Gabrielle Samuel
Datos Biográficos
| ID | 3582550 |
|---|---|
| NOMBRE | Gabrielle Samuel |
| NOMBRES | Gabrielle |
| APELLIDO | Samuel |
| FIRMA | SAMUEL G |
| AFILIACIONES | King's College London |
| ORCID | 0000-0001-8111-2730 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 34 |
| TOTAL DE CITAS | 56 |
| TOTAL COMO AUTOR | 34 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2015 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 4 |
From Scale to Situated
Contemporary healthcare systems generate vast volumes of data, with algorithmic interrogation promising disease prediction, improved diagnoses, and optimised treatment. Despite significant investment, biases in data used for algorithmic interrogation persist, leading to inequities in health outcomes. Scale alone cannot address these biases. Rather, considerations of the contextual dimensions of data need to be reflected upon. Nevertheless, calls …
Addressing environmental harms in the health sector
In an era of increasing calls for responsible environmental stewardship within health research and care, the concept of environmentality is a productive vehicle to theorise, analyse and critique the changing trends of environmental governance. Despite the usefulness of this approach, little to no literature has explored how this concept could apply to the health sector. In this paper, we examine three examples of emerging environmental governance…
Who Carries the Responsibility for Health Care Carbon Reduction
Policy‐makers, doctors, organizations, and academics who are persuaded that health care decarbonization is an ethical mandate are grappling with ethical and effective implementation of measures to support this goal. Health care carbon‐mitigation strategies (both proposed and potential) at individual, regional (city, state, or council), national, and international levels have already been analyzed to different degrees; however, a comparative analy…
Co-learning in crisis
This article provides a comparative analysis of digital interventions implemented in Taiwan and the UK during the COVID-19 pandemic to examine how national contexts shaped the rollout and reception of these technologies. Our analysis challenges the simplistic East/West divide often invoked in pandemic response analyses, which arose during and in the wake of the pandemic, arguing that successes or failures of digital health interventions must exce…
Can care ethics help healthcare systems address their environmental harms? Findings from focus groups with members of the UK public
Bioethics scholars have become increasingly interested in moral questions associated with healthcare's environmental harms. Much of this scholarship has remained in the theoretical space, where ethical reasoning is underpinned by certain obligations and the implementation of top-down principles. Drawing on twelve focus groups with members of the UK public, this paper aims to bring a sociological ethics of care approach to these discussions. In fu…
UK Public Focus Groups on Healthcare's Environmental Impacts
The urgency of addressing climate change has accelerated the need for healthcare to mitigate its associated environmental harms. Co-benefits approaches are being used in policymaking to frame mitigation actions because they promise to deliver better health outcomes alongside environment benefits. Despite this, little empirical data exists on public perceptions about the acceptability and usefulness of this approach. We conducted 12 focus groups w…
Focusing attention on physicians’ climate-related duties may risk missing the bigger picture
This study was funded by Wellcome (222180/Z/20/Z and 208053/B/17/Z), SB is funded by an NIHR Academic Clinical Lectureship (CL-2022-13-001)
Beyond regulatory approaches to ethics
Centralised, compliance-focused approaches to research ethics have been normalised in practice. In this paper, we argue that the dominance of such systems has been driven by neoliberal approaches to governance, where the focus on controlling and individualising risk has led to an overemphasis of decontextualised ethical principles and the conflation of ethical requirements with the documentation of ‘informed consent’. Using a UK-based case study,…
Reimagining research ethics to include environmental sustainability
In this paper we argue the need to reimagine research ethics frameworks to include notions of environmental sustainability. While there have long been calls for health care ethics frameworks and decision-making to include aspects of sustainability, less attention has focused on how research ethics frameworks could address this. To do this, we first describe the traditional approach to research ethics, which often relies on individualised notions …
The UK Covid-19 contact tracing app as both an emerging technology and public health intervention
The UK’s National Health Service (NHS) COVID-19 contact tracing app was announced to the British public on 12th April 2020. The UK government endorsed the app as a public health intervention that would improve public health, protect the NHS and ‘save lives’. On 5th May 2020 the technology was released for trial on the Isle of Wight. However, the trial was halted in June 2020, reportedly due to technological issues. The app was later remodelled an…
Framing ethical issues associated with the UK Covid-19 contact tracing app
This paper explores ethical debates associated with the UK COVID-19 contact tracing app that occurred in the public news media and broader public policy, and in doing so, takes ethics debate as an object for sociological study. The research question was: how did UK national newspaper news articles and grey literature frame the ethical issues about the app, and how did stakeholders associated with the development and/or governance of the app refle…
Democratic research
The sudden and dramatic advent of the COVID-19 pandemic led to urgent demands for timely, relevant, yet rigorous research. This paper discusses the origin, design, and execution of the SolPan research commons, a large-scale, international, comparative, qualitative research project that sought to respond to the need for knowledge among researchers and policymakers in times of crisis. The form of organization as a research commons is characterized …
Rethinking value construction in biomedicine and healthcare
Environmental sustainability and biobanking
Biobanks have expanded dramatically over the past few decades, as have their storage and computational requirements. These requirements have environmental impacts, including mineral extraction and manufacturing processes associated with digital infrastructures, carbon emissions related to sample storage and data storage and analysis, and associated waste. Here we analyse whether biobanks have any specific policies about these environmental impact…
Investigative genetic genealogy
TEST 02 - Elsevier's Scopus, the largest abstract and citation database of peer-reviewed literature. Search and access research from the science, technology, medicine, social sciences and arts and humanities fields
Population health AI researchers’ perceptions of the public portrayal of AI
This article reports how 18 UK and Canadian population health artificial intelligence researchers in Higher Education Institutions perceive the use of artificial intelligence systems in their research, and how this compares with their perceptions about the media portrayal of artificial intelligence systems. This is triangulated with a small scoping analysis of how UK and Canadian news articles portray artificial intelligence systems associated wi…
Covid-19 contact tracing apps
In order to combat the COVID-19 pandemic, policymakers around the globe have increasingly invested in digital health technologies to support the 'test, track and trace' approach of containing the spread of the novel coronavirus. These technologies include mobile 'contact tracing' applications (apps), which can trace individuals likely to have come into contact with those who have reported symptoms or tested positive for the virus and request that…
Normative positions towards Covid-19 contact-tracing apps
Mobile applications for digital contact tracing have been developed and introduced around the world in response to the COVID-19 pandemic. Proposed as a tool to support 'traditional' forms of contact-tracing carried out to monitor contagion, these apps have triggered an intense debate with respect to their legal and ethical permissibility, social desirability and general feasibility. Based on a large-scale study including qualitative data from 349…
Boundaries Between Research Ethics and Ethical Research Use in Artificial Intelligence Health Research
The governance of ethically acceptable research in higher education institutions has been under scrutiny over the past half a century. Concomitantly, recently, decision makers have required researchers to acknowledge the societal impact of their research, as well as anticipate and respond to ethical dimensions of this societal impact through responsible research and innovation principles. Using artificial intelligence population health research i…
For what it's worth. Unearthing the values embedded in digital phenotyping for mental health
Digital phenotyping for mental health is an emerging trend which uses digital data, derived from mobile applications, wearable technologies and digital sensors, to measure, track and predict the mental health of an individual. Digital phenotyping for mental health is a growing, but as yet underexamined, field. As we will show, the rapid growth of digital phenotyping for mental health raises crucial questions about the values that underpin and are…
Problematizing consent
Genetic genealogy databases have become particularly attractive to law enforcement agencies, especially in the United States (US), which have started to employ genealogists to search them with unknown origin DNA from unidentified human remains (suicides, missing persons) or from a serious crime scene, to help identify the victim, or a potential suspected perpetrator, respectively. While this investigative genetic genealogy (IGG) technique holds m…
Can digital data diagnose mental health problems? A sociological exploration of 'digital phenotyping
This paper critically explores the research and development of 'digital phenotyping', which broadly refers to the idea that digital data can measure and predict people's mental health as well as their potential risk for mental ill health. Despite increasing research and efforts to digitally track and predict ill mental health, there has been little sociological and critical engagement with this field. This paper aims to fill this gap by introduci…
Reasoning “Uncharted Territory”
The fast changing field of social media (SM) research presents unique challenges for research ethics committees (RECs). This article examines notions of experience and expertise in the context of REC members reviewing proposals for SM research and considers the role of the RECs in this area of review. We analyze 19 interviews with REC members to highlight that a lack of personal and professional experience of SM, compounded by a lack of instituti…
The Ethics Ecosystem
This paper examines the consequences of a culture of "personal ethics" when using new methodologies, such as the use of social media (SM) sites as a source of data for research. Using SM research as an example, this paper explores the practices of a number of actors and researchers within the "Ethics Ecosystem" which as a network governs ethically responsible research behaviour. In the case of SM research, the ethical use of this data is currentl…
Persuasive bodies
Sociology of Low Expectations
Social scientists have drawn attention to the role of hype and optimistic visions of the future in providing momentum to biomedical innovation projects by encouraging innovation alliances. In this article, we show how less optimistic, uncertain, and modest visions of the future can also provide innovation projects with momentum. Scholars have highlighted the need for clinicians to carefully manage the expectations of their prospective patients. U…
Can digital data diagnose mental health problems? A sociological exploration of 'digital phenotyping
This paper critically explores the research and development of 'digital phenotyping', which broadly refers to the idea that digital data can measure and predict people's mental health as well as their potential risk for mental ill health. Despite increasing research and efforts to digitally track and predict ill mental health, there has been little sociological and critical engagement with this field. This paper aims to fill this gap by introduci…
From “a Fair Game” to “a Form of Covert Research”
Social media (SM) research presents new challenges for research ethics committees (RECs) who must balance familiar ethical principles with new notions of public availability. This article qualitatively examines how U.K. REC members view this balance in terms of risk and consent. While it found significant variance overall, there were discernible experience-based trends. REC members with less experience of reviewing SM held inflexible notions of c…
The Ethics Ecosystem
This paper examines the consequences of a culture of "personal ethics" when using new methodologies, such as the use of social media (SM) sites as a source of data for research. Using SM research as an example, this paper explores the practices of a number of actors and researchers within the "Ethics Ecosystem" which as a network governs ethically responsible research behaviour. In the case of SM research, the ethical use of this data is currentl…
Is It Time to Re-Evaluate the Ethics Governance of Social Media Research
This article reports on a U.K. workshop on social media research ethics held in May 2018. There were 10 expert speakers and an audience of researchers, research ethics committee members, and research institution representatives. Participants reviewed the current state of social media ethics, discussing well-rehearsed questions such as what needs consent in social media research, and how the public/private divide differs between virtual and real-l…
For what it's worth. Unearthing the values embedded in digital phenotyping for mental health
Digital phenotyping for mental health is an emerging trend which uses digital data, derived from mobile applications, wearable technologies and digital sensors, to measure, track and predict the mental health of an individual. Digital phenotyping for mental health is a growing, but as yet underexamined, field. As we will show, the rapid growth of digital phenotyping for mental health raises crucial questions about the values that underpin and are…
Persuasive bodies
The Evaluation Scale
Realising the societal gains from publicly funded health and medical research requires a model for a reflexive evaluation precedent for the societal impact of research. This research explores UK Research Excellence Framework evaluators' values and opinions and assessing societal impact, prior to the assessment taking place. Specifically, we discuss the characteristics of two different impact assessment extremes - the "quality-focused" evaluation …
Reasoning “Uncharted Territory”
The fast changing field of social media (SM) research presents unique challenges for research ethics committees (RECs). This article examines notions of experience and expertise in the context of REC members reviewing proposals for SM research and considers the role of the RECs in this area of review. We analyze 19 interviews with REC members to highlight that a lack of personal and professional experience of SM, compounded by a lack of instituti…
Boundaries Between Research Ethics and Ethical Research Use in Artificial Intelligence Health Research
The governance of ethically acceptable research in higher education institutions has been under scrutiny over the past half a century. Concomitantly, recently, decision makers have required researchers to acknowledge the societal impact of their research, as well as anticipate and respond to ethical dimensions of this societal impact through responsible research and innovation principles. Using artificial intelligence population health research i…
University-industry teaching collaborations
The paper presents an evaluation of an MSc in Structural Integrity co-produced by Brunel University London and industry partner The Welding Institute (TWI), designed to supply ‘work-ready’ graduates. Pre-, mid- and post-course quantitative surveys were administered to students, and two mid-term focus groups were conducted. Pre- and post-course quantitative surveys were administered to industry supervisors. Seventy-seven per cent of students chose…
Sociology of Low Expectations
Social scientists have drawn attention to the role of hype and optimistic visions of the future in providing momentum to biomedical innovation projects by encouraging innovation alliances. In this article, we show how less optimistic, uncertain, and modest visions of the future can also provide innovation projects with momentum. Scholars have highlighted the need for clinicians to carefully manage the expectations of their prospective patients. U…
The Evaluation Scale
Realising the societal gains from publicly funded health and medical research requires a model for a reflexive evaluation precedent for the societal impact of research. This research explores UK Research Excellence Framework evaluators' values and opinions and assessing societal impact, prior to the assessment taking place. Specifically, we discuss the characteristics of two different impact assessment extremes - the "quality-focused" evaluation …
UK science press officers, professional vision and the generation of expectations
Science press officers can play an integral role in helping promote expectations and hype about biomedical research. Using this as a starting point, this article draws on interviews with 10 UK-based science press officers, which explored how they view their role as science reporters and as generators of expectations. Using Goodwin’s notion of ‘professional vision’, we argue that science press officers have a specific professional vision that shap…
The UK’s 100,000 Genomes Project
The UK's 100,000 Genomes Project has the aim of sequencing 100,000 genomes from UK National Health Service (NHS) patients while concomitantly transforming clinical care such that whole genome sequencing becomes routine clinical practice in the UK. Policymakers claim that the project will revolutionize NHS care. We wished to explore the 100,000 Genomes Project, and in particular, the extent to which policymaker claims have helped or hindered the w…
Genomics England’s implementation of its public engagement strategy
The United Kingdom’s 100,000 Genomes Project has the aim of sequencing 100,000 genomes from National Health Service patients such that whole genome sequencing becomes routine clinical practice. It also has a research-focused goal to provide data for scientific discovery. Genomics England is the limited company established by the Department of Health to deliver the project. As an innovative scientific/clinical venture, it is interesting to conside…
Forensic DNA phenotyping in Europe
Forensic DNA phenotyping (FDP) is an emerging technology that seeks to make probabilistic inferences regarding a person’s observable characteristics (“phenotype”) from DNA. The aim is to aid criminal investigations by helping to identify unknown suspected perpetrators, or to help with non-criminal missing persons cases. Here we provide results from the analysis of 36 interviews with those who have a professional stake in FDP, including forensic s…
From “a Fair Game” to “a Form of Covert Research”
Social media (SM) research presents new challenges for research ethics committees (RECs) who must balance familiar ethical principles with new notions of public availability. This article qualitatively examines how U.K. REC members view this balance in terms of risk and consent. While it found significant variance overall, there were discernible experience-based trends. REC members with less experience of reviewing SM held inflexible notions of c…
Is It Time to Re-Evaluate the Ethics Governance of Social Media Research
This article reports on a U.K. workshop on social media research ethics held in May 2018. There were 10 expert speakers and an audience of researchers, research ethics committee members, and research institution representatives. Participants reviewed the current state of social media ethics, discussing well-rehearsed questions such as what needs consent in social media research, and how the public/private divide differs between virtual and real-l…
University-industry teaching collaborations
The paper presents an evaluation of an MSc in Structural Integrity co-produced by Brunel University London and industry partner The Welding Institute (TWI), designed to supply ‘work-ready’ graduates. Pre-, mid- and post-course quantitative surveys were administered to students, and two mid-term focus groups were conducted. Pre- and post-course quantitative surveys were administered to industry supervisors. Seventy-seven per cent of students chose…
Reasoning “Uncharted Territory”
The fast changing field of social media (SM) research presents unique challenges for research ethics committees (RECs). This article examines notions of experience and expertise in the context of REC members reviewing proposals for SM research and considers the role of the RECs in this area of review. We analyze 19 interviews with REC members to highlight that a lack of personal and professional experience of SM, compounded by a lack of instituti…
The Ethics Ecosystem
This paper examines the consequences of a culture of "personal ethics" when using new methodologies, such as the use of social media (SM) sites as a source of data for research. Using SM research as an example, this paper explores the practices of a number of actors and researchers within the "Ethics Ecosystem" which as a network governs ethically responsible research behaviour. In the case of SM research, the ethical use of this data is currentl…
Persuasive bodies
Problematizing consent
Genetic genealogy databases have become particularly attractive to law enforcement agencies, especially in the United States (US), which have started to employ genealogists to search them with unknown origin DNA from unidentified human remains (suicides, missing persons) or from a serious crime scene, to help identify the victim, or a potential suspected perpetrator, respectively. While this investigative genetic genealogy (IGG) technique holds m…
Can digital data diagnose mental health problems? A sociological exploration of 'digital phenotyping
This paper critically explores the research and development of 'digital phenotyping', which broadly refers to the idea that digital data can measure and predict people's mental health as well as their potential risk for mental ill health. Despite increasing research and efforts to digitally track and predict ill mental health, there has been little sociological and critical engagement with this field. This paper aims to fill this gap by introduci…
Investigative genetic genealogy
TEST 02 - Elsevier's Scopus, the largest abstract and citation database of peer-reviewed literature. Search and access research from the science, technology, medicine, social sciences and arts and humanities fields
Population health AI researchers’ perceptions of the public portrayal of AI
This article reports how 18 UK and Canadian population health artificial intelligence researchers in Higher Education Institutions perceive the use of artificial intelligence systems in their research, and how this compares with their perceptions about the media portrayal of artificial intelligence systems. This is triangulated with a small scoping analysis of how UK and Canadian news articles portray artificial intelligence systems associated wi…
Covid-19 contact tracing apps
In order to combat the COVID-19 pandemic, policymakers around the globe have increasingly invested in digital health technologies to support the 'test, track and trace' approach of containing the spread of the novel coronavirus. These technologies include mobile 'contact tracing' applications (apps), which can trace individuals likely to have come into contact with those who have reported symptoms or tested positive for the virus and request that…
Normative positions towards Covid-19 contact-tracing apps
Mobile applications for digital contact tracing have been developed and introduced around the world in response to the COVID-19 pandemic. Proposed as a tool to support 'traditional' forms of contact-tracing carried out to monitor contagion, these apps have triggered an intense debate with respect to their legal and ethical permissibility, social desirability and general feasibility. Based on a large-scale study including qualitative data from 349…
Boundaries Between Research Ethics and Ethical Research Use in Artificial Intelligence Health Research
The governance of ethically acceptable research in higher education institutions has been under scrutiny over the past half a century. Concomitantly, recently, decision makers have required researchers to acknowledge the societal impact of their research, as well as anticipate and respond to ethical dimensions of this societal impact through responsible research and innovation principles. Using artificial intelligence population health research i…
For what it's worth. Unearthing the values embedded in digital phenotyping for mental health
Digital phenotyping for mental health is an emerging trend which uses digital data, derived from mobile applications, wearable technologies and digital sensors, to measure, track and predict the mental health of an individual. Digital phenotyping for mental health is a growing, but as yet underexamined, field. As we will show, the rapid growth of digital phenotyping for mental health raises crucial questions about the values that underpin and are…
Framing ethical issues associated with the UK Covid-19 contact tracing app
This paper explores ethical debates associated with the UK COVID-19 contact tracing app that occurred in the public news media and broader public policy, and in doing so, takes ethics debate as an object for sociological study. The research question was: how did UK national newspaper news articles and grey literature frame the ethical issues about the app, and how did stakeholders associated with the development and/or governance of the app refle…
Democratic research
The sudden and dramatic advent of the COVID-19 pandemic led to urgent demands for timely, relevant, yet rigorous research. This paper discusses the origin, design, and execution of the SolPan research commons, a large-scale, international, comparative, qualitative research project that sought to respond to the need for knowledge among researchers and policymakers in times of crisis. The form of organization as a research commons is characterized …
Rethinking value construction in biomedicine and healthcare
Environmental sustainability and biobanking
Biobanks have expanded dramatically over the past few decades, as have their storage and computational requirements. These requirements have environmental impacts, including mineral extraction and manufacturing processes associated with digital infrastructures, carbon emissions related to sample storage and data storage and analysis, and associated waste. Here we analyse whether biobanks have any specific policies about these environmental impact…
Beyond regulatory approaches to ethics
Centralised, compliance-focused approaches to research ethics have been normalised in practice. In this paper, we argue that the dominance of such systems has been driven by neoliberal approaches to governance, where the focus on controlling and individualising risk has led to an overemphasis of decontextualised ethical principles and the conflation of ethical requirements with the documentation of ‘informed consent’. Using a UK-based case study,…
Political science (30 obras) · Sociology (24 obras) · Public relations (22 obras) · Law (18 obras) · Engineering (14 obras) · Medicine (14 obras) · Engineering ethics (13 obras) · Psychology (13 obras) · Computer Science (12 obras) · Ethics in Clinical Research (11 obras)