Emily Harrop
Biographic Data
| ID | 363931 |
|---|---|
| NAME | Emily Harrop |
| GIVEN NAMES | Emily |
| FAMILY NAME | Harrop |
| SIGNATURE | HARROP E |
| AFFILIATIONS | Marie Curie |
| ORCID | 0000-0003-2820-0023 |
| VERIFIED | Yes |
| TOTAL WORKS | 10 |
| TOTAL CITATIONS | 7 |
| WORKS AS AUTHOR | 10 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2017 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
Support needs, support use and perceived helpfulness of support in a cohort of people bereaved during the Covid-19 pandemic
Background: The negative impacts of the COVID-19 pandemic on grief outcomes are well documented. However, less is known about the evolving support needs of people bereaved during this time, what support they used and, crucially, how this support helped (or hindered) their coping, with applicability to contemporary bereavement support contexts. Methods: = 185) months post-bereavement. Support needs and support use were assessed at all time points,…
Establishing Consensus on the Breakthrough Pain Assessment Questionnaire-Self Report (BTPAQ-SR) for Typically Developing Children and Young People (8–25 yrs) with Life-Limiting and Life-Threatening Co…
The findings from this study support the clinical need for the BTPAQ-SR, confirm its conceptual foundation, and justify its continued development. Next steps include cognitive interviews with children and young people and introduction to clinical care to assess the psychometric properties of the BTPAQ-SR, including its clinical utility, reliability, and validity
The grief exists in a bubble that the rest of the world doesn't see
People bereaved during the Covid-19 pandemic experienced profoundly altered death, mourning and grieving practices. Worsened grief outcomes have been widely reported but less is known about how people coped during these unprecedented times. Using reflexive thematic analysis critically informed by theories of biographical disruption and meaning-making, we analysed 39 interview transcripts from 24 people bereaved during the pandemic in the UK. We d…
As low as reasonably practicable (Alarp)
Children dependent on life-prolonging medical technology are often subject to a constant background risk of sudden death or catastrophic complications. Such children can be cared for in hospital, in an intensive care environment with highly trained nurses and doctors able to deliver specialised, life-saving care immediately. However, remaining in hospital, when life expectancy is limited, can considered to be a harm in of itself. Discharge home o…
Definition and Assessment of Paediatric Breakthrough Pain
Infants, children and young people with life-limiting or life-threatening conditions often experience acute, transient pain episodes known as breakthrough pain. There is currently no established way to assess breakthrough pain in paediatric palliative care. Anecdotal evidence suggests that it is frequently underdiagnosed and undertreated, resulting in reduced quality of life. The development of a standardised paediatric breakthrough pain assessme…
Prolonged grief during and beyond the pandemic
Background: The COVID-19 pandemic has been a devastating and enduring mass-bereavement event, with uniquely difficult sets of circumstances experienced by people bereaved at this time. However, little is known about the long-term consequences of these experiences, including the prevalence of Prolonged Grief Disorder (PGD) and other conditions in pandemic-bereaved populations. Methods: = 185) months post-bereavement. Using measures of Prolonged Gr…
Coproducing a library of videos to support families caring for children with gastrostomies
INTRODUCTION: Many families now perform specialist medical procedures at home. Families need appropriate training and support to do this. The aim of this study was to evaluate a library of videos, coproduced with parents and healthcare professionals, to support and educate families caring for a child with a gastrostomy. METHODS: A mixed-methods online survey evaluating the videos was completed by 43 family carers who care for children with gastro…
Factors Associated With Higher Levels of Grief and Support Needs Among People Bereaved During the Pandemic
We identified factors associated with higher levels of grief and support needs among 711 people bereaved during the COVID-19 pandemic in the UK (deaths 16 March 2020-2 January 2021). An online survey assessed grief using the Adult Attitude to Grief (AAG) scale, which calculates an overall index of vulnerability (IOV) (range 0-36), and practical and emotional support needs in 13 domains. Participants' mean age was 49.5 (SD 12.9); 628 (88.6%) femal…
The challenges of caring for children who require complex medical care at home
BACKGROUND: Increasing numbers of children with complex health-care needs are cared for at home by their family. The aim of this qualitative study was to explore the challenges experienced by families caring for children who need complex medical care at home. METHODS: We conducted a thematic analysis of eleven in-depth interviews with parents who carry out specialist medical procedures (eg, enteral feeding, bowel washouts and tracheostomy care) f…
Managing, making sense of and finding meaning in advanced illness
Coping plays an essential role in maintaining the wellbeing of patients with cancer. A number of different coping responses and strategies have been identified in the literature. The value and relevance of meaning based coping theory has also been emphasised, including Antonovosky's Sense of Coherence (SoC) theory. Ten patients with advanced lung cancer were interviewed up to three times. A total of twenty in depth interviews were carried out, fu…
Managing, making sense of and finding meaning in advanced illness
Coping plays an essential role in maintaining the wellbeing of patients with cancer. A number of different coping responses and strategies have been identified in the literature. The value and relevance of meaning based coping theory has also been emphasised, including Antonovosky's Sense of Coherence (SoC) theory. Ten patients with advanced lung cancer were interviewed up to three times. A total of twenty in depth interviews were carried out, fu…
The grief exists in a bubble that the rest of the world doesn't see
People bereaved during the Covid-19 pandemic experienced profoundly altered death, mourning and grieving practices. Worsened grief outcomes have been widely reported but less is known about how people coped during these unprecedented times. Using reflexive thematic analysis critically informed by theories of biographical disruption and meaning-making, we analysed 39 interview transcripts from 24 people bereaved during the pandemic in the UK. We d…
Managing, making sense of and finding meaning in advanced illness
Coping plays an essential role in maintaining the wellbeing of patients with cancer. A number of different coping responses and strategies have been identified in the literature. The value and relevance of meaning based coping theory has also been emphasised, including Antonovosky's Sense of Coherence (SoC) theory. Ten patients with advanced lung cancer were interviewed up to three times. A total of twenty in depth interviews were carried out, fu…
The challenges of caring for children who require complex medical care at home
BACKGROUND: Increasing numbers of children with complex health-care needs are cared for at home by their family. The aim of this qualitative study was to explore the challenges experienced by families caring for children who need complex medical care at home. METHODS: We conducted a thematic analysis of eleven in-depth interviews with parents who carry out specialist medical procedures (eg, enteral feeding, bowel washouts and tracheostomy care) f…
Coproducing a library of videos to support families caring for children with gastrostomies
INTRODUCTION: Many families now perform specialist medical procedures at home. Families need appropriate training and support to do this. The aim of this study was to evaluate a library of videos, coproduced with parents and healthcare professionals, to support and educate families caring for a child with a gastrostomy. METHODS: A mixed-methods online survey evaluating the videos was completed by 43 family carers who care for children with gastro…
Factors Associated With Higher Levels of Grief and Support Needs Among People Bereaved During the Pandemic
We identified factors associated with higher levels of grief and support needs among 711 people bereaved during the COVID-19 pandemic in the UK (deaths 16 March 2020-2 January 2021). An online survey assessed grief using the Adult Attitude to Grief (AAG) scale, which calculates an overall index of vulnerability (IOV) (range 0-36), and practical and emotional support needs in 13 domains. Participants' mean age was 49.5 (SD 12.9); 628 (88.6%) femal…
Prolonged grief during and beyond the pandemic
Background: The COVID-19 pandemic has been a devastating and enduring mass-bereavement event, with uniquely difficult sets of circumstances experienced by people bereaved at this time. However, little is known about the long-term consequences of these experiences, including the prevalence of Prolonged Grief Disorder (PGD) and other conditions in pandemic-bereaved populations. Methods: = 185) months post-bereavement. Using measures of Prolonged Gr…
As low as reasonably practicable (Alarp)
Children dependent on life-prolonging medical technology are often subject to a constant background risk of sudden death or catastrophic complications. Such children can be cared for in hospital, in an intensive care environment with highly trained nurses and doctors able to deliver specialised, life-saving care immediately. However, remaining in hospital, when life expectancy is limited, can considered to be a harm in of itself. Discharge home o…
Definition and Assessment of Paediatric Breakthrough Pain
Infants, children and young people with life-limiting or life-threatening conditions often experience acute, transient pain episodes known as breakthrough pain. There is currently no established way to assess breakthrough pain in paediatric palliative care. Anecdotal evidence suggests that it is frequently underdiagnosed and undertreated, resulting in reduced quality of life. The development of a standardised paediatric breakthrough pain assessme…
Establishing Consensus on the Breakthrough Pain Assessment Questionnaire-Self Report (BTPAQ-SR) for Typically Developing Children and Young People (8–25 yrs) with Life-Limiting and Life-Threatening Co…
The findings from this study support the clinical need for the BTPAQ-SR, confirm its conceptual foundation, and justify its continued development. Next steps include cognitive interviews with children and young people and introduction to clinical care to assess the psychometric properties of the BTPAQ-SR, including its clinical utility, reliability, and validity
The grief exists in a bubble that the rest of the world doesn't see
People bereaved during the Covid-19 pandemic experienced profoundly altered death, mourning and grieving practices. Worsened grief outcomes have been widely reported but less is known about how people coped during these unprecedented times. Using reflexive thematic analysis critically informed by theories of biographical disruption and meaning-making, we analysed 39 interview transcripts from 24 people bereaved during the pandemic in the UK. We d…
Support needs, support use and perceived helpfulness of support in a cohort of people bereaved during the Covid-19 pandemic
Background: The negative impacts of the COVID-19 pandemic on grief outcomes are well documented. However, less is known about the evolving support needs of people bereaved during this time, what support they used and, crucially, how this support helped (or hindered) their coping, with applicability to contemporary bereavement support contexts. Methods: = 185) months post-bereavement. Support needs and support use were assessed at all time points,…
Psychology (8 works) · Medicine (7 works) · Grief (4 works) · Grief, Bereavement, and Mental Health (4 works) · Social Psychology (4 works) · Social support (4 works) · Sociology (4 works) · Childhood Cancer Survivors' Quality of Life (3 works) · Clinical Psychology (3 works) · Complicated grief (3 works)