Debbie Horsfall
Biographic Data
| ID | 3761561 |
|---|---|
| NAME | Debbie Horsfall |
| GIVEN NAMES | Debbie |
| FAMILY NAME | Horsfall |
| SIGNATURE | HORSFALL D |
| AFFILIATIONS | Western Sydney University |
| ORCID | 0000-0002-9266-6234 |
| VERIFIED | Yes |
| TOTAL WORKS | 16 |
| TOTAL CITATIONS | 69 |
| WORKS AS AUTHOR | 15 |
| WORKS AS EDITOR | 1 |
| FIRST PUBLICATION YEAR | 1997 |
| LATEST PUBLICATION YEAR | 2021 |
| H-INDEX | 6 |
Developing a death literacy index
Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians usin…
Sensitive Inquiry in Mental Health
This article presents an innovative tripartite approach for conducting safe and ethical 'sensitive inquiry' in the field of mental health recovery. The tripartite approach brings together the principles of recovery with trauma-informed practice and collective impact strategies. Together, these provide a framework for embedding and embodying recovery principles in research design and practice that empowers participants and 'takes care' of particip…
Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care
Informal care networks’ views of palliative care services
Most people indicate their preference to die at home; however, in the developed world, most die in hospital. Dying at home requires complex factors to be in place in health services and informal networks of care to successfully provide support. This study examines the ways health systems, services, and individual health care professionals influence care at home at the end of life. Three principles guide the reorientation of health services and en…
Identity and the End‐of‐Life Story
ObjectiveNarrative approaches to identity, which conceptualise a person's identity as their life story, present a useful way for approaching support at end‐of‐life because they do not pathologise dying but rather recognise it is the final chapter of a life story. The construction of life stories is always a social process and could be supported by psychologists. Attention to issues of identity and relationships is beneficial for dying people and …
Love stories
This article documents the findings of a short-term longitudinal study that explored the caring journeys of aged Greek carers providing in-home care for their spouse. Through a deeper understanding of carers' decisions and decision-making and insights from service providers and community leaders, we aimed to inform policy makers, service managers and providers about how to develop and promote culturally appropriate support services, and negotiate…
Palliative care for the planet
This article weaves together our responses, as three visitors and one Indigenous owner of this land, to the impending end of life, at least human life, on this planet. What we make of this almost impossible theme and what it makes of us are enacted through art, poetry, reverie, analysis and storytelling. We write in ways that are personal, lateral and yet collective, experimenting with how the tensions and connections between different art forms,…
Forged by Fire
The opening sequence of the autobiography, The Book of Margery Kempe , written in approximately 1439, describes an episode of illness after the birth of a first child, which medical historians have identified as postnatal psychosis. Margery however, interpreted her experience of postnatal psychosis in terms of her own worldview, using a Christian paradigm. She was convinced that her recovery was an example of Grace emanating from her special rela…
Informal caring networks for people at end of life
The care of a person living at home near the end of their life is predominantly provided by family carers with the support of health services such as palliative care. In addition, informal caring networks also contribute at times to the support provided to the dying person and their carer. In this way, these networks can promote social capital in the communities from which they are drawn. This social approach to end of life care enhances communit…
Rights to research
For those labelled disabled, disability rights are synonymous with human rights, not merely a sub-category. In this paper we consider disability rights in terms of the right of people labelled with learning difficulties to be actively involved in research. Examples from an inclusive participatory action research project undertaken in partnership with people labelled with learning difficulties demonstrate how the Convention on the Rights of Person…
Bringing our dying home
In this article we discuss the 'bringing our dying home' research project which contributes to an understanding of caring at end of life (EOL) as potentially increasing social networks and community capacity. The main aims of the research were to illuminate the quality and effect of informal caring networks that are established, or strengthened, as a result of caring for a person dying at home and to understand how being involved in such a caring…
Creative Spaces for Qualitative Researching
This book looks inward at researchers who are seeking to live their research - to embody the principles, methodologies and ethical conduct that comprises their research strategies. And, it looks outward at the living world as the focus of qualitative research. From both perspectives the editors and authors of this book have created space for qualitative research that provides critical and creative frameworks for conducting and living their resear…
Everyday practices of exclusion/inclusion
This article discusses a small in-depth research study with five women who have an intellectual disability. Recognising the potential limitations of narrative approaches an inclusive arts-based methodology, supplemented with semi-structured interviews, and was employed to enable the women to speak for themselves about issues that were of interest to them. Thematic analysis of the data showed that the women experienced practices of social and emot…
Disrupting edges – opening spaces
In this paper, we explore how the use of critical creativity as methodology can democratise, and enliven, both process and product of qualitative research. This, we believe, is important if we are concerned with inclusive, collaborative research which aims to change the material circumstances of people's lives and, simultaneously, nurture the human flourishing of participants in the research. One of our concerns is to find ways which enable more …
Increasing Operational Effectiveness in UN Peacekeeping
In this article, the authors argue that an increased percentage of female military personnel on UN peacekeeping operations is beneficial to operational effectiveness. They establish a case for a greater proportion of female service personnel that is based on three main premises: (1) a force adequately representative of female service personnel in peacekeeping operations will combat sexual misconduct perpetrated by some male soldiers, (2) peacekee…
Research and Disability in a Local Community
This paper describes a study of the experience of disability in a local community. The study unfolded within a carefully constructed and collaborative framework, so that the people in whose interests the study was focused could inform its process, and take opportunities to benefit from it and each other. Outcomes included the establishment of a local support group, a family support project involving the University and the local community, and con…
Bringing our dying home
In this article we discuss the 'bringing our dying home' research project which contributes to an understanding of caring at end of life (EOL) as potentially increasing social networks and community capacity. The main aims of the research were to illuminate the quality and effect of informal caring networks that are established, or strengthened, as a result of caring for a person dying at home and to understand how being involved in such a caring…
Everyday practices of exclusion/inclusion
This article discusses a small in-depth research study with five women who have an intellectual disability. Recognising the potential limitations of narrative approaches an inclusive arts-based methodology, supplemented with semi-structured interviews, and was employed to enable the women to speak for themselves about issues that were of interest to them. Thematic analysis of the data showed that the women experienced practices of social and emot…
Developing a death literacy index
Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians usin…
Identity and the End‐of‐Life Story
ObjectiveNarrative approaches to identity, which conceptualise a person's identity as their life story, present a useful way for approaching support at end‐of‐life because they do not pathologise dying but rather recognise it is the final chapter of a life story. The construction of life stories is always a social process and could be supported by psychologists. Attention to issues of identity and relationships is beneficial for dying people and …
Increasing Operational Effectiveness in UN Peacekeeping
In this article, the authors argue that an increased percentage of female military personnel on UN peacekeeping operations is beneficial to operational effectiveness. They establish a case for a greater proportion of female service personnel that is based on three main premises: (1) a force adequately representative of female service personnel in peacekeeping operations will combat sexual misconduct perpetrated by some male soldiers, (2) peacekee…
Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care
Disrupting edges – opening spaces
In this paper, we explore how the use of critical creativity as methodology can democratise, and enliven, both process and product of qualitative research. This, we believe, is important if we are concerned with inclusive, collaborative research which aims to change the material circumstances of people's lives and, simultaneously, nurture the human flourishing of participants in the research. One of our concerns is to find ways which enable more …
Sensitive Inquiry in Mental Health
This article presents an innovative tripartite approach for conducting safe and ethical 'sensitive inquiry' in the field of mental health recovery. The tripartite approach brings together the principles of recovery with trauma-informed practice and collective impact strategies. Together, these provide a framework for embedding and embodying recovery principles in research design and practice that empowers participants and 'takes care' of particip…
Rights to research
For those labelled disabled, disability rights are synonymous with human rights, not merely a sub-category. In this paper we consider disability rights in terms of the right of people labelled with learning difficulties to be actively involved in research. Examples from an inclusive participatory action research project undertaken in partnership with people labelled with learning difficulties demonstrate how the Convention on the Rights of Person…
Informal caring networks for people at end of life
The care of a person living at home near the end of their life is predominantly provided by family carers with the support of health services such as palliative care. In addition, informal caring networks also contribute at times to the support provided to the dying person and their carer. In this way, these networks can promote social capital in the communities from which they are drawn. This social approach to end of life care enhances communit…
Research and Disability in a Local Community
This paper describes a study of the experience of disability in a local community. The study unfolded within a carefully constructed and collaborative framework, so that the people in whose interests the study was focused could inform its process, and take opportunities to benefit from it and each other. Outcomes included the establishment of a local support group, a family support project involving the University and the local community, and con…
Research and Disability in a Local Community
This paper describes a study of the experience of disability in a local community. The study unfolded within a carefully constructed and collaborative framework, so that the people in whose interests the study was focused could inform its process, and take opportunities to benefit from it and each other. Outcomes included the establishment of a local support group, a family support project involving the University and the local community, and con…
Disrupting edges – opening spaces
In this paper, we explore how the use of critical creativity as methodology can democratise, and enliven, both process and product of qualitative research. This, we believe, is important if we are concerned with inclusive, collaborative research which aims to change the material circumstances of people's lives and, simultaneously, nurture the human flourishing of participants in the research. One of our concerns is to find ways which enable more …
Increasing Operational Effectiveness in UN Peacekeeping
In this article, the authors argue that an increased percentage of female military personnel on UN peacekeeping operations is beneficial to operational effectiveness. They establish a case for a greater proportion of female service personnel that is based on three main premises: (1) a force adequately representative of female service personnel in peacekeeping operations will combat sexual misconduct perpetrated by some male soldiers, (2) peacekee…
Creative Spaces for Qualitative Researching
This book looks inward at researchers who are seeking to live their research - to embody the principles, methodologies and ethical conduct that comprises their research strategies. And, it looks outward at the living world as the focus of qualitative research. From both perspectives the editors and authors of this book have created space for qualitative research that provides critical and creative frameworks for conducting and living their resear…
Everyday practices of exclusion/inclusion
This article discusses a small in-depth research study with five women who have an intellectual disability. Recognising the potential limitations of narrative approaches an inclusive arts-based methodology, supplemented with semi-structured interviews, and was employed to enable the women to speak for themselves about issues that were of interest to them. Thematic analysis of the data showed that the women experienced practices of social and emot…
Rights to research
For those labelled disabled, disability rights are synonymous with human rights, not merely a sub-category. In this paper we consider disability rights in terms of the right of people labelled with learning difficulties to be actively involved in research. Examples from an inclusive participatory action research project undertaken in partnership with people labelled with learning difficulties demonstrate how the Convention on the Rights of Person…
Bringing our dying home
In this article we discuss the 'bringing our dying home' research project which contributes to an understanding of caring at end of life (EOL) as potentially increasing social networks and community capacity. The main aims of the research were to illuminate the quality and effect of informal caring networks that are established, or strengthened, as a result of caring for a person dying at home and to understand how being involved in such a caring…
Palliative care for the planet
This article weaves together our responses, as three visitors and one Indigenous owner of this land, to the impending end of life, at least human life, on this planet. What we make of this almost impossible theme and what it makes of us are enacted through art, poetry, reverie, analysis and storytelling. We write in ways that are personal, lateral and yet collective, experimenting with how the tensions and connections between different art forms,…
Forged by Fire
The opening sequence of the autobiography, The Book of Margery Kempe , written in approximately 1439, describes an episode of illness after the birth of a first child, which medical historians have identified as postnatal psychosis. Margery however, interpreted her experience of postnatal psychosis in terms of her own worldview, using a Christian paradigm. She was convinced that her recovery was an example of Grace emanating from her special rela…
Informal caring networks for people at end of life
The care of a person living at home near the end of their life is predominantly provided by family carers with the support of health services such as palliative care. In addition, informal caring networks also contribute at times to the support provided to the dying person and their carer. In this way, these networks can promote social capital in the communities from which they are drawn. This social approach to end of life care enhances communit…
Love stories
This article documents the findings of a short-term longitudinal study that explored the caring journeys of aged Greek carers providing in-home care for their spouse. Through a deeper understanding of carers' decisions and decision-making and insights from service providers and community leaders, we aimed to inform policy makers, service managers and providers about how to develop and promote culturally appropriate support services, and negotiate…
Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care
Informal care networks’ views of palliative care services
Most people indicate their preference to die at home; however, in the developed world, most die in hospital. Dying at home requires complex factors to be in place in health services and informal networks of care to successfully provide support. This study examines the ways health systems, services, and individual health care professionals influence care at home at the end of life. Three principles guide the reorientation of health services and en…
Identity and the End‐of‐Life Story
ObjectiveNarrative approaches to identity, which conceptualise a person's identity as their life story, present a useful way for approaching support at end‐of‐life because they do not pathologise dying but rather recognise it is the final chapter of a life story. The construction of life stories is always a social process and could be supported by psychologists. Attention to issues of identity and relationships is beneficial for dying people and …
Sensitive Inquiry in Mental Health
This article presents an innovative tripartite approach for conducting safe and ethical 'sensitive inquiry' in the field of mental health recovery. The tripartite approach brings together the principles of recovery with trauma-informed practice and collective impact strategies. Together, these provide a framework for embedding and embodying recovery principles in research design and practice that empowers participants and 'takes care' of particip…
Developing a death literacy index
Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians usin…
Sociology (12 works) · Psychology (10 works) · Political science (9 works) · Medicine (8 works) · Public relations (8 works) · Grief, Bereavement, and Mental Health (6 works) · Palliative Care and End-of-Life Issues (6 works) · Qualitative research (6 works) · Social science (6 works) · Law (5 works)