Caroline Sanders
Datos Biográficos
| ID | 3581960 |
|---|---|
| NOMBRE | Caroline Sanders |
| NOMBRES | Caroline |
| APELLIDO | Sanders |
| FIRMA | SANDERS C |
| AFILIACIONES | University of Manchester |
| ORCID | 0000-0002-0539-928X |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 38 |
| TOTAL DE CITAS | 131 |
| TOTAL COMO AUTOR | 38 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2002 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 5 |
Insecure housing amongst forcibly displaced Ukrainian women in England
The ‘Homes for Ukraine’ (H4U) and Ukrainian Family visa schemes facilitated forcibly displaced Ukrainian nationals to enter England from March 2022. Despite accommodation provision implied in the H4U scheme name, barriers in accessing long-term housing have been a prominent stressor for many arrivals. Some have found themselves in insecure housing upon transitioning out of initial placements. Drawing on repeat interviews with 19 forcibly displace…
Empowerment or Exclusion? Exploring perspectives on health data sharing through the lens of marginalisation and inequality
Towards an Inclusive Research Framework for People Experiencing Homelessness
Individuals experiencing homelessness face significant health inequalities. They are often met with stigma and exclusion in everyday life, including in health and social care settings. As a result of this marginalisation, homeless populations can be unfairly labelled as ‘hard to reach’ and misrepresented in research. Public health research increasingly aims to address health inequalities by engaging vulnerable and excluded groups in the research …
Understanding patient lived experiences of hospital admission and aftercare following Acute Kidney Injury
Acute kidney injury (AKI) is a common, harmful and costly clinical syndrome with high rates of unplanned readmissions and poor long-term health outcomes. Recent understandings, expounded in the concept of 'Lifeworld', place the healthcare needs of patients within the wider context of their lives. We aimed to explore patients' lived experience of care following an AKI and healthcare professionals perspectives of the management of AKI and relationa…
Mapping Variation in Delivery Models and Data Recording of Primary Care Social Prescribing Link Worker (SPLW) Schemes Across Five Regions in England and Scotland
Social prescribing link workers (SPLWs) connect people to community resources for better health and well‐being. Over the past decade, SPLW schemes have expanded rapidly in NHS primary care in England and Scotland. However, how these schemes have been implemented and assessed in different parts of England and Scotland is not well understood. A mapping exercise of SPLW schemes in three English and two Scottish regions was undertaken to identify ser…
Day-to-day life during the Covid-19 pandemic
The COVID-19 pandemic brought about changes to the lives of families with young children. It has been associated with physical and psychological risk, yet the impact on younger children is poorly examined. The aim of this qualitative study was to examine how the COVID-19 pandemic impacted the day-to-day life of parents of young children living in a small northern city in British Columbia, Canada. Ten mothers with children aged 0–5 years participa…
Exploring the experiences and preferences of South Asian patients' of primary care in England since Covid‐19
INTRODUCTION: Remote (digital and/or telephone) access and consultation models are being driven by national policy with the goal being that the National Health Service operate on a remote-first (digital-first) basis by 2029. Previous research has suggested that remote methods of access to care and consulting may act to widen health inequalities for certain patients and/or groups such as those from ethnic minorities. South Asian (SA) patients comp…
Marginalisation and distrust in the context of the Covid-19 vaccination programme
Histories of structural inequalities experienced by minoritised groups invoked feelings of suspicion and scepticism at the motivations of the agencies behind the vaccination rollout. This highlights the need for a contextualised analysis of attitudes to vaccines, considering pre-existing inequalities, which may be especially relevant for conceptualising public responses to the vaccination programme. Finally, our study shows the important ways in …
There’s not a lot of places for them to go’
Children's independent mobility (CIM) is the freedom of children to move around their neighbourhood or community without adult supervision. The aim of this study was to explore experiences with CIM from the perspectives of children and their parents living in rural and remote areas of British Columbia, Canada. Semi-structured interviews were conducted with 21 parent–child dyads or triads (45 participants). Child participants aged 7–12 were invite…
The perceptions of general practice among Central and Eastern Europeans in the United Kingdom
BACKGROUND: Around 2 million people have migrated from Central and Eastern Europe to the UK since 2004. The UK Central and Eastern European Community (UK-CEE) are disproportionately exposed to the social determinants of poor physical and mental health. Their health and healthcare beliefs remain under-researched, particularly regarding primary care. OBJECTIVE: This review explores UK-CEE community members' use and perceptions of UK general practic…
Compassionate connections, supported communities, planning for future generations
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)The IJIC 20th Anniversary Issue was published in 2021
Care transitions across the lifespan for Canadians with sex variations
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)The IJIC 20th Anniversary Issue was published in 2021
What mental health supports do people with intersex variations want, and when? Person-centred trauma-informed lifecycle care
Several large-scale surveys around the world show the most frequently reported mental health diagnoses among people with intersex variations include depression, anxiety and PTSD. Wellbeing risks are also high, with individuals with intersex variations citing suicidal thoughts or attempts across their life-course – specifically on the basis of issues related to having congenital sex variations. The population mostly attributed their wellbeing risk…
On the borderline of diabetes
Medical sociologists highlight diagnosis as a critical moment in understanding the illness experience and have extended analysis to the growing focus on ‘predisease states’ in relation to policy and medical practice. The biomedicalisation of diabetes risk, labelled as ‘prediabetes’, is one predisease area Public Health England have prioritised via the roll-out of a national diabetes prevention programme (NDPP). The label and language of prediabet…
A review of menstrual sex education and management in women with congenital adrenal hyperplasia
Congenital adrenal hyperplasia (CAH) encompasses a range of autosomal recessive inherited enzyme deficiencies that impact cortisol biosynthesis pathways. Although reported as a rare and lifelong disorder, it holds chronic health risks for individuals that can influence menstruation. The purpose of this environmental scan and integrative literature review was to identify health information pertinent to CAH and menstruation in order to inform healt…
Children’s Independent Mobility and Physical Activity during the Covid-19 Pandemic
Children's independent mobility (CIM) is the freedom of children to move around their neighbourhood without adult supervision and is closely related to overall physical activity participation. The COVID-19 pandemic has impacted movement behaviours for children, with evidence indicating a decrease in physical activity. The aim of this study was to explore experiences of CIM and physical activity during the COVID-19 pandemic from the perspectives o…
Exploring the experiences of changes to support access to primary health care services and the impact on the quality and safety of care for homeless people during the Covid-19 pandemic
It is important to explore whether recent changes to the delivery of primary care in response to the COVID-19 pandemic compromise the safety of people experiencing homelessness and exacerbate health inequalities. This could have implications for how primary healthcare is delivered to those experiencing homelessness not only for the duration of the pandemic but in the future
Exploring engagement with digital screens for collecting patient feedback in clinical waiting rooms
Health service settings are increasingly installing digital devices to enable people to engage digitally with multiple processes, including automated 'check-in', as well as collecting feedback on experiences of care. In addition, policy is increasingly driving digital agendas to promote patient engagement with online services, management of health records and routine monitoring. While this tendency towards widespread digital diffusion has been vi…
Patient safety in marginalised groups
Not applicable for a scoping review
Enacting person‐centredness in integrated care
BACKGROUND: Person-centredness is important in delivering care for long-term conditions. New models of care aim to co-ordinate care through integration of health and social care which require new ways of working, often remotely from the patient. OBJECTIVE: To describe how person-centred care is enacted within multidisciplinary groups (MDGs) created as part of a new service, integrating health and social care for older people. METHODS: We followed…
Empowering people to help speak up about safety in primary care
BACKGROUND: Multimorbidity, defined as the presence of two or more long-term conditions, is increasingly common in primary care, and patients with multimorbidity may face particular barriers to quality of care and increased safety risks due to the complexity of managing multiple conditions. Consistent with calls to directly involve service users in improving care, we aimed to use design materials to codesign new interventions to improve safety in…
Is it time to abandon care planning in mental health services? A qualitative study exploring the views of professionals, service users and carers
BACKGROUND: It has been established that mental health-care planning does not adequately respond to the needs of those accessing services. Understanding the reasons for this and identifying whose needs care plans serve requires an exploration of the perspectives of service users, carers and professionals within the wider organizational context. OBJECTIVE: To explore the current operationalization of care planning and perceptions of its function w…
Accessing support and empowerment online
CONTEXT: The use of the internet for health information by those with long-term conditions is growing. It has been argued that this represents a form of empowerment by patients, as it enables them to control the content and flow of the information available to them. To explore this, the use of online discussion groups by those with diabetes was examined. METHOD: Semi-structured interviews were conducted with 21 participants with type 1 and 2 diab…
Evolving ‘self’‐management
BACKGROUND: Whilst there has been a focus on the importance of social support for managing long-term conditions, there has been little specific focus on the characteristics of social networks that shape self-management. Policy emphasis is placed on individual responsibility for self-care, and this influences commissioning of health-care services. Assumptions are often made by policymakers about accessibility and preference for support and the inf…
Trust, temporality and systems
INTRODUCTION: Patient safety research has tended to focus on hospital settings, although most clinical encounters occur in primary care, and to emphasize practitioner errors, rather than patients' own understandings of safety. OBJECTIVE: To explore patients' understandings of safety in primary care. METHODS: Qualitative interviews were conducted with patients recruited from general practices in northwest England. Participants were asked basic soc…
The significance and consequences of having painful and disabled joints in older age
This paper examines the meanings of symptoms for people with osteoarthritis. The study comprised 27 in-depth interviews with men and women aged between 51 and 91 years (median age = 76) and draws on previous sociological work about experiences of chronic illness, disability and ageing. In particular, the distinction proposed by Bury between 'meaning as significance' (the significance and connotations associated with illness) and 'meaning as conse…
Re-thinking the relationship between long-term condition self-management education and the utilisation of health services
Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions
Informal carers make a significant contribution to illness management in communities, but many struggle to access support and remain 'hidden carers'. We aimed to explore how carers of people with common long-term conditions (LTCs, such as coronary heart disease or kidney disease) conceptualised their caring, and whether they struggled to identify themselves with the term 'carer' or access for support. We conducted semi-structured interviews with …
Sensemaking and the co-production of safety
This study explores the ways in which patients make sense of 'safety' in the context of primary medical care. Drawing on qualitative interviews with primary care patients, we reveal patients' conceptualisation of safety as fluid, contingent, multi-dimensional, and negotiated. Participant accounts drew attention to a largely invisible and inaccessible (but taken for granted) architecture of safety, the importance of psycho-social as well as physic…
Professional status in a changing world
You get to know the people and whether they're talking sense or not
The internet is increasingly being used as a source of health advice and information by individuals with long term conditions (LTCs). Specifically, online forums allow people to interact with others with similar conditions. However, it is not clear how online health information is assessed by those with LTCs. This study aims to address this gap by exploring how individuals with contested and uncontested LTCs utilise internet forums. Semi-structur…
A Constellation of Misfortune
Quantitative studies have drawn attention to the patterning of health inequalities in relation to subjective social status (SSS). There is currently little insight into the complexities of the social and biographical aspects that lie behind these findings. Narrative accounts were gathered in a mixed-methods study involving a population of people with coronary heart disease (CHD) and/or diabetes in a region of the United Kingdom with above average…
Planning for end of life care within lay-led chronic illness self-management training
The significance and consequences of having painful and disabled joints in older age
This paper examines the meanings of symptoms for people with osteoarthritis. The study comprised 27 in-depth interviews with men and women aged between 51 and 91 years (median age = 76) and draws on previous sociological work about experiences of chronic illness, disability and ageing. In particular, the distinction proposed by Bury between 'meaning as significance' (the significance and connotations associated with illness) and 'meaning as conse…
Re-thinking the relationship between long-term condition self-management education and the utilisation of health services
Planning for end of life care within lay-led chronic illness self-management training
Professional status in a changing world
The role of information in supporting self-care in vascular conditions
Self-care has the potential to make a significant contribution to vascular conditions, but engagement with self-care support has been limited. Lack of relevant information is highlighted by patients and policy-makers as an important barrier to effective self-care, and information provides a potentially efficient platform for changing behaviour. However, work within the social sciences has generally seen information as a necessary but insufficient…
The mediation of social influences on smoking cessation and awareness of the early signs of lung cancer
We suggest that future smoking cessation and lung cancer awareness campaigns could usefully capitalise on the influence of close social networks, and would benefit from taking a 'softer' approach
How potentially serious symptom changes are talked about and managed in COPD clinical review consultations
A Constellation of Misfortune
Quantitative studies have drawn attention to the patterning of health inequalities in relation to subjective social status (SSS). There is currently little insight into the complexities of the social and biographical aspects that lie behind these findings. Narrative accounts were gathered in a mixed-methods study involving a population of people with coronary heart disease (CHD) and/or diabetes in a region of the United Kingdom with above average…
‘You don't get told anything, they don't do anything and nothing changes’. Medicine as a resource and constraint in progressive ataxia
BACKGROUND: Progressive ataxias are neurological disorders affecting balance, co-ordination of movement and speech. OBJECTIVE: A qualitative study was undertaken to discover patients' experiences of ataxia and its symptoms. PARTICIPANTS: Thirty-eight people with ataxia recruited from patient support groups and two hospital outpatients departments. DESIGN: Cross-sectional qualitative study with thematic analysis. RESULTS: These accounts highlight …
Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions
Informal carers make a significant contribution to illness management in communities, but many struggle to access support and remain 'hidden carers'. We aimed to explore how carers of people with common long-term conditions (LTCs, such as coronary heart disease or kidney disease) conceptualised their caring, and whether they struggled to identify themselves with the term 'carer' or access for support. We conducted semi-structured interviews with …
Evolving ‘self’‐management
BACKGROUND: Whilst there has been a focus on the importance of social support for managing long-term conditions, there has been little specific focus on the characteristics of social networks that shape self-management. Policy emphasis is placed on individual responsibility for self-care, and this influences commissioning of health-care services. Assumptions are often made by policymakers about accessibility and preference for support and the inf…
Trust, temporality and systems
INTRODUCTION: Patient safety research has tended to focus on hospital settings, although most clinical encounters occur in primary care, and to emphasize practitioner errors, rather than patients' own understandings of safety. OBJECTIVE: To explore patients' understandings of safety in primary care. METHODS: Qualitative interviews were conducted with patients recruited from general practices in northwest England. Participants were asked basic soc…
Personal recovery in personality disorder
You get to know the people and whether they're talking sense or not
The internet is increasingly being used as a source of health advice and information by individuals with long term conditions (LTCs). Specifically, online forums allow people to interact with others with similar conditions. However, it is not clear how online health information is assessed by those with LTCs. This study aims to address this gap by exploring how individuals with contested and uncontested LTCs utilise internet forums. Semi-structur…
Sensemaking and the co-production of safety
This study explores the ways in which patients make sense of 'safety' in the context of primary medical care. Drawing on qualitative interviews with primary care patients, we reveal patients' conceptualisation of safety as fluid, contingent, multi-dimensional, and negotiated. Participant accounts drew attention to a largely invisible and inaccessible (but taken for granted) architecture of safety, the importance of psycho-social as well as physic…
Accessing support and empowerment online
CONTEXT: The use of the internet for health information by those with long-term conditions is growing. It has been argued that this represents a form of empowerment by patients, as it enables them to control the content and flow of the information available to them. To explore this, the use of online discussion groups by those with diabetes was examined. METHOD: Semi-structured interviews were conducted with 21 participants with type 1 and 2 diab…
Enacting person‐centredness in integrated care
BACKGROUND: Person-centredness is important in delivering care for long-term conditions. New models of care aim to co-ordinate care through integration of health and social care which require new ways of working, often remotely from the patient. OBJECTIVE: To describe how person-centred care is enacted within multidisciplinary groups (MDGs) created as part of a new service, integrating health and social care for older people. METHODS: We followed…
Empowering people to help speak up about safety in primary care
BACKGROUND: Multimorbidity, defined as the presence of two or more long-term conditions, is increasingly common in primary care, and patients with multimorbidity may face particular barriers to quality of care and increased safety risks due to the complexity of managing multiple conditions. Consistent with calls to directly involve service users in improving care, we aimed to use design materials to codesign new interventions to improve safety in…
Is it time to abandon care planning in mental health services? A qualitative study exploring the views of professionals, service users and carers
BACKGROUND: It has been established that mental health-care planning does not adequately respond to the needs of those accessing services. Understanding the reasons for this and identifying whose needs care plans serve requires an exploration of the perspectives of service users, carers and professionals within the wider organizational context. OBJECTIVE: To explore the current operationalization of care planning and perceptions of its function w…
Patient safety in marginalised groups
Not applicable for a scoping review
What mental health supports do people with intersex variations want, and when? Person-centred trauma-informed lifecycle care
Several large-scale surveys around the world show the most frequently reported mental health diagnoses among people with intersex variations include depression, anxiety and PTSD. Wellbeing risks are also high, with individuals with intersex variations citing suicidal thoughts or attempts across their life-course – specifically on the basis of issues related to having congenital sex variations. The population mostly attributed their wellbeing risk…
On the borderline of diabetes
Medical sociologists highlight diagnosis as a critical moment in understanding the illness experience and have extended analysis to the growing focus on ‘predisease states’ in relation to policy and medical practice. The biomedicalisation of diabetes risk, labelled as ‘prediabetes’, is one predisease area Public Health England have prioritised via the roll-out of a national diabetes prevention programme (NDPP). The label and language of prediabet…
A review of menstrual sex education and management in women with congenital adrenal hyperplasia
Congenital adrenal hyperplasia (CAH) encompasses a range of autosomal recessive inherited enzyme deficiencies that impact cortisol biosynthesis pathways. Although reported as a rare and lifelong disorder, it holds chronic health risks for individuals that can influence menstruation. The purpose of this environmental scan and integrative literature review was to identify health information pertinent to CAH and menstruation in order to inform healt…
Children’s Independent Mobility and Physical Activity during the Covid-19 Pandemic
Children's independent mobility (CIM) is the freedom of children to move around their neighbourhood without adult supervision and is closely related to overall physical activity participation. The COVID-19 pandemic has impacted movement behaviours for children, with evidence indicating a decrease in physical activity. The aim of this study was to explore experiences of CIM and physical activity during the COVID-19 pandemic from the perspectives o…
Exploring the experiences of changes to support access to primary health care services and the impact on the quality and safety of care for homeless people during the Covid-19 pandemic
It is important to explore whether recent changes to the delivery of primary care in response to the COVID-19 pandemic compromise the safety of people experiencing homelessness and exacerbate health inequalities. This could have implications for how primary healthcare is delivered to those experiencing homelessness not only for the duration of the pandemic but in the future
Psychology (29 obras) · Medicine (27 obras) · Sociology (24 obras) · Qualitative research (22 obras) · Nursing (19 obras) · Health care (15 obras) · Political science (15 obras) · Social Psychology (11 obras) · Public relations (10 obras) · Thematic analysis (10 obras)