Martha A Grootenhuis

Biographic Data

ID	5134453
NAME	Martha A Grootenhuis
GIVEN NAMES	Martha A
FAMILY NAME	Grootenhuis
SIGNATURE	GROOTENHUIS M A
AFFILIATIONS	Emma Kinderziekenhuis
ORCID	0000-0002-9632-248X
VERIFIED	Yes
TOTAL WORKS	23
TOTAL CITATIONS	0
AUTHOR COUNT	23
EDITOR COUNT	0
FIRST PUBLICATION YEAR	2002
LATEST PUBLICATION YEAR	2024
H-INDEX	0

Truth and dare: Patients dare to tell the truth when using PROMs in clinical practice
Open AccessLotte Haverman, Michiel A J Luijten et al.ARTICLEQuality of Life Research2024
This study does not support the hypothesis that patients systematically bias their PROM responses if they know that clinicians will see their results. These findings support using PROMs in clinical practice as a valid mechanism to promote patient-centered care
Monitoring health related quality of life in survivorship care of young adult survivors of childhood cancer using web-based patient-reported outcome measures: Survivors’ and health care practitioners’…
Open AccessAnne Maas, Heleen Maurice‐Stam et al.ARTICLEQuality of Life Research2023
The KLIK method is a feasible and valuable tool to systematically monitor and discuss HRQOL in survivorship care. Integration of the KLIK method within the organization is essential, with structural support in reminding CCSs to complete questionnaires
Including the voice of paediatric patients: Cocreation of an engagement game
Open AccessLorynn Teela, Lieke E Verhagen et al.ARTICLEHealth Expectations2022
BACKGROUND: Engaging patients in health care, research and policy is essential to improving patient-important health outcomes and the quality of care. Although the importance of patient engagement is increasingly acknowledged, clinicians and researchers still find it difficult to engage patients, especially paediatric patients. To facilitate the engagement of children and adolescents in health care, the aim of this project is to develop an engage…
Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) pediatric item bank peer relationships in the Dutch general population
Open AccessMichiel A J Luijten, Raphaële R L van Litsenburg et al.ARTICLEQuality of Life Research2021
The pediatric PROMIS Peer Relationships item bank was successfully validated for use within the Dutch population and reference data are now available
Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal
Open AccessMaud M van Muilekom, Lorynn Teela et al.ARTICLEQuality of Life Research2021
Patients and parents are generally satisfied with KLIK, however, points of improvement were mentioned. These are currently being addressed by e.g., upgrading the KLIK website, implementing PROMIS item banks in KLIK to reduce irrelevancy and repetitiveness of PROMs, and implementation strategies to improve the discussion-rate. In this way, implementation of the KLIK PROM portal can be further optimized, with the ultimate goal to improve quality of…
Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention
Open AccessMiriam Douma, Charlotte P Bouman et al.ARTICLEMaternal and Child Health Journal2020
Parents have a need for psychosocial support focusing on different themes. Professionals should explain and demonstrate an online intervention to parents. Based on these results, Op Koers Online for parents was developed. An RCT to assess feasibility and effectiveness of the intervention is currently running
A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR)
Open AccessHedy A van Oers, Lorynn Teela et al.ARTICLEQuality of Life Research2020
Using an implementation science framework, e.g., CFIR, is recommended for groups starting to use PROMs in clinical care as it offers a structured approach and provides insight into possible enablers and barriers
Clinicians’ perspective on the implemented KLIK PROM portal in clinical practice
Open AccessLorynn Teela, Maud M van Muilekom et al.ARTICLEQuality of Life Research2020
Participating clinicians are generally satisfied with KLIK. Improvements to the KLIK PROM portal are now realized based on the mentioned disadvantages (e.g., shorten PROM completion by use of PROMIS and integrating KLIK with Electronic Health Records)
Determinants of health-related quality of life proxy rating disagreement between caregivers of children with cancer
Open AccessNiki Rensen, Lindsay M H Steur et al.ARTICLEQuality of Life Research2019
If proxy reports of only one parent are available, clinicians may reasonably assume that paternal and maternal reports are interchangeable. However, if in doubt, respondent's sex is not of major importance, but clinicians should be aware of patient's and family's characteristics
Short and Long-Term Parental Posttraumatic Stress After a Child’s Accident: Prevalence and Associated Factors
Open AccessEls P M van Meijel, Maj R Gigengack et al.ARTICLEChild Psychiatry & Human…2019
Studies on the long-term prevalence of parental posttraumatic stress symptoms (PTSS) following child accidental injury are scarce, and findings on risk factors vary. In this follow-up study (T2, n = 69) we determined the prevalence of parental PTSS 2-4 years after accidental injury of their child, compared with 3 months after the accident (T1, n = 135). Additionally, we examined the association between parental and child factors and PTSS severity…
Options for the Interpretation of and Recommendations for Acting on Different PROMs in Daily Clinical Practice Using KLIK
Lotte Haverman, Hedy A van Oers et al.ARTICLEMedical Care2019References: 28
INTRODUCTION: This paper describes the different ways in which information is being fed back to health care providers (HCPs) using the Dutch evidence-based KLIK Patient-Reported Outcome Measures (PROMs) portal (www.hetklikt.nu). KLIK was initially developed for children with a chronic illness and their parents, and recently expanded for use in adult health care. Patients complete online PROMs at home about their health-related quality of life (HR…
Healthy play, better coping: The importance of play for the development of children in health and disease
Open AccessSanne L Nijhof, Christiaan H Vinkers et al.ARTICLENeuroscience & Biobehavioral…2018
Play is of vital importance for the healthy development of children. From a developmental perspective, play offers ample physical, emotional, cognitive, and social benefits. It allows children and adolescents to develop motor skills, experiment with their (social) behavioural repertoire, simulate alternative scenarios, and address the various positive and negative consequences of their behaviour in a safe and engaging context. Children with a chr…
Children on dialysis as well as renal transplanted children report severely impaired health-related quality of life
Open AccessAnouck Splinter, Lidwien Tjaden et al.ARTICLEQuality of Life Research2018
Dialysis and renal transplantation both have a severe impact on the HRQoL of children with ESRD. Physicians should be aware of this continuous burden. Furthermore, to develop tailored interventions for children with ESRD, qualitative studies are needed to gain more insight in the determinants of HRQoL in the different treatment modalities
Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders
Open AccessPerrine F Limperg, Lotte Haverman et al.ARTICLEQuality of Life Research2017
This study demonstrates some impairments in HRQOL and self-esteem in YA men with bleeding disorders. By monitoring HRQOL, problems can be identified early, especially with regard to their physical and professional/school functioning
Dutch normative data and psychometric properties for the Distress Thermometer for Parents
Open AccessHedy A van Oers, Sasja A Schepers et al.ARTICLEQuality of Life Research2016
The DT-P distinguishes well between parents of a child with and without a chronic condition. With the current norms available, distress can be evaluated in parents of a child with a chronic condition compared to parents of healthy children in pediatric clinical practice
Dutch–Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®
Open AccessLotte Haverman, Martha A Grootenhuis et al.ARTICLEQuality of Life Research2015
The Dutch-Flemish PROMIS items are linguistically equivalent to the original USA version. Short forms are now available for use, and entire item banks are ready for cross-cultural validation in the Netherlands and Flanders
Psychosocial profile of pediatric brain tumor survivors with neurocognitive complaints
Open AccessMarieke Anna de Ruiter, Antoinette Yvonne Narda Schouten-van Meeteren et al.ARTICLEQuality of Life Research2015
Systematic screening of psychosocial functioning is necessary so that tailored support from professionals can be offered to PBTS with neurocognitive complaints
Training clinicians in how to use patient-reported outcome measures in routine clinical practice
Open AccessMaria Santana, Lotte Haverman et al.ARTICLEQuality of Life Research2015
Anxiety and Depression in Mothers and Fathers of a Chronically Ill Child
Open AccessHedy A van Oers, Lotte Haverman et al.ARTICLEMaternal and Child Health Journal2014
Psychometric properties and Dutch norm data of the PedsQL Multidimensional Fatigue Scale for Young Adults
Open AccessLotte Haverman, Perrine F Limperg et al.ARTICLEQuality of Life Research2014
Innovations in e-health
Open AccessPaul Wicks, Jon Stamford et al.ARTICLEQuality of Life Research2013
The theme of ISOQOL's 19th Annual Conference in Budapest, Hungary, was The Journey of Quality of Life Research: A Path Towards Personalized Medicine. Innovations in e-health was one of four plenary panels. E-health is changing the landscape of clinical practice and health care, but the best way to leverage the many promised benefits of emerging e-health technologies is still not clear. The Innovations in e-health panel presented emerging changes …
Coping Strategies and Quality of Life of Adolescents with Inflammatory Bowel Disease
Open AccessHester J van der Zaag–Loonen, H J van der Zaag-Loonen et al.ARTICLEQuality of Life Research2004
Measuring quality of life in children with inflammatory bowel disease: The Impact-II (NL)
Open AccessHester J van der Zaag–Loonen, H J Loonen et al.ARTICLEQuality of Life Research2002