Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Rachel Collins

Biographic Data

ID3582068
NAMERachel Collins
GIVEN NAMESRachel
FAMILY NAMECollins
SIGNATURECOLLINS R
AFFILIATIONSUniversity of Exeter
ORCID0000-0002-3405-7932
VERIFIEDYes
TOTAL WORKS15
TOTAL CITATIONS15
AUTHOR COUNT15
EDITOR COUNT0
FIRST PUBLICATION YEAR2019
LATEST PUBLICATION YEAR2026
H-INDEX3
  • Applying adaptive research methods to explore health literacy in young people with intellectual disability

    Open Access•Thom Nevill, Jessica Keeley et al.•ARTICLE•Health Promotion International•2026

    Young people with intellectual disability experience higher risks for chronic health conditions than their peers. Improving their health literacy could be a strengths-based approach for reducing these risks. However, there is limited research that explores the perspectives of young people with intellectual disability on their health literacy. Given the limited research centring on the voice of young people with intellectual disability, this study…

  • What I Wish I Had Known

    Open Access•Thom Nevill, Jessica Keely et al.•ARTICLE•Health Expectations•2025

    BACKGROUND: Appropriate support for the health of children with an intellectual disability by parents and healthcare professionals is pivotal, given the high risk of chronic conditions. However, there is limited research that has collected important insights from parents on their learnings for supporting their child's evolving healthcare needs. AIM: This study focuses on parents' experiences and learnings from managing and supporting the health o…

  • From Displaced to Misplaced

    Jessica P Fefer, Jeffrey C Hallo et al.•ARTICLE•Leisure Sciences•2024•Cited by: 2•References: 30

    This article reports on recreationists’ response to being displaced from their recreation destination or activity. Displacement occurs when visitors leave a site or change activities in response to an unacceptable or adverse change in social, managerial or resource conditions. Specifically, displacement as a response to crowding is examined using a blended analysis of qualitative and quantitative data at Delaware Water Gap National Recreation Are…

  • Living with dementia during the Covid-19 pandemic

    Open Access•Stapley, Claire Pentecost et al.•ARTICLE•Ageing and Society•2024•References: 68

    The continuing COVID-19 pandemic and social restrictions have impacted on the cognitive decline and mental health of people with dementia. Social isolation and loss of activities due to social restrictions may also have implications as to sense of identity for people with dementia. As part of the INCLUDE (Identifying and Mitigating the Individual and Dyadic Impact of COVID-19 and Life Under Physical Distancing on People with Dementia and Carers) …

  • What does feeling younger or older than one’s chronological age mean to men and women? Qualitative and quantitative findings from the PROTECT study

    Open Access•Serena Sabatini, Obioha C Ukoumunne et al.•ARTICLE•Psychology & Health•2023

    OBJECTIVE: We explored which factors are associated with subjective age (SA), i.e. feeling younger, the same as, or older than one's chronological age, and whether these factors differ between men and women and between two age sub-groups. DESIGN: Cross-sectional study using qualitative and quantitative data for 1457 individuals (mean age= 67.2 years). MAIN OUTCOME MEASURES: Participants reported how old they feel they are and provided comments in…

  • Provision of Outdoor Nature-Based Activity for Older People with Cognitive Impairment

    Open Access•Rachel Collins, Steve Owens et al.•ARTICLE•Health & Social Care in the…•2023

    The health and well-being benefits of outdoor nature-based activity are increasingly recognised, but older people with cognitive impairment face significant barriers to access. The ENLIVEN project aims to promote access by gathering evidence and coproducing guidance for activity providers. As part of this project, we conducted a scoping review to characterise the types of outdoor nature-based activity for older people with dementia and other form…

  • Navigating the Covid-19 pandemic two years on

    Rachel Collins, Eleanor Dawson et al.•ARTICLE•International Journal of Care and…•2023•References: 9

    We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the…

  • Caring beyond capacity’ during the Covid-19 pandemic

    Stapley, Claire Pentecost et al.•ARTICLE•International Journal of Care and…•2023•Cited by: 1•References: 9

    Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the ca…

  • Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the Ideal programme

    Open Access•Serena Sabatini, Anthony Martyr et al.•ARTICLE•Social Science & Medicine•2023•Cited by: 3•References: 35

    New policies and efforts from the government, philanthropic foundations, the voluntary and primary care sectors are needed to address social, cultural, and economic disadvantage among people with dementia

  • Minimal Impact of Covid-19 Pandemic on the Mental Health and Wellbeing of People Living With Dementia

    Open Access•Serena Sabatini, Holly Bennett et al.•ARTICLE•Frontiers in Psychiatry•2022

    Results suggest the pandemic had little effect on the mental health and wellbeing of PwD, with any changes observed likely to be consistent with expected rates of decline due to dementia. Although personal accounts attest to the challenges experienced, PwD appear to have been resilient to the impact of lockdown and social restrictions during the pandemic

  • The Pathways to Participation (P2P) Program

    Open Access•Danielle Hitch, Lindsay Vernon et al.•ARTICLE•International Journal of…•2022

    Research has consistently found that people with mental illness (known as consumers) experience lower levels of participation in meaningful activities, which can limit their opportunities for recovery support. The aim of this study was to describe the outcomes of participation in a group program designed to address all stages of activity participation, known as Pathways to Participation (P2P). A descriptive longitudinal design was utilized, colle…

  • Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Cited by: 2•References: 4

    The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support

  • Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Cited by: 4•References: 3

    Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • Social Isolation and Cognitive Function in Later Life

    Open Access•Isobel E M Evans, Anthony Martyr et al.•ARTICLE•Journal of Alzheimer’s Disease•2019

  • Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Cited by: 4•References: 3

    Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure

  • Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the Ideal programme

    Open Access•Serena Sabatini, Anthony Martyr et al.•ARTICLE•Social Science & Medicine•2023•Cited by: 3•References: 35

    New policies and efforts from the government, philanthropic foundations, the voluntary and primary care sectors are needed to address social, cultural, and economic disadvantage among people with dementia

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • From Displaced to Misplaced

    Jessica P Fefer, Jeffrey C Hallo et al.•ARTICLE•Leisure Sciences•2024•Cited by: 2•References: 30

    This article reports on recreationists’ response to being displaced from their recreation destination or activity. Displacement occurs when visitors leave a site or change activities in response to an unacceptable or adverse change in social, managerial or resource conditions. Specifically, displacement as a response to crowding is examined using a blended analysis of qualitative and quantitative data at Delaware Water Gap National Recreation Are…

  • Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Cited by: 2•References: 4

    The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support

  • Caring beyond capacity’ during the Covid-19 pandemic

    Stapley, Claire Pentecost et al.•ARTICLE•International Journal of Care and…•2023•Cited by: 1•References: 9

    Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the ca…

  • Social Isolation and Cognitive Function in Later Life

    Open Access•Isobel E M Evans, Anthony Martyr et al.•ARTICLE•Journal of Alzheimer’s Disease•2019

  • Minimal Impact of Covid-19 Pandemic on the Mental Health and Wellbeing of People Living With Dementia

    Open Access•Serena Sabatini, Holly Bennett et al.•ARTICLE•Frontiers in Psychiatry•2022

    Results suggest the pandemic had little effect on the mental health and wellbeing of PwD, with any changes observed likely to be consistent with expected rates of decline due to dementia. Although personal accounts attest to the challenges experienced, PwD appear to have been resilient to the impact of lockdown and social restrictions during the pandemic

  • The Pathways to Participation (P2P) Program

    Open Access•Danielle Hitch, Lindsay Vernon et al.•ARTICLE•International Journal of…•2022

    Research has consistently found that people with mental illness (known as consumers) experience lower levels of participation in meaningful activities, which can limit their opportunities for recovery support. The aim of this study was to describe the outcomes of participation in a group program designed to address all stages of activity participation, known as Pathways to Participation (P2P). A descriptive longitudinal design was utilized, colle…

  • Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Cited by: 2•References: 4

    The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support

  • Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Cited by: 4•References: 3

    Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • What does feeling younger or older than one’s chronological age mean to men and women? Qualitative and quantitative findings from the PROTECT study

    Open Access•Serena Sabatini, Obioha C Ukoumunne et al.•ARTICLE•Psychology & Health•2023

    OBJECTIVE: We explored which factors are associated with subjective age (SA), i.e. feeling younger, the same as, or older than one's chronological age, and whether these factors differ between men and women and between two age sub-groups. DESIGN: Cross-sectional study using qualitative and quantitative data for 1457 individuals (mean age= 67.2 years). MAIN OUTCOME MEASURES: Participants reported how old they feel they are and provided comments in…

  • Provision of Outdoor Nature-Based Activity for Older People with Cognitive Impairment

    Open Access•Rachel Collins, Steve Owens et al.•ARTICLE•Health & Social Care in the…•2023

    The health and well-being benefits of outdoor nature-based activity are increasingly recognised, but older people with cognitive impairment face significant barriers to access. The ENLIVEN project aims to promote access by gathering evidence and coproducing guidance for activity providers. As part of this project, we conducted a scoping review to characterise the types of outdoor nature-based activity for older people with dementia and other form…

  • Navigating the Covid-19 pandemic two years on

    Rachel Collins, Eleanor Dawson et al.•ARTICLE•International Journal of Care and…•2023•References: 9

    We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the…

  • Caring beyond capacity’ during the Covid-19 pandemic

    Stapley, Claire Pentecost et al.•ARTICLE•International Journal of Care and…•2023•Cited by: 1•References: 9

    Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the ca…

  • Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the Ideal programme

    Open Access•Serena Sabatini, Anthony Martyr et al.•ARTICLE•Social Science & Medicine•2023•Cited by: 3•References: 35

    New policies and efforts from the government, philanthropic foundations, the voluntary and primary care sectors are needed to address social, cultural, and economic disadvantage among people with dementia

  • From Displaced to Misplaced

    Jessica P Fefer, Jeffrey C Hallo et al.•ARTICLE•Leisure Sciences•2024•Cited by: 2•References: 30

    This article reports on recreationists’ response to being displaced from their recreation destination or activity. Displacement occurs when visitors leave a site or change activities in response to an unacceptable or adverse change in social, managerial or resource conditions. Specifically, displacement as a response to crowding is examined using a blended analysis of qualitative and quantitative data at Delaware Water Gap National Recreation Are…

  • Living with dementia during the Covid-19 pandemic

    Open Access•Stapley, Claire Pentecost et al.•ARTICLE•Ageing and Society•2024•References: 68

    The continuing COVID-19 pandemic and social restrictions have impacted on the cognitive decline and mental health of people with dementia. Social isolation and loss of activities due to social restrictions may also have implications as to sense of identity for people with dementia. As part of the INCLUDE (Identifying and Mitigating the Individual and Dyadic Impact of COVID-19 and Life Under Physical Distancing on People with Dementia and Carers) …

  • What I Wish I Had Known

    Open Access•Thom Nevill, Jessica Keely et al.•ARTICLE•Health Expectations•2025

    BACKGROUND: Appropriate support for the health of children with an intellectual disability by parents and healthcare professionals is pivotal, given the high risk of chronic conditions. However, there is limited research that has collected important insights from parents on their learnings for supporting their child's evolving healthcare needs. AIM: This study focuses on parents' experiences and learnings from managing and supporting the health o…

  • Applying adaptive research methods to explore health literacy in young people with intellectual disability

    Open Access•Thom Nevill, Jessica Keeley et al.•ARTICLE•Health Promotion International•2026

    Young people with intellectual disability experience higher risks for chronic health conditions than their peers. Improving their health literacy could be a strengths-based approach for reducing these risks. However, there is limited research that explores the perspectives of young people with intellectual disability on their health literacy. Given the limited research centring on the voice of young people with intellectual disability, this study…

Psychology (13 works) · Medicine (12 works) · Dementia (9 works) · Disease (9 works) · Gerontology (9 works) · Psychiatry (8 works) · Social Psychology (7 works) · Cohort (6 works) · Geriatric Care and Nursing Homes (6 works) · Dementia and Cognitive Impairment Research (5 works)

Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae