Fern Brunger
Biographic Data
| ID | 3886205 |
|---|---|
| NAME | Fern Brunger |
| GIVEN NAMES | Fern |
| FAMILY NAME | Brunger |
| SIGNATURE | BRUNGER F |
| AFFILIATIONS | Memorial University of Newfoundland |
| ORCID | 0000-0001-8367-610X |
| VERIFIED | Yes |
| TOTAL WORKS | 10 |
| TOTAL CITATIONS | 39 |
| WORKS AS AUTHOR | 10 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2012 |
| LATEST PUBLICATION YEAR | 2019 |
| H-INDEX | 4 |
Shifting practise
Purpose For many Indigenous nations globally, ethics is a conversation. The purpose of this paper is to share and mobilize knowledge to build relationships and capacities regarding the ethics review and approval of research with Indigenous peoples throughout Atlantic Canada. The authors share key principles that emerged for shifting practices that recognize Indigenous rights holders through ethical research review practice. Design/methodology/app…
Embodying a New Meaning of Being At Risk
Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia (ARVC/D) is a genetic condition that can cause fatal arrhythmias. The implantable cardioverter defibrillation (ICD) is a primary treatment for ARVC/D. Using a grounded theory approach, this study examines the experiences of 15 individuals living with an ICD. The ability to cope with and adjust to having an ICD is influenced by the acceptance of the ICD as something needed to survive, an un…
"What Do They Really Mean by Partnerships?" Questioning the Unquestionable Good in Ethics Guidelines Promoting Community Engagement in Indigenous Health Research
Academics and community members collaborated in research to examine how best to apply ethics guidelines for research involving Indigenous communities in a community with complex and multiple political and cultural jurisdictions. We examined issues of NunatuKavut (Southern Inuit) authority and representation in relation to governance of research in a context where community identity is complex and shifting, and new provincial legislation mandates …
Awakening to” a new meaning of being at-risk for arrhythmogenic right ventricular cardiomyopathy
Stigmatizing surveillance
HIV and hepatitis B and C are viruses that have been unduly set apart from other infectious diseases in terms of the symbolic pull they exert and the anxiety they produce. This is reflected in health care policy and protocol. Hospitals, health care regions and colleges of physicians and surgeons create guidelines and procedures that single out HIV or hepatitis B and C as requiring special attention. This paper examines such surveillance and stigm…
Risk and Representation in Research Ethics
This article examines Canadian policy governing the ethics of research involving Indigenous communities. Academics and community members collaborated in research to examine how best to apply the Tri-Council Policy Statement guidelines in a community with complex and multiple political and cultural jurisdictions. We examined issues of NunatuKavut (Southern Inuit) authority and representation in relation to governance of research in a context where…
Animating the concept of “ethical space”
This paper reports on an innovative process by which the Inuit and First Nations communities of Newfoundland and Labrador confronted and challenged the policies and procedures of the provincial research ethics system. We describe the ways in which these communities engaged with health and university research review administrators to exchange information, identify challenges with existing processes, and outline a strategy for movement forward. We …
Other” Troubles
Ethics, "Vulnerability," and Feminist Participatory Action Research With a Disability Community
We consider the work of research ethics boards and funding models for research that at times are incompatible with the relationship building required for feminist participatory action research with a disability community. We explore the barriers that emerged for university- and community-based partners as they asserted individual and collective identities, and negotiated boundaries, access, and power relations in the process of designing and cond…
Whose agenda is it? Regulating health research ethics in Labrador
In Labrador, the NunatuKavut (formerly Labrador Inuit Métis) have begun to introduce a rigorous community-based research review process. We conducted a study with leaders and health care workers in and beyond the NunatuKavut community of Labrador, asking them what should be emphasised in a community review. We also sought to identify whether and how community review should be distinct from the centralised, "institutional" research ethics review t…
Ethics, "Vulnerability," and Feminist Participatory Action Research With a Disability Community
We consider the work of research ethics boards and funding models for research that at times are incompatible with the relationship building required for feminist participatory action research with a disability community. We explore the barriers that emerged for university- and community-based partners as they asserted individual and collective identities, and negotiated boundaries, access, and power relations in the process of designing and cond…
"What Do They Really Mean by Partnerships?" Questioning the Unquestionable Good in Ethics Guidelines Promoting Community Engagement in Indigenous Health Research
Academics and community members collaborated in research to examine how best to apply ethics guidelines for research involving Indigenous communities in a community with complex and multiple political and cultural jurisdictions. We examined issues of NunatuKavut (Southern Inuit) authority and representation in relation to governance of research in a context where community identity is complex and shifting, and new provincial legislation mandates …
Whose agenda is it? Regulating health research ethics in Labrador
In Labrador, the NunatuKavut (formerly Labrador Inuit Métis) have begun to introduce a rigorous community-based research review process. We conducted a study with leaders and health care workers in and beyond the NunatuKavut community of Labrador, asking them what should be emphasised in a community review. We also sought to identify whether and how community review should be distinct from the centralised, "institutional" research ethics review t…
Risk and Representation in Research Ethics
This article examines Canadian policy governing the ethics of research involving Indigenous communities. Academics and community members collaborated in research to examine how best to apply the Tri-Council Policy Statement guidelines in a community with complex and multiple political and cultural jurisdictions. We examined issues of NunatuKavut (Southern Inuit) authority and representation in relation to governance of research in a context where…
Whose agenda is it? Regulating health research ethics in Labrador
In Labrador, the NunatuKavut (formerly Labrador Inuit Métis) have begun to introduce a rigorous community-based research review process. We conducted a study with leaders and health care workers in and beyond the NunatuKavut community of Labrador, asking them what should be emphasised in a community review. We also sought to identify whether and how community review should be distinct from the centralised, "institutional" research ethics review t…
Animating the concept of “ethical space”
This paper reports on an innovative process by which the Inuit and First Nations communities of Newfoundland and Labrador confronted and challenged the policies and procedures of the provincial research ethics system. We describe the ways in which these communities engaged with health and university research review administrators to exchange information, identify challenges with existing processes, and outline a strategy for movement forward. We …
Other” Troubles
Ethics, "Vulnerability," and Feminist Participatory Action Research With a Disability Community
We consider the work of research ethics boards and funding models for research that at times are incompatible with the relationship building required for feminist participatory action research with a disability community. We explore the barriers that emerged for university- and community-based partners as they asserted individual and collective identities, and negotiated boundaries, access, and power relations in the process of designing and cond…
Awakening to” a new meaning of being at-risk for arrhythmogenic right ventricular cardiomyopathy
Stigmatizing surveillance
HIV and hepatitis B and C are viruses that have been unduly set apart from other infectious diseases in terms of the symbolic pull they exert and the anxiety they produce. This is reflected in health care policy and protocol. Hospitals, health care regions and colleges of physicians and surgeons create guidelines and procedures that single out HIV or hepatitis B and C as requiring special attention. This paper examines such surveillance and stigm…
Risk and Representation in Research Ethics
This article examines Canadian policy governing the ethics of research involving Indigenous communities. Academics and community members collaborated in research to examine how best to apply the Tri-Council Policy Statement guidelines in a community with complex and multiple political and cultural jurisdictions. We examined issues of NunatuKavut (Southern Inuit) authority and representation in relation to governance of research in a context where…
Embodying a New Meaning of Being At Risk
Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia (ARVC/D) is a genetic condition that can cause fatal arrhythmias. The implantable cardioverter defibrillation (ICD) is a primary treatment for ARVC/D. Using a grounded theory approach, this study examines the experiences of 15 individuals living with an ICD. The ability to cope with and adjust to having an ICD is influenced by the acceptance of the ICD as something needed to survive, an un…
"What Do They Really Mean by Partnerships?" Questioning the Unquestionable Good in Ethics Guidelines Promoting Community Engagement in Indigenous Health Research
Academics and community members collaborated in research to examine how best to apply ethics guidelines for research involving Indigenous communities in a community with complex and multiple political and cultural jurisdictions. We examined issues of NunatuKavut (Southern Inuit) authority and representation in relation to governance of research in a context where community identity is complex and shifting, and new provincial legislation mandates …
Shifting practise
Purpose For many Indigenous nations globally, ethics is a conversation. The purpose of this paper is to share and mobilize knowledge to build relationships and capacities regarding the ethics review and approval of research with Indigenous peoples throughout Atlantic Canada. The authors share key principles that emerged for shifting practices that recognize Indigenous rights holders through ethical research review practice. Design/methodology/app…
Law (8 works) · Political science (8 works) · Sociology (7 works) · Engineering ethics (6 works) · Ethics in Clinical Research (6 works) · Public relations (6 works) · Research ethics (6 works) · Law (5 works) · Corporate governance (4 works) · Indigenous (4 works)