E Aarden
Biographic Data
| ID | 48994 |
|---|---|
| NAME | E Aarden |
| GIVEN NAMES | E |
| FAMILY NAME | Aarden |
| SIGNATURE | AARDEN E |
| AFFILIATIONS | University of Klagenfurt |
| ORCID | 0000-0002-2085-2919 |
| VERIFIED | Yes |
| TOTAL WORKS | 16 |
| TOTAL CITATIONS | 9 |
| AUTHOR COUNT | 16 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2008 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
Enacting Protected Areas Through Monitoring: Knowledge Practices as Multispecies Spatiotemporal Achievements in Neusiedler See–Seewinkel National Park
Protected areas are seen as one of the primary instruments to halt biodiversity loss, but it is not always clear if a protected status designation contributes to the preservation of endangered species and ecosystems. One way to address the issue is through monitoring, the regular counting and measuring of 'nature'. However, more than merely representing nature in a protected area, monitoring enacts nature. In this article, I explore a specific pr…
Mapping materials, drawing Europe: Sample and data quality and accessibility in the biobanking infrastructure BBMRI-Eric
The European biobanking infrastructure BBMRI-ERIC was established in the context of European Union science policy to facilitate collaboration between European repositories of biological samples and associated data, or so-called biobanks. To allow the exchange of research materials, the infrastructure has created several platforms for quality management and making materials visible and accessible. In this article, I develop the metaphor of mapping…
Samples Are Precious: Value Formations in the Potentiality and Practices of Biobanking in Singapore
Biobanking in Singapore is characterized by contested relations between funding ambitions and research practices, and different notions of what the (potential) value of storing samples and data for medical research is. Different biobanking efforts anticipate the production of public goods from stored materials in specifically situated ways. These efforts to produce public goods in the form of scientific and economic value can be fruitfully unders…
Pennington Hugh (2022) Covid-19: The Postgenomic Pandemic
Infrastructuring European scientific integration: Heterogeneous meanings of the European biobanking infrastructure BBMRI–Eric
While transnational research infrastructure projects long preceded the formal integration process that created the European Union, their advancement is an increasingly central part of EU research policy and of European integration in general. This paper analyses the Biobanking and Biomolecular Resources Research Infrastructure-European Research Infrastructure Consortium (BBMRI-ERIC) as a recent example of institutionalized scientific collaboratio…
Ignorance and the paradoxes of evidence-based global health: The case of mortality statistics in India’s million death study
Quantitative evidence and metrics play a central role in contemporary global health. Mortality statistics, for example, are considered essential for improving health in the global South. Yet, many observers lament that reliable cause of death data is not available for many low- and middle-income countries. The Million Death Study (MDS) in India forms an effort to address this issue, seeking to reduce ignorance around mortality by generating repre…
The translational lag narrative in policy discourse in the United States and the European Union: A comparative study
Whilst basic science rapidly produces new insights into the biological determinants of human health and disease, clinical innovation is often said to lag behind, as it fails to rapidly turn such knowledge into new tools for innovative patient care. This view of biomedical innovation constitutes a ‘translational lag narrative’, which is widely present in current research policy. This paper presents a qualitative content analysis of a corpus of doc…
One for All, All for One? Containing the Promise of Solidarity in Precision Medicine
This article addresses the challenges solidarity poses for the development of Precision Medicine (PM). Solidarity is invoked in calls for a new ‘social contract’ for PM, seeking to promote participation in PM by emphasizing reciprocity between contributions to and benefits from this new branch of medicine. In this context, there is a need for further conceptualization with regard to what qualifies as solidarity and how solidarity is performed in …
Challenging the “deficit model” of innovation: Framing policy issues under the innovation imperative
Repositioning biological citizenship: State, population, and individual risk in the Framingham Heart Study
Constitutions of justice in genetic medicine: Distributing diagnostics for familial hypercholesterolemia in three European countries
While developments in genetic medicine are widely considered to bring forward pressing policy challenges, the question how genetic diagnostics are integrated into and distributed within existing health-care infrastructures has virtually been ignored. This paper addresses the distribution of genetic diagnostics through the framework of bioconstitutionalism, which suggests that basic categories for the allocation of rights and duties in law and pol…
Constructing embryos, constructing politics: Connecting politics and technology in the Netherlands and Germany
Institutionalised Representation as a Key for Democratised Science
Constructing access in predictive medicine. Comparing classification for hereditary breast cancer risks in England, Germany and the Netherlands
Solidarity in practices of provision: Distributing access to genetic technologies in health care in Germany, the Netherlands and the United Kingdom
Solidarity is widely described as one of the leading principles for the public provision of health care in Western Europe and is therefore prominently discussed in debates on the introduction of genetic technologies in national health care provision arrangements. However, solidarity is often defined in an essentialist and quantitative way, which does very little to show the complexities of and changes in health care allocation. In this paper we t…
Learning from Co-evolution of Policy and Technology. Different PGDs in the Netherlands, Germany and Britain
Approaches in comparative policy analysis have so far focused on the understanding of actors, institutions and their positions in the policy-making process. More recent work attempts to enrich comparative policy analysis by taking the social context and culture into account, in order to do justice to the relevance of policy context for policy content. However, the object or content of policy making has so far largely remained a black box. In this…
Samples Are Precious: Value Formations in the Potentiality and Practices of Biobanking in Singapore
Biobanking in Singapore is characterized by contested relations between funding ambitions and research practices, and different notions of what the (potential) value of storing samples and data for medical research is. Different biobanking efforts anticipate the production of public goods from stored materials in specifically situated ways. These efforts to produce public goods in the form of scientific and economic value can be fruitfully unders…
Constitutions of justice in genetic medicine: Distributing diagnostics for familial hypercholesterolemia in three European countries
While developments in genetic medicine are widely considered to bring forward pressing policy challenges, the question how genetic diagnostics are integrated into and distributed within existing health-care infrastructures has virtually been ignored. This paper addresses the distribution of genetic diagnostics through the framework of bioconstitutionalism, which suggests that basic categories for the allocation of rights and duties in law and pol…
Constructing access in predictive medicine. Comparing classification for hereditary breast cancer risks in England, Germany and the Netherlands
Learning from Co-evolution of Policy and Technology. Different PGDs in the Netherlands, Germany and Britain
Approaches in comparative policy analysis have so far focused on the understanding of actors, institutions and their positions in the policy-making process. More recent work attempts to enrich comparative policy analysis by taking the social context and culture into account, in order to do justice to the relevance of policy context for policy content. However, the object or content of policy making has so far largely remained a black box. In this…
Learning from Co-evolution of Policy and Technology. Different PGDs in the Netherlands, Germany and Britain
Approaches in comparative policy analysis have so far focused on the understanding of actors, institutions and their positions in the policy-making process. More recent work attempts to enrich comparative policy analysis by taking the social context and culture into account, in order to do justice to the relevance of policy context for policy content. However, the object or content of policy making has so far largely remained a black box. In this…
Solidarity in practices of provision: Distributing access to genetic technologies in health care in Germany, the Netherlands and the United Kingdom
Solidarity is widely described as one of the leading principles for the public provision of health care in Western Europe and is therefore prominently discussed in debates on the introduction of genetic technologies in national health care provision arrangements. However, solidarity is often defined in an essentialist and quantitative way, which does very little to show the complexities of and changes in health care allocation. In this paper we t…
Constructing embryos, constructing politics: Connecting politics and technology in the Netherlands and Germany
Institutionalised Representation as a Key for Democratised Science
Constructing access in predictive medicine. Comparing classification for hereditary breast cancer risks in England, Germany and the Netherlands
Constitutions of justice in genetic medicine: Distributing diagnostics for familial hypercholesterolemia in three European countries
While developments in genetic medicine are widely considered to bring forward pressing policy challenges, the question how genetic diagnostics are integrated into and distributed within existing health-care infrastructures has virtually been ignored. This paper addresses the distribution of genetic diagnostics through the framework of bioconstitutionalism, which suggests that basic categories for the allocation of rights and duties in law and pol…
Repositioning biological citizenship: State, population, and individual risk in the Framingham Heart Study
Challenging the “deficit model” of innovation: Framing policy issues under the innovation imperative
The translational lag narrative in policy discourse in the United States and the European Union: A comparative study
Whilst basic science rapidly produces new insights into the biological determinants of human health and disease, clinical innovation is often said to lag behind, as it fails to rapidly turn such knowledge into new tools for innovative patient care. This view of biomedical innovation constitutes a ‘translational lag narrative’, which is widely present in current research policy. This paper presents a qualitative content analysis of a corpus of doc…
One for All, All for One? Containing the Promise of Solidarity in Precision Medicine
This article addresses the challenges solidarity poses for the development of Precision Medicine (PM). Solidarity is invoked in calls for a new ‘social contract’ for PM, seeking to promote participation in PM by emphasizing reciprocity between contributions to and benefits from this new branch of medicine. In this context, there is a need for further conceptualization with regard to what qualifies as solidarity and how solidarity is performed in …
Ignorance and the paradoxes of evidence-based global health: The case of mortality statistics in India’s million death study
Quantitative evidence and metrics play a central role in contemporary global health. Mortality statistics, for example, are considered essential for improving health in the global South. Yet, many observers lament that reliable cause of death data is not available for many low- and middle-income countries. The Million Death Study (MDS) in India forms an effort to address this issue, seeking to reduce ignorance around mortality by generating repre…
Pennington Hugh (2022) Covid-19: The Postgenomic Pandemic
Infrastructuring European scientific integration: Heterogeneous meanings of the European biobanking infrastructure BBMRI–Eric
While transnational research infrastructure projects long preceded the formal integration process that created the European Union, their advancement is an increasingly central part of EU research policy and of European integration in general. This paper analyses the Biobanking and Biomolecular Resources Research Infrastructure-European Research Infrastructure Consortium (BBMRI-ERIC) as a recent example of institutionalized scientific collaboratio…
Samples Are Precious: Value Formations in the Potentiality and Practices of Biobanking in Singapore
Biobanking in Singapore is characterized by contested relations between funding ambitions and research practices, and different notions of what the (potential) value of storing samples and data for medical research is. Different biobanking efforts anticipate the production of public goods from stored materials in specifically situated ways. These efforts to produce public goods in the form of scientific and economic value can be fruitfully unders…
Mapping materials, drawing Europe: Sample and data quality and accessibility in the biobanking infrastructure BBMRI-Eric
The European biobanking infrastructure BBMRI-ERIC was established in the context of European Union science policy to facilitate collaboration between European repositories of biological samples and associated data, or so-called biobanks. To allow the exchange of research materials, the infrastructure has created several platforms for quality management and making materials visible and accessible. In this article, I develop the metaphor of mapping…
Enacting Protected Areas Through Monitoring: Knowledge Practices as Multispecies Spatiotemporal Achievements in Neusiedler See–Seewinkel National Park
Protected areas are seen as one of the primary instruments to halt biodiversity loss, but it is not always clear if a protected status designation contributes to the preservation of endangered species and ecosystems. One way to address the issue is through monitoring, the regular counting and measuring of 'nature'. However, more than merely representing nature in a protected area, monitoring enacts nature. In this article, I explore a specific pr…
Political science (13 works) · Law (9 works) · Sociology (9 works) · Law (7 works) · Biomedical Ethics and Regulation (6 works) · Computer Science (5 works) · Economics (5 works) · Engineering (5 works) · Ethics in Clinical Research (5 works) · Medicine (5 works)