) from accompanying individuals giving birth. We offer an ethical analysis of these policies. First, we examine them through a consequentialist framework of risks and benefits. Second, we consider the significance of birth, highlighting the unique ways in which risks, relationships, and rights are unders…
“It’s All in Your Head”
In this contribution, we examine three stories of beneficent deception in medicine: the placebo machine invites children with treatment-resistant disorders to enter a high-tech machine and let their brains heal themselves; dementia villages extend validation therapy to the lived environment of geriatric care, supporting the illusion of living in the past through architecture; provocative testing relies on tricking patients suspected of fakery int…
Misdirection in Global Health
Consent for Intimate Exams on Unconscious Patients
The practice of nonconsensual intimate exams performed on unconscious patients by medical students during their training has received significant attention in the last several years. Clinicians, medical students, bioethicists, lawyers, and the public have called for explicit and specific consent to take place before all educational intimate examinations of unconscious patients. In response, since January of 2019, dozens of bills have been propose…
Protecting the Vulnerable and Including the Under-Represented
Since their inception, Institutional Review Boards (IRBs) have been charged with protecting the vulnerable in research. More recently, attention has turned to whether IRBs also have a role to play in ensuring representative study samples and promoting the inclusion of historically under-represented groups. These two aims-protecting the vulnerable and including the under-represented-can pull in different directions, given the potential for overlap…
Standpoint Theory and the Psy Sciences
As participatory research practices are increasingly taken up in health research, claims related to experiential authority and expertise are frequently made. Here, in an exploration of what grounds such claims, we consider how feminist standpoint theory might apply to the psy sciences (psychiatry, psychology, psychotherapy, psychoanalysis, and so on). Standpoint theory claims that experiences of marginalization and critical engagement can lead to…
Psychosis and psychedelics
Experiences of psychedelics and psychosis were deeply entangled in scientific practices in the mid-20th century, from uses of psychedelic drugs that could model psychosis, to detailed phenomenological comparisons of endogenous and drug-induced madness. After the moral panic of the 1960s shut down psychedelic research, however, these two phenomena became disentangled. In the decades following, the science of psychosis transformed, shedding the lan…
Persons or data points? Ethics, artificial intelligence, and the participatory turn in mental health research
This article identifies and examines a tension in mental health researchers' growing enthusiasm for the use of computational tools powered by advances in artificial intelligence and machine learning (AI/ML). Although there is increasing recognition of the value of participatory methods in science generally and in mental health research specifically, many AI/ML approaches, fueled by an ever-growing number of sensors collecting multimodal data, ris…
Community-led approaches to research governance
Around the world, a growing number of communities are voicing their demands for authority in the governance of research involving them. Many such communities have experienced histories of exploitative, stigmatizing, intrusive research that failed to benefit them. To better understand what strategies communities are developing in order to have a say in research oversight, we conducted a scoping review of the international peer-reviewed and grey li…
Why Should People with Lived Experience Be Included in the DSM Revision Process
Increasingly, scholars and advocates are recognizing the importance of including individuals with lived experience of mental health issues in the development of psychiatric research and policy. Here, we hope to contribute to discussions regarding the specific context of the Diagnostic and Statistical Manual of Mental Disorders (DSM) revision process. We argue that this process is not inclusive enough, but also that those who have advocated for be…
Medicine (13 obras) · Psychology (12 obras) · Political science (10 obras) · Law (8 obras) · Epistemology (6 obras) · Sociology (6 obras) · Philosophy (5 obras) · Psychiatry (5 obras) · Public relations (5 obras) · Social Psychology (5 obras)