Julia Downing

Biographic Data

ID3697383
NAMEJulia Downing
GIVEN NAMESJulia
FAMILY NAMEDowning
SIGNATUREDOWNING J
AFFILIATIONSAfrican Palliative Care Association
ORCID0000-0002-3450-785X
VERIFIEDYes
TOTAL WORKS14
TOTAL CITATIONS7
AUTHOR COUNT14
EDITOR COUNT0
FIRST PUBLICATION YEAR2006
LATEST PUBLICATION YEAR2026
H-INDEX1

  • Barriers to optimal chronic pain management in refugees

    Open AccessEmma Victoria Marianne Bilney, Maris Vasenius et al.ARTICLEBMC Public Health2026

    In 2023, there were 36.4 million refugees worldwide, many of whom experience physical injuries, human rights abuses and psychological distress during displacement. However, their healthcare needs during and after resettlement are rarely met. Among them, chronic pain and its effective management, are under-recognized but prevalent problems of humanitarian care. The aim of this scoping review was to improve our understanding of the challenges in tr…

  • Mapping of Children’s Palliative Care Development Globally in 2023

    Open AccessJulia Downing, Lizzie Chambers et al.ARTICLEChildren2025

    Background: The demand for children's palliative care is increasingly urgent, with over 21 million children worldwide needing access, yet only 5-10% currently receiving it. Mapping the development of children's palliative care is important in tracking progress and focusing priorities for future work. Methods: In 2023, a cross-sectional survey was conducted to assess the status of children's palliative care globally, focusing on eight key indicato…

  • Whose life are They Going to Save? It's Probably Not Going to be Mine!' Living With a Life-Shortening Condition During the Coronavirus (Covid-19) Pandemic

    Open AccessSarah Earle, Maddie Blackburn et al.ARTICLEQualitative Health Research2022References: 35

    This article explores the experiences of young adults with a life-shortening condition in the first wave of the Coronavirus (COVID-19) pandemic in the UK. It presents the findings from an inclusive qualitative research study using constructivist grounded theory which aimed to examine the unintended consequences of pandemic control measures (lockdown and 'shielding') on this population. Purposive and theoretical sampling methods were used to recru…

  • Redefining Palliative Care—A New Consensus-Based Definition

    Open AccessLukas Radbruch, Liliana De Lima et al.ARTICLEJournal of Pain and Symptom…2020

    CONTEXT: The International Association for Hospice and Palliative Care developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health-related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief. OBJECTIVE: The main objective of this article is to present the research behind the new definition. METHODS: The three-phased consensus process involved he…

  • Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage

    Open AccessFelicia M Knaul, Paul E Farmer et al.ARTICLEThe Lancet2018

  • Integrating palliative care into national health systems in Africa

    Open AccessLorna Grant, Liz Grant et al.ARTICLEJournal of Global Health2017

    BACKGROUND: The WHO is calling for the integration of palliative care in all health care settings globally. METHODS: A 3.5-year program was implemented in 12 government hospitals, three each in Kenya, Rwanda, Uganda and Zambia. A four-pillared approach of advocacy, staff training, service delivery strengthening and international and regional partnership working was utilized. A baseline assessment was undertaken to ascertain needs, and 27 indicato…

  • Faith and palliative care

    Lorna Grant, Elizabeth Grant et al.ARTICLEDevelopment in Practice2017References: 23

    The provision of holistic palliative care has been identified by WHO as a human right, important for all people, at all ages, with all life-limiting illnesses. When faced with death and dying, issues of meaning and relationships with others, the world, and with the sacred are intensified even more in communities where faith and spiritual beliefs have a significant place. Being able to understand the significance of dying and interpreting the expe…

  • The personal value of being part of a Tropical Health Education Trust (THET) links programme to develop a palliative care degree programme in Sub Saharan Africa

    Open AccessBarbara Jack, B A Jack et al.ARTICLEGlobalization and Health2015

    BACKGROUND: There is a global need to expand palliative care services to reach the increasing number requiring end of life care. In developing countries where the incidences of cancer are rising there is an urgent need to develop the palliative care workforce. This paper reports on a UK Department for international development (DFID) initiative funded through the Tropical Health Education Trust (THET) where palliative care staff, both clinical an…

  • The HIV basic care package

    Suzanne Penfold, Victoria Simms et al.ARTICLEAIDS Care2014

    An evidence-based basic care package (BCP) of seven interventions (Family testing, Cotrimoxazole, Condoms, Multivitamins, Access to safe water treatment, Isoniazid preventive therapy (IPT), and Insecticide-treated bednet) has been advocated to prevent infections among people with HIV in low-income settings. We examined the availability and receipt of the BCP in HIV outpatient clinics in Kenya and Uganda. A survey of 120 PEPFAR-funded facilities d…

  • The presence of CD4 counts for the management of HIV patients in East Africa

    R Harding, Victoria Simms et al.ARTICLEAIDS Care2014

    New WHO guidance stipulates six-monthly CD4 testing and treatment initiation at CD4 less than 350. This study aimed to determine the presence of CD4 results in patient records across five care facilities in Kenya, and to identify factors associated with the presence of CD4 count. This is a cross-sectional study of consecutive outpatients. Participants completed self-reported outcomes of demographics, and both physical and mental health dimensions…

  • The Role of Play in Children’s Palliative Care

    Open AccessSue Boucher, Julia Downing et al.ARTICLEChildren2014

    Play is the universal language of childhood and the time and opportunity to play is every child's right. The role of play as a vehicle for communication, a tool for distraction and its value in the holistic development of a normal child is without dispute. The role and value of play increase proportionately when a child is made more vulnerable through illness or disability. Despite this, providing time and opportunities to play can be overlooked …

  • Stressors and Resources of Caregivers of Patients With Incurable Progressive Illness in Sub-Saharan Africa

    Open AccessJocelyn Streid, Richard Harding et al.ARTICLEQualitative Health Research2014Cited by: 7References: 24

    Family caregivers are central to palliative care in sub-Saharan Africa. Yet although supporting caregivers requires a comprehensive understanding of caregiver burden, there has been little research into this topic in Africa. Using the Stress Process Model to investigate the burden experienced by caregivers in South Africa and Uganda, we interviewed 37 caregivers and analyzed the data thematically. Caregivers' primary stressors related to day-to-d…

  • Multi-centred mixed-methods Pepfar HIV care & support public health evaluation

    Open AccessR Harding, Victoria Simms et al.ARTICLEBMC Public Health2010

    This novel mixed methods protocol will permit transparent presentation of subsequent dataset results publication, and offers a substantive model of protocol design to measure and integrate key activities and outcomes that underpin a public health approach to disease management in a low-income setting

  • Disclosure of HIV Status and Adherence to Daily Drug Regimens Among HIV-infected Children in Uganda

    Open AccessWinnie Bikaako-Kajura, Emmanuel Luyirika et al.ARTICLEAIDS and Behavior2006