Holly Hope
Biographic Data
| ID | 3989863 |
|---|---|
| NAME | Holly Hope |
| GIVEN NAMES | Holly |
| FAMILY NAME | Hope |
| SIGNATURE | HOPE H |
| AFFILIATIONS | University of Manchester |
| ORCID | 0000-0002-4834-6719 |
| VERIFIED | Yes |
| TOTAL WORKS | 6 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 6 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 1989 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 0 |
Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child
Objective Caring for a child with cystic fibrosis (CF) is a rigorous daily commitment for caregivers and treatment burden is a major concern. We aimed to develop and validate a short form version of a 46-item tool assessing the Challenge of Living with Cystic Fibrosis (CLCF) for clinical or research use.Design A novel genetic algorithm based on ‘evolving’ a subset of items from a pre-specified set of criteria, was applied to optimise the tool, us…
Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire
OBJECTIVE: Treatments for cystic fibrosis (CF) are complex, labour-intensive, and perceived as highly burdensome by caregivers of children with CF. An instrument assessing burden of care is needed. DESIGN: A stepwise, qualitative design was used to create the CLCF with caregiver focus groups, participant researchers, a multidisciplinary professional panel, and cognitive interviews. MAIN OUTCOME MEASURES: ). RESULTS: = 0.002). CONCLUSIONS: The CLC…
Mental health responses to the Covid-19 pandemic
Mental health before and during the Covid-19 pandemic
Developing an Intervention to Improve the Health Related Quality of Life in Children and Young People With Serious Parental Mental Illness
Introduction: Children and adolescents living with parental mental illness (CAPRI) are at increased risk of behavioral, social and educational difficulties, mental and physical health problems and have poorer quality of life (QoL). Adverse outcomes can extend into adulthood but are not inevitable. Recent policy and stakeholder consultation recognize the urgent need for interventions that extend beyond objective, service-led measures of health. Sy…
Garden City
Journal Article Garden City: Dreams in a Kansas Town and A. V. Sorensen and the New Omaha Get access Garden City: Dreams in a Kansas Town. By Hope Holly. (Norman: University of Oklahoma Press, 1988. xv + 175 pp. Illustrations, maps. $15.95.)A. V. Sorensen and the New Omaha. By Dalstrom Harl A.. (Omaha: Lamplighter Press, 1988. iii + 359 pp. Illustrations, notes, bibliography, index. $24.95.) Joanne M. Kudla Joanne M. Kudla Buffalo Bill Historical…
No prominent works on this page.
Garden City
Journal Article Garden City: Dreams in a Kansas Town and A. V. Sorensen and the New Omaha Get access Garden City: Dreams in a Kansas Town. By Hope Holly. (Norman: University of Oklahoma Press, 1988. xv + 175 pp. Illustrations, maps. $15.95.)A. V. Sorensen and the New Omaha. By Dalstrom Harl A.. (Omaha: Lamplighter Press, 1988. iii + 359 pp. Illustrations, notes, bibliography, index. $24.95.) Joanne M. Kudla Joanne M. Kudla Buffalo Bill Historical…
Developing an Intervention to Improve the Health Related Quality of Life in Children and Young People With Serious Parental Mental Illness
Introduction: Children and adolescents living with parental mental illness (CAPRI) are at increased risk of behavioral, social and educational difficulties, mental and physical health problems and have poorer quality of life (QoL). Adverse outcomes can extend into adulthood but are not inevitable. Recent policy and stakeholder consultation recognize the urgent need for interventions that extend beyond objective, service-led measures of health. Sy…
Mental health before and during the Covid-19 pandemic
Mental health responses to the Covid-19 pandemic
Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire
OBJECTIVE: Treatments for cystic fibrosis (CF) are complex, labour-intensive, and perceived as highly burdensome by caregivers of children with CF. An instrument assessing burden of care is needed. DESIGN: A stepwise, qualitative design was used to create the CLCF with caregiver focus groups, participant researchers, a multidisciplinary professional panel, and cognitive interviews. MAIN OUTCOME MEASURES: ). RESULTS: = 0.002). CONCLUSIONS: The CLC…
Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child
Objective Caring for a child with cystic fibrosis (CF) is a rigorous daily commitment for caregivers and treatment burden is a major concern. We aimed to develop and validate a short form version of a 46-item tool assessing the Challenge of Living with Cystic Fibrosis (CLCF) for clinical or research use.Design A novel genetic algorithm based on ‘evolving’ a subset of items from a pre-specified set of criteria, was applied to optimise the tool, us…
Medicine (5 works) · Psychology (5 works) · Psychiatry (4 works) · Clinical Psychology (3 works) · Family and Disability Support Research (3 works) · Mental health (3 works) · Convergent validity (2 works) · Coronavirus disease 2019 (COVID-19) (2 works) · COVID-19 and Mental Health (2 works) · Cronbach's alpha (2 works)