Lidia Engel
Biographic Data
| ID | 3582400 |
|---|---|
| NAME | Lidia Engel |
| GIVEN NAMES | Lidia |
| FAMILY NAME | Engel |
| SIGNATURE | ENGEL L |
| AFFILIATIONS | Monash University |
| ORCID | 0000-0002-7959-3149 |
| VERIFIED | Yes |
| TOTAL WORKS | 25 |
| TOTAL CITATIONS | 23 |
| WORKS AS AUTHOR | 25 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2014 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 2 |
A scoping review of preference-based instruments for measuring carer outcomes in economic evaluations
Carer-specific preference-based instruments have been developed to capture outcomes for economic evaluations but the body of evidence has yet to be collated to guide instrument selection and identify knowledge gaps for future research. This scoping review aimed to identify carer-related, preference-based instruments and summarise and assess their performance, valuation and application. Nine databases (ASSIA, CINAHL, Cochrane, DARE, Econlit, EMBAS…
Preference inversion in discrete choice experiments
Preference inversion - where preference estimates do not align with the hierarchical order of attribute levels-remains a concern in health valuation studies. To address this, we developed a novel visual aid, the emoji scale, comprising five Apple Unicode emoji characters to represent five levels of a health-related quality-of-life measure. Using a case study of the Recovering Quality of Life - Utility index instrument, we explored whether the emo…
Are recessions bad for loneliness
Loneliness is a pressing public health concern with significant economic, health and social consequences. This paper examines the impact of economic downturns, particularly unemployment and job loss perception, on loneliness in Australia. Using a fixed-effects panel regression applied to 19 waves of data, we find that unemployment is significantly linked to an increased likelihood of experiencing loneliness and other dimensions of social health, …
“Connect Local”
More robust research, however, is needed to evaluate interventions that promote social connection. This protocol paper outlines the evaluation of a community-wide social connection program, Connect Local , in metropolitan Melbourne, Australia to support people 65 years and older to increase access to local community services/activities; and to ascertain impact on social connection, loneliness, depressive symptoms, physical and mental wellbeing, a…
Assessing the psychometric performance of the EQ-5D-5L among informal caregivers of people with dementia
Findings provide supporting evidence for the EQ-5D-5L in terms of its discriminant validity in informal caregivers of patients with dementia. However, the present ceiling effect suggests that the sensitivity of the EQ-5D-5L to detect improvements may be limited. Further studies are warranted examining other psychometric criteria, including reliability and responsiveness to change
Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems
Scoring the EQ-HWB-S
As EQ-HWB-S items formed a strong scale and subscales based on Mokken analysis, LSS is a promising weighting-free approach to scoring
Health-related quality of life and utility values among patients with anxiety and/or depression in a low-income tertiary care setting
Older age, severity or co-diagnosis of anxiety or depression and comorbid conditions were associated with lower HRQoL, highlighting the need for better interventions to improve the HRQoL of patients with anxiety and depression in Ethiopia
The association between loneliness with health service use and quality of life among informal carers in Australia
The findings of this study highlight the relationship between loneliness on both healthcare utilization and carers' overall well-being. Addressing loneliness through targeted interventions and social support systems can help improve health outcomes and potentially reduce the overall healthcare costs among informal carers in Australia
Fluctuations of health states in dementia diseases and their impact on the assessment of health today using the EQ-5D-5L
Introduction: The EQ-5D is a widely used health-related quality of life (HRQoL) instrument. The recall period "today" may miss out on recurrent health fluctuations often observed in people with dementia (PlwD). Thus, this study aims to assess the frequency of health fluctuations, affected HRQoL dimensions and the impact of the health fluctuations on the assessment of health today using the EQ-5D-5L. Methods and analysis: This mixed-methods study …
How do older adults receiving aged care services understand and respond to the EQ-5D-5L? A think-aloud study in residential care
Older adults may bring a different understanding to the EQ-5D-5L descriptive system than that expected given testing with general population samples. Dimension descriptors that are more relevant to this population may facilitate responses that better align with the underlying EQ-5D-5L concept model
How well do the adult social care outcomes toolkit for carers, carer experience scale and care-related quality of life capture aspects of quality of life important to informal carers in Australia
The content of the three instruments appears relevant in an Australian setting. The influence of care recipient's health and well-being on carer QoL should be considered, along with spillover effects. A content and/or face validity analysis is required to confirm differences in item interpretation in Australian informal carers
Examining the psychometric properties of a split version of the EQ-5D-5L anxiety/depression dimension in patients with anxiety and/or depression
Adopting two subdimensions within the EQ-5D-5L tool appears to perform slightly better than the standard EQ-5D-5L
Measuring Quality of Life in Residential Aged Care Using the EQ-5D-5L
Quality of life (QoL) is an important outcome in aged care, but self-report is not always possible due to the high prevalence of cognitive impairment in older aged care residents. This study aims to assess the impact of family member proxy perspective (proxy-proxy or proxy-person) on interrater agreement with resident self-report by different cognition levels. The influence of proxy perspective and cognition level is a significant gap in the exta…
Sleeping Sound Autism Spectrum Disorder (ASD)
BACKGROUND: Behavioural sleep problems are common in children with autism spectrum disorder (ASD); however, evidence for the efficacy of behavioural sleep interventions is limited. This study examined the efficacy of a brief behavioural sleep intervention in autistic children. It was hypothesised that the intervention would reduce overall child sleep problems (primary outcome), in addition to improvements in children's social, emotional, cognitiv…
What is measured by the composite, single-item pain/discomfort dimension of the EQ-5D-5L? An exploratory analysis
Quality of life and loneliness post-bereavement
Older people experience bereavements more often than any other age group. National survey data collected across Australia from 633 bereaved adults aged 65+ years showed that 21% met the criteria for prolonged grief. Their quality of life was significantly lower and loneliness significantly higher compared to older people in the general population. Risk factors for the low quality of life and high loneliness post-bereavement included being female,…
Australian adolescent population norms for the child health utility index 9D—results from the young minds matter survey
Exploring health state utility values of parents of children with a serious illness
Th Annual Conference of the International Society for Quality of Life Research
Aims: eRAPID is an online eHealth system for patients to report symptoms during cancer treatment. It provides automated severitydependent advice to patients guiding self-management or medical contact. Patient reports are transferred to the electronic patient records for immediate use in patient care. This trial evaluated the impact of eRAPID on symptom control, clinical care, patient self-efficacy, and quality of life (QOL). Methods: A prospectiv…
The impact of depression on health-related quality of life and wellbeing
This study has shown that psychosocial dimensions of HRQoL have the greatest ability to capture the impact of depression when compared with dimensions of capability wellbeing and SWB. Some MAUIs, such as the AQoL-8D, are sensitive to most distinguishing dimensions of HRQoL and wellbeing, which may obviate the need for supplementary wellbeing instruments
Health state utility values of high prevalence mental disorders in Australia
Using path analysis to investigate the relationships between standardized instruments that measure health-related quality of life, capability wellbeing and subjective wellbeing
Older adults' quality of life - Exploring the role of the built environment and social cohesion in community-dwelling seniors on low income
Exploring psychometric properties of the SF-6D, a preference-based health-related quality of life measure, in the context of spinal cord injury
Older adults' quality of life - Exploring the role of the built environment and social cohesion in community-dwelling seniors on low income
Quality of life and loneliness post-bereavement
Older people experience bereavements more often than any other age group. National survey data collected across Australia from 633 bereaved adults aged 65+ years showed that 21% met the criteria for prolonged grief. Their quality of life was significantly lower and loneliness significantly higher compared to older people in the general population. Risk factors for the low quality of life and high loneliness post-bereavement included being female,…
The association between loneliness with health service use and quality of life among informal carers in Australia
The findings of this study highlight the relationship between loneliness on both healthcare utilization and carers' overall well-being. Addressing loneliness through targeted interventions and social support systems can help improve health outcomes and potentially reduce the overall healthcare costs among informal carers in Australia
Using path analysis to investigate the relationships between standardized instruments that measure health-related quality of life, capability wellbeing and subjective wellbeing
Exploring psychometric properties of the SF-6D, a preference-based health-related quality of life measure, in the context of spinal cord injury
Older adults' quality of life - Exploring the role of the built environment and social cohesion in community-dwelling seniors on low income
The impact of depression on health-related quality of life and wellbeing
This study has shown that psychosocial dimensions of HRQoL have the greatest ability to capture the impact of depression when compared with dimensions of capability wellbeing and SWB. Some MAUIs, such as the AQoL-8D, are sensitive to most distinguishing dimensions of HRQoL and wellbeing, which may obviate the need for supplementary wellbeing instruments
Health state utility values of high prevalence mental disorders in Australia
Using path analysis to investigate the relationships between standardized instruments that measure health-related quality of life, capability wellbeing and subjective wellbeing
Exploring health state utility values of parents of children with a serious illness
Th Annual Conference of the International Society for Quality of Life Research
Aims: eRAPID is an online eHealth system for patients to report symptoms during cancer treatment. It provides automated severitydependent advice to patients guiding self-management or medical contact. Patient reports are transferred to the electronic patient records for immediate use in patient care. This trial evaluated the impact of eRAPID on symptom control, clinical care, patient self-efficacy, and quality of life (QOL). Methods: A prospectiv…
Australian adolescent population norms for the child health utility index 9D—results from the young minds matter survey
Sleeping Sound Autism Spectrum Disorder (ASD)
BACKGROUND: Behavioural sleep problems are common in children with autism spectrum disorder (ASD); however, evidence for the efficacy of behavioural sleep interventions is limited. This study examined the efficacy of a brief behavioural sleep intervention in autistic children. It was hypothesised that the intervention would reduce overall child sleep problems (primary outcome), in addition to improvements in children's social, emotional, cognitiv…
What is measured by the composite, single-item pain/discomfort dimension of the EQ-5D-5L? An exploratory analysis
Quality of life and loneliness post-bereavement
Older people experience bereavements more often than any other age group. National survey data collected across Australia from 633 bereaved adults aged 65+ years showed that 21% met the criteria for prolonged grief. Their quality of life was significantly lower and loneliness significantly higher compared to older people in the general population. Risk factors for the low quality of life and high loneliness post-bereavement included being female,…
Fluctuations of health states in dementia diseases and their impact on the assessment of health today using the EQ-5D-5L
Introduction: The EQ-5D is a widely used health-related quality of life (HRQoL) instrument. The recall period "today" may miss out on recurrent health fluctuations often observed in people with dementia (PlwD). Thus, this study aims to assess the frequency of health fluctuations, affected HRQoL dimensions and the impact of the health fluctuations on the assessment of health today using the EQ-5D-5L. Methods and analysis: This mixed-methods study …
How do older adults receiving aged care services understand and respond to the EQ-5D-5L? A think-aloud study in residential care
Older adults may bring a different understanding to the EQ-5D-5L descriptive system than that expected given testing with general population samples. Dimension descriptors that are more relevant to this population may facilitate responses that better align with the underlying EQ-5D-5L concept model
How well do the adult social care outcomes toolkit for carers, carer experience scale and care-related quality of life capture aspects of quality of life important to informal carers in Australia
The content of the three instruments appears relevant in an Australian setting. The influence of care recipient's health and well-being on carer QoL should be considered, along with spillover effects. A content and/or face validity analysis is required to confirm differences in item interpretation in Australian informal carers
Examining the psychometric properties of a split version of the EQ-5D-5L anxiety/depression dimension in patients with anxiety and/or depression
Adopting two subdimensions within the EQ-5D-5L tool appears to perform slightly better than the standard EQ-5D-5L
Measuring Quality of Life in Residential Aged Care Using the EQ-5D-5L
Quality of life (QoL) is an important outcome in aged care, but self-report is not always possible due to the high prevalence of cognitive impairment in older aged care residents. This study aims to assess the impact of family member proxy perspective (proxy-proxy or proxy-person) on interrater agreement with resident self-report by different cognition levels. The influence of proxy perspective and cognition level is a significant gap in the exta…
“Connect Local”
More robust research, however, is needed to evaluate interventions that promote social connection. This protocol paper outlines the evaluation of a community-wide social connection program, Connect Local , in metropolitan Melbourne, Australia to support people 65 years and older to increase access to local community services/activities; and to ascertain impact on social connection, loneliness, depressive symptoms, physical and mental wellbeing, a…
Assessing the psychometric performance of the EQ-5D-5L among informal caregivers of people with dementia
Findings provide supporting evidence for the EQ-5D-5L in terms of its discriminant validity in informal caregivers of patients with dementia. However, the present ceiling effect suggests that the sensitivity of the EQ-5D-5L to detect improvements may be limited. Further studies are warranted examining other psychometric criteria, including reliability and responsiveness to change
Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems
Scoring the EQ-HWB-S
As EQ-HWB-S items formed a strong scale and subscales based on Mokken analysis, LSS is a promising weighting-free approach to scoring
Health-related quality of life and utility values among patients with anxiety and/or depression in a low-income tertiary care setting
Older age, severity or co-diagnosis of anxiety or depression and comorbid conditions were associated with lower HRQoL, highlighting the need for better interventions to improve the HRQoL of patients with anxiety and depression in Ethiopia
The association between loneliness with health service use and quality of life among informal carers in Australia
The findings of this study highlight the relationship between loneliness on both healthcare utilization and carers' overall well-being. Addressing loneliness through targeted interventions and social support systems can help improve health outcomes and potentially reduce the overall healthcare costs among informal carers in Australia
A scoping review of preference-based instruments for measuring carer outcomes in economic evaluations
Carer-specific preference-based instruments have been developed to capture outcomes for economic evaluations but the body of evidence has yet to be collated to guide instrument selection and identify knowledge gaps for future research. This scoping review aimed to identify carer-related, preference-based instruments and summarise and assess their performance, valuation and application. Nine databases (ASSIA, CINAHL, Cochrane, DARE, Econlit, EMBAS…
Preference inversion in discrete choice experiments
Preference inversion - where preference estimates do not align with the hierarchical order of attribute levels-remains a concern in health valuation studies. To address this, we developed a novel visual aid, the emoji scale, comprising five Apple Unicode emoji characters to represent five levels of a health-related quality-of-life measure. Using a case study of the Recovering Quality of Life - Utility index instrument, we explored whether the emo…
Are recessions bad for loneliness
Loneliness is a pressing public health concern with significant economic, health and social consequences. This paper examines the impact of economic downturns, particularly unemployment and job loss perception, on loneliness in Australia. Using a fixed-effects panel regression applied to 19 waves of data, we find that unemployment is significantly linked to an increased likelihood of experiencing loneliness and other dimensions of social health, …
Medicine (22 works) · Psychology (20 works) · Psychiatry (16 works) · Quality of life (healthcare (15 works) · Clinical Psychology (13 works) · Health Systems, Economic Evaluations, Quality of Life (13 works) · Health disparities and outcomes (12 works) · Clinical Psychology (11 works) · Gerontology (11 works) · Nursing (10 works)