Diana Rose
Datos Biográficos
| ID | 3652186 |
|---|---|
| NOMBRE | Diana Rose |
| NOMBRES | Diana |
| APELLIDO | Rose |
| FIRMA | ROSE D |
| AFILIACIONES | King's College London |
| ORCID | 0000-0002-5707-2633 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 44 |
| TOTAL DE CITAS | 262 |
| TOTAL COMO AUTOR | 44 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1998 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2024 |
| ÍNDICE H | 8 |
Diana Rose. Review of "The Myths of the Popol Vuh in Cosmology, Art, and Ritual" by Allen J. Christenson, Holley Moyes, and Frauke Sachse
Is there power in Mad knowledge
This paper addresses some conceptual and organizational questions which bear on the issue of whether those designated mad can produce knowledge from, about, and beyond their experience. Ideas encapsulated in concepts such as lack of reason and epistemic justice are deployed as well as the individuation that characterizes both the clinical encounter and services generally. It is argued that these prevent such knowledge making in itself and dissipa…
Mad Knowledges and User-Led Research
Critical qualitative research on ‘madness’
This paper charts the background to a project which aimed to map the knowledge being generated across the world by people silenced for centuries – the ‘mad’: a term with derogatory historical resonances but which is now being reclaimed. The idea that those designated ‘mad’ can produce knowledge is novel: ‘mad’ people are imagined as lacking rationality, and incapable of producing knowledge; they are subject to epistemic injustice. Patient engagem…
Lost in the shadows
This article is a response to Oliver et al.’s Commentary ‘The dark side of coproduction: do the costs outweigh the benefits for health research?’ recently published in Health Research Policy and Systems (2019, 17:33). The original commentary raises some important questions about how and when to co-produce health research, including highlighting various professional costs to those involved. However, we identify four related limitations in their in…
Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis
BACKGROUND: Patient and public involvement (PPI) has the potential to strengthen mental health systems in Indonesia and improve care for people living with psychosis. Current evidence from other parts of the world demonstrates the need to understand the contexts in which PPI is to be enacted to ensure optimal implementation. OBJECTIVE: To understand service users' and carers' views on the current use and potential applicability of PPI within Indo…
LandBody
LandBody:Radical Native Commitments Diana Rose (bio), Robert Geroux (bio), and Kennan Ferguson "Who are a people?" and "What is land?" may seem to be separate questions, but they are not. Despite colonial incursions, Native communities continue tribal lifeways, constructing and reconstructing systems of reciprocal survival. Place is not a neutral backdrop, "where something happens." Connection to a specific land comprises a central component of i…
On personal epiphanies and collective knowledge in survivor research and action
Power, Privilege and Knowledge
This paper looks at the historical antecedents of the idea of 'coproduction' and gives some concrete examples in the field of mental health. These prior concepts and their concomitant exemplars show that 'collaboration' and 'partnership' failed because of the continued existence of unspoken power dynamics between professionals, researchers and policy makers and the service users who had been promised 'partnership'. We then go onto ask whether cop…
The importance of content and face validity in instrument development
This research has underlined the importance of service users' views on the acceptability and validity of items for use in developing a new measure. Whether or not service users favoured an item was associated with their ability or intention to respond accurately and honestly to the item which will impact on the validity and sensitivity of the measure
A hidden activism and its changing contemporary forms
This commentary concerns how the organisation of State welfare benefits in the UK have changed over the last 20 years, arguing that this has had harmful, even fatal, consequences for people with disabilities and particularly those with mental distress of psychosocial disabilities. This current situation may be called that of austerity. The paper describes how a ‘hidden activism’ has emerged to contest this situation and explains why it is, and to…
Widening cross-disciplinary research for mental health’
This current issues article is a brief critical examination of the recent Research Councils UK agenda and call for cross-disciplinary research in mental health. Our argument is based on the fact that patient and public involvement (PPI) is the only involvement and influencing strategy for service users and survivors in the agenda. Service user and survivor research as a discipline in itself remains unacknowledged. We conclude that service user an…
Service user/survivor-led research in mental health
This paper considers possible epistemologies for user-led and survivor research by drawing on four discourses: the mainstream English tradition, Canadian Mad Studies, critical theory more generally and feminist standpoint epistemology. It discusses general, universalising epistemologies, the extent to which these characterise the discourses at stake and the problems with knowledge claims that rest on such singular conceptualisations. The institut…
Evidence for effective interventions to reduce mental-health-related stigma and discrimination
Barriers to shared decision making in mental health care
BACKGROUND: Despite increasing calls for shared decision making (SDM), the precise mechanisms for its attainment are unclear. Sharing decisions in mental health care may be especially complex. Fluctuations in service user capacity and significant power differences are particular barriers. OBJECTIVE AND DESIGN: We trialled a form of facilitated SDM that aimed to generate patients' treatment preferences in advance of a possible relapse. The 'Joint …
Defining continuity of care from the perspectives of mental health service users and professionals
BACKGROUND: Continuity of care (COC) is central to the organization and delivery of mental health services. Traditional definitions have excluded service users, and this lack of involvement has been linked to poor conceptual clarity surrounding the term. Consequently, very little is known about the differences and similarities in the conceptualization of COC by mental health service users and professionals. OBJECTIVE: To explore and compare menta…
Expectations of new treatment in rheumatoid arthritis
BACKGROUND: Service-user partnerships in research exist in mental health, but there have been few advances in other disciplines, apart from cancer. OBJECTIVES: To develop a patient-generated expectancy measure for new treatments in rheumatoid arthritis (RA), using a participatory method. METHOD: Stage 1: three repeated focus groups and two expert panels with patients with RA conducted by a patient researcher to generate items for the draft questi…
Service user governors in mental health foundation trusts
CONTEXT: National Health Foundation Trusts present opportunities for individual mental health service users to be active in the governance of trusts. This is one of a range of mechanisms for patient and public involvement and one which promotes an individual rather than collective approach to involvement. OBJECTIVE: Within the context of a broader study of the impact of service user involvement in mental health services, the objective of this art…
Improving Therapeutic Relationships
Outcomes for individuals with psychosis remain far from acceptable. Recently, prominent psychiatrists have called for an improved understanding of the impact of social contexts, and how social contexts might influence the development and maintenance of mental health problems. A key social context for individuals with psychosis is the therapeutic relationship. As part of a trial of joint crisis planning in England, this qualitative study aimed to …
The mainstreaming of recovery
Recovery is everywhere. I am not the first person to say it was invented by the service user/survivor movement (Deegan, 1988) and subsequently taken up by mental health professionals (Repper & Perk...
Stigma and discrimination against people with schizophrenia related to medical services
OBJECTIVE: To investigate whether people with schizophrenia experience discrimination when using health care services. METHODS: A cross-sectional survey in 27 countries in centres affiliated to the INDIGO Research Network, using face-to-face interviews with 777 participants with schizophrenia (62% male and 38% female). We analysed the data related to health issues, including health care, disrespect of mental health staff, and also personal privac…
Exploring stigmatisation among people diagnosed with either bipolar disorder or borderline personality disorder
Patient and public involvement in health research
Patient and public involvement in health research, including mental health research, is promoted by research funders in England. However, it is poorly conceptualised. One argument is that patient and public involvement in research is an ethical imperative because those who research is for should have a stake in how it is done. This could be developed through concepts of citizenship and democratic science. More strongly, it can be argued that chan…
Hearing the voices of service user researchers in collaborative qualitative data analysis
BACKGROUND: Health research is frequently conducted in multi-disciplinary teams, with these teams increasingly including service user researchers. Whilst it is common for service user researchers to be involved in data collection--most typically interviewing other service users--it is less common for service user researchers to be involved in data analysis and interpretation. This means that a unique and significant perspective on the data is abs…
Continuity of care for carers of people with severe mental illness
INTRODUCTION: Continuity of care has been demonstrated to be important for service users and carer groups have voiced major concerns over disruptions of care. We aimed to assess the experienced continuity of care in carers of patients with both psychotic and non-psychotic disorders and explore its association with carer characteristics and psychological well-being. METHODS: Friends and relatives caring for two groups of service users in the care …
Theory and Method of Social Representations
This paper gives an overview of social representation theory, definitions of the key terms and of the social processes leading to a representation and to social identity. Six empirical studies are presented and details of their methods and findings are given to illustrate this social psychological approach. These studies are about the ontogenesis of gender, the public sphere in Brazil, madness on British television, images of androgyny in Switzer…
Power, Privilege and Knowledge
This paper looks at the historical antecedents of the idea of 'coproduction' and gives some concrete examples in the field of mental health. These prior concepts and their concomitant exemplars show that 'collaboration' and 'partnership' failed because of the continued existence of unspoken power dynamics between professionals, researchers and policy makers and the service users who had been promised 'partnership'. We then go onto ask whether cop…
Service user/survivor-led research in mental health
This paper considers possible epistemologies for user-led and survivor research by drawing on four discourses: the mainstream English tradition, Canadian Mad Studies, critical theory more generally and feminist standpoint epistemology. It discusses general, universalising epistemologies, the extent to which these characterise the discourses at stake and the problems with knowledge claims that rest on such singular conceptualisations. The institut…
Exploring stigmatisation among people diagnosed with either bipolar disorder or borderline personality disorder
Patient and public involvement in health research
Patient and public involvement in health research, including mental health research, is promoted by research funders in England. However, it is poorly conceptualised. One argument is that patient and public involvement in research is an ethical imperative because those who research is for should have a stake in how it is done. This could be developed through concepts of citizenship and democratic science. More strongly, it can be argued that chan…
Illness careers and continuity of care in mental health services
Widening cross-disciplinary research for mental health’
This current issues article is a brief critical examination of the recent Research Councils UK agenda and call for cross-disciplinary research in mental health. Our argument is based on the fact that patient and public involvement (PPI) is the only involvement and influencing strategy for service users and survivors in the agenda. Service user and survivor research as a discipline in itself remains unacknowledged. We conclude that service user an…
Madness strikes back
This commentary is concerned with the involvement of mental health service users in research. It will argue that research carried out by service users is one way of giving voice to a previously silenced group—the mad. It is one way in which ‘Madness Strikes Back’. The main theoretical model to be used is that of the early Foucault. I will not be concerned with what has become known as ‘Foucauldian discourse analysis’ since nowhere in Foucault's w…
The great ambivalence
Whilst antidepressant medications are widely used, they are ineffective for nearly 40 per cent of users and cause numerous adverse drug reactions. The pharmacogenomics of depression attempts to better understand the role of genetic variation in antidepressant metabolism in the hope of improving drug efficacy and tolerability. In this paper we present findings from a series of focus groups with the general public and with mental health service use…
Improving Therapeutic Relationships
Outcomes for individuals with psychosis remain far from acceptable. Recently, prominent psychiatrists have called for an improved understanding of the impact of social contexts, and how social contexts might influence the development and maintenance of mental health problems. A key social context for individuals with psychosis is the therapeutic relationship. As part of a trial of joint crisis planning in England, this qualitative study aimed to …
A hidden activism and its changing contemporary forms
This commentary concerns how the organisation of State welfare benefits in the UK have changed over the last 20 years, arguing that this has had harmful, even fatal, consequences for people with disabilities and particularly those with mental distress of psychosocial disabilities. This current situation may be called that of austerity. The paper describes how a ‘hidden activism’ has emerged to contest this situation and explains why it is, and to…
Television, madness and community care
Television, madness and community care
This paper describes the forms and contents of television representations of mental illness in the UK in 1992. The theoretical framework is provided by Moscovici's theory of social representations and some modifications are proposed for the case of madness. Quantitative and qualitative methods are used in the empirical analyses. It is shown that madness has multiple meanings on television, while at the same time violence is commonly included. It …
Theory and Method of Social Representations
This paper gives an overview of social representation theory, definitions of the key terms and of the social processes leading to a representation and to social identity. Six empirical studies are presented and details of their methods and findings are given to illustrate this social psychological approach. These studies are about the ontogenesis of gender, the public sphere in Brazil, madness on British television, images of androgyny in Switzer…
Discrimination in health care against people with mental illness
This paper discusses factors associated with low rates of help-seeking and poorer quality of physical healthcare among people with mental illnesses. Evidence is reviewed on the associations between low rates of mental health literacy, negative attitudes towards people with mental illness, and reluctance to seek help by people who consider that they may have a mental disorder. People with mental illness often report encountering negative attitudes…
Stigma
The term stigma refers to problems of knowledge (ignorance), attitudes (prejudice) and behaviour (discrimination). Most research in this area has been based on attitude surveys, media representations of mental illness and violence, has only focused upon schizophrenia, has excluded direct participation by service users, and has included few intervention studies. However, there is evidence that interventions to improve public knowledge about mental…
Connecting hygroscopic growth at high humidities to cloud activation for different particle types
This work recompiles studies that have been done with respect to hygroscopic growth in the regime of high relative humidities and with respect to activation for different kinds of particle at LACIS (Leipzig Aerosol Cloud Interaction Simulator) during the last few years. The particles examined consisted of a mixture of succinic acid and ammonium sulfate, seawater samples, soot coated with an organic and/or an inorganic substance, and two different…
Madness strikes back
This commentary is concerned with the involvement of mental health service users in research. It will argue that research carried out by service users is one way of giving voice to a previously silenced group—the mad. It is one way in which ‘Madness Strikes Back’. The main theoretical model to be used is that of the early Foucault. I will not be concerned with what has become known as ‘Foucauldian discourse analysis’ since nowhere in Foucault's w…
The great ambivalence
Whilst antidepressant medications are widely used, they are ineffective for nearly 40 per cent of users and cause numerous adverse drug reactions. The pharmacogenomics of depression attempts to better understand the role of genetic variation in antidepressant metabolism in the hope of improving drug efficacy and tolerability. In this paper we present findings from a series of focus groups with the general public and with mental health service use…
Global pattern of experienced and anticipated discrimination against people with schizophrenia
Illness careers and continuity of care in mental health services
Development and Psychometric Properties of the Mental Health Knowledge Schedule
Methods: We describe the development of the MAKS in addition to 3 studies that were carried out to evaluate the psychometric properties of the MAKS. Adults aged 25 to 45 years in socioeconomic groups: B, C1, and C2 completed the instrument via face-to-face interview ( n = 92) and online ( n = 403). Results: Internal reliability and test-retest reliability is moderate to substantial. Validity is supported by extensive review by experts (including …
Perceptions of User Involvement
Background: User involvement in health services has been a priority for government since 1990. In mental health, concern has been expressed that involved service users (activists) are not representative of ‘ordinary’ patients. Aims: (i) To investigate service users’ perceptions of the outcomes of user involvement in two London boroughs. (ii) To determine whether the perceptions of outcomes differ between activists and non-activists. Method: The s…
An Evaluation of New Services for Personality-Disordered Offenders
Background: Little is known about effective treatment for personality-disordered (PD) offenders. We aimed to obtain the perspective of service users and staff on: (a) the experience of receiving treatment; and (b) the experience of delivering treatment, within new forensic services for PD offenders. Material: Thematic analysis was applied to qualitative interviews with 30 service users and 22 staff. Discussion: Service users perceived that they w…
Development and psychometric properties of the Reported and Intended Behaviour Scale (Ribs)
Background. Although stigma in relation to mental health has been defined as including components of knowledge, attitudes and behaviour, no psychometrically tested instrument to assess behavioural discrimination at the population level has been developed. This paper presents details of the development and psychometric properties of the Reported and Intended Behaviour Scale (RIBS), an instrument based on the Star Social Distance Scale, to assess r…
Newspaper coverage of mental illness in the UK, 1992-2008
Newspaper coverage of mental illness became less stigmatising overall in the 1990s and 2000s, but this was not true for all diagnoses
Close to the bench as well as at the bedside
Aim The paper aims to develop a model of translational research in which service user and other stakeholder involvement are central to each phase. Background ‘Translational’ is the current medical buzzword: translational research has been termed ‘bench to bedside’ research and promises to fast‐track biomedical advances in the service of patient benefit. Models usually conceive of translational research as a ‘pipeline’ that is divided into phases:…
Holding blame at bay? ‘Gene talk’ in family members’ accounts of schizophrenia aetiology
We provide the first detailed analysis of how, for what purposes and with what consequences people related to someone with a diagnosis of schizophrenia use 'gene talk'. The article analyses findings from a qualitative interview study conducted in London and involving 19 participants (mostly women). We transcribed the interviews verbatim and analysed them using grounded theory methods. We analyse how and for what purposes participants mobilized 'g…
Hearing the voices of service user researchers in collaborative qualitative data analysis
BACKGROUND: Health research is frequently conducted in multi-disciplinary teams, with these teams increasingly including service user researchers. Whilst it is common for service user researchers to be involved in data collection--most typically interviewing other service users--it is less common for service user researchers to be involved in data analysis and interpretation. This means that a unique and significant perspective on the data is abs…
Continuity of care for carers of people with severe mental illness
INTRODUCTION: Continuity of care has been demonstrated to be important for service users and carer groups have voiced major concerns over disruptions of care. We aimed to assess the experienced continuity of care in carers of patients with both psychotic and non-psychotic disorders and explore its association with carer characteristics and psychological well-being. METHODS: Friends and relatives caring for two groups of service users in the care …
Continuity of care for people with psychotic illness
BACKGROUND: The relationship between continuity of care and user characteristics or outcomes has rarely been explored. The ECHO study operationalized and tested a multi-axial definition of continuity of care, producing a seven-factor model used here. AIMS: To assess the relationship between user characteristics and established components of continuity of care, and the impact of continuity on clinical and social functioning. METHODS: The sample co…
‘Our community is the worst’
BACKGROUND: Existing knowledge about the cultural beliefs of black and minority ethnic (BME) communities in the UK regarding stigma and mental illness is limited. MATERIAL: Data were collected in 10 focus groups, five with service users and five with laypersons, from BME communities in London. DISCUSSION: Thematic analysis identified that cultural beliefs regarding mental illness reflect four different voices present within the BME communities. C…
The mainstreaming of recovery
Recovery is everywhere. I am not the first person to say it was invented by the service user/survivor movement (Deegan, 1988) and subsequently taken up by mental health professionals (Repper & Perk...
Stigma and discrimination against people with schizophrenia related to medical services
OBJECTIVE: To investigate whether people with schizophrenia experience discrimination when using health care services. METHODS: A cross-sectional survey in 27 countries in centres affiliated to the INDIGO Research Network, using face-to-face interviews with 777 participants with schizophrenia (62% male and 38% female). We analysed the data related to health issues, including health care, disrespect of mental health staff, and also personal privac…
Exploring stigmatisation among people diagnosed with either bipolar disorder or borderline personality disorder
Patient and public involvement in health research
Patient and public involvement in health research, including mental health research, is promoted by research funders in England. However, it is poorly conceptualised. One argument is that patient and public involvement in research is an ethical imperative because those who research is for should have a stake in how it is done. This could be developed through concepts of citizenship and democratic science. More strongly, it can be argued that chan…
Psychology (33 obras) · Mental health (27 obras) · Medicine (24 obras) · Psychiatry (24 obras) · Sociology (21 obras) · Mental Health and Patient Involvement (19 obras) · Political science (16 obras) · Social Psychology (14 obras) · Clinical Psychology (13 obras) · Mental illness (13 obras)