Ulla-Karin Schön
Biographic Data
| ID | 5049673 |
|---|---|
| NAME | Ulla-Karin Schön |
| GIVEN NAMES | Ulla-Karin |
| FAMILY NAME | Schön |
| SIGNATURE | SCHÖN U |
| AFFILIATIONS | Stockholm University |
| ORCID | 0000-0002-3866-5636 |
| VERIFIED | Yes |
| TOTAL WORKS | 17 |
| TOTAL CITATIONS | 5 |
| WORKS AS AUTHOR | 17 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2009 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
Navigating shared decision making in community mental health services
This study examines staff perceptions of implementing Shared Decision Making (SDM) in Coordinated Individual Care Planning (CIP) in community mental health services. SDM promotes active service user involvement in planning support and treatment. The intervention was applied across three Swedish regions, each with a test site. Focus group interviews with trained psychiatric staff were analyzed using thematic analysis. Four themes emerged: learning…
Reaching the margins
This study examines outreach practices within a regional project in Sweden, aimed at supporting young people not in education, employment, or training (NEET). Drawing on Lipsky's theory of street-level bureaucracy, the study examines how frontline staff conceptualize and enact outreach, and how structural conditions shape its implementation. Data was collected through five focus group interviews with 46 practitioners and a document analysis. The …
What Is Shared in an Online Peer‐Support Group Run by Stroke Survivors? An Exploratory Study With a Participatory Approach
BACKGROUND: Many stroke survivors face disabilities that can have a substantial lifelong impact on both their own and their significant others' life situations. Online groups on social media can serve as forums for peer support among people sharing a common experience. However, there is limited knowledge about online peer-support groups for people living with the consequences of stroke that are initiated and managed by stroke survivors themselves…
Time, Trust, and Telling
This article explores how mental health professionals narrate successful experiences of implementing shared decision-making (SDM) within coordinated individual care planning (CIP) for adults with severe mental illness in Sweden. Drawing on narrative theory and the concepts of master and counter-narratives, the study analyzes two in-depth interviews with professionals who adopted a new SDM-oriented CIP model. While previous research has highlighte…
Discretion and Strategies for Investigating Child Abuse
Understanding the capacity of child welfare (CW) organisations to deal with child abuse is complex, and dependent on the specific CW context. Sweden occupies a unique position in trying to balance high demands for CW and protection with a strong family support focus, which carries a risk of overlooking children who need protection. Drawing on an understanding of social service organisations as street-level bureaucracies, this article explores dis…
Developing sustainable service user involvement practices in mental health services in Sweden
The knowledge gained through the co-production approach will be disseminated throughout the program years, targeting service users, welfare actors and the research community. Based on these research activities, our impact goals relate to strengthening the legitimacy of and methods for co-production in the mental health research and practice field
Managing a fragile motivation within an unfit organisation
This article explores subjective realities of being not in employment, education or training (NEET), with a specific focus on support needs and how labour market support fits these needs. A total of 23 semi-structured interviews were conducted with participants aged 18–29 who had just been recruited to a work support program aimed at increasing the availability, coordination, and individualisation of support in order to enhance the possibility of…
Exploring stakeholder perspectives to facilitate the implementation of shared decision-making in coordinated individual care planning
This article explores conditions for implementing shared decision-making (SDM) in coordinated individual care planning (CIP) with individuals with complex mental health needs.SDM in CIP are described as central, although such user centred collaboration still remains to be realised.Research underlines the need for a changed way of working, where user expertise is valued and a balance of power is promoted.The aim of the present study is to investig…
Exploring the Sharing and Legitimacy of Experience-Based Knowledge of Living with Acquired Brain Injury in Two Practice Communities
Background. Involving people with acquired brain injury in service development has the potential to improve service and give experience-based knowledge legitimacy. The objective of this study was to explore experiences of sharing experience-based knowledge of living with acquired brain injury with others, with a particular focus on the conditions for sharing and learning, and the legitimacy of experience-based knowledge. Materials and Methods. Us…
Introduction to Academic Papers Section
In keeping with the ethics of this special issue, we sought to attract academic papers of the same quality and integrity as those published regularly in the journal, the key differentiation being that a person with lived experience of social work had to be the lead or solo author.The vast majority of academic papers accepted for peer-reviewed social work journals are from practising academics, with very few practitioners, and even less people wit…
Legitimizing user knowledge in mental health services
Including the voices and knowledge of service users is essential for developing recovery-oriented and evidence-based mental health services. Recent studies have however, suggested that challenges remain to the legitimization of user knowledge in practice. To further explore such challenges, a co-production study was conducted by a team of researchers and representatives from user organizations in Sweden. The aim of the study was to explore the ba…
Staff’s experiences of implementing patient-initiated brief admission for adolescents from the perspective of epistemic (in)justice
This article offers insights into the views of psychiatric staff regarding the implementation of PIBA. If staff wish to support epistemic agency and recovery among adolescents, their agency may be an important aspect in the continued implementation. Furthermore, in order for PIBA to become normalized in a sustainable way, we suggest that the continued implementation should be characterized by a youth-friendly framework
Perceptions of participation
User participation is increasingly emphasised in policies guiding social services. However, translating policy into practice is fraught with difficulties. The staff’s approaches to user participation are crucial for the users’ opportunities to participate in decision-making, particularly for users with extensive care needs and reduced autonomy. The aim of this article is to explore how nursing home staff and managers perceive the participation of…
Coordinated individual care planning and shared decision making
Integrated treatment is recommended for users with a comorbidity of mental illness and substance misuse. However, due to a divided support system, coordinated individual care planning (CIP) and user participation are emphasised to provide users with the necessary support. One way of increasing user participation is through shared decision making. However, the challenges are evident why coordination and user participation are not used in practice …
Parenthood in transition – Somali-born parents’ experiences of and needs for parenting support programmes
BACKGROUND: Pre- and post-migration trauma due to forced migration may impact negatively on parents' ability to care for their children. Little qualitative work has examined Somali-born refugees' experiences. The aim of this study is to explore Somali-born refugees' experiences and challenges of being parents in Sweden, and the support they need in their parenting. METHODS: A qualitative descriptive study was undertaken. Data were collected from …
The power of identification
Peer support has been described as facilitating individuals' recovery from mental illness and offering useful support, hope and encouragement. The aim of this study was to explore how individuals with experience of severe mental illness in Sweden perceived peer support facilitating their recovery. The results from the grounded theory analysis of 27 in-depth interviews illustrated that despite diagnoses of severe mental illness, often described in…
Social Relationships as a Decisive Factor in Recovering From Severe Mental Illness
Background: Recovery research often describes recovery from mental illness as a complex individual process. In this article a social perspective on recovery is developed. Aims: To ascertain which factors people regard as decisive to their own recovery and what makes them beneficial. Methods: In-depth interviews were conducted with 58 persons in Sweden who had recovered from severe mental illness. Interviews were qualitatively analyzed using groun…
Perceptions of participation
User participation is increasingly emphasised in policies guiding social services. However, translating policy into practice is fraught with difficulties. The staff’s approaches to user participation are crucial for the users’ opportunities to participate in decision-making, particularly for users with extensive care needs and reduced autonomy. The aim of this article is to explore how nursing home staff and managers perceive the participation of…
The power of identification
Peer support has been described as facilitating individuals' recovery from mental illness and offering useful support, hope and encouragement. The aim of this study was to explore how individuals with experience of severe mental illness in Sweden perceived peer support facilitating their recovery. The results from the grounded theory analysis of 27 in-depth interviews illustrated that despite diagnoses of severe mental illness, often described in…
Coordinated individual care planning and shared decision making
Integrated treatment is recommended for users with a comorbidity of mental illness and substance misuse. However, due to a divided support system, coordinated individual care planning (CIP) and user participation are emphasised to provide users with the necessary support. One way of increasing user participation is through shared decision making. However, the challenges are evident why coordination and user participation are not used in practice …
Social Relationships as a Decisive Factor in Recovering From Severe Mental Illness
Background: Recovery research often describes recovery from mental illness as a complex individual process. In this article a social perspective on recovery is developed. Aims: To ascertain which factors people regard as decisive to their own recovery and what makes them beneficial. Methods: In-depth interviews were conducted with 58 persons in Sweden who had recovered from severe mental illness. Interviews were qualitatively analyzed using groun…
The power of identification
Peer support has been described as facilitating individuals' recovery from mental illness and offering useful support, hope and encouragement. The aim of this study was to explore how individuals with experience of severe mental illness in Sweden perceived peer support facilitating their recovery. The results from the grounded theory analysis of 27 in-depth interviews illustrated that despite diagnoses of severe mental illness, often described in…
Parenthood in transition – Somali-born parents’ experiences of and needs for parenting support programmes
BACKGROUND: Pre- and post-migration trauma due to forced migration may impact negatively on parents' ability to care for their children. Little qualitative work has examined Somali-born refugees' experiences. The aim of this study is to explore Somali-born refugees' experiences and challenges of being parents in Sweden, and the support they need in their parenting. METHODS: A qualitative descriptive study was undertaken. Data were collected from …
Coordinated individual care planning and shared decision making
Integrated treatment is recommended for users with a comorbidity of mental illness and substance misuse. However, due to a divided support system, coordinated individual care planning (CIP) and user participation are emphasised to provide users with the necessary support. One way of increasing user participation is through shared decision making. However, the challenges are evident why coordination and user participation are not used in practice …
Legitimizing user knowledge in mental health services
Including the voices and knowledge of service users is essential for developing recovery-oriented and evidence-based mental health services. Recent studies have however, suggested that challenges remain to the legitimization of user knowledge in practice. To further explore such challenges, a co-production study was conducted by a team of researchers and representatives from user organizations in Sweden. The aim of the study was to explore the ba…
Staff’s experiences of implementing patient-initiated brief admission for adolescents from the perspective of epistemic (in)justice
This article offers insights into the views of psychiatric staff regarding the implementation of PIBA. If staff wish to support epistemic agency and recovery among adolescents, their agency may be an important aspect in the continued implementation. Furthermore, in order for PIBA to become normalized in a sustainable way, we suggest that the continued implementation should be characterized by a youth-friendly framework
Perceptions of participation
User participation is increasingly emphasised in policies guiding social services. However, translating policy into practice is fraught with difficulties. The staff’s approaches to user participation are crucial for the users’ opportunities to participate in decision-making, particularly for users with extensive care needs and reduced autonomy. The aim of this article is to explore how nursing home staff and managers perceive the participation of…
Developing sustainable service user involvement practices in mental health services in Sweden
The knowledge gained through the co-production approach will be disseminated throughout the program years, targeting service users, welfare actors and the research community. Based on these research activities, our impact goals relate to strengthening the legitimacy of and methods for co-production in the mental health research and practice field
Managing a fragile motivation within an unfit organisation
This article explores subjective realities of being not in employment, education or training (NEET), with a specific focus on support needs and how labour market support fits these needs. A total of 23 semi-structured interviews were conducted with participants aged 18–29 who had just been recruited to a work support program aimed at increasing the availability, coordination, and individualisation of support in order to enhance the possibility of…
Exploring stakeholder perspectives to facilitate the implementation of shared decision-making in coordinated individual care planning
This article explores conditions for implementing shared decision-making (SDM) in coordinated individual care planning (CIP) with individuals with complex mental health needs.SDM in CIP are described as central, although such user centred collaboration still remains to be realised.Research underlines the need for a changed way of working, where user expertise is valued and a balance of power is promoted.The aim of the present study is to investig…
Exploring the Sharing and Legitimacy of Experience-Based Knowledge of Living with Acquired Brain Injury in Two Practice Communities
Background. Involving people with acquired brain injury in service development has the potential to improve service and give experience-based knowledge legitimacy. The objective of this study was to explore experiences of sharing experience-based knowledge of living with acquired brain injury with others, with a particular focus on the conditions for sharing and learning, and the legitimacy of experience-based knowledge. Materials and Methods. Us…
Introduction to Academic Papers Section
In keeping with the ethics of this special issue, we sought to attract academic papers of the same quality and integrity as those published regularly in the journal, the key differentiation being that a person with lived experience of social work had to be the lead or solo author.The vast majority of academic papers accepted for peer-reviewed social work journals are from practising academics, with very few practitioners, and even less people wit…
Discretion and Strategies for Investigating Child Abuse
Understanding the capacity of child welfare (CW) organisations to deal with child abuse is complex, and dependent on the specific CW context. Sweden occupies a unique position in trying to balance high demands for CW and protection with a strong family support focus, which carries a risk of overlooking children who need protection. Drawing on an understanding of social service organisations as street-level bureaucracies, this article explores dis…
What Is Shared in an Online Peer‐Support Group Run by Stroke Survivors? An Exploratory Study With a Participatory Approach
BACKGROUND: Many stroke survivors face disabilities that can have a substantial lifelong impact on both their own and their significant others' life situations. Online groups on social media can serve as forums for peer support among people sharing a common experience. However, there is limited knowledge about online peer-support groups for people living with the consequences of stroke that are initiated and managed by stroke survivors themselves…
Time, Trust, and Telling
This article explores how mental health professionals narrate successful experiences of implementing shared decision-making (SDM) within coordinated individual care planning (CIP) for adults with severe mental illness in Sweden. Drawing on narrative theory and the concepts of master and counter-narratives, the study analyzes two in-depth interviews with professionals who adopted a new SDM-oriented CIP model. While previous research has highlighte…
Navigating shared decision making in community mental health services
This study examines staff perceptions of implementing Shared Decision Making (SDM) in Coordinated Individual Care Planning (CIP) in community mental health services. SDM promotes active service user involvement in planning support and treatment. The intervention was applied across three Swedish regions, each with a test site. Focus group interviews with trained psychiatric staff were analyzed using thematic analysis. Four themes emerged: learning…
Reaching the margins
This study examines outreach practices within a regional project in Sweden, aimed at supporting young people not in education, employment, or training (NEET). Drawing on Lipsky's theory of street-level bureaucracy, the study examines how frontline staff conceptualize and enact outreach, and how structural conditions shape its implementation. Data was collected through five focus group interviews with 46 practitioners and a document analysis. The …
Psychology (12 works) · Mental Health and Patient Involvement (11 works) · Mental health (9 works) · Political science (9 works) · Sociology (8 works) · Qualitative research (7 works) · Computer Science (6 works) · Medicine (6 works) · Public relations (6 works) · Knowledge management (5 works)