Roanne Thomas
Biographic Data
| ID | 3615288 |
|---|---|
| NAME | Roanne Thomas |
| GIVEN NAMES | Roanne |
| FAMILY NAME | Thomas |
| SIGNATURE | THOMAS R |
| AFFILIATIONS | University of Ottawa |
| ORCID | 0000-0001-5495-4772 |
| VERIFIED | Yes |
| TOTAL WORKS | 19 |
| TOTAL CITATIONS | 65 |
| AUTHOR COUNT | 19 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2011 |
| LATEST PUBLICATION YEAR | 2023 |
| H-INDEX | 4 |
“We need to work hand in hand”: Supporting cancer survivorship care with First Nations and Métis peoples in Canada via video
There is a lack of access to culturally safe and individualized cancer survivorship care and awareness of the unique challenges and strengths that Indigenous persons living with cancer (PLCs) face. This study aimed to explore the experiences and needs of First Nations and Métis PLCs across Canada. From 2014 to 2016, we engaged 87 participants who were either PLCs or caregivers (CGs) from five communities across Canada—Gitxsan and Kenora, British …
Empowering Cancer Survivors in Managing Their Own Health: A Paradoxical Dynamic Process of Taking and Letting Go of Control
In cancer care, gaps in support to help patients manage and live with the side-effects from cancer treatments have increased the emphasis on empowering patients to be more active and involved in managing their own health. However, empowerment in relation to promoting self-management behaviors is not well understood. Using the social constructivist grounded theory approach, our goal was to develop a theoretical understanding of this phenomenon in …
Exploring artmaking as a source of metaphor for women’s cancer experiences: A phenomenological study
Metaphoric language is common in cancer discourse. However, prevailing military and journey metaphors may not capture variation in cancer experiences. In this article, the authors describe an art-based community research programme for women who had experienced cancer. Taking a phenomenological approach, the article examines how artmaking processes and materials were used by the study participants to shape their own metaphoric thought and, thereby…
Widening the Circle of Care: Digital Stories of Community-Based Caregiving in a Mohawk First Nation
Caregiving has various connotations within diverse social and cultural settings. Within First Nations communities, caregiving may be understood as a central practice of reclaiming cultural identity and teachings from colonial systems of healthcare. Our community-based participatory research project explored the experiences, needs, and strengths of caregivers within the Mohawk Nation of Kahnawake in what is currently called Canada. Through a partn…
Using the performance arts to address a “methods gap” in dementia research
In this article, we discuss the design choices and creative measures taken to ensure a more inclusive research environment, specifically for those participants who are cognitively frail and/or may find it difficult to express their views using just words
Toward New Understandings of a Good Life for People Experiencing Impairment: An Art- and Community-Based Research Protocol
Almost half of all Canadians live with sensory, cognitive, or physical impairment due to injury, illness, or ageing. Yet, research investigating the complex relationship between well-being and impairment is limited. Existing research has largely rendered invisible peoples' experiences of a good life while living with impairment. In response, researchers are calling for interdisciplinary research that integrates new paradigms. Using innovative qua…
Exploring Gender-Related Experiences of Cancer Survivors Through Creative Arts: A Scoping Review
Negative health consequences of cancer and its treatments are multifaceted. Research suggests numerous psychosocial benefits may be gained by cancer survivors who engage in arts-based practices. To grasp the breadth of this literature, we undertook a scoping review exploring the intersection between arts-based practices, gender, and cancer. Three databases were searched according to the following criteria: (a) participants older than 18 years, (b…
A modified Delphi study on research priorities in cancer, gender and the arts
Men and women diagnosed with cancer may encounter complex changes to gendered roles and expectations within the work environment, families and the community. Creative interventions using the arts could address some of these challenges using person-centred approaches that attend to gender disruptions and negotiations. To identify current research gaps and future priorities in this field, a national expert panel was assembled of seventeen professio…
Situating our selves: Using mixed media to convey experiences of psychosocial cancer research
Background In contrast to the field of art therapy, the use of art-making as a form of reflective or creative practice by social scientists by themselves or for themselves has been limited. In this article, we describe the impetus and outcomes for collective art-making within our group of seven health researchers.Methods As a group, we represent sociology, psychology, nursing, occupational therapy, and kinesiology, as well as interdisciplinary st…
Arts-based research methods with indigenous peoples: An international scoping review
Research with indigenous peoples worldwide carries long histories of exploitation, distorted representation, and theft. New “indigenizing” methodologies centre the production of knowledge around the processes and knowledges of indigenous communities. Creative research methods involving artistic practices—such as photovoice, journaling, digital storytelling, dance, and theatre—may have a place within these new approaches, but their applications ha…
A Critical Analysis of the Delivery of a Psychosocial Workshop for Cancer Survivors with Lymphedema
Secondary lymphedema is a chronic condition that can develop after the treatment of cancer and can often lead to negative psychological and social impairments. When dealing with chronic illness, hoping and coping are interdependent. Previous research has assessed the outcomes of workshops designed to enhance hope but has not examined the workshop itself to determine how those outcomes were achieved. This study deconstructs the Living Hopefully wi…
Breaking the Silence' to Improve Cancer Survivorship Care for First Nations Peoples: A Study Protocol for an Indigenous Knowledge Translation Strategy
There is a significant knowledge-to-action gap in cancer survivorship care for First Nations (FN) communities. To date, many approaches to survivorship have not been culturally responsive or community-based. This study is using an Indigenous knowledge translation (KT) approach to mobilize community-based knowledge about cancer survivorship into health-care programs. Our team includes health-care providers and cancer survivors from an FN community…
Internet Cancer Information Use by Newly Diagnosed Individuals and Interactions With the Health System: A Mixed Methods Study Protocol
Nearly 40% of Canadians will be diagnosed with cancer in their lifetime, and people with cancer are increasingly turning to the Internet to bolster support and information received from health-care providers. However, little is known about the role of the Internet in patients' interactions with the health-care system. The goals of this study are (1) to qualitatively explore the content of commonly used websites from a holistic nursing perspective…
First Nations, Inuit, and Métis Women's Experiences of Cancer Survivorship: Protocol for the National Picture Project
Little is known about First Nations, Inuit, and Métis (FNIM) women's experiences with cancer, including how they relate to cultural and social factors such as geography, history, racism, identity, traditional values/practices, and spirituality. Research into FNIM women's strengths and challenges in relation to cancer is much needed. Our team, in partnership with Saint Elizabeth Health, is documenting the experiences and needs of 60 FNIM cancer su…
The aesthetic rationality of the popular expressive arts: Lifeworld communication among breast cancer survivors living with lymphedema
The use of popular expressive arts as antidotes to the pathologies of the parallel processes of lifeworld colonization and cultural impoverishment has been under-theorized. This article enters the void with a project in which breast cancer survivors used collages and installations of everyday objects to solicit their authentic expression of the psycho-social impacts of lymphedema. The article enlists Jurgen Habermas' communicative action theory t…
I Just Don't Think There's any other Image that Tells the Story like [This] Picture Does: Researcher and Participant Reflections on the Use of Participant-Employed Photography in Social Research
The incorporation of visual forms of expression has become common in qualitative research over the past two decades, with participant-employed photography being most prevalent. Visual methods such as photovoice have been used in community-based studies and with individuals to explore their lived experiences, particularly because of their participatory nature. Despite widespread support for visual approaches in existing research, there has been in…
Reflections from a Creative Community-Based Participatory Research Project Exploring Health and Body Image with First Nations Girls
In Canada, Aboriginal peoples often experience a multitude of inequalities when compared with the general population, particularly in relation to health (e.g., increased incidence of diabetes). These inequalities are rooted in a negative history of colonization. Decolonizing methodologies recognize these realities and aim to shift the focus from communities being researched to being collaborative partners in the research process. This article des…
Five ways of doing qualitative analysis: Phenomenological psychology, grounded theory, discourse analysis, narrative research, and intuitive inquiry by F. J. Weitz, K. Charmaz, L. M. McMullen, R. Joss…
An ‘unholy alliance’ of existential proportions: Negotiating discourses with men's experiences of cancer and aging
I Just Don't Think There's any other Image that Tells the Story like [This] Picture Does: Researcher and Participant Reflections on the Use of Participant-Employed Photography in Social Research
The incorporation of visual forms of expression has become common in qualitative research over the past two decades, with participant-employed photography being most prevalent. Visual methods such as photovoice have been used in community-based studies and with individuals to explore their lived experiences, particularly because of their participatory nature. Despite widespread support for visual approaches in existing research, there has been in…
Arts-based research methods with indigenous peoples: An international scoping review
Research with indigenous peoples worldwide carries long histories of exploitation, distorted representation, and theft. New “indigenizing” methodologies centre the production of knowledge around the processes and knowledges of indigenous communities. Creative research methods involving artistic practices—such as photovoice, journaling, digital storytelling, dance, and theatre—may have a place within these new approaches, but their applications ha…
Reflections from a Creative Community-Based Participatory Research Project Exploring Health and Body Image with First Nations Girls
In Canada, Aboriginal peoples often experience a multitude of inequalities when compared with the general population, particularly in relation to health (e.g., increased incidence of diabetes). These inequalities are rooted in a negative history of colonization. Decolonizing methodologies recognize these realities and aim to shift the focus from communities being researched to being collaborative partners in the research process. This article des…
First Nations, Inuit, and Métis Women's Experiences of Cancer Survivorship: Protocol for the National Picture Project
Little is known about First Nations, Inuit, and Métis (FNIM) women's experiences with cancer, including how they relate to cultural and social factors such as geography, history, racism, identity, traditional values/practices, and spirituality. Research into FNIM women's strengths and challenges in relation to cancer is much needed. Our team, in partnership with Saint Elizabeth Health, is documenting the experiences and needs of 60 FNIM cancer su…
Empowering Cancer Survivors in Managing Their Own Health: A Paradoxical Dynamic Process of Taking and Letting Go of Control
In cancer care, gaps in support to help patients manage and live with the side-effects from cancer treatments have increased the emphasis on empowering patients to be more active and involved in managing their own health. However, empowerment in relation to promoting self-management behaviors is not well understood. Using the social constructivist grounded theory approach, our goal was to develop a theoretical understanding of this phenomenon in …
Situating our selves: Using mixed media to convey experiences of psychosocial cancer research
Background In contrast to the field of art therapy, the use of art-making as a form of reflective or creative practice by social scientists by themselves or for themselves has been limited. In this article, we describe the impetus and outcomes for collective art-making within our group of seven health researchers.Methods As a group, we represent sociology, psychology, nursing, occupational therapy, and kinesiology, as well as interdisciplinary st…
An ‘unholy alliance’ of existential proportions: Negotiating discourses with men's experiences of cancer and aging
Using the performance arts to address a “methods gap” in dementia research
In this article, we discuss the design choices and creative measures taken to ensure a more inclusive research environment, specifically for those participants who are cognitively frail and/or may find it difficult to express their views using just words
Toward New Understandings of a Good Life for People Experiencing Impairment: An Art- and Community-Based Research Protocol
Almost half of all Canadians live with sensory, cognitive, or physical impairment due to injury, illness, or ageing. Yet, research investigating the complex relationship between well-being and impairment is limited. Existing research has largely rendered invisible peoples' experiences of a good life while living with impairment. In response, researchers are calling for interdisciplinary research that integrates new paradigms. Using innovative qua…
Internet Cancer Information Use by Newly Diagnosed Individuals and Interactions With the Health System: A Mixed Methods Study Protocol
Nearly 40% of Canadians will be diagnosed with cancer in their lifetime, and people with cancer are increasingly turning to the Internet to bolster support and information received from health-care providers. However, little is known about the role of the Internet in patients' interactions with the health-care system. The goals of this study are (1) to qualitatively explore the content of commonly used websites from a holistic nursing perspective…
The aesthetic rationality of the popular expressive arts: Lifeworld communication among breast cancer survivors living with lymphedema
The use of popular expressive arts as antidotes to the pathologies of the parallel processes of lifeworld colonization and cultural impoverishment has been under-theorized. This article enters the void with a project in which breast cancer survivors used collages and installations of everyday objects to solicit their authentic expression of the psycho-social impacts of lymphedema. The article enlists Jurgen Habermas' communicative action theory t…
An ‘unholy alliance’ of existential proportions: Negotiating discourses with men's experiences of cancer and aging
Five ways of doing qualitative analysis: Phenomenological psychology, grounded theory, discourse analysis, narrative research, and intuitive inquiry by F. J. Weitz, K. Charmaz, L. M. McMullen, R. Joss…
Reflections from a Creative Community-Based Participatory Research Project Exploring Health and Body Image with First Nations Girls
In Canada, Aboriginal peoples often experience a multitude of inequalities when compared with the general population, particularly in relation to health (e.g., increased incidence of diabetes). These inequalities are rooted in a negative history of colonization. Decolonizing methodologies recognize these realities and aim to shift the focus from communities being researched to being collaborative partners in the research process. This article des…
The aesthetic rationality of the popular expressive arts: Lifeworld communication among breast cancer survivors living with lymphedema
The use of popular expressive arts as antidotes to the pathologies of the parallel processes of lifeworld colonization and cultural impoverishment has been under-theorized. This article enters the void with a project in which breast cancer survivors used collages and installations of everyday objects to solicit their authentic expression of the psycho-social impacts of lymphedema. The article enlists Jurgen Habermas' communicative action theory t…
I Just Don't Think There's any other Image that Tells the Story like [This] Picture Does: Researcher and Participant Reflections on the Use of Participant-Employed Photography in Social Research
The incorporation of visual forms of expression has become common in qualitative research over the past two decades, with participant-employed photography being most prevalent. Visual methods such as photovoice have been used in community-based studies and with individuals to explore their lived experiences, particularly because of their participatory nature. Despite widespread support for visual approaches in existing research, there has been in…
First Nations, Inuit, and Métis Women's Experiences of Cancer Survivorship: Protocol for the National Picture Project
Little is known about First Nations, Inuit, and Métis (FNIM) women's experiences with cancer, including how they relate to cultural and social factors such as geography, history, racism, identity, traditional values/practices, and spirituality. Research into FNIM women's strengths and challenges in relation to cancer is much needed. Our team, in partnership with Saint Elizabeth Health, is documenting the experiences and needs of 60 FNIM cancer su…
Internet Cancer Information Use by Newly Diagnosed Individuals and Interactions With the Health System: A Mixed Methods Study Protocol
Nearly 40% of Canadians will be diagnosed with cancer in their lifetime, and people with cancer are increasingly turning to the Internet to bolster support and information received from health-care providers. However, little is known about the role of the Internet in patients' interactions with the health-care system. The goals of this study are (1) to qualitatively explore the content of commonly used websites from a holistic nursing perspective…
A modified Delphi study on research priorities in cancer, gender and the arts
Men and women diagnosed with cancer may encounter complex changes to gendered roles and expectations within the work environment, families and the community. Creative interventions using the arts could address some of these challenges using person-centred approaches that attend to gender disruptions and negotiations. To identify current research gaps and future priorities in this field, a national expert panel was assembled of seventeen professio…
Situating our selves: Using mixed media to convey experiences of psychosocial cancer research
Background In contrast to the field of art therapy, the use of art-making as a form of reflective or creative practice by social scientists by themselves or for themselves has been limited. In this article, we describe the impetus and outcomes for collective art-making within our group of seven health researchers.Methods As a group, we represent sociology, psychology, nursing, occupational therapy, and kinesiology, as well as interdisciplinary st…
Arts-based research methods with indigenous peoples: An international scoping review
Research with indigenous peoples worldwide carries long histories of exploitation, distorted representation, and theft. New “indigenizing” methodologies centre the production of knowledge around the processes and knowledges of indigenous communities. Creative research methods involving artistic practices—such as photovoice, journaling, digital storytelling, dance, and theatre—may have a place within these new approaches, but their applications ha…
A Critical Analysis of the Delivery of a Psychosocial Workshop for Cancer Survivors with Lymphedema
Secondary lymphedema is a chronic condition that can develop after the treatment of cancer and can often lead to negative psychological and social impairments. When dealing with chronic illness, hoping and coping are interdependent. Previous research has assessed the outcomes of workshops designed to enhance hope but has not examined the workshop itself to determine how those outcomes were achieved. This study deconstructs the Living Hopefully wi…
Breaking the Silence' to Improve Cancer Survivorship Care for First Nations Peoples: A Study Protocol for an Indigenous Knowledge Translation Strategy
There is a significant knowledge-to-action gap in cancer survivorship care for First Nations (FN) communities. To date, many approaches to survivorship have not been culturally responsive or community-based. This study is using an Indigenous knowledge translation (KT) approach to mobilize community-based knowledge about cancer survivorship into health-care programs. Our team includes health-care providers and cancer survivors from an FN community…
Exploring Gender-Related Experiences of Cancer Survivors Through Creative Arts: A Scoping Review
Negative health consequences of cancer and its treatments are multifaceted. Research suggests numerous psychosocial benefits may be gained by cancer survivors who engage in arts-based practices. To grasp the breadth of this literature, we undertook a scoping review exploring the intersection between arts-based practices, gender, and cancer. Three databases were searched according to the following criteria: (a) participants older than 18 years, (b…
Using the performance arts to address a “methods gap” in dementia research
In this article, we discuss the design choices and creative measures taken to ensure a more inclusive research environment, specifically for those participants who are cognitively frail and/or may find it difficult to express their views using just words
Toward New Understandings of a Good Life for People Experiencing Impairment: An Art- and Community-Based Research Protocol
Almost half of all Canadians live with sensory, cognitive, or physical impairment due to injury, illness, or ageing. Yet, research investigating the complex relationship between well-being and impairment is limited. Existing research has largely rendered invisible peoples' experiences of a good life while living with impairment. In response, researchers are calling for interdisciplinary research that integrates new paradigms. Using innovative qua…
Exploring artmaking as a source of metaphor for women’s cancer experiences: A phenomenological study
Metaphoric language is common in cancer discourse. However, prevailing military and journey metaphors may not capture variation in cancer experiences. In this article, the authors describe an art-based community research programme for women who had experienced cancer. Taking a phenomenological approach, the article examines how artmaking processes and materials were used by the study participants to shape their own metaphoric thought and, thereby…
Widening the Circle of Care: Digital Stories of Community-Based Caregiving in a Mohawk First Nation
Caregiving has various connotations within diverse social and cultural settings. Within First Nations communities, caregiving may be understood as a central practice of reclaiming cultural identity and teachings from colonial systems of healthcare. Our community-based participatory research project explored the experiences, needs, and strengths of caregivers within the Mohawk Nation of Kahnawake in what is currently called Canada. Through a partn…
“We need to work hand in hand”: Supporting cancer survivorship care with First Nations and Métis peoples in Canada via video
There is a lack of access to culturally safe and individualized cancer survivorship care and awareness of the unique challenges and strengths that Indigenous persons living with cancer (PLCs) face. This study aimed to explore the experiences and needs of First Nations and Métis PLCs across Canada. From 2014 to 2016, we engaged 87 participants who were either PLCs or caregivers (CGs) from five communities across Canada—Gitxsan and Kenora, British …
Empowering Cancer Survivors in Managing Their Own Health: A Paradoxical Dynamic Process of Taking and Letting Go of Control
In cancer care, gaps in support to help patients manage and live with the side-effects from cancer treatments have increased the emphasis on empowering patients to be more active and involved in managing their own health. However, empowerment in relation to promoting self-management behaviors is not well understood. Using the social constructivist grounded theory approach, our goal was to develop a theoretical understanding of this phenomenon in …
Psychology (16 works) · Sociology (15 works) · Medicine (12 works) · Participatory Visual Research Methods (11 works) · Political science (11 works) · Social science (10 works) · Nursing (9 works) · Qualitative research (9 works) · Public relations (7 works) · Art Therapy and Mental Health (6 works)