Jenny T Van Der Steen

Biographic Data

ID4426343
NAMEJenny T Van Der Steen
GIVEN NAMESJenny T
FAMILY NAMEVan Der Steen
SIGNATUREVAN DER STEEN J T
AFFILIATIONSRadboud University Nijmegen
ORCID0000-0002-9063-7501
VERIFIEDYes
TOTAL WORKS8
TOTAL CITATIONS0
AUTHOR COUNT8
EDITOR COUNT0
FIRST PUBLICATION YEAR2011
LATEST PUBLICATION YEAR2026
H-INDEX0

  • How Preferences and Reality on Where We Die Unfold

    Open AccessSifra H Van De Beek, Krista Ann Eckels et al.ARTICLEHealth Expectations2026

  • Navigating Ambiguity and Uncertainty in End-of-Life Care Research Practice

    Open AccessTom van Drimmelen, M Nienke Slagboom et al.ARTICLEJournal of Empirical Research on…2025References: 13

    Researchers frequently face conceptual, methodological, and ethical decisions - collectively known as researcher discretion - that can substantially influence research outcomes. Despite its importance, the nature of these discretionary moments and their triggers in everyday research practice remain underexplored. Based on an abductive thematic analysis of fieldnotes, documents, and interviews from twelve months of ethnographic fieldwork in two en…

  • Advance care planning with people living with dementia

    Open AccessJingyuan Xu, David R Mehr et al.ARTICLEThe Journals of Gerontology…2025

    Objectives Advance care planning (ACP) is important but complex with people living with dementia. This study aims to explore ethical considerations of physicians around ACP for dementia in two high-income countries (United States and the Netherlands). Methods In this qualitative study, semi-structured interviews were conducted with Dutch and American physicians from specialties that provide end-of-life care for people with living dementia. Their …

  • Places of end-of-life care and death in health policies of four countries (EOLinPLACE Project)

    Open AccessSifra H Van De Beek, Barbara Gomes et al.ARTICLEHealth & Place2025References: 3

    While improving care at home is prioritized with evidence-based reasons to support it, our study shows that policymakers overlook the potential benefits of other care settings and flexible care solutions that promote continuity of care. This comparative analysis unveiled implications to improve end-of-life care across care settings

  • A family affair

    Open AccessTrijntje M Scheeres‐Feitsma, Petruschka Schaafsma et al.ARTICLEDeath Studies2024References: 3

    This study examines the reasons of people with dementia request euthanasia and how these reasons change over time with a special focus on reasons related to family. In addition, it examines how family relates to their loved one's euthanasia wish. Seven people with dementia and a euthanasia wish in the Netherlands were interviewed, and three years later, two of them and five family members were interviewed again. Four themes were identified using …

  • Occurrence and Timing of Advance Care Planning in Persons With Dementia in General Practice

    Open AccessBahar Azizi, Bram Tilburgs et al.ARTICLEFrontiers in Public Health2022

    Background: Advance care planning (ACP) is a process of communication in which patients and family caregivers discuss preferences for future care with the healthcare team. For persons with dementia, it is crucial to timely engage in ACP. Therefore, we study ACP in dementia using electronic health record data. This study aims to determine how often ACP conversations are recorded, analyze time from dementia diagnosis until the first recorded conver…

  • Implementation of a Stepwise, Multidisciplinary Intervention for Pain and Challenging Behaviour in Dementia (STA OP!)

    Open AccessMarjoleine J C Pieper, Wilco Achterberg et al.ARTICLEInternational Journal of…2018References: 3

    Although the intervention was not implemented as planned, the intervention empowered healthcare professionals and increased their awareness of the signals of pain and challenging behaviour. Future implementation of the intervention should start on units with a motivational leader, and specific features of the organisation and the team should be considered to facilitate implementation, e.g. stability, support, and shared focus to change

  • Psychometric properties of instruments to measure the quality of end-of-life care and dying for long-term care residents with dementia

    Open AccessMirjam C van Soest‐Poortvliet, Mirjam C van Soest-Poortvliet et al.ARTICLEQuality of Life Research2011

    Our comparative study of psychometric properties of instruments allows for informed selection of QOC and QOD measures for LTC residents with dementia