Margaret Otlowski
Biographic Data
| ID | 4171446 |
|---|---|
| NAME | Margaret Otlowski |
| GIVEN NAMES | Margaret |
| FAMILY NAME | Otlowski |
| SIGNATURE | OTLOWSKI M |
| AFFILIATIONS | University of Tasmania |
| ORCID | 0000-0003-4707-4325 |
| VERIFIED | Yes |
| TOTAL WORKS | 7 |
| TOTAL CITATIONS | 4 |
| WORKS AS AUTHOR | 7 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2004 |
| LATEST PUBLICATION YEAR | 2023 |
| H-INDEX | 1 |
Reversing the ‘Quasi-tribunal’ Role of Human Research Ethics Committees
This article traces the history of Human Research Ethics Committees (‘HRECs’) in Australia, noting their development from peer review bodies to a model more akin to quasi-tribunals. We illustrate this shift through the role of HRECs in authorising waivers of consent for health and medical research: a responsibility that is codified under federal and state privacy laws and national research ethics guidelines. Despite the increasingly rule-based na…
Prevalence of food insecurity and satisfaction with on-campus food choices among Australian university students
Purpose Food insecurity and poor access to healthy food is known to compromise tertiary studies in university students, and food choices are linked to student perceptions of the campus food environment. The purpose of this study is to describe the prevalence, demographic and education characteristics associated with food insecurity in a sample of Australian university students and their satisfaction with on-campus food choices. Design/methodology…
A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing
Sharing of genomic and associated data is essential to clinical practice and biomedical research, and is increasingly encouraged by journals and funding bodies. Grappling with the range of legal and ethical issues raised by genomic data sharing presents a significant challenge, given the diversity of practices: from defined sharing of individual patient data, to broad-scale public sharing of research data, to uploading of direct-to-consumer test …
New avenues within community engagement
The proliferation of large biorepositories and the staggering advances in our ability to analyse large numbers of human genomes relatively quickly and cost-effectively have been important drivers in the move towards personalised medicine. However, our advances in the development of these tools have outstripped our performance in addressing the issues of ethics and consent surrounding health policy and governance of such repositories, the implicat…
Human genetic databanks in Australia
This paper reports on a survey of human biotechnology organizations in Australia.The study provides insights into the nature, use and practices involved with human genetic databanking in the country.The survey was conducted at a time when databanks were becoming increasingly important to an expanding genomics industry, and while the nature and extent of industry regulation was being debated.The data revealed a surprising level of confusion and in…
The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination
Differential treatment on the basis of genetic status (genetic discrimination), has become an issue of international concern. The Genetic Discrimination Project (GDP) is an Australia-wide study which has empirically examined the nonmedical/health advantages and disadvantages for individuals who have gained specific information about their genetic status (typically through genetic testing). A major component of this project has been the Legal Syst…
Investigating genetic discrimination in Australia
Genetic discrimination, defined as the differential treatment of individuals or their relatives on the basis of actual or presumed genetic differences, is an emerging issue of interest in academic, clinical, social and legal contexts. While its potential significance has been discussed widely, verified empirical data are scarce. Genetic discrimination is a complex phenomenon to describe and investigate, as evidenced by the recent Australian Law R…
The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination
Differential treatment on the basis of genetic status (genetic discrimination), has become an issue of international concern. The Genetic Discrimination Project (GDP) is an Australia-wide study which has empirically examined the nonmedical/health advantages and disadvantages for individuals who have gained specific information about their genetic status (typically through genetic testing). A major component of this project has been the Legal Syst…
Reversing the ‘Quasi-tribunal’ Role of Human Research Ethics Committees
This article traces the history of Human Research Ethics Committees (‘HRECs’) in Australia, noting their development from peer review bodies to a model more akin to quasi-tribunals. We illustrate this shift through the role of HRECs in authorising waivers of consent for health and medical research: a responsibility that is codified under federal and state privacy laws and national research ethics guidelines. Despite the increasingly rule-based na…
A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing
Sharing of genomic and associated data is essential to clinical practice and biomedical research, and is increasingly encouraged by journals and funding bodies. Grappling with the range of legal and ethical issues raised by genomic data sharing presents a significant challenge, given the diversity of practices: from defined sharing of individual patient data, to broad-scale public sharing of research data, to uploading of direct-to-consumer test …
Investigating genetic discrimination in Australia
Genetic discrimination, defined as the differential treatment of individuals or their relatives on the basis of actual or presumed genetic differences, is an emerging issue of interest in academic, clinical, social and legal contexts. While its potential significance has been discussed widely, verified empirical data are scarce. Genetic discrimination is a complex phenomenon to describe and investigate, as evidenced by the recent Australian Law R…
The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination
Differential treatment on the basis of genetic status (genetic discrimination), has become an issue of international concern. The Genetic Discrimination Project (GDP) is an Australia-wide study which has empirically examined the nonmedical/health advantages and disadvantages for individuals who have gained specific information about their genetic status (typically through genetic testing). A major component of this project has been the Legal Syst…
Human genetic databanks in Australia
This paper reports on a survey of human biotechnology organizations in Australia.The study provides insights into the nature, use and practices involved with human genetic databanking in the country.The survey was conducted at a time when databanks were becoming increasingly important to an expanding genomics industry, and while the nature and extent of industry regulation was being debated.The data revealed a surprising level of confusion and in…
New avenues within community engagement
The proliferation of large biorepositories and the staggering advances in our ability to analyse large numbers of human genomes relatively quickly and cost-effectively have been important drivers in the move towards personalised medicine. However, our advances in the development of these tools have outstripped our performance in addressing the issues of ethics and consent surrounding health policy and governance of such repositories, the implicat…
A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing
Sharing of genomic and associated data is essential to clinical practice and biomedical research, and is increasingly encouraged by journals and funding bodies. Grappling with the range of legal and ethical issues raised by genomic data sharing presents a significant challenge, given the diversity of practices: from defined sharing of individual patient data, to broad-scale public sharing of research data, to uploading of direct-to-consumer test …
Prevalence of food insecurity and satisfaction with on-campus food choices among Australian university students
Purpose Food insecurity and poor access to healthy food is known to compromise tertiary studies in university students, and food choices are linked to student perceptions of the campus food environment. The purpose of this study is to describe the prevalence, demographic and education characteristics associated with food insecurity in a sample of Australian university students and their satisfaction with on-campus food choices. Design/methodology…
Reversing the ‘Quasi-tribunal’ Role of Human Research Ethics Committees
This article traces the history of Human Research Ethics Committees (‘HRECs’) in Australia, noting their development from peer review bodies to a model more akin to quasi-tribunals. We illustrate this shift through the role of HRECs in authorising waivers of consent for health and medical research: a responsibility that is codified under federal and state privacy laws and national research ethics guidelines. Despite the increasingly rule-based na…
Political science (6 works) · Law (5 works) · Law (5 works) · Ethics in Clinical Research (4 works) · Medicine (4 works) · Biomedical Ethics and Regulation (3 works) · Sociology (3 works) · Biology (2 works) · Business (2 works) · Computer Science (2 works)