Christiana Evers
Dados Biográficos
| ID | 4452594 |
|---|---|
| NOME | Christiana Evers |
| PRENOMES | Christiana |
| SOBRENOME | Evers |
| ASSINATURA | EVERS C |
| AFILIAÇÕES | Parkinson’s Foundation New York New York USA |
| VERIFICADO | Não |
| TOTAL DE OBRAS | 3 |
| TOTAL DE CITAÇÕES | 0 |
| TOTAL COMO AUTOR | 3 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2020 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2025 |
| ÍNDICE H | 0 |
Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers
Background: There is minimal comparative effectiveness research (CER) in Parkinson's disease (PD). Engaging people with PD in the research process through patient advisory boards (PAB) is one way to address this gap. Objectives: To describe the project model and lessons learned from a PAB pilot project in five Parkinson's Foundation Centers of Excellence in CER. Methods: A virtual training and toolkit on patient engagement, PABs and CER was creat…
Utilizing patient advocates in Parkinson’s disease
The wide application of patient engagement and its associated benefits has increased across government, academic and pharmaceutical research. However, neither an identified standard practice for the process of engagement, nor utilization of common metrics to assess associated outcomes, exists. Parkinson's Foundation developed a patient engagement framework and metrics to assess engagement within the academic research and drug development sectors.…
Partnering to power progress towards a paradigm shift
I’m Lisa Cone, a 56-year-old person diagnosed with Parkinson's disease in 2008 and a patient advocate. While I consider myself an active advocate, I have no blog, personal webpage or social media platform from which I connect with engagement opportunities. What I have is my personal experiences as a patient, knowledge of the US healthcare system gleaned from my executive-level professional experience, time (thanks to a forced early departure from…
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Utilizing patient advocates in Parkinson’s disease
The wide application of patient engagement and its associated benefits has increased across government, academic and pharmaceutical research. However, neither an identified standard practice for the process of engagement, nor utilization of common metrics to assess associated outcomes, exists. Parkinson's Foundation developed a patient engagement framework and metrics to assess engagement within the academic research and drug development sectors.…
Partnering to power progress towards a paradigm shift
I’m Lisa Cone, a 56-year-old person diagnosed with Parkinson's disease in 2008 and a patient advocate. While I consider myself an active advocate, I have no blog, personal webpage or social media platform from which I connect with engagement opportunities. What I have is my personal experiences as a patient, knowledge of the US healthcare system gleaned from my executive-level professional experience, time (thanks to a forced early departure from…
Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers
Background: There is minimal comparative effectiveness research (CER) in Parkinson's disease (PD). Engaging people with PD in the research process through patient advisory boards (PAB) is one way to address this gap. Objectives: To describe the project model and lessons learned from a PAB pilot project in five Parkinson's Foundation Centers of Excellence in CER. Methods: A virtual training and toolkit on patient engagement, PABs and CER was creat…
Medical education (3 obras) · Medicine (3 obras) · Mental Health and Patient Involvement (3 obras) · Political science (3 obras) · Psychology (3 obras) · Ethics in Clinical Research (2 obras) · Health Policy Implementation Science (2 obras) · Health Systems, Economic Evaluations, Quality of Life (2 obras) · Nursing (2 obras) · Public relations (2 obras)