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Janelle Weise

Biographic Data

ID4413116
NAMEJanelle Weise
GIVEN NAMESJanelle
FAMILY NAMEWeise
SIGNATUREWEISE J
AFFILIATIONSNational Centre of Excellence in Intellectual Disability Health UNSW Sydney Sydney New South Wales Australia
ORCID0000-0003-0783-5898
VERIFIEDYes
TOTAL WORKS3
TOTAL CITATIONS0
WORKS AS AUTHOR3
WORKS AS EDITOR0
FIRST PUBLICATION YEAR2024
LATEST PUBLICATION YEAR2026
H-INDEX0
  • Distributed Health Literacy Among People With Intellectual Disability, Their Supporters and Healthcare Professionals

    Open Access•Maryann Barrington, Karen R Fisher et al.•ARTICLE•Health Expectations•2026

    BACKGROUND: Health literacy is associated with improved healthcare experiences and health outcomes and is influenced by the social context in which it occurs. People with intellectual disability face stark health inequalities, yet the health literacy concept is underexplored for this group. Little is known about how health literacy is co-constructed between people with intellectual disability, supporters and healthcare professionals. OBJECTIVE: T…

  • Hub and Spokes in Intellectual Disability Mental Health Support

    Open Access•Christiane Purcal, Karen R Fisher et al.•ARTICLE•Australian Journal of Social Issues•2025

    The distribution of specialist health services is usually uneven by location due to limited resources, which is a problem for people with complex needs. In this context, how can a hub and spoke model offer appropriate services for people with intellectual disability and mental health needs? The data were individual and group interviews with people using and delivering the services in Australia. Data were analysed against a hub‐and‐spoke analytica…

  • What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis

    Open Access•Natalie Ong, Abbie Lucien et al.•ARTICLE•Health Expectations•2024

    OBJECTIVES: Children with intellectual disability experience patient safety issues resulting in poor care experiences and health outcomes. This study sought to identify patient safety issues that pertain to children aged 0-16 years with intellectual disability admitted to two tertiary state-wide children's hospitals and a children's palliative care centre; to describe and understand these factors to modify the Australian Patient Safety Education …

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  • What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis

    Open Access•Natalie Ong, Abbie Lucien et al.•ARTICLE•Health Expectations•2024

    OBJECTIVES: Children with intellectual disability experience patient safety issues resulting in poor care experiences and health outcomes. This study sought to identify patient safety issues that pertain to children aged 0-16 years with intellectual disability admitted to two tertiary state-wide children's hospitals and a children's palliative care centre; to describe and understand these factors to modify the Australian Patient Safety Education …

  • Hub and Spokes in Intellectual Disability Mental Health Support

    Open Access•Christiane Purcal, Karen R Fisher et al.•ARTICLE•Australian Journal of Social Issues•2025

    The distribution of specialist health services is usually uneven by location due to limited resources, which is a problem for people with complex needs. In this context, how can a hub and spoke model offer appropriate services for people with intellectual disability and mental health needs? The data were individual and group interviews with people using and delivering the services in Australia. Data were analysed against a hub‐and‐spoke analytica…

  • Distributed Health Literacy Among People With Intellectual Disability, Their Supporters and Healthcare Professionals

    Open Access•Maryann Barrington, Karen R Fisher et al.•ARTICLE•Health Expectations•2026

    BACKGROUND: Health literacy is associated with improved healthcare experiences and health outcomes and is influenced by the social context in which it occurs. People with intellectual disability face stark health inequalities, yet the health literacy concept is underexplored for this group. Little is known about how health literacy is co-constructed between people with intellectual disability, supporters and healthcare professionals. OBJECTIVE: T…

Down syndrome and intellectual disability research (3 works) · Intellectual disability (3 works) · Disability Rights and Representation (2 works) · Health care (2 works) · Psychiatry (2 works) · Psychology (2 works) · Chronic Disease Management Strategies (1 work) · Criminology (1 work) · Family and Disability Support Research (1 work) · Feeling (1 work)

Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae